Guest guest Posted May 8, 2000 Report Share Posted May 8, 2000 Debra, Thanks for letting us know that we can enjoy our good news. I am glad you got the picture. Do you know of anybody in the south eastern U.S. with a charge family? If so please give them our email. thanks and Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2000 Report Share Posted May 8, 2000 and Kathy, You did it right and she is beautiful !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Thank you for sharing her picture with us, it's always nice to have a face to go with the name. Now everytime we hear from you we can remember her precious face. As for her heart problems, both my boys are different. Tryny had severe heart problems (and still does with the artificial valve) and Zak none. So every CHARGEr is different. They may do an ultrasound when Lea is older just to confirm, but go with what they say for now. Hang in there, you're doing a good job with all of this. It does get easier to digest all they say in time. And talking here on the list is a good way to get answers, get help with questions and to just let your feelings out. Debra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2000 Report Share Posted May 8, 2000 and Kathy, Where at in the southeastern area? Where do you live? We live in Indianapolis, Indiana, and if that is anywhere close to you and we can be of any help, please don't hesitate to call on us. We are always eager to lend a helping hand (and I always take Tryny everywhere I go) and Zak is still in the hospital, so my other children can be here for him, if you need us for anything and we are close enough, just let me know. Debra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2000 Report Share Posted May 8, 2000 and Kathy: Lea is gorgeous!!!!!!!!! We live in the southeast - Bristol Virginia - where are " y'all " from?? Robin mom to Ally 20 mths ChARgE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2000 Report Share Posted May 8, 2000 What a beautiful baby! Thank you for sharing the picture. Michele here is Lea << File: mom and Lea.jpeg >> If i send this right them you will get to see " my little Lea " and my ma ------------------------------------------------------------------------ Up to 62% OFF Home and Kitchen! Buy Now and Shipping is Free. http://click./1/4015/2/_/22564/_/957816275/ ------------------------------------------------------------------------ For information about the CHARGE Syndrome Foundation or to become a member please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 2000 Report Share Posted May 8, 2000 , Kathy, What a beautiful little girl, it's nice to see such a young 'un with CHARGE with no tubes and wires sticking out!!! Mom to Kennedy 2yr old CHARGEr, 10, 9, and wife to GraemeNew Brunswick, CanadaVisit the "Weir homepage" at: http://www.geocities.com/SunsetStrip/Palms/5716ICQ #1426476 here is Lea If i send this right them you will get to see "my little Lea" and my ma For information about the CHARGE Syndrome Foundation or to become a member please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2000 Report Share Posted May 9, 2000 and Kathy Beaver are frome slocomb Alabama. I just checked their member profile. Chantelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 2000 Report Share Posted May 9, 2000 , Lea looks just like Jillian when she was born. I could probably send you a picture of Jillian in that same position and it would be hard to tell them apart at that age.She's adorable!! foley Mom to 4 1/2, (CHARGE guy in heaven) and Jillian 2 w/cHaRGE here is Lea > If i send this right them you will get to see " my little Lea " and my ma > > ------------------------------------------------------------------------ > Up to 62% OFF Home and Kitchen! > Buy Now and Shipping is Free. > http://click./1/4015/2/_/22564/_/957816275/ > ------------------------------------------------------------------------ > > For information about the CHARGE Syndrome > Foundation or to become a member please > contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org > ---------------------------------------------------------------------------- ---- Quote Link to comment Share on other sites More sharing options...
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