(VPD) Re: Dr. Willems/pain relief, for Jackie

[Guest guest]

antihistamines in place of the antidepressants. You

said..."He beleives the antihistamine property of

antihistamines is what is helping, now he rocommends

the antihistamines due to less side effects." Did you

mean to say that or did you mean the antihistamine

property of ANTIDEPRESSANTs is what is helping ? I am

just a bit confused.

Sorry, I meant that he said he believes it is the antihistamine property of antidep's which is the benefit. He uses it for all types of vulvodynia. I for example am quite positive I have nerve related problems, however, I also know I have histamine problems as well. Which comes first and which causes which to get worse I don't know. Basically he is recommending the antihistamines for burning. I know when my nerves are going nuts the histamine reaction is outrageous.

[Guest guest]

.. Basically he is recommending the antihistamines for burning. I know when my nerves are going nuts the histamine reaction is outrageous.

Maybe over the counter antihistmines would work. What do you think? Donna

[Guest guest]

, what type of allergy testing are you going to do?

Forgot to answer prior question, yes...I did go to the vulvodynia convention in November, I live in southern CA. 's was there, as well as ST. Amand, and Dr. Willems, have to admit St. Amand's presentation always is the most expansive, and makes the most sense. Tough protocol though. It was great connecting with others who are in the same boat and hearing success stories.

jackie

[Guest guest]

<< St. Amand's presentation always is the

most expansive, and makes the most sense. Tough protocol though. It was

great connecting with others who are in the same boat and hearing success

stories. >>

who is st. amands and what is the protocol? please share your knowledge, i

am very interested . . .

[Guest guest]

You can look up St. Amand's info on guaidoc.com He also has a book, what your doctor may not tell you about fibromyalgia...he believes all women with vulvodynia have fibro, has met many and claims not one of them doesn't have it. I didn't think I had it back when I saw him, but he found lumps all over my body that even I could feel. Didn't do the protocol, now have much worse fibro. COnsidering starting after first of year. Very difficult protocol to explain, better off reading website. I know many women who are better and getting better on the guaifenesin treatment, but it is easy for some and difficult for others. Controversial I suppose you can say. Takes a while to be effective, some three months, some a year or more.

Jackie You can request the back issue from the vp foundation explaining his protocol. PRobably three bucks or something. They have a list of women who did the treatment you can talk to as well. Also has a list serve where there are many recovered vulvodynia sufferers.

Jackie

[Guest guest]

<< guaidoc.com >>

this web site didn't work for me - i am interested, i don't really even know

what fibroma . . . .is funny someone thinks i have it, of course i'm

interested . . .

[Guest guest]

That's great that you were at the conference. It's good to know that

doctors are interested in getting together and in finding

satisfactory treatment for our terrible disorder. So the current

theory among VV specialists is that allergies cause a lot of cases of

VV? (I know there must be other causes for some cases, such as nerve

damage, skin atrophy, etc.)

I am going in for an all day session of allergy testing Jan. 3 at

Helena Women's Clinic here in the Bay area. They will be testing for

Candida, hormone, and some food allergies, maybe others types too but

I'm not sure. I probably should call and ask exactly what they will

be testing for. They are going to keep me there all day so they can

watch for delayed allergic reactions/symptom flareup. I don't know

any specifics beyond that. But from the literature they sent me I

believe they know what they are doing and they want to be very

thorough. Finally I'm seeing a doctor who gives a flip about my pain

and discomfort! And wants to do something about it!

BTW, have you or anyone else tried OTC antihistimes for the VV pain?

I'm going to try the next time I am hurting but I gotta be careful

because they make me increadibly drowsy.

> , what type of allergy testing are you going to do?

>

> Forgot to answer prior question, yes...I did go to the vulvodynia

convention

> in November, I live in southern CA. 's was there, as well

as ST.

> Amand, and Dr. Willems, have to admit St. Amand's presentation

always is the

> most expansive, and makes the most sense. Tough protocol though.

It was

> great connecting with others who are in the same boat and hearing

success

> stories.

>

> jackie

[Guest guest]

I will get you the phone number, they can send you info, I highly recommend the book, he talks about the relationship of vulvoydnia to fibro in his book as well as other urogenitary disorders. He describes many symptoms, 30 or so that go along with fibro/vulvodynia that you would never consider, women in the room were gasping, most didn't think they were related. I will get back to you.

Jackie