Guest guest Posted July 10, 2001 Report Share Posted July 10, 2001 Lona - I just recently had a cyscoscopy done myself. I asked my urologist about the KCL and he said the KCL doesn't really prove too much - especially if they are trying to determine if you have IC. I would recommend having the procedure done. For no other reason than to know there is nothing physically wrong - which was the case for me. I was relieved, but of course I got no answers to why I was having my problems. I started feeling like I couldn't totally empty my bladder back in December. I generally have to sit there and concentrate to get a second flow going to completely empty. I seem to only have pain after sex - but that is not always. I have been drinking cranberry juice and taking cranberry capsules and I have been peeing right after sex. This seems to help. One other thing I wanted to mention. My urologist told me IMMEDIATELY he saw no problems. I don't know why you had to go back in for your results. Maybe the KCL is different in that respect. My urologist thinks there is probably something going on with the nerves. He said nerves can become sensitized anywhere in the body. He does not think it is caused by trauma. Mostly he just wants me to go to the vulvar specialist in a couple weeks and see what he wants me to do after that appointment. I really like my urologist. Maybe you could find another one that you feel you can trust? Amber --- Lona wrote: > I went in for my follow up appointment today for the > KCL test. I didn't > need to go to get the information I got. Which was, > as I knew, that I had > no bladder pain from it and did have pain on > urinating it out. So why the > office visit for that? Hmmm. Money??? > Then she told me I could have a cystocopy? Hope it > got spelled right. I > told her the ICA does not recommend the KCL and she > indignantly told me not > to believe everything I read on the internet. She > wanted to know if I > wanted to schedule a cystoscopy with the Dr. in > their office. I said no, > not in this office. > CAN YOU TELL I AM TICKED??? > So, I have urethral pain, do I have that other > procedure? > Lona > who is sick to death of running to doctors > http://tahomagirl.com > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2001 Report Share Posted July 10, 2001 Amber, First I want to know if you were sedated or they did the cystospopy in the office, and did it hurt? I am SURE I will find another urologist because I think the one I went to is a money grubber. I don't have bladder pain for frequency, just pain in the urethra that comes and goes, so I suppose I should rule out any abnormalities of the urethra? Lona who is a little angry right now.. : Lona - : : I just recently had a cyscoscopy done myself. I asked : my urologist about the KCL and he said the KCL doesn't : really prove too much - especially if they are trying : to determine if you have IC. : : I would recommend having the procedure done. For no : other reason than to know there is nothing physically : wrong - which was the case for me. I was relieved, : but of course I got no answers to why I was having my : problems. I started feeling like I couldn't totally : empty my bladder back in December. I generally have : to sit there and concentrate to get a second flow : going to completely empty. I seem to only have pain : after sex - but that is not always. I have been : drinking cranberry juice and taking cranberry capsules : and I have been peeing right after sex. This seems to : help. : : : My urologist thinks there is probably something going : on with the nerves. He said nerves can become : sensitized anywhere in the body. He does not think it : is caused by trauma. Mostly he just wants me to go to : the vulvar specialist in a couple weeks and see what : he wants me to do after that appointment. : : I really like my urologist. Maybe you could find : another one that you feel you can trust? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2001 Report Share Posted July 10, 2001 Lona - They did not sedate me. I took a couple Tylenol about 30 minutes before the procedure. They first numb the urethra by inserting a q-tip with the solution on it. You wait about 10 minutes I think. Then they slide a cathetor (I guess that is what it is) in and yes, it does hurt like hell - but not for long. Then he slowly fills up your bladder with fluid, which was way less uncomfortable than I thought it was going to be - not bad at all. Then he takes just a couple minutes to scope out the bladder and urethra and you are done. Now it hurts like hell again the first few times you pee after the procedure and you will have a little bit of bleeding for 24 - 48 hrs. afterwards. The test can identify problems with the bladder AND the urethra. I'm glad I had it done. Amber --- Lona wrote: > Amber, > > First I want to know if you were sedated or they did > the cystospopy in the > office, and did it hurt? I am SURE I will find > another urologist because I > think the one I went to is a money grubber. I > don't have bladder pain for > frequency, just pain in the urethra that comes and > goes, so I suppose I > should rule out any abnormalities of the urethra? > Lona > who is a little angry right now.. > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2001 Report Share Posted July 10, 2001 Lona, If they are going to rule out IC then it's best to have it done under general anesthesia b/c the stretching of the bladder that has to be done can be quite uncomfortable if done with the person awake. Plus, if they try to check for IC in some one who is awake the dr will have a harder time diagnosing the IC. Terry, one of the girls that sometimes pops in on the list might also be able to help answer your qeustions. If you would like to get in touch with her let me know and I will give you her e-mail addy. I know that if I am going to ever need a cystoscopy I will want it done with me under general anesthesia. One of the reasons why is b/c I wouldn't be able to tolerate the pain of the cystoscope going in even with the local anesthetic. I hope that this is of some help to you. ===== Kristy http://www.geocities.com/sokokl/kristyspersonalpage.html Owner: http://groups.yahoo.com/group/Endo_Vulvodynia_PCOS http://groups.yahoo.com/group/Zoladexforendometriosis __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2001 Report Share Posted July 10, 2001 Amber, If they were suspecting Interstitial Cystitis it's harder to diagnose with the person awake b/c of the fact that the bladder can't be stretched out as far as they need to go to see the hemorrhages going on inside. Also they use a cystoscope which from what I was told by another girl who had it done awake it was quite big inside. That filling of the bladder with liquid is what they call hydrodistention. If you take a look at http://www.ichelp.org you will see in even more detail why the cystoscopy must be done with the person done under general anesthesia. Also when my friend Terry comes back I will see if I can get her to share her experience of having this done. ===== Kristy http://www.geocities.com/sokokl/kristyspersonalpage.html Owner: http://groups.yahoo.com/group/Endo_Vulvodynia_PCOS http://groups.yahoo.com/group/Zoladexforendometriosis __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2001 Report Share Posted July 11, 2001 Lona, I had to have a cystoscopy because I have a neurogonic bladder. The purpose of the test was to look at my bladder. I am not an expert, but I don't understand how they could tell you what is wrong with your urethrea when the cystoscope basically looks into the bladder. I would ask about that before I had the test, because the test is really uncomfortable. Jerri From: Lona To: vulvarDisorders Sent: Monday, July 09, 2001 9:14 PM Subject: my appointment today I went in for my follow up appointment today for the KCL test. I didn'tneed to go to get the information I got. Which was, as I knew, that I hadno bladder pain from it and did have pain on urinating it out. So why theoffice visit for that? Hmmm. Money???Then she told me I could have a cystocopy? Hope it got spelled right. Itold her the ICA does not recommend the KCL and she indignantly told me notto believe everything I read on the internet. She wanted to know if Iwanted to schedule a cystoscopy with the Dr. in their office. I said no,not in this office.CAN YOU TELL I AM TICKED???So, I have urethral pain, do I have that other procedure?Lonawho is sick to death of running to doctorshttp://tahomagirl.com*****END OF MESSAGE*****-------------------------------------------------To post message: VulvarDisorders To Subscribe: VulvarDisorders-subscribe Unsubscribe: VulvarDisorders-unsubscribe List owner: VulvarDisorders-owner ***** Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.