Re: Re: ROLL CALL!

[Guest guest]

Dear Imogene,

It is your time for grieving and as we have always said here, each does it in

their own way. It was very stressful for you toward the end so I am sure you

don't miss the extreme stress.

That doesn't mean you don't miss that man of yours. And you are healing and

trying to get well yourself. Take all the time you need. It is ok to take care

of yourself right now and we are very aware it is a time you may pull away for a

bit. We know you will come back more when you can.

Lots of hugs,

Donna R

Cared for Mom 3 years in my home and the last year at a nh. She passed away

from LBD in 2002.

Re: ROLL CALL!

Hi dear ,

I'm not getting on here like I thought I would. In fact, today, I am skimming,

and saw Texas Gentleman. I want to cry. I'm sorry. But, I love you all even if

I'm not here. I too, grieved a lot before Don died, but get moments now when I

can hardly bear the loss. Other wise, I can go about my life, almost as if it

didn't happen.

Go figure!

Love a Lot,

Imogene

> > >

> > > Everybody - a suggestion was made that we each post a 'status update' on

where we are in our respective journies and I think that's a great idea.

> > >

> > > Start a new post or reply to this one - whichever is easier...

> > >

> > > I'll get us started ...

> > >

> > > As you know my mom is gone since 2006. But I think/breath/live Lewy on

daily basis by providing information for LBDCaregivers & the famous Links

section, facilitating a support group in my neck of the woods (had a meeting

last night) and managing the LBDA page on Facebook.

> > >

> > > We had a very successful LBD Awareness Week last month. In Mass. alone we

had 4 events, all different, from a lecture by Gomperts, MD of Mass.

General Hospital, to art therapy for caregivers, to a book signing by

Graboys, MD, to a race - which made history again by bringing in more donations

for one event to LBDA. Many people made the above possible - I'm proud to have

been one of many...

> > >

> > > Where are YOU in this journey?

> > >

> > > ; loving daughter of Maureen of Boston, MA; dx'd with LBD in

2/2006 (confirmed via brain biopsy;) fell victim to rapid decline from

Risperidone; Mom fell into the 50% category of those who could not handle

antipsychotics; Was successful on Celexa, Exelon, ALA & B1; Mom became my

Guardian Angel on Sept. 30th, 2006.

> > >

> >

>