Re: The journey has ended...

March 17, 2011

Dear Jannis,

My heartfelt condolences on the loss of your mother. She is at peace now from

this dreaded disease and free of it at last.

May you and your family find peace and comfort in happy memories of times with

your mother.

My thoughts and prayers are with you during this difficult time.

Hugs,

Jan Colello

Husband, Jim, dx w/LBD 2003

deceased, January 22, 2011

________________________________

To: LBDcaregivers

Sent: Thu, March 17, 2011 9:28:00 PM

Subject: The journey has ended...

Â

My beautiful mother left us at 11:55 last night.

I was blessed and privileged to live with her and my father for the past two

years, and play an active role in her care. While it was difficult at times, and

a struggle while I was also dealing with my own diagnosis of metastatic colon

cancer and two surgeries and chemo, I wouldn't have traded my time and ability

to be with Mom and Dad for anything else in the world.

I was with her and Dad as she drew her last breath, and her sweet spirit left

her poor little damaged body and brain. She had been having mini-strokes for

several weeks, each one leaving her more debilitated and confused than the

previous, but we still had moments where we connected and were able to express

our love for each other.

We might not have had the best relationship when I was younger, but I have come

to the knowledge that it was not just my fault, nor just her fault, but a

combination of divergent hopes and dreams and aspirations and expectations. We

grew, as time passed, to appreciate each other more and more, and I realized

last night that there had not been one single day in my life when we had not

talked either in person or by phone.

I don't regret keeping Mom at home, and being proactive in her care. It was

difficult for my 87-year-old dad at times, and she could wear us all to a

frazzle, but our doing so kept her with us far beyond what many are able to

survive with LBD with Parkinson's. She was never hungry, never thirsty, never

wet, never soiled, never neglected, and ALWAYS knew she was loved. I cooked all

the foods she loved, and kept her content.

Love them.

Hold them.

Too soon they leave.

Jannis

Daughter of , who left us at age 82

Victor over LBD with Parkinson's

March 17, 2011

Jannis,

Sending hugs and condolences to you and your family. It sounds like the caring

and the passing has afforded you a wonderful relationship with your mom.

Donna R

Cared for Mom 3 years in my home and the last year at a nh. She passed away

from LBD in 2002.

The journey has ended...

My beautiful mother left us at 11:55 last night.

I was blessed and privileged to live with her and my father for the past two

years, and play an active role in her care. While it was difficult at times,

and a struggle while I was also dealing with my own diagnosis of metastatic

colon cancer and two surgeries and chemo, I wouldn't have traded my time and

ability to be with Mom and Dad for anything else in the world.

I was with her and Dad as she drew her last breath, and her sweet spirit left

her poor little damaged body and brain. She had been having mini-strokes for

several weeks, each one leaving her more debilitated and confused than the

previous, but we still had moments where we connected and were able to express

our love for each other.

We might not have had the best relationship when I was younger, but I have come

to the knowledge that it was not just my fault, nor just her fault, but a

combination of divergent hopes and dreams and aspirations and expectations. We

grew, as time passed, to appreciate each other more and more, and I realized

last night that there had not been one single day in my life when we had not

talked either in person or by phone.

I don't regret keeping Mom at home, and being proactive in her care. It was

difficult for my 87-year-old dad at times, and she could wear us all to a

frazzle, but our doing so kept her with us far beyond what many are able to

survive with LBD with Parkinson's. She was never hungry, never thirsty, never

wet, never soiled, never neglected, and ALWAYS knew she was loved. I cooked all

the foods she loved, and kept her content.

Love them.

Hold them.

Too soon they leave.

Jannis

Daughter of , who left us at age 82

Victor over LBD with Parkinson's

March 18, 2011

Dear Jannis

I'm so sorry to hear of your loss. It sounds as though you have had a really

tough time, not just caring for your mother but also dealing with your own

health issues.

What an amazing job you have done caring for her. I'm so glad you could be

with her at the very end. That must have been a special privilege for you

and your dad.

Take care. Be gentle with yourself. You must be very tired so I hope you are

able to sleep well now.

You will miss her but you can rest easy knowing that you have done

everything that you could.

A big hug from 'down under' for both you and your dad.

Elaine

Elaine (61) from Sydney Australia

Carer for husband Jim (82) who was offically diagnosed LBD Oct 2009, but

symptoms began at least 5 years before.

Jim died peacefully in hospital on 12th February 2011.

March 18, 2011

Dear Jannis - I am so sorry to hear of the passing of your mother. Your

description of your life together with her and your father was a beautiful one.

Having the wonderful connection with your mother these past two years and her

peaceful ending was certainly a blessing. I wish you many happy memories. Your

way of writing is very special. I hope it helps soothe you and others. Peace,

Norma

March 18, 2011

Jannis,

My condolences on the passing of your mom. You were a great daughter and

support to both her and your dad. I hope you enjoy the best of health from here

on out too.

Courage

From: Jannis

Sent: Friday, March 18, 2011 12:28 AM

To: LBDcaregivers

Subject: The journey has ended...

My beautiful mother left us at 11:55 last night.

I was blessed and privileged to live with her and my father for the past two

years, and play an active role in her care. While it was difficult at times, and

a struggle while I was also dealing with my own diagnosis of metastatic colon

cancer and two surgeries and chemo, I wouldn't have traded my time and ability

to be with Mom and Dad for anything else in the world.

I was with her and Dad as she drew her last breath, and her sweet spirit left

her poor little damaged body and brain. She had been having mini-strokes for

several weeks, each one leaving her more debilitated and confused than the

previous, but we still had moments where we connected and were able to express

our love for each other.

We might not have had the best relationship when I was younger, but I have come

to the knowledge that it was not just my fault, nor just her fault, but a

combination of divergent hopes and dreams and aspirations and expectations. We

grew, as time passed, to appreciate each other more and more, and I realized

last night that there had not been one single day in my life when we had not

talked either in person or by phone.

I don't regret keeping Mom at home, and being proactive in her care. It was

difficult for my 87-year-old dad at times, and she could wear us all to a

frazzle, but our doing so kept her with us far beyond what many are able to

survive with LBD with Parkinson's. She was never hungry, never thirsty, never

wet, never soiled, never neglected, and ALWAYS knew she was loved. I cooked all

the foods she loved, and kept her content.

Love them.

Hold them.

Too soon they leave.

Jannis

Daughter of , who left us at age 82

Victor over LBD with Parkinson's

March 18, 2011

Jannis,

I'm so sorry to hear about the loss of your mother, yet I suspect you must be

experiencing some relief for her as well. Please take care of yourself during

these days.

Lori

The journey has ended...

My beautiful mother left us at 11:55 last night.

I was blessed and privileged to live with her and my father for the past two

years, and play an active role in her care. While it was difficult at times, and

a struggle while I was also dealing with my own diagnosis of metastatic colon

cancer and two surgeries and chemo, I wouldn't have traded my time and ability

to be with Mom and Dad for anything else in the world.

I was with her and Dad as she drew her last breath, and her sweet spirit left

her poor little damaged body and brain. She had been having mini-strokes for

several weeks, each one leaving her more debilitated and confused than the

previous, but we still had moments where we connected and were able to express

our love for each other.

We might not have had the best relationship when I was younger, but I have

come to the knowledge that it was not just my fault, nor just her fault, but a

combination of divergent hopes and dreams and aspirations and expectations. We

grew, as time passed, to appreciate each other more and more, and I realized

last night that there had not been one single day in my life when we had not

talked either in person or by phone.

I don't regret keeping Mom at home, and being proactive in her care. It was

difficult for my 87-year-old dad at times, and she could wear us all to a

frazzle, but our doing so kept her with us far beyond what many are able to

survive with LBD with Parkinson's. She was never hungry, never thirsty, never

wet, never soiled, never neglected, and ALWAYS knew she was loved. I cooked all

the foods she loved, and kept her content.

Love them.

Hold them.

Too soon they leave.

Jannis

Daughter of , who left us at age 82

Victor over LBD with Parkinson's

March 18, 2011

I am so sorry for your loss. That was a beautiful eulogy for your mother. Nan

>

> My beautiful mother left us at 11:55 last night.

>

> I was blessed and privileged to live with her and my father for the past two

years, and play an active role in her care. While it was difficult at times,

and a struggle while I was also dealing with my own diagnosis of metastatic

colon cancer and two surgeries and chemo, I wouldn't have traded my time and

ability to be with Mom and Dad for anything else in the world.

>

> I was with her and Dad as she drew her last breath, and her sweet spirit left

her poor little damaged body and brain. She had been having mini-strokes for

several weeks, each one leaving her more debilitated and confused than the

previous, but we still had moments where we connected and were able to express

our love for each other.

>

> We might not have had the best relationship when I was younger, but I have

come to the knowledge that it was not just my fault, nor just her fault, but a

combination of divergent hopes and dreams and aspirations and expectations. We

grew, as time passed, to appreciate each other more and more, and I realized

last night that there had not been one single day in my life when we had not

talked either in person or by phone.

>

> I don't regret keeping Mom at home, and being proactive in her care. It was

difficult for my 87-year-old dad at times, and she could wear us all to a

frazzle, but our doing so kept her with us far beyond what many are able to

survive with LBD with Parkinson's. She was never hungry, never thirsty, never

wet, never soiled, never neglected, and ALWAYS knew she was loved. I cooked all

the foods she loved, and kept her content.

>

> Love them.

>

> Hold them.

>

> Too soon they leave.

>

> Jannis

> Daughter of , who left us at age 82

> Victor over LBD with Parkinson's

>

March 18, 2011

Jannis,

My condolences on your loss.

Robin

>

> My beautiful mother left us at 11:55 last night.

>

> I was blessed and privileged to live with her and my father for the past two

years, and play an active role in her care.

March 18, 2011

Condolences Jannis to you and your father. You certainly held in there through

difficulties of your own. You don't even mention your back! I hope you can

heal well physically and emotionally now that your mom is at peace, knowing you

were there with her and for her to the end.

>

> My beautiful mother left us at 11:55 last night.

>

> I was blessed and privileged to live with her and my father for the past two

years, and play an active role in her care. While it was difficult at times,

and a struggle while I was also dealing with my own diagnosis of metastatic

colon cancer and two surgeries and chemo, I wouldn't have traded my time and

ability to be with Mom and Dad for anything else in the world.

>

> I was with her and Dad as she drew her last breath, and her sweet spirit left

her poor little damaged body and brain. She had been having mini-strokes for

several weeks, each one leaving her more debilitated and confused than the

previous, but we still had moments where we connected and were able to express

our love for each other.

>

> We might not have had the best relationship when I was younger, but I have

come to the knowledge that it was not just my fault, nor just her fault, but a

combination of divergent hopes and dreams and aspirations and expectations. We

grew, as time passed, to appreciate each other more and more, and I realized

last night that there had not been one single day in my life when we had not

talked either in person or by phone.

>

> I don't regret keeping Mom at home, and being proactive in her care. It was

difficult for my 87-year-old dad at times, and she could wear us all to a

frazzle, but our doing so kept her with us far beyond what many are able to

survive with LBD with Parkinson's. She was never hungry, never thirsty, never

wet, never soiled, never neglected, and ALWAYS knew she was loved. I cooked all

the foods she loved, and kept her content.

>

> Love them.

>

> Hold them.

>

> Too soon they leave.

>

> Jannis

> Daughter of , who left us at age 82

> Victor over LBD with Parkinson's

>

March 18, 2011

How wonderful that you have good memories of your time together and no

regrets! These will help you get through the grieving, and you will

always have them in your heart.

I'm sorry for your loss, Jannis, and will pray for your family in the

coming days...

--

His,

Sherry

daughter/guardian of , dx 4/09 with LBD, living in a nearby NH

> My beautiful mother left us at 11:55 last night.

>

> I was blessed and privileged to live with her and my father for the past two

years, and play an active role in her care. While it was difficult at times,

and a struggle while I was also dealing with my own diagnosis of metastatic

colon cancer and two surgeries and chemo, I wouldn't have traded my time and

ability to be with Mom and Dad for anything else in the world.

>

> I was with her and Dad as she drew her last breath, and her sweet spirit left

her poor little damaged body and brain. She had been having mini-strokes for

several weeks, each one leaving her more debilitated and confused than the

previous, but we still had moments where we connected and were able to express

our love for each other.

>

> We might not have had the best relationship when I was younger, but I have

come to the knowledge that it was not just my fault, nor just her fault, but a

combination of divergent hopes and dreams and aspirations and expectations. We

grew, as time passed, to appreciate each other more and more, and I realized

last night that there had not been one single day in my life when we had not

talked either in person or by phone.

>

> I don't regret keeping Mom at home, and being proactive in her care. It was

difficult for my 87-year-old dad at times, and she could wear us all to a

frazzle, but our doing so kept her with us far beyond what many are able to

survive with LBD with Parkinson's. She was never hungry, never thirsty, never

wet, never soiled, never neglected, and ALWAYS knew she was loved. I cooked all

the foods she loved, and kept her content.

>

> Love them.

>

> Hold them.

>

> Too soon they leave.

>

> Jannis

> Daughter of , who left us at age 82

> Victor over LBD with Parkinson's

March 18, 2011

Dear Jannis,

Please accept my condolences on the passing of your mother.

Take care,

Ferhan from Istanbul/Turkey

________________________________

To: LBDcaregivers

Sent: Fri, March 18, 2011 6:28:00 AM