Guest guest Posted January 27, 2011 Report Share Posted January 27, 2011 Hi , My mother is experiencing so many of the things your sister is. My mother didn't get LBD until a year and half ago when she was around age 85. She is 87 now. Your sister seems young going through this, but have read here LBD doesn't discriminate against age. I hope you can keep your sister out of a nursing home, but I know my mother could of never started out in assisted living as it seems 9 months ago when I was looking at one, they told me if she had to go to the hospital I had to drive her and also drive her to the dr. office. Which was impossible for me. It seems there is not enough " nursing " care in assisted living as in a 24 hour nursing home situation. Which my mother has to have, even though, like Imogene, had problems with several N.H.'s it is hard to find the right one to give the proper care. Sometimes I get so frustrated with this one feeling they are " useless " ! It seems they do the bare minimum and that's it! I'm up there every day and its a nightmare most days I go up there with one thing after another. Hang in there, as I try to do, and praying for your sister, its horrific when our L.O.'s hallucinate and are terrified out of their minds with what they are seeing or believing when its not even true. God bless them all. Love and PRAYERS, in Texas My sister, 74 years of age, was diagnosed w/parkinson's severals ago and put on meds for parkinson. A couple of years ago she started seeing people in her house, seeing black lace around things especially curtains. She was never afraid of these people but couldn't understand why they were in her house. In November early one morning she left her home barefooted and walked down the road about 1/2 mile before someone got to her. She was in the hospital for approximately three weeks and was diagnosed with LBD. They have taken her off all parkinson's meds because of the possibility of increasing the hallucinations. She is now living in a very nice assisted living facility. They have tried Seroquil, Risperdal, Ativan,Paxil and everything works against her. They are now going to try Abilify. I see her going down every day. She was a very independent woman who lived by herself for close to 20 years. Now she is terrified to be alone, very parnoid. She thinks they a re making movies about her, bugging her room, monitoring her phone calls, etc. She was able to get up and down from the chair and coach by herself, but these last few days she has to have assistance. Her feet seem to " freeze " when she tries to walk. We ask her to move her feet, but she says she can't. It is so troubling to see her go through this and not know what to do and knowing the doctors know little as to what to do. The doctors thinks she is probably mid-sage. I go see her most days twice a day and we have sitters during the night. Every day there is something new going on. Today she was complaining of legs and neck pain. She has just about quit eating. We have to sit and encourage her to eat what she does. She has lost 18 pounds in about three months. Can anyone help us know where were are with this awlful disease or any medication that seems to work. I know everyone is different. We want to keep her out of the nursing home as long as possible, but I'm not sure how long she will be able to stay at the assisted living. Any help would be greatly appreciated. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 Hi Would you give me the name if the appetite stimulant? That sound like a great idea Thanks Donna > > Just an update on my sister. She seems to be doing much better the last few weeks. She is eating great. They have her on an appetite stimulate. I have read a lot about the roller coasters of LBD, so I keep wondering if this is temporary good time and what may follow. She still complains of constant pain, gets irritated on occasion, and the hallucinations are also occasionally, nothing like they were. So we're enjoying the better days right now. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 10, 2011 Report Share Posted May 10, 2011 That is wonderful to hear . I have learned to really enjoy the good periods when they come, they are what gets us through the tough times! -- His, Sherry daughter/guardian of , dx 4/09 with LBD, living in a nearby NH > Just an update on my sister. She seems to be doing much better the last few weeks. She is eating great. They have her on an appetite stimulate. I have read a lot about the roller coasters of LBD, so I keep wondering if this is temporary good time and what may follow. She still complains of constant pain, gets irritated on occasion, and the hallucinations are also occasionally, nothing like they were. So we're enjoying the better days right now. Quote Link to comment Share on other sites More sharing options...
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