Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 > I am wondering if any of you struggle with all the wonderful " cures " > out there for autism...feeling guilty for being afraid to try > something that other folks are saying made their severely autistic > child " normal " ? Raena, I just wanted to respond to this... In my opinion, which I grant you may not be worth much, if a kid is 'recovered' from autism, that kid wasn't autistic in the first place. I am *extremely* skeptical of all " cures " and recovery testimonies. Now that's not to say I don't believe in trying everything possible in order to give the best chance of thriving in this NT world that he can get. I know what you mean about being intimidated and frightened by all the different options out there.There is SO MUCH info about so many different supplements, etc...it's hard to know what is true, what is safe, and what is not just plain crazy...(a little while ago someone was emailing members of the list with an Epsom Salts Cure) As for paranoia, I honestly don't think parents would be endorsing or espousing supplements that could cause harm to a child. After all, they gave whatever they're talking about to their own children; if something bad had happened I imagine they would be campaigning against it, which would certainly come up on an internet search. I would suggest checking out the Autism Research Institute and the Centre for the Study of Autism websites and seeing what good old Bernie has to say on a variety of supplements and theories. http://www.autism.com/ari/ http://www.autism.com/ That's always a good place to start. But in the end, my opinion is that if you're not comfortable with it, don't do it. There's no shame in that. I truly believe that. Sure you'd wonder, " but what if I'd... " or say, " I should have... " but in the end, you need to do exactly what your conscience tells you to do. And if it tells you to be wary of more supplements, that's perfectly fine. It's your choice, after all, and you'll make that choice ultimately out of love for . Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 Raena, I feel that the guilt trips will be there, regardless. I mean... I have only this week begun my girls' vitamin therapies. I've had the supplements in my posession for awhile, but didn't want to mix up how much of their progress, or lack thereof, would be from their preschool, and how much would be from suppplements, and so forth. Well, I've tried... and the effects, I am told, should be noticeable within a short frame of time <within a month>. That said, things are going amazingly well - but I do keep in mind this is only day 4..... I have never seen my children this attentive, and I have never seen my children " get it " when I am having them do something, whether it be turning a toy on and off, or imitating " clap hand and then pat your nose " motions. Are they talking overnight? NOOOOOOO. They babble so much more, and even though the teachers at school do not know that I have started this, they are commenting on things like, " I can't believe how talkative they were today, babbling all day long! " or yesterday, four teachers gathered around us to tell me that they had the very BEST day so far. Coinkydink? Vitamins? WHO KNOWS!!! I don't know, and I don't care. It's still better than where we came from, and that is good enough for me. How I based my decision to try this therapy was that first, it was recommended by Bernard Rimland.... or at least approved of through him. Second, these are all vitamins and minerals in our system, and given appropriately, it's not truly overdosing our children on these things. Third, it's not difficult, so long as I can find a yogurt with a strong enough flavor that can mask the taste of the meds. That said, yesterday... during my truly perfect day, I sat there wondering why I hadn't done this before. I mean, I have read about this therapy since I read about autism. It's not like it has just come out. But of all the " treatments " out there, I can't possibly do all of them on my children, and how on EARTH should I know which ones to try? Trial and error? Somehow, that sounds too risky to use on my own children. I have many reasons for why I didn't try. Doubt is at the top of the list, and considering this is not helpful for each autistic child, I didn't want to be dismayed by the results. You can't help but hope, you know? So even now, even as my children SEEM to be responding to this, I keep in mind that I won't know whether this is fluke or a coincidence, until time passes and I try taking them OFF this stuff. IF this works, and the improvement is significant, then I will feel horribly guilty for not trying sooner, even though there is nothing to say that it would have WORKED if I tried it sooner. If it doesn't work, I won't feel guilty about that - but I'd probably feel guilty for trying this one instead of something else! Even now, I have various other treatments I am interested in trying one day. Some require much more WORK than I am willing to commit to at this point, and others are so 'out there' that while my curiosity is piqued, I hesitate. What I am trying to say in a long-winded way is that we ALLLLLL try what we feel comfortable with, and are ABLE to do. I can cut off a limb if it will help them but I cannot afford $100,000 therapy per child. I can easily mix in supplements to their food, but I have a MUCH harder time transforming our family onto GFCF foods. I can mix in epsom salt with their bathwater, but to brush them every two hours all day long comes down to one kid every hour, and that is near impossible for me. I like to think that this is not my being an incompetent uncaring mother, but more than I can only do the things that I can do. So, when at all possible, I give myself guilt trips over therapies and treatments ONLY when I am pushing off what would be relatively easy for me to implement into our lives. You have on meds, and with him being older, I'm sure that comes with many more challenges I haven't experienced with 3.5 year olds. What is simple for me may be much less so for you, and vice versa. Another thing to keep in mind, I think, is the length of treatment required before seeing effects. If I have to try something for 2 years to see if it's worked or failed, I really don't think I would try. I am entirely too impatient AND too lazy for that. But if the effects are supposed to be visible in a month or two, then weird stuff or not, if you CAN pump it into and see how that goes -- then it might be worth a try, enzymes, vitamins, drugs, or what not, so long as the side effects are positively not worse than the state he is in. I mean, I wouldn't try something that has cancer as a side effect, because I surely don't want " cured " kids with cancer, but you know what I mean. Grace " Finding a cure " and going on guilt trips... > Good Morning all... > > I am wondering if any of you struggle with all the wonderful " cures " > out there for autism...feeling guilty for being afraid to try > something that other folks are saying made their severely autistic > child " normal " ? I do this to myself all the time...most recently > over the enzymes thing. I always want to try stuff for ' sake, > but I worry that if I just start pouring junk down him I'll do some > permanent damage, you know? It took me over a year to decide to try > the EFAs, and they actually helped him. But he ain't cured...so did > it matter that much that I waited to try something that made him only > slightly better? > > I feel so pressured right now, with coming rapidly upon that > magic age of 8 where the world of intervention changes so much for > kids with disabilities. What if there IS something out there I could > give him that would help significantly, and I'm just not doing it out > of paranoia? > > I hate this. > > Raena > > _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 In a message dated 12/6/01 9:35:36 AM Pacific Standard Time, Jacquie writes: > In my opinion, which I grant you may not be worth much, if a kid is > 'recovered' from autism, that kid wasn't autistic in the first place. I am > *extremely* skeptical of all " cures " and recovery testimonies. > > Now that's not to say I don't believe in trying everything possible in > order to give the best chance of thriving in this NT world that he can > get. > > Spoken like a parent that has accepted the dx! When you are through trying to " cure " it, you can move to work with it. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 I know exactly what you mean! I have been pressured to try various drugs, diets and therapies and no matter what you do, someone is ready to criticize your choice. I think part of it is this perception that autism is an " illness " that can be " cured " . I have researched many so-called cures and have yet to find one that made an autistic child " normal " . My mother's advice was the best " Don't take any advice. " You have to believe that you know what is best for your child. Do what you think is right. Take Care hon Tuna --- rgr4us wrote: Good Morning all... I am wondering if any of you struggle with all the wonderful cures out there for autism...feeling guilty for being afraid to try something that other folks are saying made their severely autistic child normal? I do this to myself all the time...most recently over the enzymes thing. I always want to try stuff for ' sake, worry that if I just start pouring junk down him I'll do some permanent damage, you know? Raena ===== ______________________________________________________ Send your holiday cheer with http://greetings.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 ----- Original Message ----- > Raena, I just wanted to respond to this... In my opinion, which I grant you may not be worth much, if a kid is 'recovered' from autism, that kid wasn't autistic in the first place. I am *extremely* skeptical of all " cures " and recovery testimonies. > > Now that's not to say I don't believe in trying everything possible in order to give the best chance of thriving in this NT world that he can get. > > I know what you mean about being intimidated and frightened by all the different options out there.There is SO MUCH info about so many different supplements, etc...it's hard to know what is true, what is safe, and what is not just plain crazy...(a little while ago someone was emailing members of the list with an Epsom Salts Cure) > > As for paranoia, I honestly don't think parents would be endorsing or espousing supplements that could cause harm to a child. After all, they gave whatever they're talking about to their own children; if something bad had happened I imagine they would be campaigning against it, which would certainly come up on an internet search. > > I would suggest checking out the Autism Research Institute and the Centre for the Study of Autism websites and seeing what good old Bernie has to say on a variety of supplements and theories. > http://www.autism.com/ari/ > http://www.autism.com/ > That's always a good place to start. > > But in the end, my opinion is that if you're not comfortable with it, don't do it. There's no shame in that. I truly believe that. Sure you'd wonder, " but what if I'd... " or say, " I should have... " but in the end, you need to do exactly what your conscience tells you to do. And if it tells you to be wary of more supplements, that's perfectly fine. It's your choice, after all, and you'll make that choice ultimately out of love for . > > Jacquie Raena, Just to add to Jaquie's response: The other thing is that our kids don't all seem to have 'aquired' their autism the same way. Some of the parents knew their babies were 'different' right from birth. Some of the kids were perfectly normal and for no apparent reason at all, suddenly regresses around age 2. Some of the kids seemed normal and regressed or reacted badly after different vaccines. Also some of the kids who respond well to different 'cures' may have certain types of physical difficulties that not all of the kids have. This said, it would make sense that something that works for one child, may have no effect on another. Everything is guesswork and we just do our best at muddling through and collect as much information as we can and then decide what sounds worth trying with our kids and what sounds dangerous and not worth the risk. Sue ---------------------------------------------------- Sign Up for NetZero Platinum Today Only $9.95 per month! http://my.netzero.net/s/signup?r=platinum & refcd=PT97 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 Raena - I'm pretty sure we all go thru the same thoughts, probably more often than we should. My philosophy, at this very second, although it is subject to change, is that there is NOTHING that I or anyone can do to " cure " Autism, and even if there were, I'm not sure I would want to try. The very best we can do for our children is love them for who they are and learn as much about Autism as we can so we can be educated enough to help them. If something doesn't feel right for you at any particular moment, then it doesn't feel right. Period. Second guessing yourself will get you nowhere. I've wondered myself how things " would be " if Jacqui would have had early intervention, if we would have recognized the signs sooner. I still wonder sometimes " what we are missing " if we do not give her her enzymes regularly or what we are missing because I don't research vitamins enough, or don't attempt to alter her diet enough...geez,you could go on and on and on. We are only HUMAN. We are not SUPERHUMAN. At least I'm not. I just have to take one day at a time and let the " forces " guide me to what I should be doing. All of your posts have been INCREDIBLY helpful. Full of great information that has helped me, as I'm sure they have helped others. Keep doing what you're doing and pat yourself on the back. Don't kick yourself for what you are NOT doing. You know . You'll know when the time is right to try something new. {{{hugs}}}} Penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 > > In my opinion, which I grant you may not be worth much, if a kid is > > 'recovered' from autism, that kid wasn't autistic in the first place. I am > > *extremely* skeptical of all " cures " and recovery testimonies. I don't agree with this, Jacquie. I think most children do not get " cured " but that once in awhile, a child does recover from true autism. It may not be due to a certain therapy or anything that the parents did or didn't do, but something happens and they are, by all means, " cured " . Now this is not to be confused with my hoping for this to happen to my girls. On the contrary, I hope for betterment, improvement, and speech. I don't hope for miracles anymore. But my point is that it would BLOW if should be indistinguishable from his peers <with the exception of the regular quirks or oddities that ALL people possess> one day, and you would have to hear that your little boy was not autistic to begin with. He was indeed autistic, and substantially so, yes? What he ends up like in 2 years or 20 years doesn't take away from that fact. And he continues to improve at an alarming rate. I have mentioned a friend of mine who has that 11 year old boy, severely autistic. Well, he's a twin, and his sister also didn't say a word until age 4.5... handflapping, spinning, tantrums, you name it. Diagnosed as autistic. She needed ST until grade 3, but other than that, that gorgeous little girl is NOT autistic anymore in any which way. She doesn't have one classical autistic sign...... and she is well-balanced, has lots of friends, and is by all counts, " normal " . Her twin brother, on the other hand, is pretty much one of the more severe cases I have heard of since knowing autism. But up to age 4.5, they were the SAME. Imitation, or cured? I don't know. Imitation is entirely possible, but is it possible to imitate someone else so wholly and completely, even if he is a twin? Grace _________________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 Honestly, No. I don't feel guilty that I'm not out there every second looking for a cure. He's autistic, and nothing's going to change that. I am spending my days helping him learn as much as he can and help him better understand and communicate in the world we live in. And just plain old enjoying him. At first I thought I had to be supermom and try so many different things. But then I realized, Mitchel only really wants mom, not supermom. Kerri " Finding a cure " and going on guilt trips... Good Morning all... I am wondering if any of you struggle with all the wonderful " cures " out there for autism...feeling guilty for being afraid to try something that other folks are saying made their severely autistic child " normal " ? I do this to myself all the time...most recently over the enzymes thing. I always want to try stuff for ' sake, but I worry that if I just start pouring junk down him I'll do some permanent damage, you know? It took me over a year to decide to try the EFAs, and they actually helped him. But he ain't cured...so did it matter that much that I waited to try something that made him only slightly better? I feel so pressured right now, with coming rapidly upon that magic age of 8 where the world of intervention changes so much for kids with disabilities. What if there IS something out there I could give him that would help significantly, and I'm just not doing it out of paranoia? I hate this. Raena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 Raena, I just wanted to respond to this... In my opinion, which I grant you may not be worth much, if a kid is 'recovered' from autism, that kid wasn't autistic in the first place. I am *extremely* skeptical of all " cures " and recovery testimonies. Jacquie: I 100% agree with this~ Kerri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 > is NOT autistic anymore in any which way. She doesn't have one classical > autistic sign...... and she is well-balanced, has lots of friends, and is by > all counts, " normal " . Could be asperger's, too. Marc is indistinguishable from others, was popular in school, very intelligent, totally well-balanced...only when you know him intimately do you notice something different about him, and it takes years to really sink in. Or this little girl could just be far better at learning to cope; may have had far more potential for integration than her brother right from the start, for whatever the reason is that dictates ASD kids have so many levels of affectedness... Your point is compelling, Grace, I won't deny it. Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 > > Jacquie: I 100% agree with this~ > Kerri > Me too :-) Penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 > > At first I thought I had to be supermom and try so many different things. But then I realized, Mitchel only really wants mom, not supermom. > Kerri Kerri! VERY well said!!! Penny :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 Thank you.. gee the damndest things come out of my mouth huh? Just when you least expect it from me! Kerri Re: " Finding a cure " and going on guilt trips... > > At first I thought I had to be supermom and try so many different things. But then I realized, Mitchel only really wants mom, not supermom. > Kerri Kerri! VERY well said!!! Penny :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2001 Report Share Posted December 6, 2001 200% agree with Jacquie! Kerri Re: " Finding a cure " and going on guilt trips... > > Jacquie: I 100% agree with this~ > Kerri > Me too :-) Penny Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2001 Report Share Posted December 7, 2001 >> I know what you mean about being intimidated and frightened by all the different options out there.There is SO MUCH info about so many different supplements, etc...it's hard to know what is true, what is safe, and what is not just plain crazy...(a little while ago someone was emailing members of the list with an Epsom Salts Cure)>> And then you read somewhere else that using Epsom Salts on kids who can't do something or other metabolically (sorry, can't remember what at the moment...) is dangerous. One thing that drives me nuts is that folks can't agree on what is safe. Soy is the answer. Soy is poison. EFAs are what they need. Too much EFA supplementation leads to aggression and hyperactivity. B vitamins are the answer, but only a certain type of B vitamin that no pharmacist in town carries or knows where to get. UGH. I guess I just feel overwhelmed at the moment with all the " options " ... > But in the end, my opinion is that if you're not comfortable with it, don't do it. There's no shame in that. I truly believe that. Sure you'd wonder, " but what if I'd... " or say, " I should have... " but in the end, you need to do exactly what your conscience tells you to do. And if it tells you to be wary of more supplements, that's perfectly fine. It's your choice, after all, and you'll make that choice ultimately out of love for .>> True. Thanks. Raena > > Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2001 Report Share Posted December 7, 2001 >>Everything is guesswork > and we just do our best at muddling through and collect as much information > as we can and then decide what sounds worth trying with our kids and what > sounds dangerous and not worth the risk.>> You know, the problem for me is information overload. I get some information....think, " Hey, that makes sense " , then find something somewhere that contradicts it. My wee brain can't handle it...so I err in the direction of safety. Then I worry that if I were just braver...he'd do better. Raena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2001 Report Share Posted December 7, 2001 Dear friends, Rather than try to respond to all the wonderful, supportive posts you all sent yesterday, I want to just say thanks one time to all (hope that's okay). I did respond directly to a few things, but don't want to clutter the list with too many notes. I suppose that it just hits me every once in a while. I am on several " typical " autism lists...PDD support, Recovered Kids, enzymes and autism, speech diet, abmd, and on and on... I do it for the information...and don't usually post unless I have a question. But sometimes I get so discouraged reading how this or that mom found " the answer " for her kid, and that kid is now bopping merrily through life. is bopping alright...bopped his sister just yesterday. :-( He is doing better...WAY better. He's a different kid than he was last year...and that's wonderful. But he's also a different kid than he was 4 years ago...and that's NOT wonderful. He's one of those kids who did regress, which is why I keep wondering if there is something that will " unregress " him...so I keep reading. takes prescription meds, and some supplements. Others we have tried that didn't work still sit in the cabinet. I have a list of " safe " things to do, one at a time...maybe it's part of the acceptance process to do this...to be sure that we are where we are because we can't be anywhere else. I have teachers and therapists who come to the house to work with him, and under the tree sits a new speech program to try. So I'm doing what I can, right? I do think that I accept for who he is...but I want to make sure that he gets as much opportunity as he can. SO, we keep plugging away...and learn as we go. Makes me a better person, I guess---my temper HAS to stay under control because his sure isn't going to...But honestly, I get tired of getting so many opportunities to be a better person. I get tired of not having anything close to a regular life...of almost everything being hard. I'm going to miss my older son's first Academic Tournament tomorrow, because it's an all day deal with way too many people for to even try...his dad and one of his sisters will go and cheer for him. I wanted to go, too...but my respite care providers are not available. So I will stay at home with , and we will probably have a good day, doing what he does best...just being . Wow, look at what I just said. Maybe I want him cured for ME...phooey. See, now I can feel guilty about THAT! Raena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2001 Report Share Posted December 7, 2001 > Wow, look at what I just said. Maybe I want him cured for > ME...phooey. See, now I can feel guilty about THAT! Oh Raena -- I think we ALL want out kids cured for US!!! We never asked for this! This isn't what we signed up for! We signed up for the laughing babies in the pampers commercials, and the toddlers who cheer when they pull down their pull-ups and pee in the potty all by themselves, and the kindergarteners who act like those precocious kids on sitcoms, and grade schoolers who want help with their homework and tell us stories about their days, and teenagers whose social lives will overwhelm them, and college graduates who would hug us and say, " Thanks mom - I couldn't have done it without you. " We didn't get that. :-( But of COURSE sometimes we wish we did! We're missing out on a journey that others take for granted. I think to never wish that we were on THAT journey would make us some kind of superhumans -- and I don't know about you, but my tiara and magical cape seem to be lost in the mail. Don't feel guilty, sweetie -- you're only human, doing a job that requires more than the average human knows how to handle. You get enough guilt on a daily basis without feeling bad about just being human. (((hugs))) Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2001 Report Share Posted December 7, 2001 > > > Wow, look at what I just said. Maybe I want him cured for > > ME...phooey. See, now I can feel guilty about THAT! > > > Oh Raena -- I think we ALL want out kids cured for US!!! We never asked for this! This isn't what we signed up for! We signed up for the laughing babies in the pampers commercials, and the toddlers who cheer when they pull down their pull-ups and pee in the potty all by themselves, and the kindergarteners who act like those precocious kids on sitcoms, and grade schoolers who want help with their homework and tell us stories about their days, and teenagers whose social lives will overwhelm them, and college graduates who would hug us and say, " Thanks mom - I couldn't have done it without you. " > > We didn't get that. :-( But of COURSE sometimes we wish we did! > > We're missing out on a journey that others take for granted. I think to never wish that we were on THAT journey would make us some kind of superhumans -- and I don't know about you, but my tiara and magical cape seem to be lost in the mail. > > Don't feel guilty, sweetie -- you're only human, doing a job that requires more than the average human knows how to handle. You get enough guilt on a daily basis without feeling bad about just being human. (((hugs))) > > Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2001 Report Share Posted December 7, 2001 > We're missing out on a journey that others take for granted. I think to never wish that we were on THAT journey would make us some kind of superhumans -- and I don't know about you, but my tiara and magical cape seem to be lost in the mail.>> Oops...I think I pushed " send " instead of " reply " , which will undoubtably send a " nothing " note...and I wanted to say " something " . Looked thru the closet, and I can't find my tiara or cape, either. Actually, now that you mention it, I remember doing this to myself when I first got married, too...watching those wonderful women who have 8 kids, make their own designer-quality clothes, bake everything from scratch, serve on several community committees, and always look like they just walked out of the salon...and wondering how they do that. NOW, that world looks like a breeze (probably isn't)---guess it's all in your perspective; I would never have known how much I can get done at 3 am if I hadn't had to find out. :-( It's like when I first started homeschooling; I was so overwhelmed just doing kindergarten for ...now I think teaching just one kid would be SO easy... Still, wouldn't it be lovely to spend just one day as a " normal " person...fretting over the price of holiday dresses and wondering if 20 is too many people to invite over for that brunch...getting into the car without thinking about the consequences of one too many trips in a day...meandering aimlessly through a garden...sitting down... Raena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2001 Report Share Posted December 7, 2001 Raena... I know about the guilt trips. I had to miss breakfast with Santa this morning with Sam and Abbie because I just had to work.... We just CAN'T do it all...it is impossible.... My comfort comes from being able to ask myself if I did my best...just for today... And honestly, I can normally say yes....sometimes I slack...but I guess we all do. The truth is, I think we all do our best....due to fatigue our best might not be as good as other days...still, this is our best for that day. I think you're doing great. Ron Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2001 Report Share Posted December 7, 2001 I think the problem here is that diagnosing autism is not an exact science. After all the tests and interviews and observations it still comes down to the opinion of a doctor. There is so much we don't know about autism. Perhaps how a child contracts it has something to do with how severe it gets. Maybe it's about environment or genetics. Perhaps there is even separate strains, one that can be cured, and one that can't. In the end, it is the parent who has to make the decision about what treatmenets, therapies and schooling is best for their child. Tuna (I haven't helped at all, have I?) P.S. Grace, how about getting your friend to join PA? --- Grace Keh wrote: I don't agree with this, Jacquie. I think most children do not get cured but that once in awhile, a child does recover from true autism. Grace ===== ______________________________________________________ Send your holiday cheer with http://greetings.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2001 Report Share Posted December 7, 2001 > Still, wouldn't it be lovely to spend just one day as a " normal " > person...fretting over the price of holiday dresses and wondering if > 20 is too many people to invite over for that brunch...getting into > the car without thinking about the consequences of one too many trips > in a day...meandering aimlessly through a garden...sitting down... Yeah. I understand. You know, I barely think about that stuff anymore; I think it's self-defense. Why look over the fence to the greener grass, when you're standing in quicksand and the fence is made of razor-wire anyway? Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2001 Report Share Posted December 7, 2001 Sitting down? Sitting down? Hmmmm. Sounds sorta familiar. I might have down that once or twice, a looong time ago. Tuna --- rgr4us wrote: sitting down... Raena ===== ______________________________________________________ Send your holiday cheer with http://greetings.yahoo.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2001 Report Share Posted December 8, 2001 > I know about the guilt trips. > I had to miss breakfast with Santa this morning with Sam and Abbie because I just had to work.... > We just CAN'T do it all...it is impossible....>> Ron, Thanks; You're right...guilt isn't real productive, anyway. Breakfast with Santa, huh? Sounds like it would have been fun. went absolutely ballistic the other day when the Salvation Army bell ringers were all dressed up in Santa garb outside Target...there's not *supposed to be* anyone standing outside the door when we walk out, and they fer sher shouldn't look like THAT. So much for holiday spirit. :-) > The truth is, I think we all do our best....due to fatigue our best might not > be as good as other days...still, this is our best for that day. > I think you're doing great.>> That's a good way to look at it. I read your other post ( " I've been thinking " ...maybe?) and had wanted to tell you how much your perspective on things helps me. Not sure if I'm doing all that great, but at least I'm still pluggin' along...which might be my best today, come to think of it... Raena Quote Link to comment Share on other sites More sharing options...
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