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Re: Thank you, Sharon

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hi joann,

 

so glad i can help i try, daddy would bring alot of things inot our world too

and what was shared to me with some other caretivfers who were more exxperienced

then me at the time was you cannot fight the hallucinations  you hae to 'go '

iwth them .  you have to try to let them leave.  cach the snake and put it

outside,  be a commander and instruct the 'troops 'to go on their mission and

to report back in 24 hours,  etc.  this way you are delaing with the

hallucainatoins which to him is reality insetad of arguing and upsetting you adn

him more. as we all know stress to an lbd'er is a sure thing for an epiesose to

blow out of control.  take carea nd more hugs. shaorn

 

ps i can only imagine how bad my typing is, as i am in full stress mode due to

my health right now, so i am aksing ofr forigvenss and undeerstanding now 

hugs. sharon

I am the daughter of Leonard whom was diagnosed in May 2004 and  he died of

complicatons *blood pressure started dropping and wouldn't recover* on Sept 25,

2005. He had bad case of Dr Jekyl/Mr Hyde scenarios. He was showing

hallucinations and falling issues since prior to 1994. We moved in to take care

of him Jan 19, 2003 and still live in his house. And in feb 2009, i have been

diagonosed with 99% probability of lbd. Hoping that a cure or treatment will be

found before it's too late for me.

Subject: Thank you, Sharon

To: LBDcaregivers

Date: Sunday, May 23, 2010, 11:56 AM

 

Sometimes it is so confusing on this side of lewy body. Fred has the TV on most

of the time. Now he is bringing it into our life. If he watches the military

channel we have dead bodies and guns and even tanks in our house. If he watches

animals we can get snakes or alligators. I have not understood this one at all

and didn't know how to deal with it. Now that I know about the hearing it makes

so much more sense and I'll quit trying to make him understand it is only TV.I

think it will cause less frustration on both sides. There are so many confusing

things, thank you so much for taking the time to help. You do! JoAnn

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Hi JoAnn, When Don could no longer use the remote it was easy for me to set the

TV on a clean romance story, Like Sara Plain and Tall, and it curbed his

hallucinations a great deal. I hope you can get more control over the remote for

both your sakes. Set a channel and then " Loose " the remote. Would that work?

Love a lot,

Imogene

>

> Sometimes it is so confusing on this side of lewy body. Fred has the TV on

most of the time. Now he is bringing it into our life. If he watches the

military channel we have dead bodies and guns and even tanks in our house. If he

watches animals we can get snakes or alligators. I have not understood this one

at all and didn't know how to deal with it. Now that I know about the hearing it

makes so much more sense and I'll quit trying to make him understand it is only

TV.I think it will cause less frustration on both sides. There are so many

confusing things, thank you so much for taking the time to help. You do! JoAnn

>

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joanninklamath wrote:

> Sometimes it is so confusing on this side of lewy body.

> Fred has the TV on most of the time. Now he is bringing

> it into our life. If he watches the military channel we

> have dead bodies and guns and even tanks in our house.

> If he watches animals we can get snakes or alligators.

That's why we restrict Dad's TV watching to the Science

Channel (and turn off the bug invasion programs) and old

movies. He's frightened enough without bombs and animals

eating animals. As a retired engineer, he seems to enjoy

watching people building things.

Best regards,

Ann

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hi,

 

we couldnt restrict daddys tv watching as eh would have fits if we took remote

away from hinm h he couldnt program it, but he did now the up/down channel

button and that was his fun changing channels adn often he stopped at channels

we would prefer him not to but sometimes the fights were worse over the remote

so i just let hinm watch what he wanted.

 

but i can understand why you do that, i wish we could have, but that was one

battle we lsot no matter how we handled it.  

 

hugs. sharon

I am the daughter of Leonard whom was diagnosed in May 2004 and  he died of

complicatons *blood pressure started dropping and wouldn't recover* on Sept 25,

2005. He had bad case of Dr Jekyl/Mr Hyde scenarios. He was showing

hallucinations and falling issues since prior to 1994. We moved in to take care

of him Jan 19, 2003 and still live in his house. And in feb 2009, i have been

diagonosed with 99% probability of lbd. Hoping that a cure or treatment will be

found before it's too late for me.

> Sometimes it is so confusing on this side of lewy body.

> Fred has the TV on most of the time. Now he is bringing

> it into our life. If he watches the military channel we

> have dead bodies and guns and even tanks in our house.

> If he watches animals we can get snakes or alligators.

That's why we restrict Dad's TV watching to the Science

Channel (and turn off the bug invasion programs) and old

movies. He's frightened enough without bombs and animals

eating animals. As a retired engineer, he seems to enjoy

watching people building things.

Best regards,

Ann

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Hi Ann, when we write we often leave out many small details that go into

restricting our LO of something such as the TV. I know you were careful not to

frustrate your Dad. I'm sure you had a method to do the restricting without the

frustration.

When Don naped, etc. I set the TV to a good channel and then hid the remote. (He

loved to play with it, and got into some bad places, and like a child, couldn't

get out of them.) When he started looking for the remote, I, too, did a search

for a while and acted as if I couldn't find it. I looked in his chair, and under

it, implying he lost it. Whatever worked to keep him away from the bad stuff on

TV was peace for both of us. He didn't like the bad stuff, but had trouble

finding a good station, and I couldn't be at his side every minute.

We worked it out, as I know you did.

Love a lot,

Imogene

> > Sometimes it is so confusing on this side of lewy body.

> > Fred has the TV on most of the time. Now he is bringing

> > it into our life. If he watches the military channel we

> > have dead bodies and guns and even tanks in our house.

> > If he watches animals we can get snakes or alligators.

>

> That's why we restrict Dad's TV watching to the Science

> Channel (and turn off the bug invasion programs) and old

> movies. He's frightened enough without bombs and animals

> eating animals. As a retired engineer, he seems to enjoy

> watching people building things.

>

> Best regards,

>

>

> Ann

>

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