Guest guest Posted August 25, 2010 Report Share Posted August 25, 2010 Dear Jan, Another great idea! Dear Sharon, Don't sweat the small stuff, or the small-minded people. Too many people in life like to find fault with others. That's their problem. Sending hugs from NY, Helene > > I agree with Donna, don't waste your time and energy on these people. Not > everyone thinks like you or is as caring as you. Get a bumper sticker from Cafe > Press that sells LBD items. You can find Cafe Press in the LBD file/ links.You > aren't sticking anything in anyone's face, it's on your vehicle and if they want > to ask questions about it they will. That is what I did and a lady followed me > through two towns to the nursing home and got out of her car to tell me and said > her dad was just dx w/LBD and she wanted to know about it. People always are at > my car taking down the website or asking questions in the grocery parking lot. > Let them come to you, not you to them. Not everyone's a caregiver, that is what > Jim's kids told me and I am sure there are many like them out there. They don't > want to hear about any sickness or deal with it. You are special! > Jan > > > > > ________________________________ > > To: LBDcaregivers > Sent: Tue, August 24, 2010 9:27:35 PM > Subject: Re: venting, > >  > Sharon, > > You have forgotten we have people who have relatives with LBD who don't want to > learn about it. > > > It sounds like you have had a bad day. You really don't have to put that much > energy into people who probably don't matter anyway. Save your strength for > those who do matter. > > Love you and hugs. > > Donna R > > Cared for Mom 3 years in my home and the last year at a nh. She passed away from > LBD in 2002. > > venting, > > hi all, > � > i am so frustrated, people are so cruel and have no thoughts fo ranything but > themselves.� > > � > several years ago when i merged my house hold with daddy's i joined freecycle > and craiglist.to share the extras.� keeping things out of the trash and pass > it on to someoe who could use it.� concept was great but........... > � > along came lbd, and as a group we opted to put a signatrue line under our email > body to remind everyone of how we are coneedted iwth lbd.� well CL and FC both > have decided that i am 'tagging' gteh lbda.org and requesting donations for it > and i am threatened with beeing banned becuase fo it. normally i rmemver to > remove it, but when i am responding to ads, i forget to delete it,� also when > i am getting pet supplies they are for a local rescue adn i am thinking i am > assuring them that there stuff will go to great use, or� i write that if i get > clothes or books that i will tkae what i want and i hace a friend who is a > social worker for the homeless and i say whatever id ont use i will pass it on > to her and everything will be put to good use.� and sometimes after i pick up > say 3 or 4 bags fo clothes that i write a thank you note and say i loved the > tops and passed the pants on t teh social worker for the homelsee etc.� i am > thinking i am being a good > samaritan, helping others but obvoiusly, noone wants to learn about a new > disease ther loved one may have or be glad they are helping homeless people or > resdued dogs,�� > > who says that they have to read the signature part of my email, that goes on > every single email i send out, and in doing this i have had quite a few peope > off off CL or FC ask me about it,� but i think it is ridiciulous ti be > threatened to be banned for 'tagging' with my signature.� sigh,� > > � > sometimes, i jsut want to crawl in corner and hide from people, > > I am the daughter of Leonard whom was diagnosed in May 2004 and� he died of > complicatons *blood pressure started dropping and wouldn't recover* on Sept 25, > 2005. He had bad case of Dr Jekyl/Mr Hyde scenarios. He was showing > hallucinations and falling issues since prior to 1994. We moved in to take care > of him Jan 19, 2003 and still live in his house. And in feb 2009, i have been > diagonosed with 99% probability of lbd. Hoping that a cure or treatment will be > found before it's too late for me. > > > Quote Link to comment Share on other sites More sharing options...
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