welcome Cris

[Guest guest]

hi Cris,

one of the wonderful things about this site is that one can really

say how you feel, how down you feel and not be castigated. We all

are there sometimes, and understand. We also know the depression,

the isolation, the confusion and uncertainty around this disease -

even those such as myself having lived with nearly a whole lifetime.

But I never knew anyone else...

What you are doing are all good, sound practices, altho those with

reflux avoid postural drainage, and for some percussion isn't easy to

come by. Which is why some have a vest which does the same thing,

and allows independence.

The great thing is you're actively managing this trying disease with

the right means and attitude, and questioning - also an excellent

thing to do! Some of us do have to do the rounds of abx

(antibiotics) sometimes to give ourselves a bit of head start, and

yes, they do knock us around but sometimes it's the lesser of two

evils. They certainly would work more effectively for you because

you're active in clearing your lungs and sinuses. Abx or no, that's

just got to be a way of life!

There are 2 Joys in the group, I'm in northern tropics Australia, on

the barrier reef, just had a cyclone last week... a new challenge

for me, losing power had never been an issue before but losing means

to use my nebuliser and vest was frightening!

We look forward to having you participate in the wonderful group,

you'll find such a wealth of humour, knowledge, understanding and

experience - or just 'lurk' if that suits you...

all the best,

Joy (Aust)