Guest guest Posted November 6, 2000 Report Share Posted November 6, 2000 I went to a vulvodynia convention over the weekend. St. Amand, s and a biofeedback expert spoke. Many women are doing very well with the NAG and HTO. HTO is a fatty acid which he feels women are deficient in, associated with the break down of connective tissue. Funny because I have had psoriasis since a kid, which is a fatty acid deficiency. Meaning my body is not tolerating it effectively. He does like people to start with the calcium first, then add the NAG and then the HTO. But some do all three right away. Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2000 Report Share Posted November 6, 2000 where was the convention? I have not gotten any issues of the VPF or NVA literature for months and months and I am members of each. do you know who often they publish? >>> 11/06 12:37 PM >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2000 Report Share Posted November 6, 2000 Hi Candace Here. I got tested in July and was wondering about the HTO, but have rec'd no info on it. When were you tested? When did you recieve this info? I am considering doing this as well. --- Wardlow wrote: > I got a packet from Dr. s asking if I wanted > to join the CTS > Study or Connective Tissue Stabilization Study. > Since I had my > oxaltes tested in the last 4 mos., I was put on his > mailing list for > this. He wants me to take NAG and HTO and give > him feed back by > responding to his progress reports questions. > It costs $60.00 to join the program. . > He offers the HTO at 60 caps for $45.00 and 120 > 500 mg NAG for > $28.00 a bottle. Is this a good price for NAG? > I think he has > the only game in town for buying HTO. > > Should get 3 HTO bottles and 3 NAG bottles plus the > $60.00 to join. > Should I do this? > > Again, today, I wore a tampon and my " flare-up " from > the week end is > subsiding??? Do I have cooties or a bad pH. > > They say to douche with baking soda for pH. Does > anyone know the > dose Can you buy a solution? Should you do > it at all. > > YOu should not do it if taking oral or injected > cortisone/steroids > (tipical is OK). I would have to quit when in > hospital for hip... I > imagine I will get a bit of steroids for > anti-swelling just after my > surgery for hip, but it should be just for a few > days if at all. > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2000 Report Share Posted November 6, 2000 I was tested several months ago, I don't remember exactly and damned if I haven't lost his report . I cannot believe I did that. I am very organized. All VV info in 3 ring binders, etc., but can't find his report. Anyway, I got the info on HTO this week end. ' Were your oxaltes high? Are you on the diet and how are you doing. It really is a bitch to stay on. I would have to come up with $60.00 plus 150 for the HTO and I have the steroid/ip surgery problem coming up, so if I do this, it will probably be after the surgery. Do you " believe " that the oxalate diet helps? I think I would do better if I really believed I was on the right track. >>> Candace Craw-Goldman 11/06 1:27 PM >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2000 Report Share Posted November 6, 2000 I had high oxalates. I actually talked to Dr. s briefly on the phone ( because I wrote him a letter asking about my high glabrata yeast in my stool sample (pooh-poohed) and related a scary bleeding episode I had with my period in August, (no connection, it appears.)) He called back because he thought I might have a bleeding disorder which would be affected by calcium citrate. My oxalate tests were high, but when questioned, he said of abnormal results, mine were " middle of the road " I had up to 18 mg I think, with the normal being 4. I have tried to be pretty good about the diet. I eat lettuce now, but did not in the beginning. I can say, that, since being on the diet, I have not had the bad flares that I remember over the spring and summer. Not yet anyway. I am not pain free. I have improved somewhat, I go to PT every week, and it could be that. I have been dx'd with pudendal neuralgia, although, my PT is very happy with my mechanical progress, I remain in pain every day. I have been wearing underwear now for about a month. I could not do this all summer, so I MUST be a little better, but its funny, I am still just as miserable with the condition, even if it seems a little better in the underwear respect. I would not eat chocolate or drink tea for anything because I am too afraid, but I eat the lettuce and ate popcorn at the movies on Saturday. I don't know what to think. He says its 6-12 months for the AVERAGE woman to see results. I have only done the diet/citrate 3 months, and have improvement, if minimal. who is to say if it is PT, diet or would have done this anyway? As I read the data, I have a 60% chance of being helped, so I continue down this road. Did you ever send in a progress report? I lost THAT sheet of paper myself. perhaps that is why I did not reiceive the information. I am adding hypnosis and going to a chiropractor this wednesday. Marching forward..... Candace --- Wardlow wrote: > I was tested several mo nths ago, I don't remember > exactly and damned > if I haven't lost his report . I cannot believe I > did that. I am > very organized. All VV info in 3 ring binders, > etc., but can't find > his report. > Anyway, I got the info on HTO this week end. ' > Were your oxaltes high? Are you on the diet and > how are you doing. > It really is a bitch to stay on. > I would have to come up with $60.00 plus 150 for > the HTO and I have > the steroid/ip surgery problem coming up, so if I do > this, it will > probably be after the surgery. > Do you " believe " that the oxalate diet helps? I > think I would do > better if I really believed I was on the right > track. > > > >>> Candace Craw-Goldman 11/06 > 1:27 PM >>> > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2000 Report Share Posted November 7, 2000 Well, he wants you to experiment with his products and he wants you to pay for doing so, in addition to paying for the products. Seems a little strange to me. I would not enter into any kind of experiment without knowing precisely what I was taking. A name such as HTO means nothing unless he clarifies what it is, so you can look it up. Calling it a fatty acid without naming the fatty acid seems a little peculiar. Furthermore if it is only available from him perhaps he has given it a name which is unidenfiable. I would definitely pass on this without further clarification. The only fatty acid which might be what he calls HTO could be heptadeconoic acid (also spelled heptadecanoic acid) also known as margaric acid. See Ora http://www.ncc.umn.edu/nutrient.htm On Mon, 06 Nov 2000 11:50:41 -0600, Wardlow wrote: >I got a packet from Dr. s asking if I wanted to join the CTS >Study or Connective Tissue Stabilization Study. Since I had my >oxaltes tested in the last 4 mos., I was put on his mailing list for >this. He wants me to take NAG and HTO and give him feed back by >responding to his progress reports questions. >It costs $60.00 to join the program. . >He offers the HTO at 60 caps for $45.00 and 120 500 mg NAG for >$28.00 a bottle. Is this a good price for NAG? I think he has >the only game in town for buying HTO. > >Should get 3 HTO bottles and 3 NAG bottles plus the $60.00 to join. >Should I do this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2000 Report Share Posted November 7, 2000 slows the degradation of connective tissue and NAG rebuilds connective tissue, per Dr. s >>> 11/06 4:04 PM >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2000 Report Share Posted November 7, 2000 I think I sent in a progress report---can't remember. Am so distracted. I think maybe I did not. Do you abstain from coffee, chocolate, nuts, spinach, beans, etc. Or do you really make a project out of it and do everything. I have bought acid neutral coffee and some tea that is supposed to be OK for people with IC and VV. Had to order it. >>> Candace Craw-Goldman 11/06 5:11 PM >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2000 Report Share Posted November 7, 2000 HTO is hexadecyl tetradecenoyl octadecanoate it slows the action of hyaluronidase on hyaluronic acid. Excessive hyaluronic acid has a negative impact on skin quality per s >>> 11/06 6:55 PM >>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2000 Report Share Posted November 7, 2000 On Tue, 07 Nov 2000 08:27:07 -0600, Wardlow wrote: >HTO is hexadecyl tetradecenoyl octadecanoate >it slows the action of hyaluronidase on hyaluronic acid. Excessive >hyaluronic acid has a negative impact on skin quality per s > According to the article I copied below, Glucosamine apparently increases the amount of hyaluronic acid in the synovial fluid which appears to be an advantage. Ora http://www.ncbi.nlm.nih.gov:80/entrez/query.fcgi?CMD=Text & DB=PubMed 1: Med Hypotheses 1998 Jun;50(6):507-10 Enhanced synovial production of hyaluronic acid may explain rapid clinical response to high-dose glucosamine in osteoarthritis. McCarty MF Nutrition 21, San Diego, CA 92109, USA. Anecdotal reports of rapid symptomatic response to high-dose glucosamine in osteoarthritis are not credibly explained by the traditional view that glucosamine promotes synthesis of cartilage proteoglycans. An alternative or additional possibility is that glucosamine stimulates synovial production of hyaluronic acid (HA), which is primarily responsible for the lubricating and shock-absorbing properties of synovial fluid. Many clinical and veterinary studies have shown that intra-articular injections of high-molecular-weight HAproduce rapid pain relief and improved mobility in osteoarthritis. HA has anti-inflammatory and analgesic properties, and promotes anabolic behavior inchondrocytes. The concentration and molecular weight of synovial fluid HA aredecreased in osteoarthritis; by reversing this abnormality, high-dose glucosamine may provide rapid symptomatic benefit, and in the longer term aid the repair of damaged cartilage. Publication Types:Review Review, tutorial PMID: 9710325, UI: 98374099 Quote Link to comment Share on other sites More sharing options...
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