Guest guest Posted October 22, 2010 Report Share Posted October 22, 2010 Hi Joan, Jim is progressing. I hate this disease!!!! He still eats well when I am with him, but he is on pureed now and honey thickened liquids. The PT at the nursing home, couldn't leave well enough alone and gave Jim and new wheelchair, which I DO NOT like. He has had it a week. I have called her to talk to her, but she is not in when I call and when she calls back I am not in, so I have not been able to reach the PT yet to do something about the situation. Jim has never had the Lewy Lean, because his wheelchairs have always supported his back to sit straight. The PT didn't think that Jim's legs were at a 90 degree angle and she didn't think the chair supported behind his legs where it should, so she ordered a new chair. Now Jim leans to the left off of the back of the chair, because he has no support for his back, as his other chairs have given him and with this chair when the foot rests are off, Jim's feet do not reach the floor and he will not stand up to toilet him, because he can not jump to the floor or push himself forward to reach the floor with his feet. Arrrrrrrrrrgh, I want his old chair back, before he starts leaning all the time and loses his weight bearing to stand up. His congestion is back and he has a UTI again and is on Keflex antibiotic. His nose, eyes run and he drools. He hasn't felt well lately. And the chair is making his back ache, because it does not support his back and he also leans forward now too, all within this last week. Things have changed fast! ________________________________ To: LBDcaregivers Sent: Thu, October 21, 2010 3:59:52 PM Subject: Re: / Imogene?/OT  Thanks for the update, Jan. HOw ia your Jim doing? > > I don't know if you have heard from Imogene yet, but I heard from her on >Monday. > > She said she has had the blues, but she is doing fine. It hits her every now >and > > then about Don's passing. Her son has reassured her it was Don's time. She is > grieving, but keeping strong. > I think she has taken some time off to reflect, she seems ok, just a > little melancholy. > Jan > > > > > ________________________________ > > To: LBDcaregivers > Sent: Mon, October 18, 2010 9:58:50 AM > Subject: Imogene?/OT > >  > Has anyone heard from Imogene recently? It's been to long since she was last > heard from. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 22, 2010 Report Share Posted October 22, 2010 Jan, sorry to hear about the chair. I went through somewhat the same with Mom and when I realized the discomfort she was in, as well as inability to move her legs because of a support behind them I searched the nh floor she was on until I found her old one in the PT office. PT wasn't there and staff had ignored Mom's pleas of back discomfort so I simply took the old chair back and replaced it with the new one with a note to the PT as to why. No repurcussions. I so hope you can get the old chair back or a more friendly one put together. Mom never could move her legs to reposition herself in her chair after that. You are constantly in my thoughts. ((hugs to you)) > > > > I don't know if you have heard from Imogene yet, but I heard from her on > >Monday. > > > > She said she has had the blues, but she is doing fine. It hits her every now > >and > > > > then about Don's passing. Her son has reassured her it was Don's time. She is > > grieving, but keeping strong. > > I think she has taken some time off to reflect, she seems ok, just a > > little melancholy. > > Jan > > > > > > > > > > ________________________________ > > From: stimtimminss <stim@> > > To: LBDcaregivers > > Sent: Mon, October 18, 2010 9:58:50 AM > > Subject: Imogene?/OT > > > >  > > Has anyone heard from Imogene recently? It's been to long since she was last > > heard from. > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2010 Report Share Posted November 3, 2010 Hi Jan, Sorry, I have not checked messages in a while...the reason is not important to this group. I am sorry about the NH giving Jim a different wheelchair. Don't they still have his old one? I am also wondering if they gave him some different meds or soemthing that started the Lewy Lean??? I will read the rest of the posts and perhaps you will have posted more. God bless you and Jim! > > > > I don't know if you have heard from Imogene yet, but I heard from her on > >Monday. > > > > She said she has had the blues, but she is doing fine. It hits her every now > >and > > > > then about Don's passing. Her son has reassured her it was Don's time. She is > > grieving, but keeping strong. > > I think she has taken some time off to reflect, she seems ok, just a > > little melancholy. > > Jan > > > > > > > > > > ________________________________ > > From: stimtimminss <stim@> > > To: LBDcaregivers > > Sent: Mon, October 18, 2010 9:58:50 AM > > Subject: Imogene?/OT > > > >  > > Has anyone heard from Imogene recently? It's been to long since she was last > > heard from. > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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