Re: Introduction

[Guest guest]

Sally,welcome aboard! this group has a wealth of knowledge about PLS. Don't

hesitate to ask any questions.

C.

[Guest guest]

Hi Sally:

Welcome to our very exclusive club. My name is Rita, 64 years young,

live in New Hampshire, have had PLS for over 20 years. I have accepted

this disease (no choice), and try to live my life in a very positive

way, Try to make the most out off this disease has limited me to do.

There are a lot of things I can't do any more, but by God there are many

things I still can do. I have a wonderful husband (married 39

years next Saturday the 7th), and life is good. This is a great group,

and I have met 7 of them so far, and at the end of the month we have a

BIG get together in CT. So we are all hanging in there and doing the

best we can.

Good Luck to you and think positive thoughts.

Rita

*************************************

Some people succeed in spite of their handicap. Others succeed because

of them.

[Guest guest]

Sally Sullivan,

Welcome to our " getting larger group, " Yes, there are plenty of encouraging

and supportive people here. Many of us have been there and done that and

those of us who haven't hope we don't. Don't worry about your PLS

progressing to ALS. If you go 5 yrs without rapid deterioration, you're home

safe, if having PLS is safe. We do stress a positive attitude because that

seems to help us a lot. However, September seems to have been a " funk month "

for several of us. That happens sometimes. Just remember " This, too, shall

pass. " You have entered a group that will answer almost any of your

questions. Don't hesitate to ask.

Mike Gray

sasbdsscs@... wrote:

> Hi, everyone. My name is Sally Sullivan. I live in Alabama. My

> diagnosis of PLS was confirmed about 2 weeks ago. The neuromuscular

> specialist that confirmed the diagnosis, said that there was a chance

> that my disease could progress into ALS. I am 2 months away from my

> 40th birthday. I am a single mother of two very special boys ---

> that are typical boys --- LAZY. I've spoiled them rotten and now we

> are having to adjust to the fact that mom can't do it all!! My boys

> are ages 13 and 10 and are very active.

>

> I have been reading your e-mails and just wanted to commend you all

> on being so very supportive of each other. Its nice to know that

> there are some people out there that understand that sometimes there

> is just no understanding " why " it just is.

>

> I'm looking forward to getting to know all of you and hope that I can

> be a positive, encouraging support to you all. It is my intention to

> not give up or give in to this disease --- I can't, " two " much

> depends on me.

>

> Oh, by the way. Someone asked about the onset of the disease and the

> use of antidepressants. I was just diagnosed and have never been on

> antidepressants. But has anyone thought about over use of

> antibiotics and steroids? I come from a generation of " no matter

> what the problem was " --- you were put on antibiotics. I started

> having acne prone skin when I started high school, as does most

> everyone. I took antibiotics for so long that I became immune to

> them and was then put on steroids. Although I was only on steroids

> for a short period of time, it was still an extreme measure, in my

> opinion (but in high shcool I would have jumped off a building if I

> thought it would clear my skin up!) Anyway, my point is, with

> hormones and antibiotics being given to livestock and we eat/drink it

> and are prescribed antibiotics and we know that antibiotics lower

> your bodies own ability to fight (naturally) sickness and disease it

> makes me wonder if it has also affected our neurological abilities.

> I would love to hear your thoughts on this.

>

> I'm glad all of you are out there and glad I'm not in the

> perverbial " boat " by myself.

>

> Sally

>

[Guest guest]

Cheryl,welcome.Now that you have found us,get your mother online she'll love

it!

C.

[Guest guest]

Gerry,

I'm curious where in Vermont do you live? Are you anywhere near Chester?

My parents own property there and when I was growing up we went to Chester

almost every weekend (I grew up on Cape Cod). Vermont is my favorite

State --- the most beautiful anyway!

Sally

Introduction

>

>

> >Hi, everyone. My name is Sally Sullivan. I live in Alabama. My

> >diagnosis of PLS was confirmed about 2 weeks ago. The neuromuscular

> >specialist that confirmed the diagnosis, said that there was a chance

> >that my disease could progress into ALS. I am 2 months away from my

> >40th birthday. I am a single mother of two very special boys ---

> >that are typical boys --- LAZY. I've spoiled them rotten and now we

> >are having to adjust to the fact that mom can't do it all!! My boys

> >are ages 13 and 10 and are very active.

> >

> >I have been reading your e-mails and just wanted to commend you all

> >on being so very supportive of each other. Its nice to know that

> >there are some people out there that understand that sometimes there

> >is just no understanding " why " it just is.

> >

> >I'm looking forward to getting to know all of you and hope that I can

> >be a positive, encouraging support to you all. It is my intention to

> >not give up or give in to this disease --- I can't, " two " much

> >depends on me.

> >

> >Oh, by the way. Someone asked about the onset of the disease and the

> >use of antidepressants. I was just diagnosed and have never been on

> >antidepressants. But has anyone thought about over use of

> >antibiotics and steroids? I come from a generation of " no matter

> >what the problem was " --- you were put on antibiotics. I started

> >having acne prone skin when I started high school, as does most

> >everyone. I took antibiotics for so long that I became immune to

> >them and was then put on steroids. Although I was only on steroids

> >for a short period of time, it was still an extreme measure, in my

> >opinion (but in high shcool I would have jumped off a building if I

> >thought it would clear my skin up!) Anyway, my point is, with

> >hormones and antibiotics being given to livestock and we eat/drink it

> >and are prescribed antibiotics and we know that antibiotics lower

> >your bodies own ability to fight (naturally) sickness and disease it

> >makes me wonder if it has also affected our neurological abilities.

> >I would love to hear your thoughts on this.

> >

> >I'm glad all of you are out there and glad I'm not in the

> >perverbial " boat " by myself.

> >

> >Sally

> >

> >

> >

> >

> >

>

>

>

>

>

>

_______________________________________________

Why pay for something you could get for free?

NetZero provides FREE Internet Access and Email

http://www.netzero.net/download/index.html

[Guest guest]

From: Sue

Hi Sally,

Actually my husband's name is Gerry. The e-mail is set up in his name for

his business--I just use it. I live in Winooski, VT which is just outside

of Burlington. Chester is a little over an hour southeast of me. I think

Vermont is great too. I wouldn't live anywhere else. Do you still come to

Chester? Take care.

Sue

Re: Introduction

>Gerry,

>

>I'm curious where in Vermont do you live? Are you anywhere near Chester?

>My parents own property there and when I was growing up we went to Chester

>almost every weekend (I grew up on Cape Cod). Vermont is my favorite

>State --- the most beautiful anyway!

>

>Sally

> Introduction

>>

>>

>> >Hi, everyone. My name is Sally Sullivan. I live in Alabama. My

>> >diagnosis of PLS was confirmed about 2 weeks ago. The neuromuscular

>> >specialist that confirmed the diagnosis, said that there was a chance

>> >that my disease could progress into ALS. I am 2 months away from my

>> >40th birthday. I am a single mother of two very special boys ---

>> >that are typical boys --- LAZY. I've spoiled them rotten and now we

>> >are having to adjust to the fact that mom can't do it all!! My boys

>> >are ages 13 and 10 and are very active.

>> >

>> >I have been reading your e-mails and just wanted to commend you all

>> >on being so very supportive of each other. Its nice to know that

>> >there are some people out there that understand that sometimes there

>> >is just no understanding " why " it just is.

>> >

>> >I'm looking forward to getting to know all of you and hope that I can

>> >be a positive, encouraging support to you all. It is my intention to

>> >not give up or give in to this disease --- I can't, " two " much

>> >depends on me.

>> >

>> >Oh, by the way. Someone asked about the onset of the disease and the

>> >use of antidepressants. I was just diagnosed and have never been on

>> >antidepressants. But has anyone thought about over use of

>> >antibiotics and steroids? I come from a generation of " no matter

>> >what the problem was " --- you were put on antibiotics. I started

>> >having acne prone skin when I started high school, as does most

>> >everyone. I took antibiotics for so long that I became immune to

>> >them and was then put on steroids. Although I was only on steroids

>> >for a short period of time, it was still an extreme measure, in my

>> >opinion (but in high shcool I would have jumped off a building if I

>> >thought it would clear my skin up!) Anyway, my point is, with

>> >hormones and antibiotics being given to livestock and we eat/drink it

>> >and are prescribed antibiotics and we know that antibiotics lower

>> >your bodies own ability to fight (naturally) sickness and disease it

>> >makes me wonder if it has also affected our neurological abilities.

>> >I would love to hear your thoughts on this.

>> >

>> >I'm glad all of you are out there and glad I'm not in the

>> >perverbial " boat " by myself.

>> >

>> >Sally

>> >

>> >

>> >

>> >

>> >

>>

>>

>>

>>

>>

>>

>

>_______________________________________________

>Why pay for something you could get for free?

>NetZero provides FREE Internet Access and Email

>http://www.netzero.net/download/index.html

>

>

>

>

>

[Guest guest]

From: Sue

Hi Cheryl and Mom,

Welcome to the group. I am a 52 year old woman living in Vermont. I have

had PLS since 1/94, but only diagnosed in 8/98. I hope your mother can

arrange to get on line and participate whenever she wants to. She will find

alot of friendship and support here. Good luck to you and take care.

Sue

Introduction

>Hi, My name is Cheryl. My mother was recently tentatively diagnosed

>with PLS. She ( & I)are looking for more information and for support.

>I

>was so glad to find this site, and especially to see the love and

>support I see in your archives.I hope to get to know you all.

>Cheryl

>

>

>

>

>

[Guest guest]

Welcome henri!

How do you pronounce your name...is it " ahhn-ree " ?

You've come to the right place, If you signed up for email, and noit

digest you should be getting individual emails as they come thru.

Just jump right in anytime, we're here to help.

Nan (Alias Ms. Magoo)

Please Support Macular Degeneration

And Other Vision Loss Research

http://members.aol.com/danlrob/MDpeople/

www.puppymillrescue.com

[Guest guest]

Nan:

It's prounonced like " Henry " - no French - It's actually short for

Henrietta - just got shortened in junior high school many years ago, and

stuck. Now, I use it all the time. Get mail all the time addressed to Mr.

Henry . LOL

After I sent off my post, I kept looking at the website and discovered the

area where it shows how the posts will be delivered. Just like me - leap

before I look.

I'm looking forward to becoming active on the list. My husband was gone

today (to a football game in Kansas), so I pretty much had the day to

myself. I read a lot of the archive posts. I think I'm going to really

like this list.

Thanks for the welcome.

Henri

[Guest guest]

Believe me, you'll never want to leave this list!! We're all family

here, so posy anything that is bothering you and we'll help the best

we can.

Nan (Alias Ms. Magoo)

Please Support Macular Degeneration

And Other Vision Loss Research

http://members.aol.com/danlrob/MDpeople/

www.puppymillrescue.com

[Guest guest]

Kathy:

Thanks for the welcome. I live in Dallas, right at the Dallas County, Collin County, Denton County borders. I was through Round Rock a few weeks ago. It is really pretty there.

Henri

[Guest guest]

Welcome to the List Henri. We are happy to have you aboard. This is a great

list and a fantastic WOE. Get ready for the time of your life!

Cheryl Ü

>>>>

My name is Henri (female). I am new to the list. I have been on

Atkins since 8/14/00 - I've lost 7-9 pounds, depending on the day. I<<<<

[Guest guest]

:

My husband went to the Kansas/Texas Tech game. He was thrilled that they

won. They really needed the win, but you were probably rooting for Kansas.

He has been following Texas Tech football for years. In fact for the past

15 years of so, he has gone to every Texas Tech game, except one when I

forced him to go on a cruise down the Volga in August. He didn't like

missing first game of the season, but he suffered through it!! (VBG) He

tells me this is his last year to make a commitment to go to every game.

(We'll see) He and his running buddy are always down on the sideline with

the team. So, its a fun time for him. He makes up for being away every

weekend during football season in many other ways. Besides, sometimes, it

good to get him out of the house for a day. LOL

Henri

[Guest guest]

Welcome Henri!!! Great to have you with us!!!

*warm smile*

aka Annie from Sioux City, Iowa

Freelance Writer and Comic Strip Developer for

www.ilovelowcarb.com launching NOV 1 !!!

" come check us out! "

255/228/150 Atkins 8/27/00

27 pounds gone forever!!!

5'11

22/18!/12

Halloween Goal 220 (gonna be

close!)/group/ALowCarbSupportSystem

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[Guest guest]

Hi Mindy,

Thanks for the welcome! These posts have been incredibly

helpful. With my IBS , I fluctuate between constipation and diahrrea. The

vulvodynia has caused intercourse to be very painful where it feels like

burning,stabbing, and brushburn -like pain that leaves me feeling raw,

inflammed, and swollen. The pain can last from an hour up until a day later.

The cystitis hasn't been too bad lately. I really haven't tried any

treatments because my gyn doesn't know what to do for me. I finally found a

doctor in Pittsburgh, Pa, but she doen't take my insurance. I probably will

try the diet but I am afraid it will be too haard to stick with. There are so

many things I like to eat that I won't be able too. I guess I will give it a

good try though.

Take Care,

Jo

[Guest guest]

Hi Jo,

I have made 4 appeals so far for my insurance to let me see Dr.

. It is frustrating - I pay each time out of pocket. This is my

last appeal and I doubt they will accept it this time since they

denied it 3 times before. Make sure that you write your insurance

company - some of them will let you go if you get a referral from a

contracted doctor. Take care.

Seema

> Hi Seema,

> I live near Pittsburgh, Pennsylvania and I finally found a

doctor who

> treats vv but she won't accept my insurance. I also found a PT

group for

> women who can try to help and I am having the same insurance

problems. It is

> very discouraging. Thank you for the support- it helps alot!!!

> Jo

[Guest guest]

Hi, Ann. Welcome to the list. Sounds like you've had quite a learning

experience, and have conquered this 800 pound gorilla in the end.

Glad you're here :-). The list is a little quiet lately - probably due to

summer.

Barb

Moderator

> I've been lurking for a bit and decided it's time to come out and

> introduce myself to the group.

[Guest guest]

thanks....but remember,I'm a Speech teacher....I'm never quiet and I pronouce

it properly!

Ann

Rainbow Farm wrote:

> Hi, Ann. Welcome to the list. Sounds like you've had quite a learning

> experience, and have conquered this 800 pound gorilla in the end.

>

> Glad you're here :-). The list is a little quiet lately - probably due to

> summer.

>

> Barb

> Moderator

>

> > I've been lurking for a bit and decided it's time to come out and

> > introduce myself to the group.

>

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> http://www.msteri.com/diabetes-info/diabetes_int

>

> Post message: diabetes_int

> Subscribe: diabetes_int-subscribe

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> List owner: diabetes_int-owner /

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