Guest guest Posted August 6, 2000 Report Share Posted August 6, 2000 Candace, I am way behind in reading my mail but what is pedendal neuralgia? Just wondering. O Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2000 Report Share Posted August 6, 2000 Candace- diagnosed me with pudendal neuralgia too. However, my situation is different. She believes that my tilted pelvis is causing an entrapped nerve. She seemed fairly hopeful that PT would help me, and then when I saw , she said that I have a 98% chance of getting 100% better. She said I was a " classic " case of a biomechanical problem causing vulvodynia. I just started PT here in St. Louis. However, this PT focuses on biofeedback. She doesn't do the manual manipulations that did. I'm hopeful that this will work, but I have a feeling that I'm going to need to get my pelvis in position if I want to get out of pain. Biofeedback won't do that. Christy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2000 Report Share Posted August 6, 2000 Hi , Just finding out about it myself. Its pudendal, by the way. Its a nerve in the pelvic floor region, supposedly one cause of vulvar pain when it is damaged or irritated or in some way not behaving correctly. said that if it is just " stuck " and we can release it, she hopes to be able to reduce/elimnate my pain, but she cautions that if it is " damaged " then is unlikely any PT would correct it. She said it is the toughest of all to deal with in the world of vulvar pain/ nerve conditions. This all " fits " for me in 2 ways. First, this nerve is connected to a nerve in my lower abdomen which I believe has been the source of my pelvic pain for 17 months. Second, since the pelvic pain started directly after my cervical surgery, I think the lower part of the nerve could have been damaged then, with the vulvar pain manifesting 10 months later. In effect, I'm wondering if while I was sedated the doctor, whom I really like and trust, by the way, may have " speculumed " me into this condition. Who knows? Candace --- ljbod@... wrote: > Candace, I am way behind in reading my mail but what > is pedendal neuralgia? > Just wondering. O > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2000 Report Share Posted August 6, 2000 Candace- I only saw once and twice-all in one weekend. I flew out to Philidelphia for the weekend, specifically to see them. My aunt lives out there so it was also an excuse to see her. The worst spot that hurt on me was my piriformis. That is a little muscle in the butt. She pushed on it externally, and it killed. One side hurt worse than the other side, but they both were tender. She said that the pudendal nerve runs through this muscle. She explained what may have caused this entrappment. First, I have scoliosis in my lower back which caused my pelvis to tilt. Then, I developed IBS about 7 years ago which causing bad cramping, which further pulls my pelvis upwards. Also, four years ago, I quit competitive swimming after 10 years of intense training. Swimming doesn't work the piriformis at all, but rather develops all hte muscles around it. This also could have contributed to the problem. Interesting though, that when I started PT last week, the new PT didn't find any of my tender spots. doesn't do any biofeedback. I rally hope that this biofeeback works. Are you going to see regularily??? Christy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2000 Report Share Posted August 6, 2000 --- cmloebach@... wrote: > Candace- > diagnosed me with pudendal neuralgia too. > However, my situation is > different. She believes that my tilted pelvis is > causing an entrapped nerve. > She seemed fairly hopeful that PT would help me, > and then when I saw , > she said that I have a 98% chance of getting 100% > better. She said I was a > " classic " case of a biomechanical problem causing > vulvodynia. Hi Christy, Thanks for the details. How many times did you see before moving? I wonder why was so cautious about being optomistic, still do, can't wait to see what says. Did the PT hurt? When pressed on " the " nerve, it hurt, but not screamingly, and I just don't get how my whole vulva hurts because of this one odd left-sided nerve that doesn't on its " pressing site " really cause terrible pain. I was so distracted by my abnormal bleeding and her questions, I did not get many of my own questions in at all. She said my type was quite rare, or did I mention that? don't know how it all relates. If anyone out there does I'd love to hear about it. I agree about the biofeedback, but hope you find an answer soon. Candace __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2000 Report Share Posted August 6, 2000 If you injure a part of your body, the surrounding areas frequently become very painful. For example I dropped something on my foot and the whole foot swelled up. Also it could be referred pain. Ora On Sun, 06 Aug 2000 10:21:23 -0700 (PDT), Candace Craw-Goldman wrote: > When pressed on " the " nerve, it >hurt, but not screamingly, and I just don't get how my >whole vulva hurts because of this one odd left-sided >nerve that doesn't on its " pressing site " really cause >terrible pain. >Candace > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 6, 2000 Report Share Posted August 6, 2000 Christy and Ora, Thanks for your input. Ora, I just have a hard time " getting " referred pain, although I understand it intellectually. My left ear has been painful for months(interestingly enough, that pain came on with the vulvar pain...) An EMT found not a thing wrong with my ear, the best he could say was TMJ and assumed I have headaches, which I do not. And my jaw does not hurt. I have a hard time beleiving THAT referred pain diagnosis. Especially since the best he could do was say " advil and soft food " .! Christy, I'm not surprised by the very painful point she found, but that is my question, my " point " did not kill, just hurt. Cool about the swimming, are you still physically active? I still ride a little, but have not exercised for months, very unlike me. I have my very first appt with August 15, so I have no idea how often I will be going yet. wrote a script out for 16 sessions, but did not specify the frequency. Candace __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 7, 2000 Report Share Posted August 7, 2000 Thanks for the explanation Candace. I hope PT WILL help correct your problem. I am due to go back to my PT tomorrow and I only began yesterday trying to " relax " and " release " my pelvic floor muscles. Something about sitting or laying and " relaxing " is just SO hard to do for me but I will try. Take care. O Quote Link to comment Share on other sites More sharing options...
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