Do I dare to say I'm better?

[Guest guest]

I almost hesitate to post this with Joy and others having such terrible problems

right now. But perhaps it will bring hope to those who have lost it due to this

disease.

When I changed antacid meds in Jan, my pulmonary function improved dramatically,

but I still got infections when off the antibiotics. So, my pulmonologist had

my allergist de-sensitize me to Zithromax (I had previously had an allergic

reaction to it and had not taken it in many years). I now take it every M-W-F

and will do so as long as it works.

And it works!!! I can't tell you how much better I feel!!! I'm coughing so

little that my stress incontinence is nearly a thing of the past, and I have

virtually no congestion in my chest. My oxygen SAT at rehab is regularly 97-98

- even hit 99 one day. I'm able to exercise at a far higher level than I have

been in 18 months. I've even been able to work in the yard and have done so a

few hours each day. I even skipped my Vest on Sun to see what would happen - a

bit of congestion but nothing dramatic. I now know that I could probably go

away for a short weekend without it, if it were more convenient to do so.

I have my life back again!!! The key to this disease is to find a doctor who is

willing to keep trying until he finds the right protocol for YOU! One thing I

have learned on this Forum is that what works for one, may not work for another.

But don't give up - a treatment protocol can most likely be found. I'm sure

glad we found mine, even if it did take 18 months to do so!!!

Suzanne