Guest guest Posted January 21, 2011 Report Share Posted January 21, 2011 Can I be blunt? This "window" doctors and some support groups have "advertised" is PURE bullshit! I don't believe it and I never will. I am with Jeannette and . Just believe Krassi! See your son communicating, picture it in your mind...picture him healthy and happy. Just keep the visualization. The more you see it, the closer to reality it will come. Do this every day. I have a friend that I met online who is from the UK and autistic. She is now around 29 I think. When I met her 2 years ago she was non-verbal, I bought her speakers for her IPOD so she could type out what she wanted and the people could hear her.(text to speech program). Now she is talking (yes with a slight impediment but who cares) and she has a boyfriend! Ruut...if you read this post could you PLEASE share your story with the group so the moms can get some inspiration. Hugs, Tami Why do these drs feel the need to make such stupid comment? I have heard of kids starting to talk at age 16. They dont understand autism so how can they know if they will talk or not? You are doing all the right things. just keep going. I have heard that high dose vit E with fatty acids helps. For my son CalEDTA helped bcause it got rid of some lead. There is a correlation between lead and apraxia. Dont worry about the future, just keep going. you never know which thing is going to help. Hello everybody,This is probably going to be a long post, but I really need to share my fears and thoughts and hopefully get your opinion and experience.Few days ago my son got evaluated from developmental pediatrician and of course found him to be autistic. We already knew that with my husband, so nothing shocking, although 2 years ago when we went to developmental pediatrician assessment they found that my son is not autistic but with sensory disintegration disorder – underactive type (I know - very long name, showing nothing). However, over the past 2 years we already knew that my son has autism and started all the dietary interventions, went to DAN doctor, did sequential and classical homeopathy and the last 7 months we are seeing Dr. K's assistant and my son has been treated for Lyme, co-infections, parasites, yeast, bacteria, everything under the sun.However, over the last 2.5 years since we are doing all that my son has made minimum progress (with exception to the last few months that we notice he is more aware, much better eye contact and more playful with us) and something that really hurt me is that the developmental pediatrician said that kids who haven't started talking until 5 (my son is 5.5 years old) after that the prognosis are even more slim, because the first 5 years is when this part of the brain – speech , is developing the most. I cannot even put into words how much this prognosis hurt me, because this is my biggest dream, to hear my son talking. He has only 1 word that he uses on regular basis – "open" and everything else is just "baba" and lots of louad noises. She advised us to look into other types of communication – divices, picture exchange, etc. We are using some sign language with my son but for the most part we are focused on his speech and this is the part we have been working the most.My brain cannot even process that my son may never talk, but the time indeed is passing and I feel more and more concerned and panicked about that.So my question is - are here any kids who were not verbal until 5-6 years old and after that they started talking? I know every child is very individual and what has helped one child doesn't mean it will help another. However, I was wondering if there is a child who had similarities with my son and then something really helped?Here are the supplements that my son is taking:Neem, propolis, cistus tea, selenium CWS, TiQuench, Fermented cod liver oil, Ketotifen, DMG, CGF (chlorella grouth factor), Laktoferrin, liver life, CORE, Quintessence, MB12 shots every 3 days, graviola, few days ago also started Enzogenol, some homeopathics for drainage and for the last 10 days we have been doing also the anti-parasitic drugs as per Dr. K's protocol . I have been reading recently about L-Carnosine and that helps with speech so I am considering getting it.Recenly we purched Valkion so for the last 2 weeks my son is also getting some oxygenized water, we are also doing scalp acupuncture twice per week, chiropractic adjustments evry 1-2 weeks, osteopathy and for the therapies – SonRise, speech and occupational therapy.Please share your thoughts and experience. What are we missing? We have never done chelation, may be this is part of the missing puzzle?Thanks a lot in advance,Krassi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2011 Report Share Posted January 21, 2011 Why do these drs feel the need to make such stupid comment? I have heard of kids starting to talk at age 16. They dont understand autism so how can they know if they will talk or not? You are doing all the right things. just keep going. I have heard that high dose vit E with fatty acids helps. For my son CalEDTA helped bcause it got rid of some lead. There is a correlation between lead and apraxia. Dont worry about the future, just keep going. you never know which thing is going to help. Hello everybody,This is probably going to be a long post, but I really need to share my fears and thoughts and hopefully get your opinion and experience.Few days ago my son got evaluated from developmental pediatrician and of course found him to be autistic. We already knew that with my husband, so nothing shocking, although 2 years ago when we went to developmental pediatrician assessment they found that my son is not autistic but with sensory disintegration disorder – underactive type (I know - very long name, showing nothing). However, over the past 2 years we already knew that my son has autism and started all the dietary interventions, went to DAN doctor, did sequential and classical homeopathy and the last 7 months we are seeing Dr. K's assistant and my son has been treated for Lyme, co-infections, parasites, yeast, bacteria, everything under the sun.However, over the last 2.5 years since we are doing all that my son has made minimum progress (with exception to the last few months that we notice he is more aware, much better eye contact and more playful with us) and something that really hurt me is that the developmental pediatrician said that kids who haven't started talking until 5 (my son is 5.5 years old) after that the prognosis are even more slim, because the first 5 years is when this part of the brain – speech , is developing the most. I cannot even put into words how much this prognosis hurt me, because this is my biggest dream, to hear my son talking. He has only 1 word that he uses on regular basis – "open" and everything else is just "baba" and lots of louad noises. She advised us to look into other types of communication – divices, picture exchange, etc. We are using some sign language with my son but for the most part we are focused on his speech and this is the part we have been working the most.My brain cannot even process that my son may never talk, but the time indeed is passing and I feel more and more concerned and panicked about that.So my question is - are here any kids who were not verbal until 5-6 years old and after that they started talking? I know every child is very individual and what has helped one child doesn't mean it will help another. However, I was wondering if there is a child who had similarities with my son and then something really helped?Here are the supplements that my son is taking:Neem, propolis, cistus tea, selenium CWS, TiQuench, Fermented cod liver oil, Ketotifen, DMG, CGF (chlorella grouth factor), Laktoferrin, liver life, CORE, Quintessence, MB12 shots every 3 days, graviola, few days ago also started Enzogenol, some homeopathics for drainage and for the last 10 days we have been doing also the anti-parasitic drugs as per Dr. K's protocol . I have been reading recently about L-Carnosine and that helps with speech so I am considering getting it.Recenly we purched Valkion so for the last 2 weeks my son is also getting some oxygenized water, we are also doing scalp acupuncture twice per week, chiropractic adjustments evry 1-2 weeks, osteopathy and for the therapies – SonRise, speech and occupational therapy.Please share your thoughts and experience. What are we missing? We have never done chelation, may be this is part of the missing puzzle?Thanks a lot in advance,Krassi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2011 Report Share Posted January 21, 2011 Just wanted to share my method. We use several things for inflammation. Gentle things. I try to use things close to food, like spices (ginger root, turmeric) or actual foods, like Goji, Acai, broccoli sprouts, Modifilan (seaweed). Would you believe we got die-off from coconut oil (raw)? So, for me, what I liked was gentle things. We also do digestive enzymes. These base items, plus the berry, Ashwagandha, all did wonders. Then, we just added in other things to kill pathogens, mostly gentle things. Autism seems to be from the immune system being off-balance. It seems that if something is used that is strong, it sets an off-balance somewhere. I would discuss your fears with your doc and see if he/she has hopes of seeing improvement real soon. A Zyto or another biomeridian device might be helpful. Also, I would check into chiropractic and Quantum Neurology. I am thinking there may be a strong blockage or deficit somewhere keeping the progress slow. Most things that raise natural killer cells really helped us. Love and prayers, Heidi N > > Hello everybody, > This is probably going to be a long post, but I really need to share my fears and thoughts and hopefully get your opinion and experience. > Few days ago my son got evaluated from developmental pediatrician and of course found him to be autistic. We already knew that with my husband, so nothing shocking, although 2 years ago when we went to developmental pediatrician assessment they found that my son is not autistic but with sensory disintegration disorder – underactive type (I know - very long name, showing nothing). However, over the past 2 years we already knew that my son has autism and started all the dietary interventions, went to DAN doctor, did sequential and classical homeopathy and the last 7 months we are seeing Dr. K's assistant and my son has been treated for Lyme, co-infections, parasites, yeast, bacteria, everything under the sun. > However, over the last 2.5 years since we are doing all that my son has made minimum progress (with exception to the last few months that we notice he is more aware, much better eye contact and more playful with us) and something that really hurt me is that the developmental pediatrician said that kids who haven't started talking until 5 (my son is 5.5 years old) after that the prognosis are even more slim, because the first 5 years is when this part of the brain – speech , is developing the most. I cannot even put into words how much this prognosis hurt me, because this is my biggest dream, to hear my son talking. He has only 1 word that he uses on regular basis – " open " and everything else is just " baba " and lots of louad noises. She advised us to look into other types of communication – divices, picture exchange, etc. We are using some sign language with my son but for the most part we are focused on his speech and this is the part we have been working the most. > My brain cannot even process that my son may never talk, but the time indeed is passing and I feel more and more concerned and panicked about that. > So my question is - are here any kids who were not verbal until 5-6 years old and after that they started talking? I know every child is very individual and what has helped one child doesn't mean it will help another. However, I was wondering if there is a child who had similarities with my son and then something really helped? > Here are the supplements that my son is taking: > Neem, propolis, cistus tea, selenium CWS, TiQuench, Fermented cod liver oil, Ketotifen, DMG, CGF (chlorella grouth factor), Laktoferrin, liver life, CORE, Quintessence, MB12 shots every 3 days, graviola, few days ago also started Enzogenol, some homeopathics for drainage and for the last 10 days we have been doing also the anti-parasitic drugs as per Dr. K's protocol . I have been reading recently about L-Carnosine and that helps with speech so I am considering getting it. > Recenly we purched Valkion so for the last 2 weeks my son is also getting some oxygenized water, we are also doing scalp acupuncture twice per week, chiropractic adjustments evry 1-2 weeks, osteopathy and for the therapies – SonRise, speech and occupational therapy. > Please share your thoughts and experience. What are we missing? We have never done chelation, may be this is part of the missing puzzle? > Thanks a lot in advance, > Krassi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2011 Report Share Posted January 21, 2011 Thank you all for your encouraging words and hope. I haven't given up, in fact I don't think I would ever give up on my son, no matter how old he is, however it is fact that every time we start something I put all my hopes in that and when nothing happens or very very little that nobody else notices but me, I get very concerned. On top of that predictions like that from developmental professionals don't make it better. I also feel that we have somewhere blockage, like Heidi suggested and this is stopping our progress. However, I am really out of ideas what else to try to find out where is this blockage and how to fix it. We have been doing Zyto testing with MP every month for the last 3-4 months. He also thinks that parasites, Lyme and brain inflamation are our biggest stressors. As to QN I use the AMWand every day on my son (I forgot to mention that before) but I haven't done any of the lasers, so may be this will be our next step. As for herbs for brain inflammation - for some reason Enhansa and all other supplements that have turmeric or curcumin always show negative in the energetic testing (Zyto and ART testing), but on the other hand everybody says he has brain inflammation so I just need to keep trying to find the right one. Thanks again and if there are any other ideas or positive stories please share them - I am open to anything (Tami, I really liked your story with the girl that started talking even that she was 29 years old, reminds me that everything is possible). Krassi > > > > Hello everybody, > > This is probably going to be a long post, but I really need to share my fears and thoughts and hopefully get your opinion and experience. > > Few days ago my son got evaluated from developmental pediatrician and of course found him to be autistic. We already knew that with my husband, so nothing shocking, although 2 years ago when we went to developmental pediatrician assessment they found that my son is not autistic but with sensory disintegration disorder – underactive type (I know - very long name, showing nothing). However, over the past 2 years we already knew that my son has autism and started all the dietary interventions, went to DAN doctor, did sequential and classical homeopathy and the last 7 months we are seeing Dr. K's assistant and my son has been treated for Lyme, co-infections, parasites, yeast, bacteria, everything under the sun. > > However, over the last 2.5 years since we are doing all that my son has made minimum progress (with exception to the last few months that we notice he is more aware, much better eye contact and more playful with us) and something that really hurt me is that the developmental pediatrician said that kids who haven't started talking until 5 (my son is 5.5 years old) after that the prognosis are even more slim, because the first 5 years is when this part of the brain – speech , is developing the most. I cannot even put into words how much this prognosis hurt me, because this is my biggest dream, to hear my son talking. He has only 1 word that he uses on regular basis – " open " and everything else is just " baba " and lots of louad noises. She advised us to look into other types of communication – divices, picture exchange, etc. We are using some sign language with my son but for the most part we are focused on his speech and this is the part we have been working the most. > > My brain cannot even process that my son may never talk, but the time indeed is passing and I feel more and more concerned and panicked about that. > > So my question is - are here any kids who were not verbal until 5-6 years old and after that they started talking? I know every child is very individual and what has helped one child doesn't mean it will help another. However, I was wondering if there is a child who had similarities with my son and then something really helped? > > Here are the supplements that my son is taking: > > Neem, propolis, cistus tea, selenium CWS, TiQuench, Fermented cod liver oil, Ketotifen, DMG, CGF (chlorella grouth factor), Laktoferrin, liver life, CORE, Quintessence, MB12 shots every 3 days, graviola, few days ago also started Enzogenol, some homeopathics for drainage and for the last 10 days we have been doing also the anti-parasitic drugs as per Dr. K's protocol . I have been reading recently about L-Carnosine and that helps with speech so I am considering getting it. > > Recenly we purched Valkion so for the last 2 weeks my son is also getting some oxygenized water, we are also doing scalp acupuncture twice per week, chiropractic adjustments evry 1-2 weeks, osteopathy and for the therapies – SonRise, speech and occupational therapy. > > Please share your thoughts and experience. What are we missing? We have never done chelation, may be this is part of the missing puzzle? > > Thanks a lot in advance, > > Krassi > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2011 Report Share Posted January 21, 2011 On this note: " , but on the other hand everybody says he has brain inflammation so I just need to keep trying to find the right one. " focus on things for inflammation. My girl has the same issue as far as she progressed, but way slower than my other children. She also has the brain inflammation. Ashwagandha has been her best supplement. She also responded to Conivora (venus flytrap) and Monolaurin. ly, I think her inflammation has something to do with her digestion because she is not absorbing and metabolizing nutrients well. MP said her brain was way inflammed, even as compared to others with autism. He felt it was viral. It's obvious that she has many pathogens. She still does not get ill, no colds and such, so her immune system is still off. But, she is making it enough to do regular school, with some behavioral issues. At times, they are incredibly awful. She still throws things. Interestingly, she is becoming one of the smartest in her class. I only wish her anger would improve as well. Once I get her anger issue fixed, I feel that knowledge will be priceless. Love and prayers, Heidi N > > > > > > Hello everybody, > > > This is probably going to be a long post, but I really need to share my fears and thoughts and hopefully get your opinion and experience. > > > Few days ago my son got evaluated from developmental pediatrician and of course found him to be autistic. We already knew that with my husband, so nothing shocking, although 2 years ago when we went to developmental pediatrician assessment they found that my son is not autistic but with sensory disintegration disorder – underactive type (I know - very long name, showing nothing). However, over the past 2 years we already knew that my son has autism and started all the dietary interventions, went to DAN doctor, did sequential and classical homeopathy and the last 7 months we are seeing Dr. K's assistant and my son has been treated for Lyme, co-infections, parasites, yeast, bacteria, everything under the sun. > > > However, over the last 2.5 years since we are doing all that my son has made minimum progress (with exception to the last few months that we notice he is more aware, much better eye contact and more playful with us) and something that really hurt me is that the developmental pediatrician said that kids who haven't started talking until 5 (my son is 5.5 years old) after that the prognosis are even more slim, because the first 5 years is when this part of the brain – speech , is developing the most. I cannot even put into words how much this prognosis hurt me, because this is my biggest dream, to hear my son talking. He has only 1 word that he uses on regular basis – " open " and everything else is just " baba " and lots of louad noises. She advised us to look into other types of communication – divices, picture exchange, etc. We are using some sign language with my son but for the most part we are focused on his speech and this is the part we have been working the most. > > > My brain cannot even process that my son may never talk, but the time indeed is passing and I feel more and more concerned and panicked about that. > > > So my question is - are here any kids who were not verbal until 5-6 years old and after that they started talking? I know every child is very individual and what has helped one child doesn't mean it will help another. However, I was wondering if there is a child who had similarities with my son and then something really helped? > > > Here are the supplements that my son is taking: > > > Neem, propolis, cistus tea, selenium CWS, TiQuench, Fermented cod liver oil, Ketotifen, DMG, CGF (chlorella grouth factor), Laktoferrin, liver life, CORE, Quintessence, MB12 shots every 3 days, graviola, few days ago also started Enzogenol, some homeopathics for drainage and for the last 10 days we have been doing also the anti-parasitic drugs as per Dr. K's protocol . I have been reading recently about L-Carnosine and that helps with speech so I am considering getting it. > > > Recenly we purched Valkion so for the last 2 weeks my son is also getting some oxygenized water, we are also doing scalp acupuncture twice per week, chiropractic adjustments evry 1-2 weeks, osteopathy and for the therapies – SonRise, speech and occupational therapy. > > > Please share your thoughts and experience. What are we missing? We have never done chelation, may be this is part of the missing puzzle? > > > Thanks a lot in advance, > > > Krassi > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2011 Report Share Posted January 21, 2011 I would like to THANK YOU Tami My son is non verbal aswell . Subject: Re: Any hopes for speech?To: BorreliaMultipleInfectionsAndAutism Cc: ruutenator@...Date: Friday, 21 January, 2011, 22:42 Can I be blunt? This "window" doctors and some support groups have "advertised" is PURE bullshit! I don't believe it and I never will. I am with Jeannette and . Just believe Krassi! See your son communicating, picture it in your mind...picture him healthy and happy. Just keep the visualization. The more you see it, the closer to reality it will come. Do this every day. I have a friend that I met online who is from the UK and autistic. She is now around 29 I think. When I met her 2 years ago she was non-verbal, I bought her speakers for her IPOD so she could type out what she wanted and the people could hear her.(text to speech program). Now she is talking (yes with a slight impediment but who cares) and she has a boyfriend! Ruut...if you read this post could you PLEASE share your story with the group so the moms can get some inspiration. Hugs, Tami Why do these drs feel the need to make such stupid comment? I have heard of kids starting to talk at age 16. They dont understand autism so how can they know if they will talk or not? You are doing all the right things. just keep going. I have heard that high dose vit E with fatty acids helps. For my son CalEDTA helped bcause it got rid of some lead. There is a correlation between lead and apraxia. Dont worry about the future, just keep going. you never know which thing is going to help. Hello everybody,This is probably going to be a long post, but I really need to share my fears and thoughts and hopefully get your opinion and experience.Few days ago my son got evaluated from developmental pediatrician and of course found him to be autistic. We already knew that with my husband, so nothing shocking, although 2 years ago when we went to developmental pediatrician assessment they found that my son is not autistic but with sensory disintegration disorder – underactive type (I know - very long name, showing nothing). However, over the past 2 years we already knew that my son has autism and started all the dietary interventions, went to DAN doctor, did sequential and classical homeopathy and the last 7 months we are seeing Dr. K's assistant and my son has been treated for Lyme, co-infections, parasites, yeast, bacteria, everything under the sun.However, over the last 2.5 years since we are doing all that my son has made minimum progress (with exception to the last few months that we notice he is more aware, much better eye contact and more playful with us) and something that really hurt me is that the developmental pediatrician said that kids who haven't started talking until 5 (my son is 5.5 years old) after that the prognosis are even more slim, because the first 5 years is when this part of the brain – speech , is developing the most. I cannot even put into words how much this prognosis hurt me, because this is my biggest dream, to hear my son talking. He has only 1 word that he uses on regular basis – "open" and everything else is just "baba" and lots of louad noises. She advised us to look into other types of communication – divices, picture exchange, etc. We are using some sign language with my son but for the most part we are focused on his speech and this is the part we have been working the most.My brain cannot even process that my son may never talk, but the time indeed is passing and I feel more and more concerned and panicked about that.So my question is - are here any kids who were not verbal until 5-6 years old and after that they started talking? I know every child is very individual and what has helped one child doesn't mean it will help another. However, I was wondering if there is a child who had similarities with my son and then something really helped?Here are the supplements that my son is taking:Neem, propolis, cistus tea, selenium CWS, TiQuench, Fermented cod liver oil, Ketotifen, DMG, CGF (chlorella grouth factor), Laktoferrin, liver life, CORE, Quintessence, MB12 shots every 3 days, graviola, few days ago also started Enzogenol, some homeopathics for drainage and for the last 10 days we have been doing also the anti-parasitic drugs as per Dr. K's protocol . I have been reading recently about L-Carnosine and that helps with speech so I am considering getting it.Recenly we purched Valkion so for the last 2 weeks my son is also getting some oxygenized water, we are also doing scalp acupuncture twice per week, chiropractic adjustments evry 1-2 weeks, osteopathy and for the therapies – SonRise, speech and occupational therapy.Please share your thoughts and experience. What are we missing? We have never done chelation, may be this is part of the missing puzzle?Thanks a lot in advance,Krassi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2011 Report Share Posted January 21, 2011 Heidi, I have never heard before of Conivora but it seems really good product from what I just read. Did you alternate Conivora and Monolaurin or were you giving them at the same time since both are working on the immune system? Also which brand of Ashwagandha do you use? Thanks a lot for your recommendations, Krassi > > > > > > > > Hello everybody, > > > > This is probably going to be a long post, but I really need to share my fears and thoughts and hopefully get your opinion and experience. > > > > Few days ago my son got evaluated from developmental pediatrician and of course found him to be autistic. We already knew that with my husband, so nothing shocking, although 2 years ago when we went to developmental pediatrician assessment they found that my son is not autistic but with sensory disintegration disorder – underactive type (I know - very long name, showing nothing). However, over the past 2 years we already knew that my son has autism and started all the dietary interventions, went to DAN doctor, did sequential and classical homeopathy and the last 7 months we are seeing Dr. K's assistant and my son has been treated for Lyme, co-infections, parasites, yeast, bacteria, everything under the sun. > > > > However, over the last 2.5 years since we are doing all that my son has made minimum progress (with exception to the last few months that we notice he is more aware, much better eye contact and more playful with us) and something that really hurt me is that the developmental pediatrician said that kids who haven't started talking until 5 (my son is 5.5 years old) after that the prognosis are even more slim, because the first 5 years is when this part of the brain – speech , is developing the most. I cannot even put into words how much this prognosis hurt me, because this is my biggest dream, to hear my son talking. He has only 1 word that he uses on regular basis – " open " and everything else is just " baba " and lots of louad noises. She advised us to look into other types of communication – divices, picture exchange, etc. We are using some sign language with my son but for the most part we are focused on his speech and this is the part we have been working the most. > > > > My brain cannot even process that my son may never talk, but the time indeed is passing and I feel more and more concerned and panicked about that. > > > > So my question is - are here any kids who were not verbal until 5-6 years old and after that they started talking? I know every child is very individual and what has helped one child doesn't mean it will help another. However, I was wondering if there is a child who had similarities with my son and then something really helped? > > > > Here are the supplements that my son is taking: > > > > Neem, propolis, cistus tea, selenium CWS, TiQuench, Fermented cod liver oil, Ketotifen, DMG, CGF (chlorella grouth factor), Laktoferrin, liver life, CORE, Quintessence, MB12 shots every 3 days, graviola, few days ago also started Enzogenol, some homeopathics for drainage and for the last 10 days we have been doing also the anti-parasitic drugs as per Dr. K's protocol . I have been reading recently about L-Carnosine and that helps with speech so I am considering getting it. > > > > Recenly we purched Valkion so for the last 2 weeks my son is also getting some oxygenized water, we are also doing scalp acupuncture twice per week, chiropractic adjustments evry 1-2 weeks, osteopathy and for the therapies – SonRise, speech and occupational therapy. > > > > Please share your thoughts and experience. What are we missing? We have never done chelation, may be this is part of the missing puzzle? > > > > Thanks a lot in advance, > > > > Krassi > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2011 Report Share Posted January 21, 2011 Just want to add that there are reports of children (over 7 years of age) that were found in the wild (no human contact) that never learned to talk " normal, " after they were rescued. This example, of course, does not pertain to children with autism. The good news is that there are reports that children have been found who had no exposure to verbal speech, but did have exposure to sign language who did learn to speak verbally " normal. " Thus, those who were around language of any sort, even sign language, could learn to speak " normal. " The belief is that the brain patterns are laid out if there is any communication at all, even if it's sign language. As long as one is exposed to communication, the brain patterns can develop. Of course, children in the autism arena are exposed to language/communication. What I see in the autism arena is that many who can not talk out loud do great with typing. Even some type in perfect grammar and a vocabulary higher than most people. Unfortunately, each has differences, so we can not easily solve what makes all speak. We know that recovery efforts in general work, but they will vary. For mine, cod liver oil, MB12, digestive enzymes, turmeric, gf-cf, and organic diet got speech dramatically improved, and things that killed Bartonella, Lyme, and raised natural killer cells recovered the rest of the speech. I think that most can not speak due to the nerves connecting the brain to the mouth. I think that many have the words in their head, but the signals from the brain are not traveling to the other area of the brain that controls the actual speech. Since singing and speech are different areas of the brain, I wonder if some could respond to singing lessons. Kind of like the cheerleader whose flu vaccine left her unable to walk, but could still run, or the group Jan and Dean. One got brain damage, and could no longer talk, but could sing great still. I had one who went from repeating cartoon phrases to sing-songy speech before his speech started sounding normal. So, my guess would be that pathogens could be infecting the nerves that the speech needs to travel in or just plain inflammation is disrupting various areas of the brain. The inflammation of course, would be from immune dysfunction from too many pathogens and toxins. In summary, it would seem that most have the ability to develop " normal " speech if they find the correct treatments to re-balance the immune system. Love and prayers, Heidi N > > > > Subject: Re: Any hopes for speech? > To: BorreliaMultipleInfectionsAndAutism > Cc: ruutenator@... > Date: Friday, 21 January, 2011, 22:42 > > >  > > > > > Can I be blunt?  >  > This " window " doctors and some support groups have " advertised " is PURE bullshit!  I don't believe it and I never will. I am with Jeannette and . Just believe Krassi! See your son communicating, picture it in your mind...picture him healthy and happy. Just keep the visualization.  The more you see it, the closer to reality it will come. Do this every day. >  > I have a friend that I met online who is from the UK and autistic. She is now around 29 I think.  When I met her 2 years ago she was non-verbal, I bought her speakers for her IPOD so she could type out what she wanted and the people could hear her.(text to speech program). Now she is talking (yes with a slight impediment but who cares) and she has a boyfriend! >  > Ruut...if you read this post could you PLEASE share your story with the group so the moms can get some inspiration. >  > Hugs, > Tami >  > > In a message dated 1/21/2011 2:36:04 P.M. Pacific Standard Time, klwadler@... writes: >  > > > Why do these drs feel the need to make such stupid comment? I have heard of kids starting to talk at age 16. They dont understand autism so how can they know if they will talk or not? You are doing all the right things. just keep going. I have heard that high dose vit E with fatty acids helps. For my son CalEDTA helped bcause it got rid of some lead. There is a correlation between lead and apraxia. Dont worry about the future, just keep going. you never know which thing is going to help. > > > In a message dated 1/21/2011 4:18:58 P.M. Eastern Standard Time, krassi_G_2000@... writes: >  > > Hello everybody, > This is probably going to be a long post, but I really need to share my fears and thoughts and hopefully get your opinion and experience. > Few days ago my son got evaluated from developmental pediatrician and of course found him to be autistic. We already knew that with my husband, so nothing shocking, although 2 years ago when we went to developmental pediatrician assessment they found that my son is not autistic but with sensory disintegration disorder †" underactive type (I know - very long name, showing nothing). However, over the past 2 years we already knew that my son has autism and started all the dietary interventions, went to DAN doctor, did sequential and classical homeopathy and the last 7 months we are seeing Dr. K's assistant and my son has been treated for Lyme, co-infections, parasites, yeast, bacteria, everything under the sun. > However, over the last 2.5 years since we are doing all that my son has made minimum progress (with exception to the last few months that we notice he is more aware, much better eye contact and more playful with us) and something that really hurt me is that the developmental pediatrician said that kids who haven't started talking until 5 (my son is 5.5 years old) after that the prognosis are even more slim, because the first 5 years is when this part of the brain †" speech , is developing the most. I cannot even put into words how much this prognosis hurt me, because this is my biggest dream, to hear my son talking. He has only 1 word that he uses on regular basis †" " open " and everything else is just " baba " and lots of louad noises. She advised us to look into other types of communication †" divices, picture exchange, etc. We are using some sign language with my son but for the most part we are focused on his speech and this is the part we have been > working the most. > My brain cannot even process that my son may never talk, but the time indeed is passing and I feel more and more concerned and panicked about that. > So my question is - are here any kids who were not verbal until 5-6 years old and after that they started talking? I know every child is very individual and what has helped one child doesn't mean it will help another. However, I was wondering if there is a child who had similarities with my son and then something really helped? > Here are the supplements that my son is taking: > Neem, propolis, cistus tea, selenium CWS, TiQuench, Fermented cod liver oil, Ketotifen, DMG, CGF (chlorella grouth factor), Laktoferrin, liver life, CORE, Quintessence, MB12 shots every 3 days, graviola, few days ago also started Enzogenol, some homeopathics for drainage and for the last 10 days we have been doing also the anti-parasitic drugs as per Dr. K's protocol . I have been reading recently about L-Carnosine and that helps with speech so I am considering getting it. > Recenly we purched Valkion so for the last 2 weeks my son is also getting some oxygenized water, we are also doing scalp acupuncture twice per week, chiropractic adjustments evry 1-2 weeks, osteopathy and for the therapies †" SonRise, speech and occupational therapy. > Please share your thoughts and experience. What are we missing? We have never done chelation, may be this is part of the missing puzzle? > Thanks a lot in advance, > Krassi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2011 Report Share Posted January 21, 2011 I did not use Carnivora at the same time as Monolaurin or Ashwagandha. I guess I wanted to try each one differently to see each's effects. We just started back with Monolaurin, but I have not gone back to Carnivora, probably just due to the expense. But, I do think about it often. I do miss it. We are currently taking Monolaurin and Ashwagandha at the same time. See what your doc says. I really like them. I currently use Planetary Herbal brand of Ashwagandha. It might not meet the " Limin " test for ucky-free constituents, but I use it for " value " reasons. Love and prayers, Heidi N > > > > > > > > > > Hello everybody, > > > > > This is probably going to be a long post, but I really need to share my fears and thoughts and hopefully get your opinion and experience. > > > > > Few days ago my son got evaluated from developmental pediatrician and of course found him to be autistic. We already knew that with my husband, so nothing shocking, although 2 years ago when we went to developmental pediatrician assessment they found that my son is not autistic but with sensory disintegration disorder – underactive type (I know - very long name, showing nothing). However, over the past 2 years we already knew that my son has autism and started all the dietary interventions, went to DAN doctor, did sequential and classical homeopathy and the last 7 months we are seeing Dr. K's assistant and my son has been treated for Lyme, co-infections, parasites, yeast, bacteria, everything under the sun. > > > > > However, over the last 2.5 years since we are doing all that my son has made minimum progress (with exception to the last few months that we notice he is more aware, much better eye contact and more playful with us) and something that really hurt me is that the developmental pediatrician said that kids who haven't started talking until 5 (my son is 5.5 years old) after that the prognosis are even more slim, because the first 5 years is when this part of the brain – speech , is developing the most. I cannot even put into words how much this prognosis hurt me, because this is my biggest dream, to hear my son talking. He has only 1 word that he uses on regular basis – " open " and everything else is just " baba " and lots of louad noises. She advised us to look into other types of communication – divices, picture exchange, etc. We are using some sign language with my son but for the most part we are focused on his speech and this is the part we have been working the most. > > > > > My brain cannot even process that my son may never talk, but the time indeed is passing and I feel more and more concerned and panicked about that. > > > > > So my question is - are here any kids who were not verbal until 5-6 years old and after that they started talking? I know every child is very individual and what has helped one child doesn't mean it will help another. However, I was wondering if there is a child who had similarities with my son and then something really helped? > > > > > Here are the supplements that my son is taking: > > > > > Neem, propolis, cistus tea, selenium CWS, TiQuench, Fermented cod liver oil, Ketotifen, DMG, CGF (chlorella grouth factor), Laktoferrin, liver life, CORE, Quintessence, MB12 shots every 3 days, graviola, few days ago also started Enzogenol, some homeopathics for drainage and for the last 10 days we have been doing also the anti-parasitic drugs as per Dr. K's protocol . I have been reading recently about L-Carnosine and that helps with speech so I am considering getting it. > > > > > Recenly we purched Valkion so for the last 2 weeks my son is also getting some oxygenized water, we are also doing scalp acupuncture twice per week, chiropractic adjustments evry 1-2 weeks, osteopathy and for the therapies – SonRise, speech and occupational therapy. > > > > > Please share your thoughts and experience. What are we missing? We have never done chelation, may be this is part of the missing puzzle? > > > > > Thanks a lot in advance, > > > > > Krassi > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2011 Report Share Posted January 21, 2011 I think that PET and SPECT scans are the current scans of choice, that almost always show lack of blood flow in children with autism. I am not wise to what mainstream medical does to show inflammation. I would sure like the same testing used to detect Encephalitis and Menningitis be used on those with autism. I used a herbalist who used a biomeridian machine. One thing is for sure, we all responded well to all the anti-inflammatories we took, and pretty much we can't be without things for inflammation or symptoms return. Love and prayers, Heidi N > > > > > > > > Hello everybody, > > > > This is probably going to be a long post, but I really need to share > my fears and thoughts and hopefully get your opinion and experience. > > > > Few days ago my son got evaluated from developmental pediatrician and > of course found him to be autistic. We already knew that with my husband, so > nothing shocking, although 2 years ago when we went to developmental > pediatrician assessment they found that my son is not autistic but with > sensory disintegration disorder - underactive type (I know - very long name, > showing nothing). However, over the past 2 years we already knew that my son > has autism and started all the dietary interventions, went to DAN doctor, > did sequential and classical homeopathy and the last 7 months we are seeing > Dr. K's assistant and my son has been treated for Lyme, co-infections, > parasites, yeast, bacteria, everything under the sun. > > > > However, over the last 2.5 years since we are doing all that my son > has made minimum progress (with exception to the last few months that we > notice he is more aware, much better eye contact and more playful with us) > and something that really hurt me is that the developmental pediatrician > said that kids who haven't started talking until 5 (my son is 5.5 years old) > after that the prognosis are even more slim, because the first 5 years is > when this part of the brain - speech , is developing the most. I cannot even > put into words how much this prognosis hurt me, because this is my biggest > dream, to hear my son talking. He has only 1 word that he uses on regular > basis - " open " and everything else is just " baba " and lots of louad noises. > She advised us to look into other types of communication - divices, picture > exchange, etc. We are using some sign language with my son but for the most > part we are focused on his speech and this is the part we have been working > the most. > > > > My brain cannot even process that my son may never talk, but the time > indeed is passing and I feel more and more concerned and panicked about > that. > > > > So my question is - are here any kids who were not verbal until 5-6 > years old and after that they started talking? I know every child is very > individual and what has helped one child doesn't mean it will help another. > However, I was wondering if there is a child who had similarities with my > son and then something really helped? > > > > Here are the supplements that my son is taking: > > > > Neem, propolis, cistus tea, selenium CWS, TiQuench, Fermented cod > liver oil, Ketotifen, DMG, CGF (chlorella grouth factor), Laktoferrin, liver > life, CORE, Quintessence, MB12 shots every 3 days, graviola, few days ago > also started Enzogenol, some homeopathics for drainage and for the last 10 > days we have been doing also the anti-parasitic drugs as per Dr. K's > protocol . I have been reading recently about L-Carnosine and that helps > with speech so I am considering getting it. > > > > Recenly we purched Valkion so for the last 2 weeks my son is also > getting some oxygenized water, we are also doing scalp acupuncture twice per > week, chiropractic adjustments evry 1-2 weeks, osteopathy and for the > therapies - SonRise, speech and occupational therapy. > > > > Please share your thoughts and experience. What are we missing? We > have never done chelation, may be this is part of the missing puzzle? > > > > Thanks a lot in advance, > > > > Krassi > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2011 Report Share Posted January 21, 2011 Krassi, My son was 5 when he started the mainstream catholic school that he is still attending (now he is in grade 6 his final year there) and at that point in time he didn't have much speech just a few words that he hardly used at home or school. Speech has been developing gradually and the more times passes and he hears his younger brother talking and other kids at school he has picked more and more language and has been able to use it appropiately. We always encourage him to express his ideas, feelings either negative or positive and always prize him for his effort and tell /remaind him that people will only know what he wants/needs if he uses his words and so far he got the message. I was told by the pediatritian that diagnosed him when he was two that my son may never speak, and he was wrong, so I have learnt to take with a grain of salt what doctors said. as I know very well that they don't know everything . The body is an amazing machine that has many abilities. Olga > > Hello everybody, > This is probably going to be a long post, but I really need to share my fears and thoughts and hopefully get your opinion and experience. > Few days ago my son got evaluated from developmental pediatrician and of course found him to be autistic. We already knew that with my husband, so nothing shocking, although 2 years ago when we went to developmental pediatrician assessment they found that my son is not autistic but with sensory disintegration disorder – underactive type (I know - very long name, showing nothing). However, over the past 2 years we already knew that my son has autism and started all the dietary interventions, went to DAN doctor, did sequential and classical homeopathy and the last 7 months we are seeing Dr. K's assistant and my son has been treated for Lyme, co-infections, parasites, yeast, bacteria, everything under the sun. > However, over the last 2.5 years since we are doing all that my son has made minimum progress (with exception to the last few months that we notice he is more aware, much better eye contact and more playful with us) and something that really hurt me is that the developmental pediatrician said that kids who haven't started talking until 5 (my son is 5.5 years old) after that the prognosis are even more slim, because the first 5 years is when this part of the brain – speech , is developing the most. I cannot even put into words how much this prognosis hurt me, because this is my biggest dream, to hear my son talking. He has only 1 word that he uses on regular basis – " open " and everything else is just " baba " and lots of louad noises. She advised us to look into other types of communication – divices, picture exchange, etc. We are using some sign language with my son but for the most part we are focused on his speech and this is the part we have been working the most. > My brain cannot even process that my son may never talk, but the time indeed is passing and I feel more and more concerned and panicked about that. > So my question is - are here any kids who were not verbal until 5-6 years old and after that they started talking? I know every child is very individual and what has helped one child doesn't mean it will help another. However, I was wondering if there is a child who had similarities with my son and then something really helped? > Here are the supplements that my son is taking: > Neem, propolis, cistus tea, selenium CWS, TiQuench, Fermented cod liver oil, Ketotifen, DMG, CGF (chlorella grouth factor), Laktoferrin, liver life, CORE, Quintessence, MB12 shots every 3 days, graviola, few days ago also started Enzogenol, some homeopathics for drainage and for the last 10 days we have been doing also the anti-parasitic drugs as per Dr. K's protocol . I have been reading recently about L-Carnosine and that helps with speech so I am considering getting it. > Recenly we purched Valkion so for the last 2 weeks my son is also getting some oxygenized water, we are also doing scalp acupuncture twice per week, chiropractic adjustments evry 1-2 weeks, osteopathy and for the therapies – SonRise, speech and occupational therapy. > Please share your thoughts and experience. What are we missing? We have never done chelation, may be this is part of the missing puzzle? > Thanks a lot in advance, > Krassi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2011 Report Share Posted January 22, 2011 Can you add where you are ordering your ucky-free empty capsules from because I will need those too? Love and prayers, Heidi N > > That's funny, Heidi. Haha... > > Banyan Botanicals carries certified organic Ashwagandha root powder. I usually get powder herbs from Banyan, if they have what I want. > > Limin > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2011 Report Share Posted January 22, 2011 I have taken things in that formula with good results. I might try it. What the heck, I did some Googling, and lots of people were saying good things about it. Love and prayers, Heidi N > > heidi, > > > here's a new one that might help with the gut/brain inflammation: Neuro protek. got alot of attention at autism one conference. > > > tami....well put! > > > very few neuros/developmental docs are of any use...save your co-pays and find the ones that are supportive for letter writing with IEPs....i don't even waste my time with these docs because it's wasting our time. if i need one, i'll take a referral from a trusted source, but so far that hasn't happened since i ditched that world. > > > lisa > Quote Link to comment Share on other sites More sharing options...
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