Romantic relationships and TC

[Guest guest]

Well it looking like my marriage is close to being over.. At least I beat Kim

Kardashian! 

Going to therapy, but I don;t know if it's too late or not. And all while I just

had a new MRI for possible retether and going to see high risk OB.

Anyone else?? I need advice, venting:)

[Guest guest]

If your not happy don't stay. I stay because I fear I have no where to go and no

way to care for my daughter who is now 2. I retethered during the pregnancy and

haven't found a doctor yet to do surgery again. So my advice if your really

still in love then work it out but if your not and you don't have any feelings

there then don't stay your only hurting yourself and everyone else involved.

This message was sent from s' iPhone. Apologies if it does not format

corectly.

> Well it looking like my marriage is close to being over.. At least I beat Kim

Kardashian!

> Going to therapy, but I don;t know if it's too late or not. And all while I

just had a new MRI for possible retether and going to see high risk OB.

> Anyone else?? I need advice, venting:)

>

>

>

>

[Guest guest]

Thanks Lindsey..

I had a very frank discussion with him and he said it really hit him hard.We are

going into counselling on Saturday, he called and found the guy.. so I hope we

can work on it.I do love him.

I'm so sorry about your retether.. I just wrote another note about pregnancy,

why/how did you retether during pregnancy.. was it the strain on your back?

> Well it looking like my marriage is close to being over.. At least I beat Kim

Kardashian!

> Going to therapy, but I don;t know if it's too late or not. And all while I

just had a new MRI for possible retether and going to see high risk OB.

> Anyone else?? I need advice, venting:)

>

>

>

>

[Guest guest]

I am so sorry you this much on your plate . Sometimes I think

this is the list of big shoulders.

Without knowing all the facts, it is difficult to provide you with

'right' answers -- and possibly there are no such things. I have been

waiting until the kids were out of the house to decide... Almost to

the day, something comes up to keep me here, such as the dog having

hip dysplasia and needing surgery. This was the dog who was going to

help me :-(

I would say though I was really really emotional when I was pregnant

and it was like a looking through binoculars the wrong way.

Everything he did wrong or insensitive was magnified times 10. Try

the counseling, sounds like he has some committment to it.

Hang in there.

Meiser

> Thanks Lindsey..

> I had a very frank discussion with him and he said it really hit him hard.We

are going into counselling on Saturday, he called and found the guy.. so I hope

we can work on it.I do love him.

> I'm so sorry about your retether.. I just wrote another note about pregnancy,

why/how did you retether during pregnancy.. was it the strain on your back?

>

>

>

>

>

>

>

>> Well it looking like my marriage is close to being over.. At least I beat Kim

Kardashian!

>

>> Going to therapy, but I don;t know if it's too late or not. And all while I

just had a new MRI for possible retether and going to see high risk OB.

>

>> Anyone else?? I need advice, venting:)

>

>>

>

>>

>

>>

>

>>

[Guest guest]

Sorry! I was in the hospital! I'm not ignoring you I just go home and ilm

checking my emails. I will respond soon but basic anwser it was the weight and

strain the baby puts on your back. And according to my dr dilaudid was better

for controlling pain at lower doses and withdrawal for the baby isn't as hard.

As far as the other meds are you ready to raise a baby who is possible mentally

retarded Or other problems. You should think long and hard. And maybe consider

adopting since you guys have so many handling issues to begin with.

This message was sent from s' iPhone. Apologies if it does not format

corectly.

> Thanks Lindsey..

> I had a very frank discussion with him and he said it really hit him hard.We

are going into counselling on Saturday, he called and found the guy.. so I hope

we can work on it.I do love him.

> I'm so sorry about your retether.. I just wrote another note about pregnancy,

why/how did you retether during pregnancy.. was it the strain on your back?

>

>

>

>

>

> > Well it looking like my marriage is close to being over.. At least I beat

Kim Kardashian!

>

> > Going to therapy, but I don;t know if it's too late or not. And all while I

just had a new MRI for possible retether and going to see high risk OB.

>

> > Anyone else?? I need advice, venting:)

>

> >

>

> >

>

> >

>

> >

[Guest guest]

Yes .... having TSC is very hard on relationships. I do not know how many of

you are out there that have lost their marriage over this? My case went from

having TSC that was related to spina bifida (lipomyleomeningocele) to developing

arachnoiditis which then caused 3 arachnoid cysts to develop. All of this was

due to my 3 spinal cord surgeries. Needless to say this can be hard on

relationships. I am 38. My husband and I have one child (8 year old little boy

- the love of our life). I couldn't get pregnant anymore after Luke because of

my tethered cord. My husband was DEVESTATED! He wanted his own children. We

attempted to adopt but it never worked out. After 15 years of marriage my

husband recently told me he is considering divorce. The thing is we get along

great! We do not fight .... we love each other but I think the thought of all

of my possible future health problems has got him thinking he might be better

off without me. Sad but true. It breaks my heart to no end! We are in

counseling and working the process. But my fears are ... if I get sick again is

he going to bail??? Anybody have similar experiences? Also my fear is later in

life if I can't work and have to be on disability is it enough to get by?

Filipi

" Be the change you wish to see in the world " ~ Ghandi

Re: Romantic relationships and TC

Sorry! I was in the hospital! I'm not ignoring you I just go home and ilm

checking my emails. I will respond soon but basic anwser it was the weight and

strain the baby puts on your back. And according to my dr dilaudid was better

for controlling pain at lower doses and withdrawal for the baby isn't as hard.

As far as the other meds are you ready to raise a baby who is possible mentally

retarded Or other problems. You should think long and hard. And maybe consider

adopting since you guys have so many handling issues to begin with.

This message was sent from s' iPhone. Apologies if it does not format

corectly.

> Thanks Lindsey..

> I had a very frank discussion with him and he said it really hit him hard.We

are going into counselling on Saturday, he called and found the guy.. so I hope

we can work on it.I do love him.

> I'm so sorry about your retether.. I just wrote another note about

pregnancy, why/how did you retether during pregnancy.. was it the strain on your

back?

>

>

>

>

>

> > Well it looking like my marriage is close to being over.. At least I beat

Kim Kardashian!

>

> > Going to therapy, but I don;t know if it's too late or not. And all while

I just had a new MRI for possible retether and going to see high risk OB.

>

> > Anyone else?? I need advice, venting:)

>

> >

>

> >

>

> >

>

> >

[Guest guest]

I understand all to well what you are going through. My husband walked out on me

& our 3 boys the day before I had my decompression for Chiari. I had a boyfriend

leave after I had a shunt revision ( & he was a firefighter) had my fiance (who

was also a firefighter) walk out almost 2 years ago after my last detethereing

left my pelvic region completely numb, no feeling what-so-ever. Saying he

couldn't handle MY medical problems. Making it impossible to have sexual

relations, having to cath myself to urinate & bowel incontinence quite often.

After 2 years entered into another relationship recently with a man I have known

for a couple of years. We attend college together (I am 41 & will graduate in

May). It was hard to tell him everything but eventually I did. Everything seemed

to be going good at first. Luckily no bowel mishaps. Then went to see a

colo-rectal specialist who said since it had been 2 years since the nerve damage

it was more than likely permanent & to learn to live with it. He of course made

excuses & fled. I feel like damaged goods. Who wants to began a relationship

with me? I have had a total of 54 surgeries in the last 20 years. 38 on my back

& 4 brain. People look at me & say how strong I am, they couldn't do it if it

were them but dang it I don't wanna do it either. Not alone anyway. I am sick &

tired of hurting, having to wear diapers (after all I'm 41 not 91), the massive

financial strain it has put on me. $600 only goes so far a month. I'm tired of

not being able to sleep, tired of the depression. I'm just tired...My biggest

fear is being intimate with someone & you have a bowel mishap, I would DIE from

embarrassment. So who want to start a relationship off like that? Its hard to

wear clothes that make a woman feel sexy when she is trying to hide a bulky

diaper underneath. I'm sorry to have rambled. I pray you & your spouse can work

things out. I have never felt so alone in the world than I do right now. If

there is a chance to work it out jump on it. Prayers!!