Re: Jenna's great 18 month check up/kim/angie

[Guest guest]

Angie, I bet it made your weekend. Enjoy it. Jess is doing ok. She

has for whatever reason, gotten bored with taking her helmet off,

thank goodness. I know she is making progress but it is so difficult

for me to tell sometimes, even when I look at the pics and the head

molds. It gets so discouraging. Originally, with 2nd band, we

thought we would be done at end of July (3 mos). But now, since we

have the recast band (band 3), she could wear it until the end of

Sept which just seems so long to me. WE are going to take more pics

after 8 weeks to see how she is doing and decide whether to go the

extra mile or not. If it works, great and I am all for it. It has

just been along time. Anyhow, sorry to vent. I like to hear news

like yours because it helps me see light at end of tunnel. Have a

wonderful weekend.

Kim (mom to Jess, 15 mos, still banded) (by the way, turns 40 at end

of mo)

> > I just had to share about Jenna's 18 month checkup this

morning.

> First i will give a quick background. Jenna's plagio was present

at

> birth. It worsened as she got older and slept on her back. Her

Dr.

> didn't diagnose it until 6 months. I don't know if he was waiting

to

> see if it rounded or not. Anyway then it took until almost 9

months

> to get into the specialist. At 9 months she was STARbanded and

> graduated 12 weeks later at 1 year. They estimated 80%

correction.

> She was moderate to severe.

> >

> > He did all the checkup stuff and then looked closely at and felt

> her head. He went on and on about Jenna's improvement. He said

she

> has rounded more since her 15 mth. checkup! Boy that made my

day.

> He said she may still get more improvement. Which i know that

isn't

> a guarantee. If she doesn't, that is okay. I was thrilled with

her

> graduation results and i am thrilled with the additional rounding

> post graduation! He said he was so glad we decided to band her.

> >

> > After all of that said i pulled out the AAP release and asked if

he

> had read it yet. He said he heard that was being released but had

> not read it. He asked if he could keep the copy to read. I said

yes

> and got brave and added this. I said i believe this or similar

info

> needs to be handed out to new families at their first visit. Then

> they know how to try to prevent and what to watch for. I also

added

> that in looking back at pictures, Jenna was born with her plagio.

> Had i known then what i know now things probably wouldn't have

> worsened as she continued sleeping in the same position until

> diagnosed at 6 months. He just nodded and said he had only 2

other

> patients with plagio before Jenna. He seemed to agree about

handing

> out info. I will bring it up again at Jenna's 2 year appointment.

> >

> > Sorry for the novel. I wanted to share Jenna's great

appointment.

> I hope the office will start handing out the info. There are like

6

> doctors in the practice.

> >

> > Angie and Jenna(STAR grad)

>

>

>