Re: Re: My Sister (drop in BP and confusion upon standing)

[Guest guest]

Thank you for the information.

Having other issues now. I went over to take , my sister, for an

appointment to have a EEG. She was very agitated, started in on me as soon as I

walked in. Telling me I disappointed her, I didn't ever do anything for her and

my day was coming, couldn't understand why I was doing her that way. Refused to

get out of the car at the hospital. Planted her feet firmly to the floor board

and wouldn't move. This is a woman that it has been taking two people to get

her to the bathroom. Finally one of the employees at the assisted living

facility was with me and was able to get her out of the car. I thank God she

was with me. This disposition is so out of character for my sister. She has

always been a very humble person wouldn't say anything to hurt anyone. I'm

hearing words come out of mouth that I had never heard her say before. I know

this disease causes them to lash out at the ones they're closest to. I don't

know if I need to back off and hopefully in a couple of days she will feel

differently. I don't want to agitate her and get her upset. I don't argue with

her. I just try to comfort her and that sometimes makes her worse. Any

suggestions?

Thanks

Re: My Sister (drop in BP and confusion upon standing)

,

The drop in BP upon standing is called orthostatic hypotension (OH). Something

like 40% of those with LBD have OH. When the BP drops in this fashion, mental

confusion can be the result. Some do report these seizure-like episodes and,

often times, such events are due to drops in BP. Avoiding postural changes

sounds like a good plan. There is medication one can take, and some

non-pharmacological things as well (Jobst stockings, drinking lots of water

before standing, etc).

Pain should be addressed as a top priority. You might discuss a Fentanyl patch

with the MD.

Good luck,

Robin

>

> It's me again with another question. This past week the nurses at the assisted

living thought my sister was having mini seizures. When they would stand her up,

she would stiffen, lock her jaws, look with a blank stare and when she would

speak it would be all mumbled. We took her to the ER and the Doctor said he

thought it was a drop in blood pressure rather than seizures. Because when they

laid her down she would be better. She was a little dehydrated and her potassium

was a little low. They stopped the Zocar med. for a while, decreased her Laxis

and increased her potassium. . She is in constant pain and has now become a

little aggressive with us. This is totally out of character for her. I don't

know if it is the pain; a stage in the disease or a combination. Has anyone else

experienced this? In the ER the doctor gave her a low dose of Loretab for pain

and I was concerned what it may do to her, but it didn't phase her!!

>

>

>

>

[Guest guest]

jennifer,

you are so right they/i lash out at the ones we lvoe the most,  reason being is

they/i completely trust you and can be afraid and be 'my lbd sel\f' inu front of

you and you wont DESERT me. 

that is the greatest fear i ahve and that daddy had abandonment.  and beucase

the frontal lobe is most affected *the part of the brain that controls modesty,

inhibitons abilitiy to stop oneself from doing bad/wrong/hurtful thing*.

 

daddy would last out at me,  you are robbing me blind, you are stealling

everything i own, esp afeter i had POA done on him. giving me th power to

control everything,  he is used to being in control and it was very hard for

him to give that hup.  it is soo osad. 

 

you are right dont argue, you WONT win,  even if you are right you still wont

win,  if i think iti is raiing outside and it actually is sunny, my brain has

convinced me it is raining even taking me outsdie in the sun wont change my

mind,  that is just lbd. 

 

it helped daddy when he as fearful to pat his cat stormy. stormy would sit in

daaddy slap and purr while daddy stroked him and that calmed daddy down,  my

sparkles *aka lil one* also hels me calm down and keep me from getting so irate

or upset.  

 

btw , i odnt know if anyone has thought of this or asked this  but has any of

theier lbd loved ones ever had rages.  neither daddy nor i got mad often but

when we did watch out the devil was out.  hasa anyone else nmoticed or thought

abou this  hugs. sharon and sparkles

Subject: Re: Re: My Sister (drop in BP and confusion upon

standing)

To: LBDcaregivers

Date: Monday, January 31, 2011, 8:19 PM

 

Thank you for the information.

Having other issues now. I went over to take , my sister, for an appointment

to have a EEG. She was very agitated, started in on me as soon as I walked in.

Telling me I disappointed her, I didn't ever do anything for her and my day was

coming, couldn't understand why I was doing her that way. Refused to get out of

the car at the hospital. Planted her feet firmly to the floor board and wouldn't

move. This is a woman that it has been taking two people to get her to the

bathroom. Finally one of the employees at the assisted living facility was with

me and was able to get her out of the car. I thank God she was with me. This

disposition is so out of character for my sister. She has always been a very

humble person wouldn't say anything to hurt anyone. I'm hearing words come out

of mouth that I had never heard her say before. I know this disease causes them

to lash out at the ones they're closest to. I don't know if I need to back off

and hopefully in a

couple of days she will feel differently. I don't want to agitate her and get

her upset. I don't argue with her. I just try to comfort her and that sometimes

makes her worse. Any suggestions?

Thanks

Re: My Sister (drop in BP and confusion upon standing)

,

The drop in BP upon standing is called orthostatic hypotension (OH). Something

like 40% of those with LBD have OH. When the BP drops in this fashion, mental

confusion can be the result. Some do report these seizure-like episodes and,

often times, such events are due to drops in BP. Avoiding postural changes

sounds like a good plan. There is medication one can take, and some

non-pharmacological things as well (Jobst stockings, drinking lots of water

before standing, etc).

Pain should be addressed as a top priority. You might discuss a Fentanyl patch

with the MD.

Good luck,

Robin

>

> It's me again with another question. This past week the nurses at the assisted

living thought my sister was having mini seizures. When they would stand her up,

she would stiffen, lock her jaws, look with a blank stare and when she would

speak it would be all mumbled. We took her to the ER and the Doctor said he

thought it was a drop in blood pressure rather than seizures. Because when they

laid her down she would be better. She was a little dehydrated and her potassium

was a little low. They stopped the Zocar med. for a while, decreased her Laxis

and increased her potassium. . She is in constant pain and has now become a

little aggressive with us. This is totally out of character for her. I don't

know if it is the pain; a stage in the disease or a combination. Has anyone else

experienced this? In the ER the doctor gave her a low dose of Loretab for pain

and I was concerned what it may do to her, but it didn't phase her!!

>

>

>

>