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> http://news.yahoo.com/s/ap/20060302/ap_on_re_us/caged_children

>

> The actions of this women concern me a great deal. I don't know

> if any of the children here were autistic, but that does not

> lessen the extent of the horror here.

I think this woman is an isolated incidence. There may be

others but that is not something that society accepts.

She is apparently going to have her day in court, but that

doesn't mean that the court or anyone else will accept her

behavior.

( " Yes, your honour. I never let them go for a day

without changing their newspapers and water. And I fed them

twice a day, except on Sunday when they only got fed once

because we were closed. " )

I don't think this is an autism issue because her treatment

isn't accepted regardless of whether the kids were autistic.

Despite the problems DYFS (NJ's child protective service agency)

had, DYFS' problems are of a different nature from acceptance

of caging of children.

(Incidentally, these were cages. The photos from a few months

back showed what looked like a veterinary boarding kennel.)

- s

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Oh, please don't misunderstand. I don't for one moment think that

society *accepts

*practices like this or that they are commonplace. I am wondering though,

how common they may be through lack of oversight and understaffing. And this

probably is more of a broader human rights than an autism issue. I still

find it worthwhile to notice though and I'd be curious to know how

widespread this sort of negligence is in the fostercare system.

>

>

>

> > http://news.yahoo.com/s/ap/20060302/ap_on_re_us/caged_children

> >

> > The actions of this women concern me a great deal. I don't know

> > if any of the children here were autistic, but that does not

> > lessen the extent of the horror here.

>

> I think this woman is an isolated incidence. There may be

> others but that is not something that society accepts.

>

> She is apparently going to have her day in court, but that

> doesn't mean that the court or anyone else will accept her

> behavior.

>

> ( " Yes, your honour. I never let them go for a day

> without changing their newspapers and water. And I fed them

> twice a day, except on Sunday when they only got fed once

> because we were closed. " )

>

> I don't think this is an autism issue because her treatment

> isn't accepted regardless of whether the kids were autistic.

>

>

> Despite the problems DYFS (NJ's child protective service agency)

> had, DYFS' problems are of a different nature from acceptance

> of caging of children.

>

> (Incidentally, these were cages. The photos from a few months

> back showed what looked like a veterinary boarding kennel.)

>

> - s

>

>

>

>

>

>

>

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> I don't think this is an autism issue because her treatment

> isn't accepted regardless of whether the kids were autistic.

But things like this (cages just being one particular form of " things

like this " ):

(a) Happen more often to disabled (including autistic) kids than

non-disabled kids.

(B) Have a history of being *justified* by the kids being disabled.

The main exceptional thing about this, is that people are objecting as

strenuously as they are, and not continually bringing up the strain of

raising all those defective kids. It's not really that exceptional

that things like this are happening.

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In reference to b, I remember a case, it may have been in Britain, where a

mother killed her autistic son, then recieved virtually no sentence (despite

conviction) because of her story about the 'heavy burden' of having him

around. It's truly disgusting stuff.

>

>

>

> > I don't think this is an autism issue because her treatment

> > isn't accepted regardless of whether the kids were autistic.

>

> But things like this (cages just being one particular form of " things

> like this " ):

>

> (a) Happen more often to disabled (including autistic) kids than

> non-disabled kids.

>

> (B) Have a history of being *justified* by the kids being disabled.

>

> The main exceptional thing about this, is that people are objecting as

> strenuously as they are, and not continually bringing up the strain of

> raising all those defective kids. It's not really that exceptional

> that things like this are happening.

>

>

>

>

>

>

>

>

>

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Where are those photos, all I can find are ones like in this article.

http://www.usatoday.com/news/nation/2006-01-17-bed-or-cage_x.htm

I would be really curious to see.

I used to teach special ed (such an interesting irony) and had to do

physical holds, and I hated it, and I hated the time out room, and I

hated the sad fate for these kids that only knew how to strike out.

Not all of them fit that category, and they all had different

" disabling conditions " some of which were no more than normal

reactions to childhood abuse (IMHO). I hate " Group homes " too. Sorry

if any of that offends, but I had two years of working for the

Devereaux foundation, and it was not a good place.

Thanks!

jen

> (Incidentally, these were cages. The photos from a few months

> back showed what looked like a veterinary boarding kennel.)

>

> - s

>

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>

> > I don't think this is an autism issue because her treatment

> > isn't accepted regardless of whether the kids were autistic.

>

> But things like this (cages just being one particular form

of " things

> like this " ):

>

> (a) Happen more often to disabled (including autistic) kids than

> non-disabled kids.

>

> (B) Have a history of being *justified* by the kids being disabled.

>

> The main exceptional thing about this, is that people are

objecting as

> strenuously as they are, and not continually bringing up the

strain of

> raising all those defective kids. It's not really that exceptional

> that things like this are happening.

>

>

>

What upsets me is that so far, I see little concern from our

elitist asperger groups about human rights. GRASP at least allowed

me to put a FAQ about chelation on its website. But AANE?, forget

it. Too cozy, I guess with their local neighbors, FAAAS, AutCom aka

the Soma Fanclub and of course, JRC. Nice company.

The ironic thing is that I get more concern about human rights

from NTs like Sue Moreno and Pat Schissel than from my own peers who

are leaders and silent usually. At least MAAP and the Long Island

HFA-AS group allowed me to print a letter about the chelation death

in Pennsylvania.

I have aspergers not autism but I we aspies have to do a lot

more caring about the entire autism company. We should use our

abilities to advance all of us, not just sell books, do speechs and

smile when the carpet is stained with the blood of our less

fortunate autistic brethren.

Jerry Newport

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> I had two years of working for the

> Devereaux foundation, and it was not a good place.

I know several people who lived at Devereaux, and yes, they said it

was awful.

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> What upsets me is that so far, I see little concern from our

> elitist asperger groups about human rights. GRASP at least allowed

> me to put a FAQ about chelation on its website. But AANE?, forget

> it. Too cozy, I guess with their local neighbors, FAAAS, AutCom aka

> the Soma Fanclub and of course, JRC. Nice company.

What bugs me about AutCom is that they're apparently against

aversives... except when being done by someone who also legitimates

the idea of " severely " autistic people being capable of typing.

You'd think you'd be able to go " Okay, yes, this shows that people

might be able to learn more than they're expected to, but look,

learning this doesn't require abuse. " But people want simplistic

statements I guess.

> The ironic thing is that I get more concern about human rights

> from NTs like Sue Moreno and Pat Schissel than from my own peers

> who are leaders and silent usually. At least MAAP and the Long

> Island HFA-AS group allowed me to print a letter about the

> chelation death in Pennsylvania.

I've so far found very little support *in general* for my views on

these really basic issues, as far as people with much power or fame (I

haven't found many NTs all that interested in them either -- and some

NTs who have been interested in them, have ignored further human

rights violations, such as that woman who is really anti-aversives but

(like most BHS parents) doesn't like any criticism at all of the

Boston Higashi School).

Many people seem too concerned with not alienating anyone, to realize

that maybe alienating people who actively or passively condone human

rights violations isn't a bad thing, if the reason you're alienating

them is that you're saying " Hey, you know what, this is just wrong all

over, this shouldn't be happening. "

> I have aspergers not autism but I we aspies have to do a lot

> more caring about the entire autism company. We should use our

> abilities to advance all of us, not just sell books, do speechs and

> smile when the carpet is stained with the blood of our less

> fortunate autistic brethren.

I may not agree with your categories, but I do agree with the

sentiment. Human rights for *all* autistic people, not just whatever

group we happen to belong to, is important, and I haven't seen a lot

of places to focus on that and really get things done.

I'm good at writing, that's the main contribution I can make to such

efforts, but I'd love to be able to team up with people who were good

at *other* things, people with more energy than I have in general too

would be nice, to do these things.

In local advocacy around here for instance I ran into a problem last

year because the two of us who continued to make a stand on something

important had too many health problems to keep it up the way we wanted

to be doing.

That becomes a problem, in general, for a lot of people who fall into

the 'at least somewhat more incapacitated' range (for lack of a better

term) for whatever reason. We fight these things because it's our

survival at stake and therefore we can't ignore them, but without

allies who are more capable of doing a lot of things, we have no

energy left.

And there are people who have a lot less ability to do this stuff in a

way that gets change done, than we do.

But I've been frustrated because it seems like many of the people with

more stable capabilities that a lot of us could *really use* added to

our own kind of flimsy ones, are more interested in other things and

often in status crap.

To choose a totally non-autism example, we had a non-disabled woman in

this apartment building who could have taken ten minutes of her time

to sign something that was already written, that would have put a

temporary stop to construction that was making a lot of the people

with lung disease around here (who don't all have advocacy skills or

even get-out-of-bed skills) really sick. She knew this, she knew what

was at stake, and she decided that it was more important to buy

spaghetti for a party. (Which is how and I ended up living

outside for a few days and totally trashing our health in *other* ways

in the process of all this, and a lot of other people who didn't or

couldn't leave the building ended up very sick.)

In the autism world, it's not spaghetti parties generally that have

this sort of effect, but it's other things.

There's " Well our issues are more important since we're more real

people " (or something along those lines). (You know... I've always

supported and learned about employment issues (and not just for

'aspies'), and other things that have little to do with me, in the

autism world, but I know very few people who've gotten involved in or

even learned much about the human rights issues that affect me or many

other autistic people, on a regular basis.)

There's " It'd be abuse/neglect/whatever if it happened to us, but for

those hopeless cases, you know, everyone's different. " (I don't know

what to say to these people except wake up.)

There's all kinds of things. Usually not spaghetti but you get the

point I hope.

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wrote, in part:

>> I'm good at writing, that's the main contribution I can make to

such efforts, but I'd love to be able to team up with people who

were good at *other* things, people with more energy than I have in

general too would be nice, to do these things.

In local advocacy around here for instance I ran into a problem last

year because the two of us who continued to make a stand on

something important had too many health problems to keep it up the

way we wanted to be doing.

That becomes a problem, in general, for a lot of people who fall

into the 'at least somewhat more incapacitated' range (for lack of a

better term) for whatever reason. We fight these things because

it's our survival at stake and therefore we can't ignore them, but

without allies who are more capable of doing a lot of things, we

have no energy left.

And there are people who have a lot less ability to do this stuff in

a way that gets change done, than we do. <<

I regularly meet up with people who want to help, but don't know

what to do. We need to get the groups together.

When something needs attention in the New York City/Long Island

area, please let me know. I'm sure there are others who are willing

to help in other areas. And for important issues, some of us are

willing to travel. Why not put out a general " call to action " when

needed?

Honestly, , there are more people who care about you than you

will ever know. I think a request from you would bring action.

Some of us have excess energy that needs to be channeled.

- Debra

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> Honestly, , there are more people who care about you than you

> will ever know. I think a request from you would bring action.

> Some of us have excess energy that needs to be channeled.

It's not really about whether people care about me specifically or

not, though. (I mean what if I didn't exist, what then?) It's more

about whether certain issues (that I happen to care about, and/or that

happen to affect me personally, but also a lot of other people) even

get covered or understood, in a broader sense, whether or not I'm

there to mention them.

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> It's not really about whether people care about me specifically

> or not, though. ... It's more about whether certain issues..

> even get covered or understood, in a broader sense

Hi -

As I read it, there are 4 different issues:

1. Is the caged kids story relevant to us, more so than to NTs.

( " us " meaning all or some of us. We're all in this together.)

2. Do we ignore issues which affect *some* of us? (see above)

3. Does the story represent a public attitude that people with

disabilities deserve less protection than " normal " people?

4. Will speaking out against the caged kids help people with

disabilities?

My take is that the caged kids story is only slightly more

meaningful to autistics because:

1. the event was not limited to autistics or even kids with

disabilities (or perhaps I'm wrong about the latter part).

2. the general public sees this as an outrage. The issues to be

resolved are the effectiveness of child protective services, and

whether this sort of thing can effectively be monitored. Adding

our voices focuses on issues already addressed by mainstream

concerns.

I think this story on its own merits discredits the concept that

people with disabilities deserve less protection. i.e., if

autistics need to be caged, then why did she cage other kids?

This affects autistics more than NTs because autistic kids are

more likely to end up in foster homes. To some extent, that

means that foster home abuses are of particular concern to

autistics, but that defines this as a mainstream issue of

particular concern to autistics.

People regard people who are " different " as needing less

protection. People who don't understand autism are more likely

to accept that unusual treatment is warranted. THAT's where we

can speak up and say that those concepts are wrong. The public

already understands that storing kids in veterinary kennels is

wrong.

So if we do say something, we are practicing a bit of

" mini-advocacy " (my terminology). We are taking an issue for

which there is already a public consensus and applying our idea

to it. Under " mini-advocacy " , the issue is child abuse, and our

idea is that autistics should be protected from child abuse.

- s

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That certainly does seem to be a concern. I am reminded of that old

Niemoller quote:

" *First they came for the communists, and I did not speak out—

because I was not a communist;

Then they came for the socialists, and I did not speak out—

because I was not a socialist;

Then they came for the trade unionists, and I did not speak out—

because I was not a trade unionist;

Then they came for the Jews, and I did not speak out—

because I was not a Jew;

Then they came for me—

and there was no one left to speak out. " *

In order to secure many of the issues important for Asperger's autistics a

broader community is necessary, and beyond that, there needs to be a common

recognition of the inherent worth of all autistics, even if we believe

distinctions can be made between different types of autistics(something

that, in my opinion, should be an acceptable difference in opinion that

should not lead to the animosity I've felt towards some of the people who

hold that belief). We can promote tolerance, diversity and equal worth and

neurological legitimacy for autistics in general, even if we recognize the

different subsets that exist in our community.

-Ari

P.S: I'm unfamiliar with AutCom (Soma Fanclub?) or JRC, though I am familiar

(and very disgusted by) with FAAAS and ASPar. Can someone clarify who those

two are? Thanks.

>

>

> What upsets me is that so far, I see little concern from our

> elitist asperger groups about human rights. GRASP at least allowed

> me to put a FAQ about chelation on its website. But AANE?, forget

> it. Too cozy, I guess with their local neighbors, FAAAS, AutCom aka

> the Soma Fanclub and of course, JRC. Nice company.

>

> The ironic thing is that I get more concern about human rights

> from NTs like Sue Moreno and Pat Schissel than from my own peers who

> are leaders and silent usually. At least MAAP and the Long Island

> HFA-AS group allowed me to print a letter about the chelation death

> in Pennsylvania.

>

> I have aspergers not autism but I we aspies have to do a lot

> more caring about the entire autism company. We should use our

> abilities to advance all of us, not just sell books, do speechs and

> smile when the carpet is stained with the blood of our less

> fortunate autistic brethren.

>

> Jerry Newport

>

>

>

>

>

>

>

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