Re: Where is everyone?

[Guest guest]

I read my digested mail from LBD caregivers every day it comes in. Now that

I am no longer taking care of an LBD patient, I respond when I can give some

advice to someone else who is on the active " Lewy Roller Coaster " and

support when someone is having a terrible time. If I can help someone, I am

happy to do that. Otherwise, I am here in Upstate NY (Tug Hill Region where

snow abounds this time of year) getting prepared for Christmas celebrations.

I wish you all Merry Christmas and a Happy New Year. If you don't celebrate

the religious aspects, I hope the season is still a peaceful, memorable time

for you and yours. Leona

Leona: Caregiver for husband Ray, age 68, diagnosed 2/04 with Parkinson's

Disease. Changed doctors, diagnosed 6/06 with LBD. Almost continual downhill

slide no matter what drugs we try. 5/2/08 Ray was placed in Sunrise Nursing

Home in Oswego, NY, 1 hour from home. So far, so good! Hardest thing I have

ever done in my life, however. 3/19/09 transferred to Samaritan Keep NH in

Watertown, NY closer to home. He passed peacefully at 5:18 am on April 14,

2009. I am handling it OK.

'Love is not finding someone to live with; it's finding someone you don't

want to live without.'

[Guest guest]

leona i think that is what of most of the former cg do, just kinda lurk, i know

that is what i do,  and if i hafve an issue to share about my own

issues,

hope you have a happy holidays.  hugsl sharon

Subject: Re: Where is everyone?

To: LBDcaregivers

Date: Monday, December 13, 2010, 10:15 AM

 

I read my digested mail from LBD caregivers every day it comes in. Now that

I am no longer taking care of an LBD patient, I respond when I can give some

advice to someone else who is on the active " Lewy Roller Coaster " and

support when someone is having a terrible time. If I can help someone, I am

happy to do that. Otherwise, I am here in Upstate NY (Tug Hill Region where

snow abounds this time of year) getting prepared for Christmas celebrations.

I wish you all Merry Christmas and a Happy New Year. If you don't celebrate

the religious aspects, I hope the season is still a peaceful, memorable time

for you and yours. Leona

Leona: Caregiver for husband Ray, age 68, diagnosed 2/04 with Parkinson's

Disease. Changed doctors, diagnosed 6/06 with LBD. Almost continual downhill

slide no matter what drugs we try. 5/2/08 Ray was placed in Sunrise Nursing

Home in Oswego, NY, 1 hour from home. So far, so good! Hardest thing I have

ever done in my life, however. 3/19/09 transferred to Samaritan Keep NH in

Watertown, NY closer to home. He passed peacefully at 5:18 am on April 14,

2009. I am handling it OK.

'Love is not finding someone to live with; it's finding someone you don't

want to live without.'

[Guest guest]

Hi Leona and Sharon,

It is always good to hear from us " old timers. " I am just really curious why we

aren't hearing from some more of the " new timers. " Anyone have any good ideas?

It is good to hear from both of you and glad you are doing well. Sharon you

have a bit warmer weather in Florida than we have up here in MI right now! And

Leona it may be coming your way! Look out! It is so freezing here in MI. And

we have lots without power right now. That doesn't help in this cold weather..

Hope you both with your family, have a Merry Christmas and Happy Holiday.

Hugs,

Donna R

Cared for Mom 3 years in my home and the last year at a nh. She passed away

from LBD in 2002.

Re: Where is everyone?

To: LBDcaregivers

Date: Monday, December 13, 2010, 10:15 AM

 

I read my digested mail from LBD caregivers every day it comes in. Now that

I am no longer taking care of an LBD patient, I respond when I can give some

advice to someone else who is on the active " Lewy Roller Coaster " and

support when someone is having a terrible time. If I can help someone, I am

happy to do that. Otherwise, I am here in Upstate NY (Tug Hill Region where

snow abounds this time of year) getting prepared for Christmas celebrations.

I wish you all Merry Christmas and a Happy New Year. If you don't celebrate

the religious aspects, I hope the season is still a peaceful, memorable time

for you and yours. Leona

Leona: Caregiver for husband Ray, age 68, diagnosed 2/04 with Parkinson's

Disease. Changed doctors, diagnosed 6/06 with LBD. Almost continual downhill

slide no matter what drugs we try. 5/2/08 Ray was placed in Sunrise Nursing

Home in Oswego, NY, 1 hour from home. So far, so good! Hardest thing I have

ever done in my life, however. 3/19/09 transferred to Samaritan Keep NH in

Watertown, NY closer to home. He passed peacefully at 5:18 am on April 14,

2009. I am handling it OK.

'Love is not finding someone to live with; it's finding someone you don't

want to live without.'

[Guest guest]

We have got the medical issues stabilized for the moment and signed up for home

health. She is much improved physically. Now on to the behavior and sleep

issues. We tried Seroquel again Saturday night, ½ dose (12.5 mg) and she slept

10 hours – and we slept about 6 which was wonderful to get some sleep. Last

night however she slept only 5 hours then was again yelling at the top of her

lungs all kinds of stuff with the aim of getting someone to come. So I’m now

trying to figure out what to do from here… higher dose of Seroquel or

something added to it. She had been on Remeron and Trazadone and they were not

working. This is serious because she is not getting much rest and neither am I

– and I have come down with cellulitis in my leg and must get this figured out

so I can rest more.

I’m not sure if this is a common issue with LBD or not… probably is though

She will wake up and in the same breath start yelling

“is anybody up yet Is it time to get up? I want to get up now.

“(husband’s name)?†Are you there? Is anyone here? (dog’s name)

(cat’s name) My leg hurts, my stomach hurts, I’m itchy, my back hurts, my

head hurts, I’m cold, I’m hot, Help me, can somebody help me. †And on it

goes. I can’t see any difference in whether I get up and address each issue

or not. It continues. This morning she is hoarse because she yelled so much

last night.

When I go in to help with various things I do what I can she says it’s better

and will go to sleep so I leave or I sit there with her and 10 -30 minutes it

starts all over again. Sometimes the same thing. Often she looks around

before starting up. If she sees me she says hello and smiles. If she doesn’t

see me or someone else she starts up. I have watched her kick off the covers

and immediately start yelling that she is cold. I go back in and cover her up

tell her everything’s ok, leave and the same thing. My husband told me she

would have me running all night long if she could and I should wait and see if

she goes back to sleep. So I have tried this too. Sometimes she does go back

to sleep. Sometimes she changes the complaint – leg hurts changes to itchy

changes to headache changes to stomach hurts. Sometimes it escalates and she

starts talking to herself (very loudly which makes me wonder if she’s talking

to an audience) that she’s alone and has to get up by herself and how will she

do this because she can’t walk and starts rattling the bed rails hard. Last

night there were new complaints, “I’m hungry!†“Can I have something to

eat?†and “I want to watch TV†“I can’t walk!â€.

I can see easily that some of this are the hallucinations or whatever they are

called. I’m not sure about all of it. The reason I’m trying to figure it

out that way is hopefully it will help know how to manage it better. Also the

“groaning†is much more loud, and almost constant. It is indeed a habit and

also seems to be a substitute for conversation or words that communicate things

like hunger, pain, frustration, impatience, sadness, longing, happiness, etc.

Groaning is becoming a whole other language.

As far as hospice we are told we are not there yet. It could very likely be the

hiatle hernia with partial collapsed lung and enlarged heart issue that will get

her in the end – before the final end stages of LBD. Neither one seems a

pleasant thing to me but that’s where we are. My feeling is we are seeing big

changes in her at least every month if not every two weeks so may not be much

time left really. Maybe by next month it will be clearer.

The caregiving help we have is not the greatest but it’s better than nothing.

They ASK my mil everything – do you want to do your nebulizer, would you want

to have a shower etc. and of course the answer is “NO!†I’m trying to get

this changed to a more direct, “it’s time to do your nebulizer†or “time

for a showerâ€. She doesn’t say no and put up a fight if it’s a fact. Even

getting up to go to the bathroom they ask and she says “No not yet†and will

sit there having a bm and still say she’s not ready yet. A few times of that

they seem to be a little more insistent she get up and go to the bathroom

regularly. I’m trying to get a balance of respecting a person’s wishes and

doing what needs to be done for their optimum care. A shower once a week is not

unreasonable. I’m trying for two. Since my back is toast I do not do showers

– a hired caregiver does. I think a lot of this behavior stuff is

psychological issues and I’m not good at that.

The anxiety did seem better with Seroquel the day after the first dose. Today

she is anxious again trying to rush through her nebulizer yelling she’s done

now and she’s no where near it. Every 3-5 minutes and she’s mad at me for

making her do the treatment. I have a bath transfer bench I managed to assemble

this morning between the impatience and such (what’s taking so long… etc.)

and now going to try that and see if it makes bathing easier for us both. I am

really tired!

Dorothy

[Guest guest]

Dorothy,

I am so sorry to hear all you are going through. The MD always told me to come

in and we would check for UTI. And she usually had one. Other than that, I

would not go in if she was just in her room. You might train her to yell if you

go whenever she yells. Mom use to pack and get dressed and go back to bed. And

that was fine with me. As long as she didn't go anywhere. But if your LO can't

walk, you don't have that problem.

No matter how we say it, you must find a way to sleep no matter what. You will

find burnout on the way and then you can't take care of her anyway. Hire a

student for a few afternoons or evenings and sleep anyway. Or one of the family

can each take a turn.

I know that sounds far fetched to you but you must when you are that tired, get

some sleep. Go to the Motel or Hotel and just sleep! I use to get mad when

someone told me that and didn't think I could. But it will eat at your health

if you don't. And Stop responding to her. She will be fine. I found that out

the hard way. She was up every other night and she wasn't tired, I was.

Lots of hugs.

PS It is Christmas and make it your present, to find a way to rest.

Donna R

Cared for Mom 3 years in my home and the last year at a nh. She passed away

from LBD in 2002.

RE: Re: Where is everyone?

We have got the medical issues stabilized for the moment and signed up for home

health. She is much improved physically. Now on to the behavior and sleep

issues. We tried Seroquel again Saturday night, ½ dose (12.5 mg) and she slept

10 hours – and we slept about 6 which was wonderful to get some sleep. Last

night however she slept only 5 hours then was again yelling at the top of her

lungs all kinds of stuff with the aim of getting someone to come. So I’m now

trying to figure out what to do from here… higher dose of Seroquel or

something added to it. She had been on Remeron and Trazadone and they were not

working. This is serious because she is not getting much rest and neither am I

– and I have come down with cellulitis in my leg and must get this figured out

so I can rest more.

I’m not sure if this is a common issue with LBD or not… probably is though

She will wake up and in the same breath start yelling

“is anybody up yet Is it time to get up? I want to get up now.

“(husband’s name)?†Are you there? Is anyone here? (dog’s name)

(cat’s name) My leg hurts, my stomach hurts, I’m itchy, my back hurts, my

head hurts, I’m cold, I’m hot, Help me, can somebody help me. †And on it

goes. I can’t see any difference in whether I get up and address each issue

or not. It continues. This morning she is hoarse because she yelled so much

last night.

When I go in to help with various things I do what I can she says it’s better

and will go to sleep so I leave or I sit there with her and 10 -30 minutes it

starts all over again. Sometimes the same thing. Often she looks around

before starting up. If she sees me she says hello and smiles. If she doesn’t

see me or someone else she starts up. I have watched her kick off the covers

and immediately start yelling that she is cold. I go back in and cover her up

tell her everything’s ok, leave and the same thing. My husband told me she

would have me running all night long if she could and I should wait and see if

she goes back to sleep. So I have tried this too. Sometimes she does go back

to sleep. Sometimes she changes the complaint – leg hurts changes to itchy

changes to headache changes to stomach hurts. Sometimes it escalates and she

starts talking to herself (very loudly which makes me wonder if she’s talking

to an audience) that she’s alone and has to get up by herself and how will she

do this because she can’t walk and starts rattling the bed rails hard. Last

night there were new complaints, “I’m hungry!†“Can I have something to

eat?†and “I want to watch TV†“I can’t walk!â€.

I can see easily that some of this are the hallucinations or whatever they are

called. I’m not sure about all of it. The reason I’m trying to figure it

out that way is hopefully it will help know how to manage it better. Also the

“groaning†is much more loud, and almost constant. It is indeed a habit and

also seems to be a substitute for conversation or words that communicate things

like hunger, pain, frustration, impatience, sadness, longing, happiness, etc.

Groaning is becoming a whole other language.

As far as hospice we are told we are not there yet. It could very likely be the

hiatle hernia with partial collapsed lung and enlarged heart issue that will get

her in the end – before the final end stages of LBD. Neither one seems a

pleasant thing to me but that’s where we are. My feeling is we are seeing big

changes in her at least every month if not every two weeks so may not be much

time left really. Maybe by next month it will be clearer.

The caregiving help we have is not the greatest but it’s better than nothing.

They ASK my mil everything – do you want to do your nebulizer, would you want

to have a shower etc. and of course the answer is “NO!†I’m trying to get

this changed to a more direct, “it’s time to do your nebulizer†or “time

for a showerâ€. She doesn’t say no and put up a fight if it’s a fact. Even

getting up to go to the bathroom they ask and she says “No not yet†and will

sit there having a bm and still say she’s not ready yet. A few times of that

they seem to be a little more insistent she get up and go to the bathroom

regularly. I’m trying to get a balance of respecting a person’s wishes and

doing what needs to be done for their optimum care. A shower once a week is not

unreasonable. I’m trying for two. Since my back is toast I do not do showers

– a hired caregiver does. I think a lot of this behavior stuff is

psychological issues and I’m not good at that.

The anxiety did seem better with Seroquel the day after the first dose. Today

she is anxious again trying to rush through her nebulizer yelling she’s done

now and she’s no where near it. Every 3-5 minutes and she’s mad at me for

making her do the treatment. I have a bath transfer bench I managed to assemble

this morning between the impatience and such (what’s taking so long… etc.)

and now going to try that and see if it makes bathing easier for us both. I am

really tired!

Dorothy

[Guest guest]

Oh, Dorothy. Hang in there. Maybe you should look at a full dose of seroquel.

It helps my husband. Coming off the other sleep aids such as the trazodone may

be contributing to her anxiety. Trazodone is agreat anti-anxiety med which I am

sure you know. Some Neuros don't like their patients on it, though, because it

can contribute to confusion. This is such a guessing game with meds. I will

keep you in my thoughts today. Take care, nan

>

> We have got the medical issues stabilized for the moment and signed up for

home health. She is much improved physically. Now on to the behavior and sleep

issues. We tried Seroquel again Saturday night, ½ dose (12.5 mg) and she slept

10 hours †" and we slept about 6 which was wonderful to get some sleep. Last

night however she slept only 5 hours then was again yelling at the top of her

lungs all kinds of stuff with the aim of getting someone to come. So I’m now

trying to figure out what to do from here… higher dose of Seroquel or

something added to it. She had been on Remeron and Trazadone and they were not

working. This is serious because she is not getting much rest and neither am I

†" and I have come down with cellulitis in my leg and must get this figured out

so I can rest more.

>

>

>

> I’m not sure if this is a common issue with LBD or not… probably is though

>

> She will wake up and in the same breath start yelling

>

> “is anybody up yet Is it time to get up? I want to get up now.

“(husband’s name)?†Are you there? Is anyone here? (dog’s name)

(cat’s name) My leg hurts, my stomach hurts, I’m itchy, my back hurts, my

head hurts, I’m cold, I’m hot, Help me, can somebody help me. †And on it

goes. I can’t see any difference in whether I get up and address each issue

or not. It continues. This morning she is hoarse because she yelled so much

last night.

>

>

>

> When I go in to help with various things I do what I can she says it’s

better and will go to sleep so I leave or I sit there with her and 10 -30

minutes it starts all over again. Sometimes the same thing. Often she looks

around before starting up. If she sees me she says hello and smiles. If she

doesn’t see me or someone else she starts up. I have watched her kick off the

covers and immediately start yelling that she is cold. I go back in and cover

her up tell her everything’s ok, leave and the same thing. My husband told me

she would have me running all night long if she could and I should wait and see

if she goes back to sleep. So I have tried this too. Sometimes she does go

back to sleep. Sometimes she changes the complaint †" leg hurts changes to

itchy changes to headache changes to stomach hurts. Sometimes it escalates and

she starts talking to herself (very loudly which makes me wonder if she’s

talking to an audience) that she’s alone and has to get up by herself and how

will she do this because she can’t walk and starts rattling the bed rails

hard. Last night there were new complaints, “I’m hungry!†“Can I have

something to eat?†and “I want to watch TV†“I can’t walk!â€.

>

>

>

> I can see easily that some of this are the hallucinations or whatever they are

called. I’m not sure about all of it. The reason I’m trying to figure it

out that way is hopefully it will help know how to manage it better. Also the

“groaning†is much more loud, and almost constant. It is indeed a habit and

also seems to be a substitute for conversation or words that communicate things

like hunger, pain, frustration, impatience, sadness, longing, happiness, etc.

Groaning is becoming a whole other language.

>

>

>

> As far as hospice we are told we are not there yet. It could very likely be

the hiatle hernia with partial collapsed lung and enlarged heart issue that will

get her in the end †" before the final end stages of LBD. Neither one seems a

pleasant thing to me but that’s where we are. My feeling is we are seeing big

changes in her at least every month if not every two weeks so may not be much

time left really. Maybe by next month it will be clearer.

>

>

>

> The caregiving help we have is not the greatest but it’s better than

nothing. They ASK my mil everything †" do you want to do your nebulizer, would

you want to have a shower etc. and of course the answer is “NO!†I’m

trying to get this changed to a more direct, “it’s time to do your

nebulizer†or “time for a showerâ€. She doesn’t say no and put up a

fight if it’s a fact. Even getting up to go to the bathroom they ask and she

says “No not yet†and will sit there having a bm and still say she’s not

ready yet. A few times of that they seem to be a little more insistent she get

up and go to the bathroom regularly. I’m trying to get a balance of

respecting a person’s wishes and doing what needs to be done for their optimum

care. A shower once a week is not unreasonable. I’m trying for two. Since

my back is toast I do not do showers †" a hired caregiver does. I think a

lot of this behavior stuff is psychological issues and I’m not good at that.

>

>

>

> The anxiety did seem better with Seroquel the day after the first dose. Today

she is anxious again trying to rush through her nebulizer yelling she’s done

now and she’s no where near it. Every 3-5 minutes and she’s mad at me for

making her do the treatment. I have a bath transfer bench I managed to assemble

this morning between the impatience and such (what’s taking so long… etc.)

and now going to try that and see if it makes bathing easier for us both. I am

really tired!

>

>

>

> Dorothy

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Dear Leona,

Thank you so much for all your help, advice and caring. It has made a big

difference in my life.

Sending you love from Long Island,

Helene

>

>

> I read my digested mail from LBD caregivers every day it comes in. Now that

> I am no longer taking care of an LBD patient, I respond when I can give some

> advice to someone else who is on the active " Lewy Roller Coaster " and

> support when someone is having a terrible time. If I can help someone, I am

> happy to do that. Otherwise, I am here in Upstate NY (Tug Hill Region where

> snow abounds this time of year) getting prepared for Christmas celebrations.

> I wish you all Merry Christmas and a Happy New Year. If you don't celebrate

> the religious aspects, I hope the season is still a peaceful, memorable time

> for you and yours. Leona

>

> Leona: Caregiver for husband Ray, age 68, diagnosed 2/04 with Parkinson's

> Disease. Changed doctors, diagnosed 6/06 with LBD. Almost continual downhill

> slide no matter what drugs we try. 5/2/08 Ray was placed in Sunrise Nursing

> Home in Oswego, NY, 1 hour from home. So far, so good! Hardest thing I have

> ever done in my life, however. 3/19/09 transferred to Samaritan Keep NH in

> Watertown, NY closer to home. He passed peacefully at 5:18 am on April 14,

> 2009. I am handling it OK.

>

>

>

>

>

> 'Love is not finding someone to live with; it's finding someone you don't

> want to live without.'

>

[Guest guest]

dorothy   what donna said was true, you must get sleep,  or you will wind up

sick yoursefl,  i overrode sleep and other issues with mysefl   i have kindy

issues, and wound up in teh hosp for 6 weeks due to double kidney infection and

then a staph in fection.   please take care of yourself.  hugs. sharon

Subject: RE: Re: Where is everyone?

To: LBDcaregivers

Date: Monday, December 13, 2010, 3:23 PM

 

Dorothy,

I am so sorry to hear all you are going through. The MD always told me to come

in and we would check for UTI. And she usually had one. Other than that, I would

not go in if she was just in her room. You might train her to yell if you go

whenever she yells. Mom use to pack and get dressed and go back to bed. And that

was fine with me. As long as she didn't go anywhere. But if your LO can't walk,

you don't have that problem.

No matter how we say it, you must find a way to sleep no matter what. You will

find burnout on the way and then you can't take care of her anyway. Hire a

student for a few afternoons or evenings and sleep anyway. Or one of the family

can each take a turn.

I know that sounds far fetched to you but you must when you are that tired, get

some sleep. Go to the Motel or Hotel and just sleep! I use to get mad when

someone told me that and didn't think I could. But it will eat at your health if

you don't. And Stop responding to her. She will be fine. I found that out the

hard way. She was up every other night and she wasn't tired, I was.

Lots of hugs.

PS It is Christmas and make it your present, to find a way to rest.

Donna R

Cared for Mom 3 years in my home and the last year at a nh. She passed away from

LBD in 2002.

RE: Re: Where is everyone?

We have got the medical issues stabilized for the moment and signed up for home

health. She is much improved physically. Now on to the behavior and sleep

issues. We tried Seroquel again Saturday night, ½ dose (12.5 mg) and she slept

10 hours – and we slept about 6 which was wonderful to get some sleep. Last

night however she slept only 5 hours then was again yelling at the top of her

lungs all kinds of stuff with the aim of getting someone to come. So I’m now

trying to figure out what to do from here… higher dose of Seroquel or

something added to it. She had been on Remeron and Trazadone and they were not

working. This is serious because she is not getting much rest and neither am I

– and I have come down with cellulitis in my leg and must get this figured out

so I can rest more.

I’m not sure if this is a common issue with LBD or not… probably is though

She will wake up and in the same breath start yelling

“is anybody up yet Is it time to get up? I want to get up now. “(husband’s

name)?†Are you there? Is anyone here? (dog’s name) (cat’s name) My leg

hurts, my stomach hurts, I’m itchy, my back hurts, my head hurts, I’m cold,

I’m hot, Help me, can somebody help me. †And on it goes. I can’t see any

difference in whether I get up and address each issue or not. It continues. This

morning she is hoarse because she yelled so much last night.

When I go in to help with various things I do what I can she says it’s better

and will go to sleep so I leave or I sit there with her and 10 -30 minutes it

starts all over again. Sometimes the same thing. Often she looks around before

starting up. If she sees me she says hello and smiles. If she doesn’t see me

or someone else she starts up. I have watched her kick off the covers and

immediately start yelling that she is cold. I go back in and cover her up tell

her everything’s ok, leave and the same thing. My husband told me she would

have me running all night long if she could and I should wait and see if she

goes back to sleep. So I have tried this too. Sometimes she does go back to

sleep. Sometimes she changes the complaint – leg hurts changes to itchy

changes to headache changes to stomach hurts. Sometimes it escalates and she

starts talking to herself (very loudly which makes me wonder if she’s talking

to an audience) that she’s alone

and has to get up by herself and how will she do this because she can’t walk

and starts rattling the bed rails hard. Last night there were new complaints,

“I’m hungry!†“Can I have something to eat?†and “I want to watch

TV†“I can’t walk!â€.

I can see easily that some of this are the hallucinations or whatever they are

called. I’m not sure about all of it. The reason I’m trying to figure it out

that way is hopefully it will help know how to manage it better. Also the

“groaning†is much more loud, and almost constant. It is indeed a habit and

also seems to be a substitute for conversation or words that communicate things

like hunger, pain, frustration, impatience, sadness, longing, happiness, etc.

Groaning is becoming a whole other language.

As far as hospice we are told we are not there yet. It could very likely be the

hiatle hernia with partial collapsed lung and enlarged heart issue that will get

her in the end – before the final end stages of LBD. Neither one seems a

pleasant thing to me but that’s where we are. My feeling is we are seeing big

changes in her at least every month if not every two weeks so may not be much

time left really. Maybe by next month it will be clearer.

The caregiving help we have is not the greatest but it’s better than nothing.

They ASK my mil everything – do you want to do your nebulizer, would you want

to have a shower etc. and of course the answer is “NO!†I’m trying to get

this changed to a more direct, “it’s time to do your nebulizer†or “time

for a showerâ€. She doesn’t say no and put up a fight if it’s a fact. Even

getting up to go to the bathroom they ask and she says “No not yet†and will

sit there having a bm and still say she’s not ready yet. A few times of that

they seem to be a little more insistent she get up and go to the bathroom

regularly. I’m trying to get a balance of respecting a person’s wishes and

doing what needs to be done for their optimum care. A shower once a week is not

unreasonable. I’m trying for two. Since my back is toast I do not do showers

– a hired caregiver does. I think a lot of this behavior stuff is

psychological issues and

I’m not good at that.

The anxiety did seem better with Seroquel the day after the first dose. Today

she is anxious again trying to rush through her nebulizer yelling she’s done

now and she’s no where near it. Every 3-5 minutes and she’s mad at me for

making her do the treatment. I have a bath transfer bench I managed to assemble

this morning between the impatience and such (what’s taking so long… etc.)

and now going to try that and see if it makes bathing easier for us both. I am

really tired!

Dorothy

[Guest guest]

Personally... I've had to deal with a horror that I wouldn't wish on anyone...

the death of my nephew/Godson in Afghanistan by a suicide bomber last Wednesday

( Ayube)... at the same time my sister, his mom, has been in the

hospital for almost 4 weeks due to major surgery that she has yet to heal

from... I'll probably be quiet for some time to come... the services have yet to

be finalized b/c we're waiting to get a soldier friend of my nephew's here to be

part of the services... but we're hoping for Thurs, Fri & Sat.. this has

obviously been a very difficult time for the family...

>

> I check this site several times a day and never any postings. I hope all of

you are having such good times that there is no time for talking. Or....horror

of horrors...is my computer eating the postings???? Smiles, Nan

>

[Guest guest]

I'm so sorry . I lost a cousin in the suicide bombing just before

troops moved from Kuwait to Iraq. Sgt Stone from Idaho. Horrible

tragedy especially for immediate family. My prayers are with you and yours.

Dorothy

From: LBDcaregivers [mailto:LBDcaregivers ]

On Behalf Of

Sent: Tuesday, December 14, 2010 3:52 AM

To: LBDcaregivers

Subject: Re: Where is everyone?

Personally... I've had to deal with a horror that I wouldn't wish on

anyone... the death of my nephew/Godson in Afghanistan by a suicide bomber

last Wednesday ( Ayube)... at the same time my sister, his mom,

has been in the hospital for almost 4 weeks due to major surgery that she

has yet to heal from... I'll probably be quiet for some time to come... the

services have yet to be finalized b/c we're waiting to get a soldier friend

of my nephew's here to be part of the services... but we're hoping for

Thurs, Fri & Sat.. this has obviously been a very difficult time for the

family...

[Guest guest]

I am so sorry for your loss. You and your family will be in my thoughts and

prayers. We have lost too many young men. Thanking him for his service to us

all. nan

> >

> > I check this site several times a day and never any postings. I hope all of

you are having such good times that there is no time for talking. Or....horror

of horrors...is my computer eating the postings???? Smiles, Nan

> >

>

[Guest guest]

Our Deepest sympathies , such news is hard to take. I hope your sister

gets well soon!

Sheri A. Farinha

Chief Executive Officer

NorCal Services for Deaf & Hard of Hearing

4708 Roseville Rd, Suite 111

North Highlands, CA 95660

www.norcalcenter.org

Email: SFarinha@...

Pager: xoSheri@...

Telephone:

VP: (916)993-3040 or (916)626-4928

Re: Where is everyone?

Personally... I've had to deal with a horror that I wouldn't wish on anyone...

the death of my nephew/Godson in Afghanistan by a suicide bomber last Wednesday

( Ayube)... at the same time my sister, his mom, has been in the

hospital for almost 4 weeks due to major surgery that she has yet to heal

from... I'll probably be quiet for some time to come... the services have yet to

be finalized b/c we're waiting to get a soldier friend of my nephew's here to be

part of the services... but we're hoping for Thurs, Fri & Sat.. this has

obviously been a very difficult time for the family...

>

> I check this site several times a day and never any postings. I hope all of

you are having such good times that there is no time for talking. Or....horror

of horrors...is my computer eating the postings???? Smiles, Nan

>

[Guest guest]

, what sad news. This is a very difficult time for you and your family.

Condolences. I hear your grief through your sharing.

(((Hugs)))

> >

> > I check this site several times a day and never any postings. I hope all of

you are having such good times that there is no time for talking. Or....horror

of horrors...is my computer eating the postings???? Smiles, Nan

> >

>

[Guest guest]

Dear ,

I am so sorry for your loss.

Condolonces.

Ferhan

________________________________

To: LBDcaregivers

Sent: Tue, December 14, 2010 1:52:08 PM

Subject: Re: Where is everyone?

 

Personally... I've had to deal with a horror that I wouldn't wish on anyone...

the death of my nephew/Godson in Afghanistan by a suicide bomber last Wednesday

( Ayube)... at the same time my sister, his mom, has been in the

hospital for almost 4 weeks due to major surgery that she has yet to heal

from... I'll probably be quiet for some time to come... the services have yet to

be finalized b/c we're waiting to get a soldier friend of my nephew's here to be

part of the services... but we're hoping for Thurs, Fri & Sat.. this has

obviously been a very difficult time for the family...

>

> I check this site several times a day and never any postings. I hope all of

you

>are having such good times that there is no time for talking. Or....horror of

>horrors...is my computer eating the postings???? Smiles, Nan

>

[Guest guest]

,

I am so sorry for your family's loss.  How very sad for all of you and

especially your nephew's Mother.

Subject: RE: Re: Where is everyone?

To: LBDcaregivers

Date: Tuesday, December 14, 2010, 9:24 AM

 

I'm so sorry . I lost a cousin in the suicide bombing just before

troops moved from Kuwait to Iraq. Sgt Stone from Idaho. Horrible

tragedy especially for immediate family. My prayers are with you and yours.

Dorothy

From: LBDcaregivers [mailto:LBDcaregivers ]

On Behalf Of

Sent: Tuesday, December 14, 2010 3:52 AM

To: LBDcaregivers

Subject: Re: Where is everyone?

Personally... I've had to deal with a horror that I wouldn't wish on

anyone... the death of my nephew/Godson in Afghanistan by a suicide bomber

last Wednesday ( Ayube)... at the same time my sister, his mom,

has been in the hospital for almost 4 weeks due to major surgery that she

has yet to heal from... I'll probably be quiet for some time to come... the

services have yet to be finalized b/c we're waiting to get a soldier friend

of my nephew's here to be part of the services... but we're hoping for

Thurs, Fri & Sat.. this has obviously been a very difficult time for the

family...

[Guest guest]

,

You and your family have my sincere sympathy and prayers.  

Subject: RE: Re: Where is everyone?

To: LBDcaregivers

Date: Tuesday, December 14, 2010, 9:24 AM

 

I'm so sorry . I lost a cousin in the suicide bombing just before

troops moved from Kuwait to Iraq. Sgt Stone from Idaho. Horrible

tragedy especially for immediate family. My prayers are with you and yours.

Dorothy

From: LBDcaregivers [mailto:LBDcaregivers ]

On Behalf Of

Sent: Tuesday, December 14, 2010 3:52 AM

To: LBDcaregivers

Subject: Re: Where is everyone?

Personally... I've had to deal with a horror that I wouldn't wish on

anyone... the death of my nephew/Godson in Afghanistan by a suicide bomber

last Wednesday ( Ayube)... at the same time my sister, his mom,

has been in the hospital for almost 4 weeks due to major surgery that she

has yet to heal from... I'll probably be quiet for some time to come... the

services have yet to be finalized b/c we're waiting to get a soldier friend

of my nephew's here to be part of the services... but we're hoping for

Thurs, Fri & Sat.. this has obviously been a very difficult time for the

family...

[Guest guest]

My condolences on the passing of your nephew...and I pray that your sister

heals...wow that is a long time to still be in the hospital after surgery! Will

she be home and able to attend the funeral?

God bless all of you!

Joan

> >

> > I check this site several times a day and never any postings. I hope all of

you are having such good times that there is no time for talking. Or....horror

of horrors...is my computer eating the postings???? Smiles, Nan

> >

>