Re: Re: charge manual available

[Guest guest]

If you still have the manual, i would love to receive a copy:

My Name is VanKoughnett

125 South Rutland Street

Watertown, New York 13601

My daughter Hillary is 8 years old, and has been through the ringer like

everyone else out there in CHARGE land? I think this could be very

valuable. Also, why do some people call our kids chargers, is there a

difference?

Thanks.

> Re: charge manual available

>

> Hi everyone. Over the past several weeks we have been to all the key

> doctors

> and the consensis is that doesn't have charge . though they are not

> sure

> waht he has. Hhhmmmm..... Anyways, I don't have the time for all the

> details

> of what's been going on letely b/c I have to pick the kids up from school

> but

> it is all encouraging. And I havew successfully avoided the cuff

> trach!!!!!!!!

>

> Anyways, I have a brand new charge manual that I would like to give to

> someone who has not yet gotten one. It certainly is a wealth of

> information.

> Let me know if anyone out there in chargeland would like it and I'll mail

> it

> to you.

>

> Betsy

>

>

> For information about the CHARGE Syndrome

> Foundation or to become a member please

> contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

[Guest guest]

Betsy,

We have a 1 year old son that was diagnosed with CHARGE last June at 4

months. We don't have a manual yet if it's still available! Please let me

know.

Kristie

Re: charge manual available

>Hi everyone. Over the past several weeks we have been to all the key

doctors

>and the consensis is that doesn't have charge . though they are not

sure

>waht he has. Hhhmmmm..... Anyways, I don't have the time for all the

details

>of what's been going on letely b/c I have to pick the kids up from school

but

>it is all encouraging. And I havew successfully avoided the cuff

trach!!!!!!!!

>

>Anyways, I have a brand new charge manual that I would like to give to

>someone who has not yet gotten one. It certainly is a wealth of

information.

>Let me know if anyone out there in chargeland would like it and I'll mail

it

>to you.

>

>Betsy

>

>

>For information about the CHARGE Syndrome

>Foundation or to become a member please

>contact marion@... or visit

>the CHARGE Syndrome Foundation web page

>at http://www.chargesyndrome.org

>

>

[Guest guest]

,

I think people call their kids CHARGErs just for short. Instead of saying my child with CHARGE syndrome. Kind of a nick name...

Mom to Kennedy 2yr old CHARGEr, 10, 8, and wife to GraemeNew Brunswick, CanadaVisit the "Weir homepage" at: http://www.geocities.com/SunsetStrip/Palms/5716ICQ #1426476

Re: charge manual available > > Hi everyone. Over the past several weeks we have been to all the key> doctors > and the consensis is that doesn't have charge . though they are not> sure > waht he has. Hhhmmmm..... Anyways, I don't have the time for all the> details > of what's been going on letely b/c I have to pick the kids up from school> but > it is all encouraging. And I havew successfully avoided the cuff> trach!!!!!!!!> > Anyways, I have a brand new charge manual that I would like to give to > someone who has not yet gotten one. It certainly is a wealth of> information. > Let me know if anyone out there in chargeland would like it and I'll mail> it > to you.> > Betsy> > > For information about the CHARGE Syndrome > Foundation or to become a member please > contact marion@... or visit > the CHARGE Syndrome Foundation web page > at http://www.chargesyndrome.org

For information about the CHARGE Syndrome Foundation or to become a member please contact marion@... or visit the CHARGE Syndrome Foundation web page at http://www.chargesyndrome.org

[Guest guest]

Thanks, I kept seeing it in all the correspondence, and was wondering if I

was " missing out " on something !

Thanks again,

> Re: Re: charge manual available

>

> ,

> I think people call their kids CHARGErs just for short. Instead of saying

> my child with CHARGE syndrome. Kind of a nick name...

>

> Mom to Kennedy 2yr old CHARGEr, 10, 8, and wife to Graeme

> New Brunswick, Canada

> Visit the " Weir homepage " at:

> <http://www.geocities.com/SunsetStrip/Palms/5716>

> ICQ #1426476

>

> Re: charge manual available

> >

> > Hi everyone. Over the past several weeks we have been to all the

> key

> > doctors

> > and the consensis is that doesn't have charge . though they

> are not

> > sure

> > waht he has. Hhhmmmm..... Anyways, I don't have the time for all

> the

> > details

> > of what's been going on letely b/c I have to pick the kids up from

> school

> > but

> > it is all encouraging. And I havew successfully avoided the cuff

> > trach!!!!!!!!

> >

> > Anyways, I have a brand new charge manual that I would like to

> give to

> > someone who has not yet gotten one. It certainly is a wealth of

> > information.

> > Let me know if anyone out there in chargeland would like it and

> I'll mail

> > it

> > to you.

> >

> > Betsy

> >

> >

> > For information about the CHARGE Syndrome

> > Foundation or to become a member please

> > contact marion@... or visit

> > the CHARGE Syndrome Foundation web page

> > at <http://www.chargesyndrome.org>

>

> _____

>

> <http://click./1/2880/1/_/22564/_/954783079/>

>

> <http://adimg./img/2880/1/_/22564/_/954783079/468x60flash.gif>

>

> _____

>

> For information about the CHARGE Syndrome

> Foundation or to become a member please

> contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at <http://www.chargesyndrome.org>

>

>

>

> For information about the CHARGE Syndrome

> Foundation or to become a member please

> contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at <http://www.chargesyndrome.org>

>

[Guest guest]

Betsy,

To refresh my memory, can you please give me a little of what is wrong with

? If they don't think he has CHARGE, then what made them come to that

conclusion in the first place??

Foley,

Mom to 4 1/2, (CHARGE guy in heaven) and Jillian 2 w/cHaRGE

Re: charge manual available

> Hi everyone. Over the past several weeks we have been to all the key

doctors

> and the consensis is that doesn't have charge . though they are not

sure

> waht he has. Hhhmmmm..... Anyways, I don't have the time for all the

details

> of what's been going on letely b/c I have to pick the kids up from school

but

> it is all encouraging. And I havew successfully avoided the cuff

trach!!!!!!!!

>

> Anyways, I have a brand new charge manual that I would like to give to

> someone who has not yet gotten one. It certainly is a wealth of

information.

> Let me know if anyone out there in chargeland would like it and I'll mail

it

> to you.

>

> Betsy

>

>

> For information about the CHARGE Syndrome

> Foundation or to become a member please

> contact marion@... or visit

> the CHARGE Syndrome Foundation web page

> at http://www.chargesyndrome.org

>

>

[Guest guest]

Hi , you're the first reply to it's yours. By the way, I'm originally

from Ravena, NY - just 12 miles south of Albany. I went to college in

Rochester with a guy from Watertown and have another acquitance from there as

well (in fact - she dated Johhny Depp and was seen out and about in your town

with him!) anyways, I'll mail it out sometime this week. Good luck with

Hillary.

Betsy

[Guest guest]

Kristie, I replied to the first e-mail that came through regarding the

manual. I'm sorry. But do call and order one b/c it is a wonderful manual and

all the Charge moms use it as their bible of sorts. Good luck with your

little one.

Betsy

[Guest guest]

Betsy, The Charge Mannual you speak of could we have a copy for Australia.

Our address is

The Australasian CHARGE ASSOCIATION

P.O. Box 91

Glenfield 2167

SYDNEY

AUSTRALIA.

We also have a book CHARGE ASSOCIATION written by three people involved with

Charge kids, parent ,teacher,and DR.. This is available also.

Regards marie 9mom to JULIA 17yrs

austcharge@...

>From: eokoko@...

>Reply-To: CHARGEegroups

>To: chargeegroups

>Subject: Re: charge manual available

>Date: Mon, 3 Apr 2000 13:25:32 EDT

>

>Hi everyone. Over the past several weeks we have been to all the key

>doctors

>and the consensis is that doesn't have charge . though they are not

>sure

>waht he has. Hhhmmmm..... Anyways, I don't have the time for all the

>details

>of what's been going on letely b/c I have to pick the kids up from school

>but

>it is all encouraging. And I havew successfully avoided the cuff

>trach!!!!!!!!

>

>Anyways, I have a brand new charge manual that I would like to give to

>someone who has not yet gotten one. It certainly is a wealth of

>information.

>Let me know if anyone out there in chargeland would like it and I'll mail

>it

>to you.

>

>Betsy

______________________________________________________

Get Your Private, Free Email at http://www.hotmail.com