misc

[Guest guest]

Jan--i got the email that started with you asking

about my first name. Was there another email that you

sent?

le

My daughter hated the crib as she tossed and turned so

much (like body slamming) that she used to hurt

herself against the hard sides of the crib. So after

putting up with this on and off for 14 mos, we gave in

and resorted to letting her sleep in the playpen every

night. It had netting for the sides and my mom had

made covers for the bottom which were quilted. We put

an extra pad under the existing pad.

When Caitlyn reached 2 1/2yrs she was nearly to long

to lay down in the playpen so I dug out the crib

matress again, and laid it on the floor against a wall

and lined it with sofa cushions from the day bed (the

bolsters (sp?). She loved the idea and took to it

faster than I expected (it took her minutes).

We had to lock her in her room with a hook and eye

lock to keep her from wandering into the bathroom or

wherever. 6 months later I put the bed into a toddler

frame and she went back to banging herself into the

wall. So at 3 1/2yrs we bought her a full size bed

(double bed) and lined the wall with pillows. She

loves it. We no longer lock the door (we put a gate

across the stairs) and she comes into our room when

she wants to come into our bed (it's so cute) or when

she's real sick there's enough room for me to sleep in

her bed.

I found Barney bed sheets (cost $100 for a double bed)

which we bought at the same time as the bed and we

surprised her. She just loves her Barney bed!

Jeanne

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[Guest guest]

Thanks Jeanne

No there was just one message, my daughter has given me some more lessons on

the computer, it take a while to stick in my brain but Belinda is relieved I

am not calling for her help quite as much.

Jan

misc

>

>

> Jan--J McMullen--J stands for Jeanne.

>

> Bonnie--Kudos to Patty, but did you ever get that

> meeting you wanted with the teacher. Just because she

> pulled a B I wouldn't drop it. She'll get a better

> education if her teacher is on her side instead of

> against her. I would suggest sending a note in

> writing (keeping a copy) to the teacher asking him to

> meet with you within the next 2 weeks. If he does

> not, send a note to the principal asking him/her to

> set up a meeting. Come with a well documented log of

> the teacher's behavior and remarks. If that doesn't

> work go to the superintendent and/or school board rep.

> Geez Louise what we have to do for the sake of our

> kids!

>

> Amy--Next time instead of saying " No I don't want you

> to increase her meds..... " say " Well, I don't know if

> that would be safe, let me check with her dr. Then

> send a note in writing (do you have a communication

> book?) that the dr would not give permission to

> increase it at this time. As far as them asking you

> to send more meds--are these people nuts? Do you know

> the liability these guys are up against wanting to

> medicate a child to their own specifications? You

> were wise to switch the schedule. Whenever the

> teachers tell me to do anything that I don't think is

> right, I always put it in the communication book that

> the doctor said it was inadvisable.

>

> Deepta--My kid is considered a " CHARGE variant " too.

> She has never had a G-tube but she retched a lot--she

> was so severely orally defensive that anything that

> went into her mouth she gagged on. We persevered with

> oral feeds and that only made it worse. I couldn't

> tell by your description if your child was retching on

> the oral or the tube feeds, but I thought I'd share.

> Welcome to the list!

>

> Jeanne

>

> __________________________________________________

>