Re: Suzy--Greetings/Diagnosis and Treatment Letter

[Guest guest]

Hello Suzy and all--

You ask how I discuss vulvodynia and its impact on my with family and

friends--well, I'm sort of a private person, so most of my family

knows I am seeing a specialist for a non-life threatening

gynecological problem, but I don't discuss the exact nature of my

illness. My husband and my best friend know all. But since this

such a chronically painful sort of disease, most of the time I say

nothing except when I am having a real bad day.

Thank heavens this group is here because it's my experience that they

are the ones who can empathize and are working on solving this

problem. I want to add, though, that I don't feel ashamed of having

vulvodynia. I just feel it is a " private " issue for me. (Now I am

laughing at my words here because I discussing my private issue on

the internet--a crazy catch-22, huh?:):)

You ask also how far I travel to see --from Los

Angeles to Phoenix, six hours by car. Next time I will fly in and out

on the same day. Good luck with him--Healing thoughts, Dory

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Suzy wrote> Like most women I felt alone with this and almost

ashamed! How do you discuss this with family or friends.. And if they

don't have it then how can they relate? I never even tell them the

whole truth about it. How can you explain that the burning is enough

to make you jump off a cliff? So, do you travel far to see Dr.

.