Re: Just changed to DAILY DIGEST

[Guest guest]

Dear ,

I wish I could help you, but I have no information about that. Good luck in

your efforts. You sound like you are very organized about the whole thing!

Helene in NY

>

> Hi All, I have been away for a month or so, but now am in need of support

again, so I have changed back to Daily Digest.

>

> Please help.

>

> My mother, as I posted a few months ago, has been in a nursing home a little

over 2 months now, permanently.

>

> She has good and bad days. Right now she has a UTI so she's really having

some bad hallucinations.

>

> She always talks to her imaginary friends still and still has " boyfriends or

husband " , or divorcing and then will have

> a new one, that is still the same.

>

> She still knows me very well, and is happy, and content, and everyone loves

her at her N.H.

>

> I do not like this N.H., as it is so so old and stinks so bad. She has

medicaid and so I have got her on about 4 waiting lists to move her. She has

told everyone that her daughter, me, is moving her to another place that will

have more for her to do. This place, has no activities hardly at all, and 99%

of the people living here have severe mental problems or alzheimers/dementia,

some even hit others. Mom just lies in bed 24/7, except she does wheel herself

in her wheelchair to the dining room for her 3 meals. The lady at her dining

table is extremely MEAN!! Its like there is no where else to move my Mom. She

keeps her mouth shut and this lady still tells the others off at the table. All

the nurses/aides, everyone knows about this lady and mean she is.

>

> My Mom calls me on the phone when she is having a " bad hallucination " . She's

done this about 3 times total.

>

> She is on antibiotics now for her UTI, so I think that is why her mind has

lead her off real bad right now and its upsetting her badly.

>

> Her poor roommate never ever leaves her room or bed she's like 50 with mental

problems is what others have told me. She mostly stares out into space. I

have seen this ladies sister once before. I go up and see my Mom mostly every

single day. So this ladies sister told me the other day this: " My sister tells

me that your Mom talks on the phone. " And she had a funny look her on her like

her sister didn't like the idea my mother was next to her in the bed over there

talking to her imaginary friends on an imaginary phone. So I told her, well, my

Mom like most of the people in here has dementia and she hallucinates and she

can't help it. She didn't say anything. So I then asked her what her sister

was in her for. She wouldn't say much, then said, " oh, nothing is wrong with

her " . I then said, " to live in a nursing home, something has to be wrong with

her. Then she said, " she can't take care of herself " . I left it at that, I

didn't want to confront her and say, " well, your poor sister stares out into

space all day and night, never changes out of her jogging suit and sleeps in her

tennis shoes. " Its all so sad.

>

> Oh yeah, Mom was in a WANDER GUARD n.h., and had a bracelet on but 2 weeks

ago, since she hasn't tried to wander or go outside at all, they took it off

her.

>

> Sorry this is in such detail. Wanted to let you know some background

information on how my Mom has been doing.

>

> I did take my Mom out to eat dinner last night with our family for a birthday,

and she enjoyed getting out so much, and did great! You'd never know anything

was wrong with her.

>

> Here is the thing I'm wanting some input on please if anyone might could give

me your opinion, thank you.

>

> 1. I have talked to 2 nursing homes that are very very nice, and one she has

been at 5 times before for rehab in the past 5 yrs. she loved it there and they

loved her. So I called the admissions lady I know, and she knows Mom went

downhill this past year, and was at a wander guard n.h., but I told her today

that Mom has been doing really good and not wandering and has her bracelet off

now, if she had a medicaid bed opening? Or a waiting list? She remembered me

and Mom and said she'd have to find out and call me back, she never called me

back. I am thinking if she talks it over with the others in the home, they

might not want Mom if they think she could in the future be a flight risk,

wander off. That would upset me as I really want her back in this nice place

Mom loved. And all the times Mom was there, they have alzheimers patients in

there.

>

> 2. I went to an ASSISTED LIVING place yesterday that has MEMORY CARE unit.

Well, I was so excited about moving her there, but today, it made me think

TWICE!!! Does anyone know if assisted living places have 24 hour nursing care

like a nursing home? My Mom has health issues, even though she dresses herself

daily and is a little bit independent. She needs to make sure a nurse can be

there to check her BP, or anything else, like the UTI!!!

>

> 3. There is one more nursing home that she is on a waiting list for but it

may be a year and its a wander guard place its brand new but no medicaid bed

openings. So that would be bad.

>

> 4. Do you know if the nursing homes would want an LBD patient if they

hallucinate all the time? I guess they would have to have her a roommate that

either has bad alzheimers and such, because Mom talks to herself at all times

and a normal person might freak out, and complain. All I don't need is for

another patient, her roommate to complain about Mom.

>

> 5. Does anyone out there that their parent is in a Nursing Home, have them in

a WANDER GUARD place or a regular nursing home and how do they do?

>

> Thank you and God bless,

> I am stressing a little bit when she calls me upset, but other than that, she

has been doing fine, other than talking to her imaginary friends and living in

an imaginary world 24/7.

> in Texas the Dallas area

>