Guest guest Posted January 21, 2000 Report Share Posted January 21, 2000 , Carolyn and all, We had a big discussion about this a couple of months ago...you may want to go to the archives and read what was said also the 800 # to medic Alert is there somewhere if you do not have it. I have a medic Alert Bracelet.........I had them put on there Chiari 1 Malformation, Klippel Feil syndrome, take extra care with head, neck, and spine.......The bracelet has a 800 number that emts or docs can call to get additional info ie; my neurosurgeons name and number, my decompression surgery date and the area that my KFS affects. It is a good idea to get one...if you are ever in a car crash or accident and you become unconcious......they will at least know to take extra special care of the head, neck and spine. ((((hugs)))) Sam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2000 Report Share Posted January 21, 2000 I had posted privately something similar to what Sam said to Carolyn, but just thought of something to add. The first day after Rick got the bracelet his employers noticed immediately. They treat him alittle differently now......hard to explain, but it's almost as if they take his condition more seriously! (Although I must say they've been great throughout, already!) Wendi -- New Mexico Husband, Rick, w/ ACM I, syringomyelia, cervical stenosis, lumbar stenosis, decompressed 7/98. an and sam whitesell wrote: original article:/group/chiari/?start=30312 > , Carolyn and all, > We had a big discussion about this a couple of months ago...you > may want to go to the archives and read what was said also the 800 # to > medic Alert is there somewhere if you do not have it. I have a medic Alert > Bracelet.........I had them put on there Chiari 1 Malformation, Klippel > Feil syndrome, take extra care with head, neck, and spine.......The > bracelet has a 800 number that emts or docs can call to get additional info > ie; my neurosurgeons name and number, my decompression surgery date and the > area that my KFS affects. It is a good idea to get one...if you are ever in > a car crash or accident and you become unconcious......they will at least > know to take extra special care of the head, neck and spine. > ((((hugs)))) Sam Quote Link to comment Share on other sites More sharing options...
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