Re: Thank you

[Guest guest]

,

Welcome!!

Sorry you have to be here, and it is the best place to be to deal with your

situation. I was 12 hours away from my Mom when she got sick. It got worse and

worse and she refused to move close to me. I finally set her up with resources

where she lived and that didn't last long.

when her GP finally told her she couldn't live alone so it was me, or the NH.

She thought she would have better luck, ( she thought) at getting back home if

she came with me. She never could go back of course.

It was long enough ago that there was even less help than you are getting. I

pushed my way through it for 3 years and then a NH for a year. I was very tired

at the end of it all. I am glad to hear you have a " Rock. " It does help. I

had my daughter or I don't know what I would have done.

Just keep asking questions. And read as much as you can of 's Welcome

message. It is full of good advice.

We will be here and ask all the questions you have. As you have already found,

Meds are a problem. Low and slow is what they say. What one can take the next

one can't.

Hugs,

Donna R

Cared for Mom 3 years in my home and the last year at a nh. She passed away

from LBD in 2002.

Thank you

Hi

I just wanted to say thank you for the welcome message with links to all the

information. My mum (72) has recently been diagnosed with LBD and I am finding

it frustrating that I haven't been given much information at all by the doctors.

The links are therefore really useful.

Mum is in the early stages so is still relatively independent. However, she does

have regular hallucinations and can get frustrated and agressive. She lives in

quite a large house an hour and a half away from me so we have started looking

at moving her closer to where I live (as her only child) so I can pop in to see

her every day and when she's distressed. I am worried, however, that the move

will disorientate her. On the other hand this is better than her being

distressed alone.

The psychiatrist put her on donepezil tablets but they made no difference apart

from upsetting her tummy. We are now waiting to hear what they propose as the

'way forward'. I took her to her GP at the end of December (against her wishes)

to try to get some help for her. However, we are now in April and we're no

further forward. Has anyone else had experience of NHS support in the UK? Should

I have low expectations and contact a private agency?