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Kathy, I share in the issue of multiple, year-round allergies and also take

Claritin as well as several nasal sprays during peak seasons. Your question

piqued my curiosity. The link below provides a pretty good description of the

various medications. I can't vouch for the accuracy since I'm not a medical

professional so maybe others will have further guidance.

Best wishes,

Lynn in Florida

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

>

>

> LBD is definitely in my family. It seems to hit in the upper 70s and my

grandfather possibly had it, as well as my dad and 2 siblings so far. I'm 50

and wanting to do what I can to prolong the inevitable since dodging this bullet

may not be possible. I'm all congested with allergies now and I'm wondering if

anyone knows if staying away from the " toxic " medications listed below could

help now, or if it will only be a problem for me if I had symptoms now. I'm

alson wondering if anyone knows if Claritin is an anticholinergic drug like

Benedryl is. How would I find out?

>

> Thanks

> Kathy

>

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>

>

> NO TRADITIONAL ANTIPSYCHOTICS (e.g. Haldol, Chlorpromazine),

> NO ANTICHOLINERGIC DRUGS (e.g. Benadryl, Tylenol PM, Detrol, Enablex)

>

> EXTREME CAUTION with MOST BENZODIAZEPINES (e.g. Ativan)

> EXTREME CAUTION with some ATYPICAL ANTIPSYCHOTICS (e.g. Risperidone, Zyprexa)

- but some are used w/ success (e.g. Seroquel, Clozaril) " Start Low, Go Slow "

>

>

>

>

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>

>

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Dorothy, How right you are. Our LBD patients have it extra bad when they already

have other problems beside LBD, but because of LBD can't take medications. It's

vicious!

Love a lot,

Imogene

>

> Oh Imogene you are so right on that! I have problems with some medicines

> causing heart arrhythmias as well - and sometimes Claritin is the culprit,

> especially I f I take it more than three days in a row. With my MIL, I

> give it only as needed which is usually only a day or two thank goodness.

> She has not had any sign of arrhythmias so far but I am always looking out

> for things as she is also very sensitive. An old one, Actifed, did it to

> me every time which was horrible. Also the non drowsy Sudafed gets me.

> Allegra D works for me sometimes without causing the heart stuff but it is

> not safe for LBD/Parkinsons.

>

> Millions may take these things but not everyone gets along with it safely

> and I think there are more problems than are reported/noted " officially " .

>

> Dorothy

>

>

>

> From: LBDcaregivers [mailto:LBDcaregivers ]

> On Behalf Of Iward27663@...

> Sent: Friday, October 29, 2010 3:32 PM

> To: LBDcaregivers

> Subject: Re: medication

>

> Medicine is an odd animal (if you will) Or maybe we are odd. I can't take

> Claritin. It causes heart arrythmias in me. Maybe I'm just a odd ball.

> Millions take it, so I guess it is just me.

>

> Love a lot,

> Imogene

>

> In a message dated 10/28/2010 3:54:43 P.M. Central Daylight Time,

> fullcircle@... <mailto:fullcircle%40sonic.net> writes:

>

> Kathy,

>

> Claritin and it's generic has been approved for use for my mil by her

> neurologist at UCSF memory and aging clinic and also by their clinical

> pharmacist who is really up on all these. It is the only allergy

> medication

> they know of that is acceptably safe with LBD/Parkinson's and they strongly

> recommend to avoid benedryl.

>

> I am not sure if LBD runs in my family however my grandfather developed

> Parkinson's after treatment for melanoma. Benadryl bothered him causing

> the

> Parkinson's to worsen. I am also sensitive to Benadryl - it causes nerve

> pain and almost a restless leg-like problem in my arms and I have no

> problem with Claritin thank goodness. I also use mucinex to help loosen

> congestion if I am having that problem and that has also been fine with my

> MIL and also approved by her doctor and the clinical pharmacist. I'm with

> you about being careful with these medications! J

>

> Hope this helps.

>

> Dorothy

>

>

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Dear Dorothy,

Thanks for posting. I take Mucinex and Claritan...My mom had LBD and I strongly

suspenct that her mother had it before having strokes and then docs said it was

vascular dementia.

>

> Kathy,

>

> Claritin and it's generic has been approved for use for my mil by her

> neurologist at UCSF memory and aging clinic and also by their clinical

> pharmacist who is really up on all these. It is the only allergy medication

> they know of that is acceptably safe with LBD/Parkinson's and they strongly

> recommend to avoid benedryl.

>

>

>

> I am not sure if LBD runs in my family however my grandfather developed

> Parkinson's after treatment for melanoma. Benadryl bothered him causing the

> Parkinson's to worsen. I am also sensitive to Benadryl - it causes nerve

> pain and almost a restless leg-like problem in my arms and I have no

> problem with Claritin thank goodness. I also use mucinex to help loosen

> congestion if I am having that problem and that has also been fine with my

> MIL and also approved by her doctor and the clinical pharmacist. I'm with

> you about being careful with these medications! J

>

>

>

> Hope this helps.

>

>

>

> Dorothy

>

>

>

> From: LBDcaregivers [mailto:LBDcaregivers ]

> On Behalf Of Kathy

> Sent: Thursday, October 28, 2010 5:14 AM

> To: LBDcaregivers

> Subject: medication

>

> LBD is definitely in my family. It seems to hit in the upper 70s and my

> grandfather possibly had it, as well as my dad and 2 siblings so far. I'm 50

> and wanting to do what I can to prolong the inevitable since dodging this

> bullet may not be possible. I'm all congested with allergies now and I'm

> wondering if anyone knows if staying away from the " toxic " medications

> listed below could help now, or if it will only be a problem for me if I had

> symptoms now. I'm alson wondering if anyone knows if Claritin is an

> anticholinergic drug like Benedryl is. How would I find out?

>

> Thanks

> Kathy

>

> NO TRADITIONAL ANTIPSYCHOTICS (e.g. Haldol, Chlorpromazine),

> NO ANTICHOLINERGIC DRUGS (e.g. Benadryl, Tylenol PM, Detrol, Enablex)

>

> EXTREME CAUTION with MOST BENZODIAZEPINES (e.g. Ativan)

> EXTREME CAUTION with some ATYPICAL ANTIPSYCHOTICS (e.g. Risperidone,

> Zyprexa) - but some are used w/ success (e.g. Seroquel, Clozaril) " Start

> Low, Go Slow "

>

>

>

>

>

>

>

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