Re: Jim is gone : (

[Guest guest]

My condolences on your loss. You provided Jim with the best care possible. I'm

glad his passing was so peaceful.

>

> It is with a heavy heart that I tell you Jim died at 8:41AM Pacific

Time today.

> I was with him through the night. I stayed over for the last 3 nights at the

> nursing home. I only went home once to shower and change when Hospice sent a

> sitter to stay with Jim while I went home for awhile. He died peacefully, but

he

> was a fighter to the end. He didn't want to go. He looked like he was from a

> concentration camp, he was so bony, no one knew where he was getting the

energy

> to keep on breathing, but he kept on going. He had a will to live.

> Last night we had quality time together. They moved Jim into a private room

and

> I could talk to him and we did body language to show our love. I winked at him

> and he raised his eyebrows up and down, I patted my heart to let him know I

> loved him and when I went to put some vasiline on his dry lips, he pursed his

> lips and kissed my finger and put his lips togeter and said, The B sound. It

> sounded like Bye to me. It broke my heart. It was just like Jim to do

something

> so touching in a moment of sorrow.

>

> He touched so many residents and staff at the nursing home with his

personality

> that they did a respectful ceremony for him as he went out the door for the

last

> time. Usually, the coroner comes and takes the people out on a gurney with a

> cover over them and residents are sitting in the hall, but the

> admin. staff cleared everyone out of the hall and not one person was sitting

in

> the hall and the staff went up and down the hall and closed all the doors to

the

> rooms in the hall that Jim would pass through and when Jim went down the hall

> the staff all stood in silence. I never saw them do that before to anyone and

> all the people that worked there said the samething. 

> Sharyn, Jim's daughter, came when I called her to let her know that her

dad had

> passed. She had planned to come at 10AM before my call. She had been there

most

> of the day before too. She was a real support and we both were tearful and

> helped each other through it. We both had a melt down when Jim passed through

> the hall for the last time. Jim waited to go the day after my birthday instead

> of on my birthday. The staff at the nursing home gave me a small party and

they

> all signed a birthday card. I was given a slice of cake with a candle on it,

so

> my birthday did not go unnoticed.

> Sharyn helped me clean out all Jim's belongings out of drawers and closets and

> pack them in the car to take home.

> I am staying at my mom's tonight, so I don't sit at home alone and reflect and

> have a melt down. My whole life for the past decade has been centered around

> Jim. I won't know what to do with all my free time.

> Thank you all for your kind words, concern and support.

> Love and Hugs,

> Jan Colello

> Husband, Jim dx w/LBD 2003 died January 22, 2011

>

>

>

>

>

[Guest guest]

Jan: I am so sorry to sense the pain and heartache you are going through.

To help get yourself through the days ahead, take some tylenol pm or

something so you get caught up on your sleep. I am glad you were with him.

I have always regretted that I was not there with Ray. The nurses had no

clue that he was leaving us that night. My kids made it in time, but I am

farther away. So that is a blessing--you were with him to help him pass.

Keep remembering that he is in a better place.

We all are grateful to you for the generous gift of time and knowledge you

have shared with us on this group. We all owe you so much. I will be

thinking of you and praying for you for the next few days. Love, Leona

Leona: Caregiver for husband Ray, age 68, diagnosed 2/04 with Parkinson's

Disease. Changed doctors, diagnosed 6/06 with LBD. Almost continual downhill

slide no matter what drugs we try. 5/2/08 Ray was placed in Sunrise Nursing

Home in Oswego, NY, 1 hour from home. So far, so good! Hardest thing I have

ever done in my life, however. 3/19/09 transferred to Samaritan Keep NH in

Watertown, NY closer to home. He passed peacefully at 5:18 am on April 14,

2009. I am handling it OK.

'Love is not finding someone to live with; it's finding someone you don't

want to live without.'

[Guest guest]

Dear Jan- I was gone the weekend and just signed online. I was talking about

you and Jim Saturday evening with my cousins, even mentioned I didn't know if

Jim was still with us. So, with that said, my heart is breaking for you right

now. It is such a bittersweet time. There is no more suffering or struggles

for Jim to get through yet its a long way from the mind to the heart to convince

ourselves that this is for the best. There will now be a different type of

grieving you will go through. I found there is grieving all throughout the LBD

journey yet this will bring on a whole new type of grieving. Allow yourself to

feel all the emotions that may show up in the coming days. I know you are a

strong person and will come through this. I agree with you that Jim was a

fighter 'til the end and I would like to add you were equal to him in this

fight. You have been an inspiration to me from day one since you joined this

group. We send along our deepest condolences and shall continue to send up many

prayers. Peace and strength be with you. God Bless You. Many hugs with love-

SDes Moines, IAdad, Merle, passed from LBD 9-20-02, age 65mum, Jo, (New

Zealand) passed from LBD 4-29-07, age 78

----- Jim is gone : (

Date: Sat, 22 Jan 2011 13:50:09 -0800 (PST)

It is with a heavy heart & #65533;that I tell you & #65533;Jim died at 8:41AM

Pacific Time & #65533;today.

I was with him through the night. I stayed over for the last 3 nights at the

nursing home. I only went home once to shower and change when Hospice sent a

sitter to stay with & #65533;Jim while I went home for awhile. He died peacefully,

but he

was a fighter to the end. He didn't want to go. He looked like he was from a

concentration camp, he was so bony, no one knew where he was getting the energy

to keep on breathing, but he kept on going. He had a will to live.

Last night we had quality time together. They moved Jim into a private room and

I could talk to him and we did body language to & #65533;show our love. I winked

at him

and he raised his eyebrows up and down, I patted my heart to let him know I

loved him and when I went to put some vasiline on his dry lips, he pursed his

lips and kissed my finger and put his lips togeter and said, The B sound. It

sounded like Bye to me. It broke my heart. It was just like & #65533;Jim to do

something

so & #65533;touching in a moment of sorrow.

He touched so many residents and staff at the nursing home with his personality

that they did a respectful ceremony for him as he went out the door for the last

time. Usually, the coroner comes and takes the people out on a gurney with a

cover over them and residents are sitting in the hall, but the

admin. & #65533;staff & #65533;cleared everyone out of the hall and not one person

was sitting in

the hall and the staff went & #65533;up and down the hall and closed all the doors

to the

rooms in the hall that & #65533;Jim would pass & #65533;through & #65533;and

when & #65533;Jim went down the hall

the staff all stood in silence. I never saw them do that before to anyone and

all the people & #65533;that worked there said the samething. & #65533;

Sharyn, Jim's daughter, & #65533;came when I called her to let her know that her

dad & #65533;had

passed. She had planned to come at 10AM before my call. She had been there most

of the day before too. & #65533;She was a real support and we both were tearful

and

helped each other through it. We both had a melt down when & #65533;Jim passed

through

the hall for the last time. & #65533;Jim waited to go the day after my birthday

instead

of on & #65533;my birthday. The staff at the nursing home gave me a small party

and they

all signed a birthday card. I was given a slice of cake with a candle on it, so

my birthday did not go unnoticed.

Sharyn helped me clean out all & #65533;Jim's belongings out of drawers and

closets and

pack them in the car to take home.

I am staying at my mom's tonight, so I don't sit at home alone & #65533;and

reflect and

have a melt down. My whole life for the past decade has been centered around

Jim. I won't know what to do with all my free time.

Thank you all for your kind words, concern and support.

Love and Hugs,

Jan Colello

Husband, Jim dx w/LBD 2003 died January 22, 2011

[Guest guest]

Dear Jan,

I am so sorry to hear of Jim's passing. I cannot imagine how your heart is

aching but also peaceful. Your words of your last moments with him were

profoundly sad and beautiful at the same time. Thank you for sharing them with

us as they are special to hear. I wish you wonderful memories of your lifetime

together and peace and love going forward. (( )), Norma

[Guest guest]

Dear Jan,

Please accept my condolences for your husband's passing. I am sure

he is in peace now.

Ferhan

________________________________

To: LBDcaregivers

Sent: Mon, January 24, 2011 4:17:39 PM

Subject: Re: Jim is gone : (

 

Dear Jan,

I am so sorry to hear of Jim's passing. I cannot imagine how your heart is

aching but also peaceful. Your words of your last moments with him were

profoundly sad and beautiful at the same time. Thank you for sharing them with

us as they are special to hear. I wish you wonderful memories of your lifetime

together and peace and love going forward. (( )), Norma