Hi, new here

[Guest guest]

Hi,

I joined this forum a week or so ago and have read many, many old posts

(and current posts :-)) in a few days. I am so touched by the caring and

concern on this site. You are truly amazing people and quite obviously

wonderful, loving , caring parents to your children. Several stories brought

tears to my eyes and I truly hope that in the end all these wonderful little

people have long, healthy, happy lives.

I will post questions to the general forum but I was wondering if I had a

specific question for a particular person if it is acceptable to e-mail them

directly?

Thanks,

Mark

[Guest guest]

Hi Mark,

Welcome to the group! I'm glad your finding answers here and the support you need- it does help talking with other parents about our similar situations and how we all go about treatment- I know it helped us immensely. I hope some Maine members or nearby will chime in for you on treatment options in your area (like on Cape Cod has done). Good luck in your search and keep us posted on your journey- we'd love to hear more about your little one.

NIcholas'mom

[Guest guest]

Hi Cindi,

Welcome to the group! Know that you are headed in the right direction,

searching for answers well on your own. The best way to start, for

knowledge is power. Your son is most fortunate to have a mother

on a role looking to help him. You are your child's best advocate!

In addition to the links you found, I also recommend The Late Talker

Book and to search the group's archives. There is a wealth of information

from the group. Type key words in the search box for the topic you want to

search. /?yguid=59502113

Your children are lovely and the horses at your website!

Mustafa

Mom to Khalid 16.10, Jadd 9.3, Danya 10.11

> Hello everyone. I'm Cindi. I'm new to the discussion group but

I've

> read the website and all the linked sites and everything else I

could

> find several times now! My son does not yet have an

official

> diagnosis; in fact his speech eval is on Monday the 15th. He

turns

> two this month on the 27th. I am pretty sure he's got both verbal

> and oral apraxia. I've suspected it since he was about 6 months

> old.

>

> As for the oral stuff, he just wasn't able to do with his mouth

the

> things that babies are usually able to do. He did smile pretty

much

> on schedule but it was a weird smile - hard to describe what I

mean

> by that. He just learned to make a kissing sound this month.

This

> month he also sort of starting making a licking motion when trying

to

> copy how the dogs kiss, but his tongue doesn't come out of his

mouth

> when he does it. He can't really do much with his tongue and he

can

> do less with it when he's really trying as opposed to when he's

busy

> playing and not thinking about it. He does still drool a lot, and

he

> bites straws and jams them deep into his mouth, and overstuffs his

> mouth quite a bit when eating, and keeps his mouth open pretty

much

> all the time, and grinds his teeth during the day.

>

> As for speech development, he did coo, but he did not babble on

> schedule and even now only sometimes babbles, mostly b's and

> sometimes m's. He mostly makes vowel sounds only and also has a

lot

> of grunts and screams. He is finally starting to get really

> frustrated with the problems he faces trying to tell us

something.

> He has very high receptive language ability - he's been able to

> follow three step commands since he was about 13 months old, and

he

> understands so much about tool usage; he's always bringing us a

tool

> when he sees that we might need one, for example I was installing

a

> new printer and I said to myself " I wish I could get this cord to

> stay here for a minute " -- I was trying to hand it to myself and

pass

> it thru a hole in my desk -- and he watched what I was doing and

then

> went and found me the tape and wanted to tape the middle of the

cord

> to the wall so I could move to the other side of the desk and

> retrieve it without it falling to the floor... that sort of thing.

>

> He did have some birth trauma - I'm a diabetic, and he wasn't

really

> monitored very well right after my birth even though we all knew

> (supposedly) that a baby born to a diabetic mother can have a big

> glucose crash right after birth since his pancreas is still

pumping

> out enough insulin to deal with the mother's high glucose in the

> blood. His blood glucose was 0 before he was treated, and he had

> several crashes over the next few days. I also found out after

his

> birth that his father was on drugs at the time of conception and

had

> been using for a while - methamphetamine. Dunno if any of that is

> related but it sure might be.

>

> I also have a 12 year old daughter named . She's got some

> issues as well but it's been very hard to pin down what it might

be.

> The closest thing I've come across is semantic-pragmatic disorder;

I

> have a link somewhere but basically she's hyper-verbal but doesn't

> always understand things correctly (like as old as 9 she would

still

> ask if Leonardo DiCaprio really had to die to make the movie

Titanic)

> and doesn't converse naturally - hard to explain but it's like she

> assumes her conversation partner has background knowledge about

her

> topic that he couldn't possibly have. It's really weird how when

she

> was the age Danny is now, she was talking in 3 to 5 word

sentences,

> and he has yet to say one word, yet they both have problems.

>

> Well, I just wanted to say hi and introduce myself. I'm off to

find

> out about early intervention programs in my state! Thanks. I've

got

> pics of both kids on my website: http://www.allisonacres.com if

> anybody likes to look at that sort of thing! :-) take care all,

> cindi