Re: Has anyone gotton Palliative care in the San Francisco area?

[Guest guest]

Phil,

A very small number of LBDers in our local support group get feeding tubes.

There is some research that indicates it simply prolongs suffering in those with

dementing illnesses.

Did you discuss the feeding tube possibility with your mom when she was

diagnosed? Or did the diagnosing neurologist discuss this with her? Does she

have written advance care directives?

I forget if your mom is seen at the SF VA, UCSF, or elsewhere. Many major

medical facilities have social workers who can help you think through this

problem.

Many hospice agencies offer palliative care. Give me a call (after tonight's

LBD support group meeting) if you want to discuss some agencies that others in

our group have used.

And...you might review the latest LBDA publication on hospice care and

palliative care in LBD.

Robin

>

> And does anyone have experience with feeding tubes pros cons.Prolong suffering

or provide nutrition for some possibility of life

>