Re: andria update - help

[Guest guest]

Dr. Allan Gordon at Mt. Sinai Hospital in Toronto was on our group for quite a

while earlier this year. I suggest you check the message archives for some of

his postings. I am sure that if you get in touch with him, he can give you some

good advice and references or perhaps he will be the one to help you.

Ora

>dear everyone,

>i am feeling particularly crappy today. this vulvar pain is RUINING MY WHOLE

LIFE. grr.

>i am having a " feel sorry for myself " day where i walk around hurting and being

unhappy. for a few weeks i was feeling better a little but now is a flare.

>i think this is cyclic and i am practically CONVINCED that i have glabrata and

that nobody can find it.

>i am seriously considering making the trek to dr. davis as there don't seem to

be any competent doctors here in toronto.

>but, again, the money factor. i'm hoping i can go just once and shell out all

the money and then have him consult maybe with some " specialist " here. (use that

specialist term very loosely.)

>could someone do me a HUGE favor when they next visit the wonderful doctor

davis and please please please ask him if he has any " vulva friends " in toronto?

>i am so sick of being so sad and hurty all the time.

>and another depressing thing is, i am moving out december 1st (well that is

good but i will have no internet!)

>i am moving outta my family's house and in with my significant other. which is

good because my family is unsupportive and horrible about this, and my boyfriend

is my lifeline...

>but!!! i will have no computer or internet...

>so, i will have to check from my office after work or before or on breaks and

this list is too much to manage the mail volume for just twice a week checking.

>

>so.. any volunteers to be my e-mail friend / snail mail pen pal just so i have

some kinda support system besides brandon (poor guy just gets WAY too much

andria crying). for those on my mini list, i should hopefully still be able to

manage that...

>

>anyways, girls, just thought i'd ask... i'll still be here till december 1st.

>hope you are all feeling okay.

>love,

> andria

>

[Guest guest]

Ora,

I stay in touch with Dr. Gordon from time to time. If

anyone needs to get in touch with him let me know and I

will let him know. He gave myself and a couple others a

copy of the paper that he just recently presented at a

conference.

=====

Kristy

http://www.geocities.com/HotSprings/Falls/4659/kristyspage.html

__________________________________________________

[Guest guest]

Hi, Kristy.

I sent Dr. Gordon an email and told him that one of our members is trying to

find an excellent doctor in Toronto and requested that he send his address and

phone number along with an email address where he can be reached, in the event

it has changed. I hope to hear from him.

Ora

On Thu, 23 Nov 2000 21:24:56 -0800 (PST), Kristy Sokoloski

wrote:

>Ora,

>

>I stay in touch with Dr. Gordon from time to time. If

>anyone needs to get in touch with him let me know and I

>will let him know. He gave myself and a couple others a

>copy of the paper that he just recently presented at a

>conference.

>

>

>

>

>

>

>=====

>Kristy

[Guest guest]

Ora,

That's good. I hope that he can help her. How are you

doing?

=====

Kristy

http://www.geocities.com/HotSprings/Falls/4659/kristyspage.html

__________________________________________________

[Guest guest]

, could you explain a tad more about the white staining. I

have what looks white at the crease of the labia minora. Not spots,

but a line even after rinsing and rinsing.

>>> " B. Standard " 11/27 9:15 PM >>>

[Guest guest]

Re: andria update - help

> , could you explain a tad more about the white staining. I

> have what looks white at the crease of the labia minora. Not spots,

> but a line even after rinsing and rinsing.

,

With vulvar Lichen Dermatosis disorders (there are several types: Simplex,

Sclerosis, and Planus) the skin flakes off a lot and it becomes itchy. My

NP said it is similar to Exema or Psoriasis, just in the vulvar area. You

don' t see the flakes of skin, but they are there. This flaky skin has

something to do with the white patches, but I can't remember how she

explained it. The white spots do kind of look like something is on there,

but for some reason you can't wash it off. The most common spot for the

whitening of the skin is right where you say yours is - between the outer

and inner lips of the vagina, anywhere from the bottom all the way to the

top where the creases meet above the clitoris. Steroid ointment has helped

my itching a lot. Hasn't done much for my burning, but I suspect that is

due to the VV rather than the Lichen Dermatosis. Sounds like it might not

hurt for you to get checked out for Lichen. Are your white patches itchy at

all?

[Guest guest]

Andria,

Did Allan tell you that I wrote to him on your behalf and

gave him your e-mail address as well as your message to me?

=====

Kristy

http://www.geocities.com/HotSprings/Falls/4659/kristyspage.html

__________________________________________________

[Guest guest]

You are welcome Andria. I hope that all goes well for you

real soon.

=====

Kristy

http://www.geocities.com/HotSprings/Falls/4659/kristyspage.html

__________________________________________________