Re: More on phenergan request

[Guest guest]

gina

 

i have lbd, and my opimon on phenergan is NO NO NONONONONONONNO

ok , why,

 

i took phenergan for years adn out of the blue, when i was hospitalized two

years i had phenergan for extreme n/v assoc iwth my kidney infection.  all of a

sudden i statred having uncontrollable reflex movements. my knee/leg jerked so

hard that i kicked a full food tray compltely across the room , and it was on my

tray .  

 

my neck had it worse  i would have jerks and my head would stay natled almost

laying on my shoulder and HURT BAD.  ones neck is not meant to be resting on

your own shoulder, 

 

my arms would jerk so ad that i poked myself in the eye several times.

 

we immediately stopped phenergan and the symptoms went away,  

 

me being the disbeliever i am thought it was asociated with the other meds i was

getting in the hosptial and i had another bout of n/v  and took 1/2 of a tablet

to test it out, well later taht nite my poor adooorable boogie was sleeping next

to me  sound asleep snoring contently chasing rabbits in his dreams **he was a

10 lb yorkishire terrier who since died* my foot jerked so hard taht i kicked

him out of the bed and he flew across the room about 4 ft high poor thing wasnt

hurt seriously bu ti learned then i t was hte phergan for sure. 

 

i have had sucess with zofran and compazine, so far at least.

 

good luck and hugs. sharon

>

>

>Hi, all.  I've " lurked " on this board for several years.  My mother's

neurologist says her dementia is " more like Alzheimers " than LBD, but based on

many, many symptoms I've been inclined to think she has LBD (I'd never even

heard of it, but it was suggested after a neuropsych evaluation -- in particular

because of her history of falls) .  Up to now, the precise diagnosis hasn't

mattered.  Aricept gave her diarrhea, and she has been on Namenda for two

years.  But no other meds have been suggested that are on the LBD danger

list.  (She has only mild and non-frightening hallucinations.)  She has lived

alone, with increasing help from me (just a few miles away).

>

>

>

>However, she had a stroke on January 23, and was transferred to Rehab/Nursing

Home on the 31st.  I told the nurse during admission that she may have LBD. 

Today I got a call saying she vomited today (MIGHT have caught a bug from my

sister before my sister knew she had a bug), and the doctor had ordered phergan

if it happened again.  I just told them she might have had a problem with

phergan once before, and asked them not to give it to her until I got back to

them.  Meanwhile I couldn't find anything quickly on this board or the lbda

site, but knew I'd get the best information from all of you.

>

>

>

>Is phergan something I have to be worried about? 

>

>

>

>Thanks much!  Regards,

>

>

>

> Hosey

>

>

>

[Guest guest]

Hi Sharon,

Sounds like you had an extreme case of tardive dyskinesia, a reaction that is

listed as a possible side effect of phenergan as well as certain other

medications.

Some med mixes can do that as well, but phenergan can do it on its own.

Lori

Re: More on phenergan request

gina

i have lbd, and my opimon on phenergan is NO NO NONONONONONONNO

ok , why,

i took phenergan for years adn out of the blue, when i was hospitalized two

years i had phenergan for extreme n/v assoc iwth my kidney infection. all of a

sudden i statred having uncontrollable reflex movements. my knee/leg jerked so

hard that i kicked a full food tray compltely across the room , and it was on my

tray .

my neck had it worse i would have jerks and my head would stay natled almost

laying on my shoulder and HURT BAD. ones neck is not meant to be resting on

your own shoulder,

my arms would jerk so ad that i poked myself in the eye several times.

we immediately stopped phenergan and the symptoms went away,

me being the disbeliever i am thought it was asociated with the other meds i

was getting in the hosptial and i had another bout of n/v and took 1/2 of a

tablet to test it out, well later taht nite my poor adooorable boogie was

sleeping next to me sound asleep snoring contently chasing rabbits in his

dreams **he was a 10 lb yorkishire terrier who since died* my foot jerked so

hard taht i kicked him out of the bed and he flew across the room about 4 ft

high poor thing wasnt hurt seriously bu ti learned then i t was hte phergan for

sure.

i have had sucess with zofran and compazine, so far at least.

good luck and hugs. sharon

>

>

>Hi, all. I've " lurked " on this board for several years. My mother's

neurologist says her dementia is " more like Alzheimers " than LBD, but based on

many, many symptoms I've been inclined to think she has LBD (I'd never even

heard of it, but it was suggested after a neuropsych evaluation -- in particular

because of her history of falls) . Up to now, the precise diagnosis hasn't

mattered. Aricept gave her diarrhea, and she has been on Namenda for two years.

But no other meds have been suggested that are on the LBD danger list. (She has

only mild and non-frightening hallucinations.) She has lived alone, with

increasing help from me (just a few miles away).

>

>

>

>However, she had a stroke on January 23, and was transferred to Rehab/Nursing

Home on the 31st. I told the nurse during admission that she may have LBD.

Today I got a call saying she vomited today (MIGHT have caught a bug from my

sister before my sister knew she had a bug), and the doctor had ordered phergan

if it happened again. I just told them she might have had a problem with

phergan once before, and asked them not to give it to her until I got back to

them. Meanwhile I couldn't find anything quickly on this board or the lbda

site, but knew I'd get the best information from all of you.

>

>

>

>Is phergan something I have to be worried about?

>

>

>

>Thanks much! Regards,

>

>

>

> Hosey

>

>

>

[Guest guest]

lori

thiank yuou that was what the dcotor called it,   i havent had any other

episodes of it since thephergan adn every tiem i treid to zke even a partila

odse i still got the tardive ........ so i threw out all my pheregan ias much as

i hate throwing up and i do often with my kidney issues i hated the side effects

worse.  thanks an dhugs sharon

>

>

>Hi, all. I've " lurked " on this board for several years. My mother's neurologist

says her dementia is " more like Alzheimers " than LBD, but based on many, many

symptoms I've been inclined to think she has LBD (I'd never even heard of it,

but it was suggested after a neuropsych evaluation -- in particular because of

her history of falls) . Up to now, the precise diagnosis hasn't mattered.

Aricept gave her diarrhea, and she has been on Namenda for two years. But no

other meds have been suggested that are on the LBD danger list. (She has only

mild and non-frightening hallucinations.) She has lived alone, with increasing

help from me (just a few miles away).

>

>

>

>However, she had a stroke on January 23, and was transferred to Rehab/Nursing

Home on the 31st. I told the nurse during admission that she may have LBD. Today

I got a call saying she vomited today (MIGHT have caught a bug from my sister

before my sister knew she had a bug), and the doctor had ordered phergan if it

happened again. I just told them she might have had a problem with phergan once

before, and asked them not to give it to her until I got back to them. Meanwhile

I couldn't find anything quickly on this board or the lbda site, but knew I'd

get the best information from all of you.

>

>

>

>Is phergan something I have to be worried about?

>

>

>

>Thanks much! Regards,

>

>

>

> Hosey

>

>

>

[Guest guest]

Before I suspected anything wrong with my mom, I had to take her to the

emergency room with food poisoning. The doctors wrote the directions

incorrectly and Mom went into hallucinations. She was sitting up her eyes

closed and she was doing things such as if she were putting on makeup, drinking,

putting a fork to her mouth. This is the first time that I saw her with

hallucinations, and most likely before LBD, but as LBD starts slow and far

between, it could have been possible that the phenergan started the

hallucinations.

Anyone else seen similar stuff?

>

> >

> >

> >Hi, all.  I've " lurked " on this board for several years.  My mother's

neurologist says her dementia is " more like Alzheimers " than LBD, but based on

many, many symptoms I've been inclined to think she has LBD (I'd never even

heard of it, but it was suggested after a neuropsych evaluation -- in particular

because of her history of falls) .  Up to now, the precise diagnosis hasn't

mattered.  Aricept gave her diarrhea, and she has been on Namenda for two

years.  But no other meds have been suggested that are on the LBD danger

list.  (She has only mild and non-frightening hallucinations.)  She has lived

alone, with increasing help from me (just a few miles away).

> >

> >

> >

> >However, she had a stroke on January 23, and was transferred to Rehab/Nursing

Home on the 31st.  I told the nurse during admission that she may have LBD. 

Today I got a call saying she vomited today (MIGHT have caught a bug from my

sister before my sister knew she had a bug), and the doctor had ordered phergan

if it happened again.  I just told them she might have had a problem with

phergan once before, and asked them not to give it to her until I got back to

them.  Meanwhile I couldn't find anything quickly on this board or the lbda

site, but knew I'd get the best information from all of you.

> >

> >

> >

> >Is phergan something I have to be worried about? 

> >

> >

> >

> >Thanks much!  Regards,

> >

> >

> >

> > Hosey

> >

> >

> >

[Guest guest]

Hi Joan,

My mil did this with Ativan. Sat up in the hospital bed and started feeding

herself, chewing and the whole bit. It was like she was in another

dimension or a time warp or maybe sleep eating? Her eyes were partially

closed, kind of glazed over looking. Not present by any means. My husband

went up and called her, “mom mom…” a few times and she popped back to the

present and he asked her what she was eating and she looked quite puzzled,

“Was I eating? “Gee I hope it was something good” As soon as he sat down

again she resumed eating air food. I had never seen this before. Since

that time I’ve seen similar with other things. The one phenergan

suppository she had in her whole life was a long 32 hour ordeal of her

trying to get up over the rails of her bed so she could make her bed and go

to work and also thinking someone was at the front door ringing the

doorbell. Compazine was not so bad but I somehow had the instinct to keep

that to minimum dose that would work so she very often got just ¼ or ½

tablet just enough to manage the nausea but not get spacey. Cipro, Avelox

and Leviquin all caused mild bizarre behaviors with her as well, along with

agitation and hostility. At one point she tried to bite my arm as I

steadied her while walking to the bathroom. I thought I was seeing things

but no, she definitely made a lunge with her teeth at me and after that I

have been even more watchful of her moods and especially with new medicines.

When this kind of thing happens I feel mesmerized by the strangeness of it

and can’t help watch and wonder what is going on? Is it a specific meal

she’s reliving or just some random behavior or ??

Dorothy

From: LBDcaregivers [mailto:LBDcaregivers ]

On Behalf Of Joan

Sent: Monday, February 07, 2011 10:56 PM

To: LBDcaregivers

Subject: Re: More on phenergan request

Before I suspected anything wrong with my mom, I had to take her to the

emergency room with food poisoning. The doctors wrote the directions

incorrectly and Mom went into hallucinations. She was sitting up her eyes

closed and she was doing things such as if she were putting on makeup,

drinking, putting a fork to her mouth. This is the first time that I saw her

with hallucinations, and most likely before LBD, but as LBD starts slow and

far between, it could have been possible that the phenergan started the

hallucinations.

Anyone else seen similar stuff?

>

> >

> >

> >Hi, all. I've " lurked " on this board for several years. My mother's

neurologist says her dementia is " more like Alzheimers " than LBD, but based

on many, many symptoms I've been inclined to think she has LBD (I'd never

even heard of it, but it was suggested after a neuropsych evaluation -- in

particular because of her history of falls) . Up to now, the precise

diagnosis hasn't mattered. Aricept gave her diarrhea, and she has been on

Namenda for two years. But no other meds have been suggested that are on

the LBD danger list. (She has only mild and non-frightening

hallucinations.)Â She has lived alone, with increasing help from me (just a

few miles away).

> >

> >

> >

> >However, she had a stroke on January 23, and was transferred to

Rehab/Nursing Home on the 31st. I told the nurse during admission that she

may have LBD. Today I got a call saying she vomited today (MIGHT have

caught a bug from my sister before my sister knew she had a bug), and the

doctor had ordered phergan if it happened again. I just told them she

might have had a problem with phergan once before, and asked them not to

give it to her until I got back to them. Meanwhile I couldn't find

anything quickly on this board or the lbda site, but knew I'd get the best

information from all of you.

> >

> >

> >

> >Is phergan something I have to be worried about?Â

> >

> >

> >

> >Thanks much! Regards,

> >

> >

> >

> > Hosey

> >

> >

> >

[Guest guest]

I have to post real quick because i have to leave for a Doctor appt.

About 10 years ago, Mom swallowed a pill and it got stuck in her throat...when I

called the primary physician he just passed it off and Mom sat in the living

room for about8 hours with mucus coming out of her mouth...probaby a reaction to

the injury.

Well...I did take her to the emergency room later and she was admitted. A few

days later they took her to get a CAT scan...and I think she had to drink some

barium or something because they thought that she had lacerated her esophagus.

AFter that CAT scan she called me at work and told me tht I had to come and get

her and that she will never have that test again...she kept calling me telling

me to come and get her...really not like her.

Well...that evening the ENT took her to surgery and found that she did not

lacerate her esophagus and then there was another doctor on duty for the

weekend. That day the on-call doc sent her for another CAT scan...up started

the hysteria about the horrible test and then she just wasn't herself. The

nurses said it was from the anesthesia in surgery, but it was the same reaction

that she had to the CAT scan BEFORE the surgery. For days, Mom lay in the

hospital seeing people climning ladder, some stage in her room with people on

it, etc.

I am wondering if anyone else has had a reaction such as that after the barium

or contract of a CAT scan.

> >

> > >

> > >

> > >Hi, all. I've " lurked " on this board for several years. My mother's

> neurologist says her dementia is " more like Alzheimers " than LBD, but based

> on many, many symptoms I've been inclined to think she has LBD (I'd never

> even heard of it, but it was suggested after a neuropsych evaluation -- in

> particular because of her history of falls) . Up to now, the precise

> diagnosis hasn't mattered. Aricept gave her diarrhea, and she has been on

> Namenda for two years. But no other meds have been suggested that are on

> the LBD danger list. (She has only mild and non-frightening

> hallucinations.)Â She has lived alone, with increasing help from me (just a

> few miles away).

> > >

> > >

> > >

> > >However, she had a stroke on January 23, and was transferred to

> Rehab/Nursing Home on the 31st. I told the nurse during admission that she

> may have LBD. Today I got a call saying she vomited today (MIGHT have

> caught a bug from my sister before my sister knew she had a bug), and the

> doctor had ordered phergan if it happened again. I just told them she

> might have had a problem with phergan once before, and asked them not to

> give it to her until I got back to them. Meanwhile I couldn't find

> anything quickly on this board or the lbda site, but knew I'd get the best

> information from all of you.

> > >

> > >

> > >

> > >Is phergan something I have to be worried about?Â

> > >

> > >

> > >

> > >Thanks much! Regards,

> > >

> > >

> > >

> > > Hosey

> > >

> > >

> > >

[Guest guest]

Several years before any PD or LBD diagnosis, my dad had a double knee

replacement surgery. The day after surgery, I don't know what pain med he was

on, but he was complaining and telling us how the " loud party next door " had

bothered him. For sure there was no party and nothing loud in the next hospital

room. He was so confused that after a day or two my sister talked to the

hospital staff and had him taken off the strong painkiller, and he went back to

normal. He's always been pretty pain-resistant, and didn't need much of anything

after that.

As I suspect many of us do, I wonder about my own future. I seldom need

medication, but I have had some atypical reactions to different things. I once

took Nyquil - the put-you-to-sleep kind- and it kept me up, wide-eyed and hyper,

all night! and multi-vitamins make me very agitated and emotional.

Anyway, I've been going through family photos off and on, and I'm quite amazed

by how many years back Dad had the " Lewy lean. " He's been leaning for years.

Wow.

Ellen in OH

Daughter of Ray, 83, in assisted living for 3 years and now on hospice care

Subject: Re: More on phenergan request

 

Before I suspected anything wrong with my mom, I had to take her to the

emergency room with food poisoning. The doctors wrote the directions incorrectly

and Mom went into hallucinations. She was sitting up her eyes closed and she was

doing things such as if she were putting on makeup, drinking, putting a fork to

her mouth. This is the first time that I saw her with hallucinations, and most

likely before LBD, but as LBD starts slow and far between, it could have been

possible that the phenergan started the hallucinations.

Anyone else seen similar stuff?

>

[Guest guest]

ksville.

Hi Ellen,

What part of Ohio are you in? I loved in and around Cleveland for nearly

16 years.

Really, around Cleveland 99% of the time. In Cleveland the other 1%, Our

home was in Brecksville, 20 miles south of Cleveland. That was nearly 50

years ago.

Your comment about those medications and your reactions to them reminded

me of my Don. He did the exact same way. Diphenhydramine (sp) always did

that to him. Me? I fell to sleep no matter where I was.

After surgery my husband always had hallucinations in a big way. They

would use excuses such as he has had a mini stroke. Or, that he was going

through delirium.

And they would tell me it would clear up in a few days. Sure enough it

did. But, little did I realize at the time that he had LBD.

Love a lot,

Imogene

In a message dated 2/9/2011 8:15:53 P.M. Central Standard Time,

srelb@... writes:

Several years before any PD or LBD diagnosis, my dad had a double knee

replacement surgery. The day after surgery, I don't know what pain med he

was

on, but he was complaining and telling us how the " loud party next door "

had

bothered him. For sure there was no party and nothing loud in the next

hospital

room. He was so confused that after a day or two my sister talked to the

hospital staff and had him taken off the strong painkiller, and he went

back to

normal. He's always been pretty pain-resistant, and didn't need much of

anything

after that.

As I suspect many of us do, I wonder about my own future. I seldom need

medication, but I have had some atypical reactions to different things. I

once

took Nyquil - the put-you-to-sleep kind- and it kept me up, wide-eyed and

hyper,

all night! and multi-vitamins make me very agitated and emotional.

Anyway, I've been going through family photos off and on, and I'm quite

amazed

by how many years back Dad had the " Lewy lean. " He's been leaning for

years.

Wow.

Ellen in OH

Daughter of Ray, 83, in assisted living for 3 years and now on hospice

care

Subject: Re: More on phenergan request

Before I suspected anything wrong with my mom, I had to take her to the

emergency room with food poisoning. The doctors wrote the directions

incorrectly

and Mom went into hallucinations. She was sitting up her eyes closed and

she was

doing things such as if she were putting on makeup, drinking, putting a

fork to

her mouth. This is the first time that I saw her with hallucinations, and

most

likely before LBD, but as LBD starts slow and far between, it could have

been

possible that the phenergan started the hallucinations.

Anyone else seen similar stuff?

>