re: what nsg's say

[Guest guest]

hi ann and all....i thought i would post to the group, instead of

privately on this topic because there seems to be alot of ?'s along the

same line in the past few days re: what dr's think and don't

think....of course, i can only speak from personal experience when i

say " go w/ your gut feeling " !! my husband, david, was at the point of

daily, debilitating headaches when we finally got a diagnosis....yes,

there are lots of risks to surgery of any kind and that goes w/out

saying for brain surgery!!! david had many initial problems following

his decompression and subsequent need for a vp shunt a few days

later....BUT, he is 6 1/2 mos. post op and HASN'T HAD ONE HEADACHE,

excpet for the day he was getting the flu....like his neurosurgeon says

(and i have to give her a plug, because she is wonderful!!! dr. sherry

apple w/ the neurological associates in charleston, wv) said, " you are

human, you're going to get headaches!!!, so don't freak out over every

one!!! " ....yes, there are still folks who have problems following their

surgeries and my heart and prayers go out to them, because as you know,

they are expecting a miracle!!! i know we certainly were....my best

advice is again, go w/ your gut feeling and trust God to handle the

rest....we prayed ALOT for an answer to david's problems that went

undiagnosed for many years....we had just reached the point that we

just handed it over to Him and put our faith in Him and trusted Him to

do what was best for david....it was a tought thing to do, ...i myself

am still recovering from guillain barre syndrome from 1997....we have

had a rough 3 years....we had our third son, i got sick w/ gbs and was

paralyzed for 5 months, david had a major job change, then the chiari

!!! i can only say what worked for us and that was finally

surrendering our fears and trusting and believing....you sure can't

call daily headaches and being in bed " living " , so we were just at that

point....you will have to sincerely assess your situation and weigh the

risks....my prayers are w/ you....take care, becky in wv