Re: The difference b/t vulvodynia & vestibulitis

[Guest guest]

Interesting, I thought that Vestibulitis (VV) was pain at the *bottom* the

vaginal opening. I have a diagnosis of both, but I am positive that when I

first joined this group I was told that VV was at the bottom... I remember

b/c someone told me I might have " upside-down " vestibulitis as most of my

pain is at the top and that is not the common finding. Of course, that

doesn't mean that information was correct, it's just what someone told me,

and perhaps they were wrong. Curious.

----- Original Message -----

> Vulvar vestibulitis (vv) is pain on contact only in the area above

the

> vaginal opening. This includes the areas between the lips of the labia

> minora from the top of the uretheral opening and the top of the vaginal

> opening. Ladies with pure vulvar vestibulitis have pain only when this

area

> is touched. It's not a large area but the great pain more than makes up

for

> it.

[Guest guest]

Here's a link to the Vulva Pain Foundation. This is how they describe vulvodynia and vv :-)http://www.vulvarpainfoundation.org/vpfabout.htm

Blessings All!

Shirley.

[Guest guest]

You are right. Vestibulitis is almost always at the

bottom of the opening of the vagina. Usually anywhere

from 3 o'clock to 9 o'clock (if you look at the vagina

opening as a clock). I've had Vestibulitis for 12

years and it's from 4 to 8 o'clock. I only have pain

with intercourse, but most have pain with any kind of

contact.

--- " B. Standard " wrote:

> Interesting, I thought that Vestibulitis (VV) was

> pain at the *bottom* the

> vaginal opening. I have a diagnosis of both, but I

> am positive that when I

> first joined this group I was told that VV was at

> the bottom... I remember

> b/c someone told me I might have " upside-down "

> vestibulitis as most of my

> pain is at the top and that is not the common

> finding. Of course, that

> doesn't mean that information was correct, it's just

> what someone told me,

> and perhaps they were wrong. Curious.

>

>

>

> ----- Original Message -----

>

>

>

> > Vulvar vestibulitis (vv) is pain on contact

> only in the area above

> the

> > vaginal opening. This includes the areas between

> the lips of the labia

> > minora from the top of the uretheral opening and

> the top of the vaginal

> > opening. Ladies with pure vulvar vestibulitis have

> pain only when this

> area

> > is touched. It's not a large area but the great

> pain more than makes up

> for

> > it.

>

>

>

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[Guest guest]

My pain is at the 12 and 6 positions, and at the 12

position I have pain a long the area where a piece of skin

is attached to that 12 o'clock position and runs down to

the cervix.

I have strong reason to believe that some of the reason for

this pain is b/c of the fact that I also have

endometriosis.

What I'm wondering now though since I have pain at the 12

and 6 o'clock positions and goes a little more into my

vagina does that still constitute vulvodynia? My thoughts

are that this is the case but I don't know if that is the

case.

What I do know is that I did have vestibulitis too but now

I no longer have that b/c of the fact that the Ceftin that

I took for a UTI that I had in Sept of 1999 took care of

the vestibulitis.

Also, is redness more of an issue with vestibulitis,

vulvodynia, or both? I know that when I do get some of the

infections that I do (not always yeast-I've not had it in a

while thank goodness) that the area is quite red. I'm not

sure what to think about some of this.

I do know without a doubt that I have vulvodynia b/c my

pain also occurs in the left labia minora (not the labia

majora, or thighs) and the clitoral hood as well as

clitoris.

I was also glad to read about the pain that can occur from

having a BM b/c for nearly two days I had no pain in my

vulvar area and when I went to the bathroom for a BM the

other day I had alot of pain afterward, and I'm having pain

in that area again.

I'm not sure though if the endo is contributing to some of

this but what I can say is that prior to the endo trying to

recur this time around I didn't have pain in my vulvar area

or burn after having a BM. Yes, I do have IBS but that

occurred in 1994 and it doesn't bother me too often.

What a frustrating thing to live with. Thanks again for

this info.

=====

Kristy

http://www.geocities.com/sokokl/kristyspersonalpage.html

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[Guest guest]

I wonder what the heck I have then. I have pain at

the bottom of the vagina also. One of my gyn's told

me that it was where the vestibular glands are. But,

you gals keep talking about it hurting when you have

sex or upon insertion of a tampon. I don't have that.

I can have sex okay. But, the day after, I am very

sore and it might last for a few days - in that same

area. Sometimes, the whole outer area of the vagina

gets red too, though. Also, if I wear jeans or

pantyhose, it hurts. So, what is that? Vulvodynia or

vestibulitis? Isn't it strange that we suffer from

this, but so many of us don't know exactly what we

have. Sometimes I feel like it is driving me

crazy!!!

And one more thing, the Amitriptyline seems to be

helping me and I just got the dose raised to 50 mg.

Amitriptyline is only supposed to help with certain

aspects of vv, right? I was thinking not with

vestibulitis. AAAAAAAAAAAGH!!!!!!!!!

--- Levy wrote:

> You are right. Vestibulitis is almost always at

> the

> bottom of the opening of the vagina. Usually

> anywhere

> from 3 o'clock to 9 o'clock (if you look at the

> vagina

> opening as a clock). I've had Vestibulitis for 12

> years and it's from 4 to 8 o'clock. I only have

> pain

> with intercourse, but most have pain with any kind

> of

> contact.

__________________________________________________

[Guest guest]

Hi! My pain seems to be very much like yours. I am very red in the

vestibulitis-area, but my pain is all over the vulva. I am on

amitryptylene 25 mgs, and it seems to help me!!! I hope it continues

to help, because it is wonderful to feel more normal again!

/Charlotte

> > You are right. Vestibulitis is almost always at

> > the

> > bottom of the opening of the vagina. Usually

> > anywhere

> > from 3 o'clock to 9 o'clock (if you look at the

> > vagina

> > opening as a clock). I've had Vestibulitis for 12

> > years and it's from 4 to 8 o'clock. I only have

> > pain

> > with intercourse, but most have pain with any kind

> > of

> > contact.

>

>

> __________________________________________________

>

[Guest guest]

Just to let everyone know I was diagnosed with vestibulitis, but I

also have rectal pain. Dr. said it is vestibulitis - I have

pain all the time but less pain on some days. So I'm not sure what

the distinction is then between vulvodynia and vvs. I do know that

Dr. said the vestibular glands affect both the rectum and

vagina.

Also, as far as redness, my doctor said if you have a yeast infection

- you will notice redness even if you don't have vv. That is one of

the symptoms of an infection.

I did hear that people with vulvodynia can even have pain that spreads

to their thighs.

> > > You are right. Vestibulitis is almost always at

> > > the

> > > bottom of the opening of the vagina. Usually

> > > anywhere

> > > from 3 o'clock to 9 o'clock (if you look at the

> > > vagina

> > > opening as a clock). I've had Vestibulitis for 12

> > > years and it's from 4 to 8 o'clock. I only have

> > > pain

> > > with intercourse, but most have pain with any kind

> > > of

> > > contact.

> >

> >

> > __________________________________________________

> >

[Guest guest]

Hey Amber~

It would sound to me, now I am not a doc, that you definitely have Vestibulits...sorry to say that

Ask me any other questions, hope you are feeling well!!!

~mindy~

[Guest guest]

Hi Mindy -

I have been on a little vacation for my son's college

graduation and had about 400 messages when I got

home!!!

Anyway, you said you saw Dr. and he says you

have vv and your symptoms are close to mine?

The personal part of this that is confusing for me is

that I can have sex without any more pain than I

usually have. And I keep reading that with

vestibulitis, there is pain with sex and tampon

insertion (which I also don't have problems with).

I have a lot of soreness after sex. And I have pain

all the time - mostly burning/irritation, but

sometimes just flat out pain. I also think I have a

yeast problem, because when I got back to Nebraska

(for son's graduation), the very first night I was

having terrible pain and some itching. I did the OTC

7-day cream and that really helped. The thing is, I

was just on Diflucan 6 weeks ago for yeast. So, I'm

wondering...did I ever get over that yeast infection

or was this a new one. I keep thinking all of this

may have started with yeast.

I probably need to call my gyn, because I also found a

tiny bump/lump along one side of my vagina. This is

freaking me out. I can't tell if it is outside the

vaginal tissue or inside.

Anyone else ever found one of these bumps????

Amber

--- MJLangfus@... wrote:

> Hey Amber~

>

> It would sound to me, now I am not a doc, that you

> definitely have

> Vestibulits...sorry to say that

>

> Ask me any other questions, hope you are feeling

> well!!!

>

> ~mindy~

>

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