Bernadette

July 20, 1999

In a message dated 7/20/99 7:45:30 AM Eastern Daylight Time,

cheryl@... writes:

<< Hey B,

How come I feel like anytime *anyone* shares anything on this list, if even

just for educational reasons, you are right there to jump down their throats?

>>

because you are taking it the wrong way..and if someone is going to state

that I myself feel something and I know I don't...then I have to rebut it

Bernadette

July 20, 1999

Hey B,

How come I feel like anytime *anyone* shares anything on this list, if even just

for educational reasons, you are right there to jump down their throats?

Is the thyroid the only associated condition that we are allowed to talk about?

Cheryl

PS Please do not continue to respond to my posts. Just ignore them.

December 23, 2000

Hi Bernadette,

I would call your local cheap doc office and ask them. They can tell you if it is something to worry about and then make an appt. That is what I do!

Lori

December 28, 2000

Hi Lori,

Still monitoring my daughter. Thank you for your concern. With the holiday's

now over I am glad to say since my fast of 40-50 days. I have not put on a

single pound and lost another two pounds. I will begin fasting a again next

week and hop for another zoom of energy and well being. If I am unable to

finish my weight loss and be satisfied with my energy level then I will head

to the Optimum Health Resort.

In the mean time I have been steadily drinking carrot apple juice. In the

Champion with Press it is wonderful. Yet, I am studying the sprout

discussion. I am adding a daily dose of fresh grass. My son bought me the

Sproutman's book on wheatgrass and this is what I am adding on this fast and

Lord willing, daily routine of life.

Bernadette

> Hi Bernadette,

>

> How is your daughter doing? Is the Green gone?

>

> How much juice do you drink a day? What types of juice do you like? Is

> carrot one of the best??

>

> Thank you

> Lori

> -

>

> Subscription email:

> mailto:bowel cleanse-subscribeegroups

>

March 29, 2001

I would love to hear about Bernadette's trip. Does anyone remember her

e-mail address? I wonder if she dropped off the forum. Maybe we could lure

her back!

Marsha <>{

April 9, 2001

Christel,

San Diego was remarkable. I was completely heale!. If you are sick..GO!

Blessings

Hi Bernadette. Have not seen your name in a long time. How was San Diego?christelSubscription email: mailto:bowel cleanse-subscribe

October 23, 2003

Hi Bernadette!

How did your fitting go? I have been thinking about you and hoping

all went well! Let us know when you get a chance.

- mom to Aidan

STARband 8/26/03

GR Mi

October 19, 2006

hi bernedette same was here for mark no walking talking eating

swallowing and feeding tube still has the tube but we are feeding him

some food not walking but at least his legs are getting feeling back and

movement the talking was problem because of being treked last year but

when we suction him he can make sounds and knows he has a voice for now he

whispers but on occassion he will talk.

i cut his tube feeding down and he lost weight that has helped his

breathing and heart i believe.i will gladly write a list of his vitamins for

you.

we give blueberries i/2 pint blended daily put in tube he gets b complex

magnesium ascorbflex 1000 flax seed oil, vit d 3, vit e , bone assure ,

viocase powder for stomach with cod liver oil, biosil ,and co q 10 and

nutriceutical compound #2 it has everything in it he takes 16 caps daily

6-5-5 our alternative doctor had it compounded for his patients

he says we dont need to use can formula because marks getting everything his

body needs with these vitamins he says just fix food blend it in blender

and put in tube for several months after comming home mark did not try

to talk much but these days hes so alert and not tired at all so hes

talking or trying to talk alot. first month did not see much with ldn but

then i noticed he could focus his thoughts better and his demeaner seamed

different. i tell him everyday how well hes doing and that the ldn is really

working, i see it. we also give him prune juice and vegetable juice in

tube lots of water,cranberry juice, and his vitamins are split up in 6

doses daily.did i tell ya he looks 10 yrs or more younger these days. we

plan on getting mercury teeth removed next month and are gonna ck into

different type of tube. all meds go thru tube. how long has your brother

had a tube? when was his last berian swallow test? have you tried soft

food? we give mark eggs but try to keep away from most dairy but he does

love eggs and ketchup we also do the inside of a bean buritto and on

occassion a little icecream or pudding. today he had hot dog chili i

lied and told him it was regular chili but it was not it came from a can.

he is getting an attitude these days also if he cant have something he

likes to drink hed rather not have anything. he does not like v-8 and that

was all i was willing to try him on today.i tell him baby steps we are

taking baby steps. for awhile it seemed we were taking 2 steps forward and

1 step backward and ea backward step was getting worse so now its slow

and steady baby steps. our doctor once told us I CAN NOT CURE MS BUT I

CAN REVERSE MOST OF THE DAMAGE he is so right and now the ldn is helping

what vitamins could not. is patty on a cath? mark uses condom cath better

then foley less utis and easy to put on.I hope you have help with his care

i could not do it alone if we did not have aides to releave me. good luck

with brother tell paddy i will keep him in our prayers. write anytime

millar505@... nmillar505@...

>From: Bernadette MacFarland <macfarlandbernadette@...>

>Reply-low dose naltrexone

>low dose naltrexone

>Subject: Re: [low dose naltrexone] Re: Side Effects of LDN

>Date: Wed, 18 Oct 2006 11:14:35 +0100 (BST)

>

>Hi

>

> What can I say. Your letter was so uplifting and positive. It is good

>to hear of positive results on LDN. My brother can no longer walk, talk,

>eat, or swallow and is fed through a tube. He has only been on LDN for

>three weeks and we have yet to see any improvement in his condition. Like

>most people we want to see immediate results, but we know this will not

>happen overnight.

>

> Can you tell me what vitamins your brother is taking.

>

> I am so glad to know your brother has improved to such an extent, here's

>hoping Paddy will travel the same road.

>

> Again, many thanks

>

> Bernadette (Derry, Northern Ireland)

>

>nancy millar <millar505@...> wrote:

> hi bernadette my brothers got ms but his progression was severe.

>i can tell

>ya that 8 months ago he was sent home from hospital on feeding tube with no

>good outcome. today after4 months on ldn he can move his legs,feel pain

>and tickling, he can swallow and is starting to talk again,his bladder is

>starting to work again, his breathing is better and no need for oxygen and

>heart seems to be doing better,his concentration better hes more awake and

>alert his motor skills have improved.it is like his ms has gone into

>remission and everything is going in reverse!!!! he even looks 10 yrs

>younger then he did a yr ago. i believe its his vitamin regimine and the

>ldn. hes only taking 3 mg. improvement will happen. brother has not

>walked in yrs but he will walk by next yr.he was in final stages of

>progressive ms.last yr he was on life support once and early in yr he was

>also on the vent. now hes on very little meds and mostly alternative hes

>eating soft foods also and no UTIS so far this yr!!! good luck with

>brother.

>nancy millar

>

> >From: Bernadette MacFarland <macfarlandbernadette@...>

> >Reply-low dose naltrexone

> >low dose naltrexone

> >Subject: Re: [low dose naltrexone] Re: Side Effects of LDN

> >Date: Tue, 17 Oct 2006 13:50:24 +0100 (BST)

> >

> >Hi Bren

> >

> > Just spoke to my brother's pharmacist and he told me we should only be

> >giving him 4.5 mg. Whoever printed the label on the bottle made a

>mistake,

> >however, he pointed out that the extra amount would not harm him in any

> >way, it was just a waste of the liquid. Paddy is being treated with

> >anit-histamines at present, so hopefully the symptons should ease. Many

> >thanks for your help and advice.

> >

> > Bernadette

> >

> >Bren <b63powell@...> wrote:

> >

> > > >

> > > > Hi Everyone

> > > >

> > > > Can anyone tell me if

> >they are experiencing

> >itchiness from taking LDN.

> > > My brother who is

> >suffering from Motor

> >Neurone Disease (LGD/ALS)

> >is now

> > > taking 5 mg. Would the

> >increase in dosage bring

> >about this itchiness. To

> > > date we have not seen

> >any improvement in my

> >brother, but we are hoping

> > > it is early days. I

> >would appreciate hearing

> >from anyone suffering from

> > > Motor Neurone Disease

> >(LGD/ALS) who is finding

> >taking LDN beneficial to

> > > them and in what areas

> >they found an improvement.

> > > >

> > > > Bernadette

> > > >

> >=========

> >

> >BTW, why is he taking 5mg

> >of LDN? He should not be

> >taking over 4.5mg.

> >

> > Send instant messages to your online friends

> >http://uk.messenger.

>

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October 19, 2006

Hi - thanks for all the information re: vitamins and progress. Unfortunately Paddy's Motor Neurone Disease (ALS) is very rapid and we are clutching at straws. But with all the advice from this support group we are not just as negative and live in hope for some improvement with Paddy, however, we must be aware of never losing sight of reality, but hope can carry you through the bad days. With God's help and the help of all who have been involved with Paddy's care, we will get through this. I will keep in touch with you as regards to his condition, hopefully we will experience something positive soon. Pass on my good wishes to Mark, brilliant news. Bernadettenancy millar <millar505@...> wrote: hi bernedette same was here for mark no walking talking

eating swallowing and feeding tube still has the tube but we are feeding him some food not walking but at least his legs are getting feeling back and movement the talking was problem because of being treked last year but when we suction him he can make sounds and knows he has a voice for now he whispers but on occassion he will talk.i cut his tube feeding down and he lost weight that has helped his breathing and heart i believe.i will gladly write a list of his vitamins for you.we give blueberries i/2 pint blended daily put in tube he gets b complex magnesium ascorbflex 1000 flax seed oil, vit d 3, vit e , bone assure , viocase powder for stomach with cod liver oil, biosil ,and co q 10 and nutriceutical compound #2 it has everything in it he takes 16 caps daily 6-5-5 our alternative doctor had it compounded for his patientshe says we dont need to use can formula because marks getting everything his body needs with

these vitamins he says just fix food blend it in blender and put in tube for several months after comming home mark did not try to talk much but these days hes so alert and not tired at all so hes talking or trying to talk alot. first month did not see much with ldn but then i noticed he could focus his thoughts better and his demeaner seamed different. i tell him everyday how well hes doing and that the ldn is really working, i see it. we also give him prune juice and vegetable juice in tube lots of water,cranberry juice, and his vitamins are split up in 6 doses daily.did i tell ya he looks 10 yrs or more younger these days. we plan on getting mercury teeth removed next month and are gonna ck into different type of tube. all meds go thru tube. how long has your brother had a tube? when was his last berian swallow test? have you tried soft food? we give mark eggs but try to keep away from most dairy but he does love eggs

and ketchup we also do the inside of a bean buritto and on occassion a little icecream or pudding. today he had hot dog chili i lied and told him it was regular chili but it was not it came from a can. he is getting an attitude these days also if he cant have something he likes to drink hed rather not have anything. he does not like v-8 and that was all i was willing to try him on today.i tell him baby steps we are taking baby steps. for awhile it seemed we were taking 2 steps forward and 1 step backward and ea backward step was getting worse so now its slow and steady baby steps. our doctor once told us I CAN NOT CURE MS BUT I CAN REVERSE MOST OF THE DAMAGE he is so right and now the ldn is helping what vitamins could not. is patty on a cath? mark uses condom cath better then foley less utis and easy to put on.I hope you have help with his care i could not do it alone if we did not have aides to releave me. good luck

with brother tell paddy i will keep him in our prayers. write anytime millar505@... nmillar505@...>From: Bernadette MacFarland >Reply-low dose naltrexone >low dose naltrexone >Subject: Re: [low dose naltrexone] Re: Side Effects of LDN>Date: Wed, 18 Oct 2006 11:14:35 +0100 (BST)>>Hi >> What can I say. Your letter was so uplifting and positive. It is good >to hear of positive results on LDN. My brother can no longer walk, talk, >eat, or swallow and is fed through a tube. He has only been on LDN for >three weeks and we have yet to see any improvement in his condition. Like >most people we want to see immediate results, but we know this will not >happen overnight.>> Can you tell me what vitamins your brother is taking.>> I am so glad to know your brother has

improved to such an extent, here's >hoping Paddy will travel the same road.>> Again, many thanks >> Bernadette (Derry, Northern Ireland)>>nancy millar wrote:> hi bernadette my brothers got ms but his progression was severe. >i can tell>ya that 8 months ago he was sent home from hospital on feeding tube with no>good outcome. today after4 months on ldn he can move his legs,feel pain>and tickling, he can swallow and is starting to talk again,his bladder is>starting to work again, his breathing is better and no need for oxygen and>heart seems to be doing better,his concentration better hes more awake and>alert his motor skills have improved.it is like his ms has gone into>remission and everything is going in reverse!!!! he even looks 10 yrs>younger then he did a yr ago. i believe its his vitamin regimine and the>ldn. hes only

taking 3 mg. improvement will happen. brother has not>walked in yrs but he will walk by next yr.he was in final stages of>progressive ms.last yr he was on life support once and early in yr he was>also on the vent. now hes on very little meds and mostly alternative hes>eating soft foods also and no UTIS so far this yr!!! good luck with>brother.>nancy millar>> >From: Bernadette MacFarland > >Reply-low dose naltrexone > >low dose naltrexone > >Subject: Re: [low dose naltrexone] Re: Side Effects of LDN> >Date: Tue, 17 Oct 2006 13:50:24 +0100 (BST)> >> >Hi Bren> >> > Just spoke to my brother's pharmacist and he told me we should only be> >giving him 4.5 mg. Whoever printed the label on the bottle made a >mistake,> >however, he pointed out that the

extra amount would not harm him in any> >way, it was just a waste of the liquid. Paddy is being treated with> >anit-histamines at present, so hopefully the symptons should ease. Many> >thanks for your help and advice.> >> > Bernadette> >> >Bren wrote:> > > > > >> > > > Hi Everyone> > > >>

> > > Can anyone tell me if> >they are experiencing> >itchiness from taking LDN.> > > My brother who is> >suffering from Motor> >Neurone Disease (LGD/ALS)> >is now> > > taking 5 mg. Would the> >increase in dosage bring> >about this itchiness. To> > > date we have not seen> >any improvement in my> >brother, but we are hoping> > > it is early days. I> >would appreciate hearing> >from anyone suffering from> > > Motor Neurone Disease> >(LGD/ALS) who is finding> >taking LDN beneficial to> > > them and in what areas> >they found an improvement.> > > >> > > > Bernadette> > > >> >=========> >> >BTW, why is he taking 5mg> >of LDN? He should not be> >taking over

4.5mg.> >> >> >> >> >> >> >> > Send instant messages to your online friends> >http://uk.messenger.>>__________________________________________________________>Get FREE company branded e-mail accounts and business Web site from>Microsoft Office Live>http://clk.atdmt.com/MRT/go/mcrssaub0050001411mrt/direct/01/>>>>>>>---------------------------------> Try the all-new . "The New Version is radically easier to >use" – The Wall Street Journal_________________________________________________________________Get today's hot entertainment gossip http://movies.msn.com/movies/hotgossip?icid=T002MSN03A07001

October 19, 2006