Guest guest Posted August 18, 2010 Report Share Posted August 18, 2010 Wrote: Members whose loved ones had adverse reactions feel free to pipe in here... Let's help warn others. , Of the many years that I have been in this group since 2003, I have heard over and over again about LOs that took Ativan and had extreme adverse reactions. Instead of calming, it did the opposite and made the LO more aggressive and the doctor not knowing about LBD would up the dosage trying to calm the patient and it made the LO extremely aggressive to the point where nursing homes or any facility would not accept them or they were tossed out of the home they were in. It is horribly frustrating for everyone involved. No one can tolerate them. I remember one daughter in tears, because she had been through every nursing home within a radius of her home and her dad was tossed out of everyone of them, because he broke windows in the nursing homes plus various other things and was causing all kinds of danger. I especially remember him breaking windows. Jim was living at home and I thought he was aggressive with UTIs, but nothing like this man. I immediately stated on Jim's medical charts that he is allergic to ATIVAN. I didn't even want for him to try it. I already know how sensitive he is to other medications, I wasn't going to go near that one. It's horrible if the LO has adverse reactions to Ativan, because there is no turning back. It never wears off once it is given and they have a reaction to it. They are forever more extremely aggressive. I heard so many of these nightmares over Ativan and I am sharing my story of what I have heard, even though I have never experienced it, thankfully! I tell all medical staff that my husband is allergic to Ativan and it is written in his chart, even though he has never actually tried it Praise the Lord, but I am so afraid of that drug, everytime I hear the name I cringe. My biggest fear is that a nurse goofs and gives Jim someone's Ativan at the nursing home thinking it is something else. One nurse I caught giving my husband medication of a person whose last name is Colman, she didn't check the last name, she only saw the Col. They can make mistakes and I fear that happening. Praise the Lord again that it hasn't happened. My own daughter was on it for awhile and became so addicted to it, she was a mess getting off of it. She is very well now and getting married next week. I am so proud of her. Just my two cents worth on ATIVAN. Janet Colello ________________________________ To: LBDcaregivers Sent: Wed, August 18, 2010 12:56:40 PM Subject: Re: Nursing home  Members whose loved ones had adverse reactions feel free to pipe in here... Let's help warn others. > > > > > > Bernardine, > > > > > > You have been hearing lots of different advice about NH's because there are >so many. You need to find one you like and I had to realize, they weren't going >to care for Mom as I did. That was hard. But when I realize she did ok there, >and I would be there 2 times a day for hours, I was still taking care of her. > > > > > > > It is important to find one you can work with and is going to cooperate >with you. LBD is hard a lot of pro's don't know enough about it. They want to >call it " dementia " and there are all kinds and need different things. > > > > > > Just my opinion. > > > > > > Hugs, > > > > > > Donna R > > > > > > Cared for Mom 3 years in my home and the last year at a nh. She passed away >from LBD in 2002. > > > > > > > > > Nursing home > > > > > > My husband is still at home and as been suffering from LBD going on ten >years. This last year he has been on a downward spiral. During the course of his >disease he seems to do better with more medication than less and he has been to >one neurologist and three movement disorder specialist. > > > > > > The other morning he woke up very confused and thought someone had been in >the house and stole his money and credit card. He tried calling 911 many times >and succeded twice, but I was lucky enough to stop them from coming. > > > > > > I tried to get the phone away from him while holding the other phone so I >could disconnect the calls. I think this made him feel threaten and he grippped >by arm tightly while throwing both phone down and breaking them. > > > > > > I do not like taking him to the emergency as the first think they do is >take him off all his meds which just makes the situation worse. I called the >doctor on call and was told to give him a bit more seroquel and we got him to >quiet down and he has been good since. > > > > > > Now everyone wants me to put him in a home right away. I can understand >that he can become more violet with this disease and I will be at least looking >at the choices I have. He takes meds nine times a day and calls for help a lot >and I think I may have to pay a fortuen to get him help in a NH. > > > > > > Has anyone ever faced this situation and what did they do. I have 24/7 care >for him at home now. My caregivers will call 911 and I have all emergency >information for them to take. > > > > > > Any advise would be appreciated as I am confused by all the different >advise I get about NH, both good and bad. > > > > > > BernardineFord > > > Caregiver to husband > > > Diagnosed in 2001 > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.