Re: Feedback on getting motility going?

[Guest guest]

Dorothy....Constipation is one of the problems associated with lots of diseases

and conditions of aging. We are on the Mirilax every day routine since Del had

a visit to our local ER for an impacted bowel.

In addition he takes 800 mg of ducosate sodium every day, he eats yogurt with an

active culture and he takes 1/4 cup of a senna fruit paste that I make at home.

Just the senna fruit paste would generally act like dynamite for anyone else,

but it takes all of these to make him 'go'. And he has the inability to push

and an inability to feel the need to go without all this. With it, he has a BM

almost every day.

Good luck. Severe constipation becomes a medical emergency, but I am sure you

know that.

Nan...husband Del dx this year...but has had it since 2007 at least.

>

> My MIL is moderate/advanced and just recently her bowel is not moving stuff

> out until she's in a lot of discomfort etc. I won't go into more detail.

> At Doc's direction we use Miralax every day which helped for about a month

> but now though things are soft they still aren't moving. Her doc suggests

> using duculax suppository to get things going - it irritates locally and

> that causes a reflex action to start up.

>

>

>

> Before I go there I'm wondering if anyone has other possible suggestions I

> could run by her doc? Or if anyone has tried this duculax and how does it

> work? If this is not appropriate for this list, please accept my apology -

> I am just trying to find how to manage these things and it seems like every

> week it's something new.

>

>

>

> My husband and I and two caregivers are managing her daily care here in our

> home.

>

>

>

> Thanks so very much

>

>

>

> Dorothy

>

>

>

>

[Guest guest]

Hi Dorothy

My son is missing half of his spine and he has lots of issues in this area. If

you try a senna product, it causes the bowel to move things out. It can

sometimes cause cramping, although my son never complains about that. He too

could not use miralax. I've been told that you can use these two products

together, but he doesn't need the miralax to soften since the senna does that

for him. Enemas are also a way to help to clean out the lower bowel. You can

use a Fleet enema which is just saline, and shouldn't irritate anything too

badly.

Good luck.

Kathy

Feedback on getting motility going?

My MIL is moderate/advanced and just recently her bowel is not moving stuff

out until she's in a lot of discomfort etc. I won't go into more detail.

At Doc's direction we use Miralax every day which helped for about a month

but now though things are soft they still aren't moving. Her doc suggests

using duculax suppository to get things going - it irritates locally and

that causes a reflex action to start up.

Before I go there I'm wondering if anyone has other possible suggestions I

could run by her doc? Or if anyone has tried this duculax and how does it

work? If this is not appropriate for this list, please accept my apology -

I am just trying to find how to manage these things and it seems like every

week it's something new.

My husband and I and two caregivers are managing her daily care here in our

home.

Thanks so very much

Dorothy

[Guest guest]

dorothy,

 

this is appropreate for the list as it is a problem you are enocontering them

 

i have severe bowel issues due to scar tissue from numberous abdominal surgeris.

 

duclolax helps me but i have to take 4 tablets now, seems my body got used to

it, due to having to use it prioer to suregeris to empy my bowels. the down side

and is when it finally works, watch it i have to go NOW. get out of my way adn

have had an accident while trying to rush to the bathroom. 

 

glycerin supposotiors  are good and less irrateing to teh anal area, for

helping to motivafe the bowels. trick thou to expcdeite melting,  before

orpening the pack ag up, cupt it in your henads for sevfeal minutes to start to

soften it up,  makes it go in easier and less pain ful . 

 

miralax to me helps but when i continue to use it, it is not as effective so i

have to stop using it for seveal weeks, and use it for a few weeks then stop it,

etc.

 

tricks that help me,  plum juice  called plum start,  a nice way to help

myself.  also natuarl apple juice the one that isnt clear , this one has pulp

in it adn that helps keep the bowles  moving.  also, using olive oil for

cooking is a great way to keep the bowles moving.  just a few things to thnki

about it.  hugs. sharon

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Subject: Re: Feedback on getting motility going?

To: LBDcaregivers

Date: Thursday, October 21, 2010, 6:12 PM

 

Hi Dorothy

My son is missing half of his spine and he has lots of issues in this area. If

you try a senna product, it causes the bowel to move things out. It can

sometimes cause cramping, although my son never complains about that. He too

could not use miralax. I've been told that you can use these two products

together, but he doesn't need the miralax to soften since the senna does that

for him. Enemas are also a way to help to clean out the lower bowel. You can use

a Fleet enema which is just saline, and shouldn't irritate anything too badly.

Good luck.

Kathy

Feedback on getting motility going?

My MIL is moderate/advanced and just recently her bowel is not moving stuff

out until she's in a lot of discomfort etc. I won't go into more detail.

At Doc's direction we use Miralax every day which helped for about a month

but now though things are soft they still aren't moving. Her doc suggests

using duculax suppository to get things going - it irritates locally and

that causes a reflex action to start up.

Before I go there I'm wondering if anyone has other possible suggestions I

could run by her doc? Or if anyone has tried this duculax and how does it

work? If this is not appropriate for this list, please accept my apology -

I am just trying to find how to manage these things and it seems like every

week it's something new.

My husband and I and two caregivers are managing her daily care here in our

home.

Thanks so very much

Dorothy

[Guest guest]

Dorothy,

Miralax is the miracle drug of choice for this problem for my mom. The dosage

can easily be adjusted up or down each day as needed, and stirring it into juice

is so simple. No nasty taste (like Milk of Magnesia) and no crushing senna

tablets (Boy, are those things hard to crush?!?). The Miralax usually keeps her

going every day or every other day.

If, as happens every month or so, Mom hasn't had " success " by day 4, then she

gets a Dulcolax suppository and that usually works in a few hours. Simple.

Hope you find a routine that works for your mil. And please feel free to

continue posting all the questions about LBD and its many manifestations, that

you want here. We're all here learning and struggling together.

Sheila in IN

Daughter of Louise, age 88, dx LBD 7/2007

Seroquel 9AM- 37.5 mg, 3PM- 62.5 mg, 9PM -100 mg.

( & Miralax every day too, of course)

>

> My MIL is moderate/advanced and just recently her bowel is not moving stuff

> out until she's in a lot of discomfort etc. I won't go into more detail.

> At Doc's direction we use Miralax every day which helped for about a month

> but now though things are soft they still aren't moving. Her doc suggests

> using duculax suppository to get things going - it irritates locally and

> that causes a reflex action to start up.

>

>

>

> Before I go there I'm wondering if anyone has other possible suggestions I

> could run by her doc? Or if anyone has tried this duculax and how does it

> work? If this is not appropriate for this list, please accept my apology -

> I am just trying to find how to manage these things and it seems like every

> week it's something new.

>

>

>

> My husband and I and two caregivers are managing her daily care here in our

> home.

>

>

>

> Thanks so very much

>

>

>

> Dorothy

>

>

>

>

[Guest guest]

Hi Sheila,

Thank you I appreciate hearing this. I have been using the miralax for her

each day which worked great for a few months but now it seems the little

muscles must not be working well and even though it's all soft it's not

moving out but accumulating. Her doctor suggested the ducolax suppository

but because it could be irritating (and she is so sensitive) I was hesitant.

It helps to know someone else is using this with good results. I'll go

ahead and give it a try with her. I have tried milk of magnesia which was

almost traumatic so don't want to go there again. Senna tablets were

painful and I felt like I needed a tranquilizer by the time that ordeal was

through. Another thing I've been trying are some of the physical therapy

exercises she has - especially leg lifts and toe touches. Those work well

when she's actively trying to have some luck.

Dorothy

From: LBDcaregivers [mailto:LBDcaregivers ]

On Behalf Of gfam77

Sent: Friday, October 22, 2010 10:28 AM

To: LBDcaregivers

Subject: Re: Feedback on getting motility going?

Dorothy,

Miralax is the miracle drug of choice for this problem for my mom. The

dosage can easily be adjusted up or down each day as needed, and stirring it

into juice is so simple. No nasty taste (like Milk of Magnesia) and no

crushing senna tablets (Boy, are those things hard to crush?!?). The Miralax

usually keeps her going every day or every other day.

If, as happens every month or so, Mom hasn't had " success " by day 4, then

she gets a Dulcolax suppository and that usually works in a few hours.

Simple.

Hope you find a routine that works for your mil. And please feel free to

continue posting all the questions about LBD and its many manifestations,

that you want here. We're all here learning and struggling together.

Sheila in IN

Daughter of Louise, age 88, dx LBD 7/2007

Seroquel 9AM- 37.5 mg, 3PM- 62.5 mg, 9PM -100 mg.

( & Miralax every day too, of course)

>

> My MIL is moderate/advanced and just recently her bowel is not moving

stuff

> out until she's in a lot of discomfort etc. I won't go into more detail.

> At Doc's direction we use Miralax every day which helped for about a month

> but now though things are soft they still aren't moving. Her doc suggests

> using duculax suppository to get things going - it irritates locally and

> that causes a reflex action to start up.

[Guest guest]

Hi Dorothy,

Miralax stopped working for my Mom as the disease progressed. What seems to

work for my Mom is 3 ExLax tablets every day at 4 or 4:30, and we cut up grapes

for her, too. Every now and then we use a glycerin suppository (I think by

Fleet). She goes pretty much every day....

Hope this helps.

Helene in NY

>

> My MIL is moderate/advanced and just recently her bowel is not moving stuff

> out until she's in a lot of discomfort etc. I won't go into more detail.

> At Doc's direction we use Miralax every day which helped for about a month

> but now though things are soft they still aren't moving. Her doc suggests

> using duculax suppository to get things going - it irritates locally and

> that causes a reflex action to start up.

>

>

>

> Before I go there I'm wondering if anyone has other possible suggestions I

> could run by her doc? Or if anyone has tried this duculax and how does it

> work? If this is not appropriate for this list, please accept my apology -

> I am just trying to find how to manage these things and it seems like every

> week it's something new.

>

>

>

> My husband and I and two caregivers are managing her daily care here in our

> home.

>

>

>

> Thanks so very much

>

>

>

> Dorothy

>

>

>

>

[Guest guest]

Be careful with the grapes...the skin can lodge against the airway...and I don't

know if that would be a problem with your mom at this point.

> >

> > My MIL is moderate/advanced and just recently her bowel is not moving stuff

> > out until she's in a lot of discomfort etc. I won't go into more detail.

> > At Doc's direction we use Miralax every day which helped for about a month

> > but now though things are soft they still aren't moving. Her doc suggests

> > using duculax suppository to get things going - it irritates locally and

> > that causes a reflex action to start up.

> >

> >

> >

> > Before I go there I'm wondering if anyone has other possible suggestions I

> > could run by her doc? Or if anyone has tried this duculax and how does it

> > work? If this is not appropriate for this list, please accept my apology -

> > I am just trying to find how to manage these things and it seems like every

> > week it's something new.

> >

> >

> >

> > My husband and I and two caregivers are managing her daily care here in our

> > home.

> >

> >

> >

> > Thanks so very much

> >

> >

> >

> > Dorothy

> >

> >

> >

> >