Re: Our helmet experiences!!!! DOC Band and Orthotic Helmets-

[Guest guest]

,

I've probably asked this before, but where are you located? We're

in Orange County.

Best of luck with your appt tomorrow!!

&

> > > > > > I have twin daughters that both had plagiocephaly, and

one

> > also

> > > > had

> > > > > > torticollis.

> > > > > >

> > > > > > We were originally diagnosed in the St. Louis area and

were

> > > > > > instructed to purchase Orthotic Helmets from the

University

> > Lab

> > > > > > (where the physician happened to be employed) These

helmets

> > > were

> > > > > > fairly expensive. In addition, they were horrible. Our

> > infants

> > > > > hated

> > > > > > them, they continually tried to get the helmet off,

> primarily

> > > > > because

> > > > > > of the velcro chin strap mechanism that maintains their

> > > > placement,

> > > > > > and the complete discomfort associated with the design.

We

> > all

> > > > > > suffered through several months of these crappy helmets,

> and

> > > only

> > > > > > received minimal improvement. Our daughter's heads were

> still

> > > > > > disfigured. Fortunately, during this time I was

relocated

> to

> > > > Kansas

> > > > > > City and we met a new Specialist that recommended the

DOC

> > Band.

> > > > We

> > > > > > spoke with several people at the company and received

the

> > > > > > documentation and support that we needed for the

insurance

> > > > claims,

> > > > > > they helped us get them reimbursed.

> > > > > >

> > > > > > Our first daughter wore her band for a few months and

was

> > taken

> > > > out

> > > > > > of it, the improvement was remarkable. Our second

daughter

> > (the

> > > > > most

> > > > > > extreme case) made noted improvement and was relieved of

> her

> > > band

> > > > > > after six months or so. Unfortunately because of her

> > increasing

> > > > age

> > > > > > she was taken out of the helmet due to the diminishing

> > benefits

> > > > > that

> > > > > > would be received at that point. Her improvement though

was

> > > > great,

> > > > > > compared to where it was when we started. She will need

to

> > have

> > > a

> > > > > > cosmetic procedure performed on her ear, because it is

> > sticking

> > > > out

> > > > > > pretty far, but her head shape is close to being normal.

I

> > > > > > thouroughly believe that if we had the DOC Band in the

> > > beginning

> > > > > the

> > > > > > time in the helmets would have been reduced, and that

our

> > > results

> > > > > > would have been 100% successful.

> > > > > >

> > > > > > On a wonderful note, we have some friends that were

blessed

> > > with

> > > > > > triplets in Colorado, two of them required devices(the

> > > > > plagiocephaly

> > > > > > was caught early) They asked us about our experience,

and

> > they

> > > > > > elected to get the DOC Band. After three months they are

> both

> > > > > looking

> > > > > > great, and will have them removed next week!!!!!! The

> > original

> > > > > > specialist directed them to an Orthotic Helmet-----all I

> can

> > > say

> > > > is

> > > > > > why?????

> > > > > >

> > > > > > I realize that there are cheaper options out there, but

the

> > DOC

> > > > > Band

> > > > > > works. Don't waste your precious time on the other items

> out

> > > > there,

> > > > > > or you could end up in similar situation to ours.

> > > > > >

> > > > > > If you want to know more about our experience or would

like

> > our

> > > > > > support email us at kempentwins@y...

> > > > > >

> > > > > >

> > > > > > The tips that I can recommend are the following:

> > > > > > 1. Find a competent specialist!

> > > > > > 2. If an orthotic device is need get the DOC Band!

> > > > > > 3. Use the DOC Band, it is hard to see your infant

wearing

> > > these-

> > > > > > perservere, it is for them!

> > > > > > 4. Follow up, and if you receive red marks contact the

> device

> > > > > fitter!

>

>

>

>