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My husband is still at home and as been suffering from LBD going on ten years.

This last year he has been on a downward spiral. During the course of his

disease he seems to do better with more medication than less and he has been to

one neurologist and three movement disorder specialist.

The other morning he woke up very confused and thought someone had been in the

house and stole his money and credit card. He tried calling 911 many times and

succeded twice, but I was lucky enough to stop them from coming.

I tried to get the phone away from him while holding the other phone so I could

disconnect the calls. I think this made him feel threaten and he grippped by

arm tightly while throwing both phone down and breaking them.

I do not like taking him to the emergency as the first think they do is take him

off all his meds which just makes the situation worse. I called the doctor on

call and was told to give him a bit more seroquel and we got him to quiet down

and he has been good since.

Now everyone wants me to put him in a home right away. I can understand that he

can become more violet with this disease and I will be at least looking at the

choices I have. He takes meds nine times a day and calls for help a lot and I

think I may have to pay a fortuen to get him help in a NH.

Has anyone ever faced this situation and what did they do. I have 24/7 care for

him at home now. My caregivers will call 911 and I have all emergency

information for them to take.

Any advise would be appreciated as I am confused by all the different advise I

get about NH, both good and bad.

BernardineFord

Caregiver to husband

Diagnosed in 2001

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