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Re: I Need Your Opinions

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Thanks, !

> >

> > Hi all,

> > I am pondering ideas to make things that persons with LBD can use. I

recently purchased a 'rice pack' that you put in the microwave and it warms up

to help ease aches/pains and also provide a warm base in a dog's bed to keep

them warm (that is why I bought it). As I looked at that item, I was thinking

that would be a good item for the elderly and those with LBD (and those living

where there is so much now right now).

> >

> > So...I thought about making some small - perhaps 2 or 3 inches across -

rolls with the rice in it. Then it could be put in the microwave and then

placed in the grip of the cold hands. I seem to remember when my Grandma was in

a nursing home, that they used to put a rolled up wash cloth or something in her

hand (she had arthritis and also strokes).

> >

> > If you all think that this is a good idea, I was thinking of making a lot of

these (I am still able to do that much) and then the difference between the cost

of the item would be donated to the Lewy Body Association.

> >

> > My mom was just in the mild/moderate stage of LBD so I don't know if there

would be other uses for this heated rice pack. I do know that Mom was Cold

almost all of the time. Perhaps a pack that fits inside a pocket on a shawl, or

a pack that fits in the pocket of a lap blanket?

> >

> > I do appreciate any comments that you have,

> >

> > Hugs and prayers,

> >

> > Joan

> >

>

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I would probably start with my Caregiver Support Group, and the Assisted Living

and Nursing homes that I visit to distribute my business cards and LBD info. I

could probably make a flyer that could be kept for people to call me.

I wouldn't start out making a thousand of them because I am on permanent

disability and it doesn't even pay my bills.

Just thought maybe there are things to help those with LBD and other folks in

the AL and NH. I am sure that I could find many other ideas from you all out

there!

>

> Joan,

>

> I guess safety might be an issue. If someone decided to see what was inside

and chewed or dug at it to unwrap it. And then ate the rice.

>

> I made a Muff for my Aunt while she was in a NH and the first thing they did

was cut the loop off I had put on it to help her keep track of it by just

putting it around her neck. She never lost it even without the loop! As a

matter of fact she use to wipe her nose on it so they washed it a lot. And they

couldn't send it down to the laundry because she wouldn't give it to them. So

they had to wash it on the floor where she lived. What was so funny is when she

died, there were a few women there who wondered what was going to become of her

muff. (They weren't to concerned about her.) One of them got it. I made it out

of the fleece stuff that is so popular so it must have been warm.

>

> Do you have a NH close to sell them at? Or how would you distribute them.

(Just playing the devils advocate.)

>

> Hugs,

>

> Donna R

>

> Cared for Mom 3 years in my home and the last year at a nh. She passed away

from LBD in 2002.

>

>

> I Need Your Opinions

>

> Hi all,

> I am pondering ideas to make things that persons with LBD can use. I recently

purchased a 'rice pack' that you put in the microwave and it warms up to help

ease aches/pains and also provide a warm base in a dog's bed to keep them warm

(that is why I bought it). As I looked at that item, I was thinking that would

be a good item for the elderly and those with LBD (and those living where there

is so much now right now).

>

> So...I thought about making some small - perhaps 2 or 3 inches across - rolls

with the rice in it. Then it could be put in the microwave and then placed in

the grip of the cold hands. I seem to remember when my Grandma was in a nursing

home, that they used to put a rolled up wash cloth or something in her hand (she

had arthritis and also strokes).

>

> If you all think that this is a good idea, I was thinking of making a lot of

these (I am still able to do that much) and then the difference between the cost

of the item would be donated to the Lewy Body Association.

>

> My mom was just in the mild/moderate stage of LBD so I don't know if there

would be other uses for this heated rice pack. I do know that Mom was Cold

almost all of the time. Perhaps a pack that fits inside a pocket on a shawl, or

a pack that fits in the pocket of a lap blanket?

>

> I do appreciate any comments that you have,

>

> Hugs and prayers,

>

> Joan

>

>

>

>

>

>

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Joan: I use corn in my bags. I have corn bags for myself and I make them as

" for sale " items with my B & B Logo. Mostly I use them for warming my cold

feet in bed. (Ray used to do that : ) ) They stay warm for 2 or 3 hours.

They also work if I need a ice pack on a sore muscle or something. Just put

it in the freezer for a few hours rather than a microwave. Rice would

probably be easier for most of you to get but we get whole corn from any

feed store. Many hardware stores now have it in their bird feed aisle. I

would think little ones for the hands would be nice. They probably wouldn't

stay warm too long but just to have since most LBD patients clutch their

hands. I suppose you could make a " snake " for around the neck. The thing I

might suggest is to be sure to sew with small stitches that do not rip out

as easy and that you make a flannel bag cover for it. I would think they

would be very comforting to many elderly folks not just LBD patients. Good

luck, Leona

Leona: Caregiver for husband Ray, age 68, diagnosed 2/04 with Parkinson's

Disease. Changed doctors, diagnosed 6/06 with LBD. Almost continual downhill

slide no matter what drugs we try. 5/2/08 Ray was placed in Sunrise Nursing

Home in Oswego, NY, 1 hour from home. So far, so good! Hardest thing I have

ever done in my life, however. 3/19/09 transferred to Samaritan Keep NH in

Watertown, NY closer to home. He passed peacefully at 5:18 am on April 14,

2009. I am handling it OK.

'Love is not finding someone to live with; it's finding someone you don't

want to live without.'

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They use those heat bags in our nursing home, but have to wrap it in a towel to

protect the patient.

________________________________

To: LBDcaregivers

Sent: Wed, February 9, 2011 5:07:42 PM

Subject: Re: I Need Your Opinions

 

Thanks, !

> >

> > Hi all,

> > I am pondering ideas to make things that persons with LBD can use. I

recently

>purchased a 'rice pack' that you put in the microwave and it warms up to help

>ease aches/pains and also provide a warm base in a dog's bed to keep them warm

>(that is why I bought it). As I looked at that item, I was thinking that would

>be a good item for the elderly and those with LBD (and those living where there

>is so much now right now).

> >

> > So...I thought about making some small - perhaps 2 or 3 inches across -

rolls

>with the rice in it. Then it could be put in the microwave and then placed in

>the grip of the cold hands. I seem to remember when my Grandma was in a nursing

>home, that they used to put a rolled up wash cloth or something in her hand

(she

>had arthritis and also strokes).

> >

> > If you all think that this is a good idea, I was thinking of making a lot of

>these (I am still able to do that much) and then the difference between the

cost

>of the item would be donated to the Lewy Body Association.

> >

> > My mom was just in the mild/moderate stage of LBD so I don't know if there

>would be other uses for this heated rice pack. I do know that Mom was Cold

>almost all of the time. Perhaps a pack that fits inside a pocket on a shawl, or

>a pack that fits in the pocket of a lap blanket?

> >

> > I do appreciate any comments that you have,

> >

> > Hugs and prayers,

> >

> > Joan

> >

>

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HI Diane,

The one that I purchased was supposed to be for the dogs to lay on to warm

them...my chihuahuas would rather be on top of me or under a blanket. It is

about 8 x 8...but for the ones for the hands, I would make with not too thick of

a rice base in a cotton/linen fabric and then that would be enclosed in a

flannel..it worked great. The amount of rice that I would be able to fit in one

for the hand would be minimal and wouldn't be hard but pliable so that the

person could also be squeezing. The rice pack cannot be washed, but the flannel

outer case would be washable.

I am in the planning stage...and will certainly test it on several

people...people that have different issues with their hands also. I think that

having the part that is in the palm of the hand a bit loosely filled would also

help with issues where the person needs some tactile stimulation. A tight

stitch would be necessary so that rice would not be able to get out and it would

also be more durable.

Thank you for your comments.

> > >

> > > Joan,

> > >

> > > I guess safety might be an issue. If someone decided to see what was

inside and chewed or dug at it to unwrap it. And then ate the rice.

> > >

> > > I made a Muff for my Aunt while she was in a NH and the first thing they

did was cut the loop off I had put on it to help her keep track of it by just

putting it around her neck. She never lost it even without the loop! As a

matter of fact she use to wipe her nose on it so they washed it a lot. And they

couldn't send it down to the laundry because she wouldn't give it to them. So

they had to wash it on the floor where she lived. What was so funny is when she

died, there were a few women there who wondered what was going to become of her

muff. (They weren't to concerned about her.) One of them got it. I made it out

of the fleece stuff that is so popular so it must have been warm.

> > >

> > > Do you have a NH close to sell them at? Or how would you distribute them.

(Just playing the devils advocate.)

> > >

> > > Hugs,

> > >

> > > Donna R

> > >

> > > Cared for Mom 3 years in my home and the last year at a nh. She passed

away from LBD in 2002.

> > >

> > >

> > > I Need Your Opinions

> > >

> > > Hi all,

> > > I am pondering ideas to make things that persons with LBD can use. I

recently purchased a 'rice pack' that you put in the microwave and it warms up

to help ease aches/pains and also provide a warm base in a dog's bed to keep

them warm (that is why I bought it). As I looked at that item, I was thinking

that would be a good item for the elderly and those with LBD (and those living

where there is so much now right now).

> > >

> > > So...I thought about making some small - perhaps 2 or 3 inches across -

rolls with the rice in it. Then it could be put in the microwave and then

placed in the grip of the cold hands. I seem to remember when my Grandma was in

a nursing home, that they used to put a rolled up wash cloth or something in her

hand (she had arthritis and also strokes).

> > >

> > > If you all think that this is a good idea, I was thinking of making a lot

of these (I am still able to do that much) and then the difference between the

cost of the item would be donated to the Lewy Body Association.

> > >

> > > My mom was just in the mild/moderate stage of LBD so I don't know if there

would be other uses for this heated rice pack. I do know that Mom was Cold

almost all of the time. Perhaps a pack that fits inside a pocket on a shawl, or

a pack that fits in the pocket of a lap blanket?

> > >

> > > I do appreciate any comments that you have,

> > >

> > > Hugs and prayers,

> > >

> > > Joan

> > >

> > >

> > >

> > >

> > >

> > >

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