Guest guest Posted August 7, 2011 Report Share Posted August 7, 2011 , Sorry it's taken me SO long to get back to you. The Cortisone shot was just kind of a general question. I just remember the shots in my back 20+ years ago...and the immediate relief afterwards. I'm not thinking about the shots anymore. Nor am I taking MS-Contin. Within 2 days (and just 2 pills) I felt like I had a horrible flu and headache. I went back to Oxcarbazepine. It doesn't help much but I get no horrible side effects. I see the Dr. later this month and I'm going to ask him about Savella. He had mentioned it but prescribed the MS-Contin instead. Jodi >Cortisone shot where? The docs are against the shots (some of them) because they feel the steroids are not good for you. I am on pain meds around the clock, and they help me more than the shots. The pain docs are funny... some are more injection only, others are pain meds... I have one doc that does the injections (buttocks trigger points every 2 months) and another that prescribes the pain meds. In my experience seeing 30+ physicians before finding someone stable they are either for one or the other. >Is this like an epidural shot?? Or?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2011 Report Share Posted August 8, 2011 The Savella is approved for Fibro. It has helped with joint pain, light/noise sensitivity... I have not had any side effects. If you have any of those issues I would ask about it for sure. I'm on Oxycontin now and Morphine IR. Subject: MS-Contin To: tetheredspinalcord Date: Sunday, August 7, 2011, 3:41 PM  , Sorry it's taken me SO long to get back to you. The Cortisone shot was just kind of a general question. I just remember the shots in my back 20+ years ago...and the immediate relief afterwards. I'm not thinking about the shots anymore. Nor am I taking MS-Contin. Within 2 days (and just 2 pills) I felt like I had a horrible flu and headache. I went back to Oxcarbazepine. It doesn't help much but I get no horrible side effects. I see the Dr. later this month and I'm going to ask him about Savella. He had mentioned it but prescribed the MS-Contin instead. Jodi >Cortisone shot where? The docs are against the shots (some of them) because they feel the steroids are not good for you. I am on pain meds around the clock, and they help me more than the shots. The pain docs are funny... some are more injection only, others are pain meds... I have one doc that does the injections (buttocks trigger points every 2 months) and another that prescribes the pain meds. In my experience seeing 30+ physicians before finding someone stable they are either for one or the other. >Is this like an epidural shot?? Or?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2011 Report Share Posted August 8, 2011 Hi ,  I'm most likely coming in on this conversation way late, so I apologize. When was your surgery? Mine was March 30th of this year and I am seeing a Pain Management Specialist. He has me on hydrocodone and several meds for anxiety. I live in Tallahassee FL, and had my surgery in Gainesville FL because none of the doctors in Tally have delt with TSC. I'm wondering if the Pain Mgmt. Sp. thinks this is all in my head.  Have you dealt with doctors like this?  Kellie Subject: MS-Contin To: tetheredspinalcord Date: Sunday, August 7, 2011, 3:41 PM  , Sorry it's taken me SO long to get back to you. The Cortisone shot was just kind of a general question. I just remember the shots in my back 20+ years ago...and the immediate relief afterwards. I'm not thinking about the shots anymore. Nor am I taking MS-Contin. Within 2 days (and just 2 pills) I felt like I had a horrible flu and headache. I went back to Oxcarbazepine. It doesn't help much but I get no horrible side effects. I see the Dr. later this month and I'm going to ask him about Savella. He had mentioned it but prescribed the MS-Contin instead. Jodi >Cortisone shot where? The docs are against the shots (some of them) because they feel the steroids are not good for you. I am on pain meds around the clock, and they help me more than the shots. The pain docs are funny... some are more injection only, others are pain meds... I have one doc that does the injections (buttocks trigger points every 2 months) and another that prescribes the pain meds. In my experience seeing 30+ physicians before finding someone stable they are either for one or the other. >Is this like an epidural shot?? Or?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2011 Report Share Posted August 8, 2011 Kellie, My surgery was in November 2011. I was misdiagnosed for about 2 1/2 years, and walked around with bladder issues and severe lower back pain. Yes, I have been to hell and back with pain physicians.I finally found a clinic in Chicago that " gets it " . Right before surgery I started developing knots everywhere, to the point of numbness. Then came the light/noise issues. Feb of this year the joint pain started.In March someone finally thought that my symptoms were due to sensitization. My brain was not processing pain correctly. I was diagnosed with central sensitization syndrome (kind of like fibro) and given Savella. As for the back pain. I was told by Dr. Frim who did my surgery that he can't say it will ever go away, I walked around with it for so long, the surgery may not change anything. He told me to do the surgery based on my bladder (nerve damage confirmed by study) and the leg damage... Are you having all over pain or just lower back?I hear of so many people developing " fibro " like symptoms after prolonged pain Subject: MS-Contin To: tetheredspinalcord Date: Sunday, August 7, 2011, 3:41 PM  , Sorry it's taken me SO long to get back to you. The Cortisone shot was just kind of a general question. I just remember the shots in my back 20+ years ago...and the immediate relief afterwards. I'm not thinking about the shots anymore. Nor am I taking MS-Contin. Within 2 days (and just 2 pills) I felt like I had a horrible flu and headache. I went back to Oxcarbazepine. It doesn't help much but I get no horrible side effects. I see the Dr. later this month and I'm going to ask him about Savella. He had mentioned it but prescribed the MS-Contin instead. Jodi >Cortisone shot where? The docs are against the shots (some of them) because they feel the steroids are not good for you. I am on pain meds around the clock, and they help me more than the shots. The pain docs are funny... some are more injection only, others are pain meds... I have one doc that does the injections (buttocks trigger points every 2 months) and another that prescribes the pain meds. In my experience seeing 30+ physicians before finding someone stable they are either for one or the other. >Is this like an epidural shot?? Or?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2011 Report Share Posted August 8, 2011 Hi ,  Funny you should ask that; I was doing some research before I received your email. Yes, I have pain and numbness through my right leg and arm. I have knots in the right side of my lower neck and upper back. I've started having headaches too. I thought this was strange since my tether was between L4 and L5. I have made a friend in south Florida who has been though this as well. She recommends that I find a good Internist. Have you had any experience with this type of doctor?  Thank you for sharing your experience,  Kellie Subject: MS-Contin To: tetheredspinalcord Date: Sunday, August 7, 2011, 3:41 PM  , Sorry it's taken me SO long to get back to you. The Cortisone shot was just kind of a general question. I just remember the shots in my back 20+ years ago...and the immediate relief afterwards. I'm not thinking about the shots anymore. Nor am I taking MS-Contin. Within 2 days (and just 2 pills) I felt like I had a horrible flu and headache. I went back to Oxcarbazepine. It doesn't help much but I get no horrible side effects. I see the Dr. later this month and I'm going to ask him about Savella. He had mentioned it but prescribed the MS-Contin instead. Jodi >Cortisone shot where? The docs are against the shots (some of them) because they feel the steroids are not good for you. I am on pain meds around the clock, and they help me more than the shots. The pain docs are funny... some are more injection only, others are pain meds... I have one doc that does the injections (buttocks trigger points every 2 months) and another that prescribes the pain meds. In my experience seeing 30+ physicians before finding someone stable they are either for one or the other. >Is this like an epidural shot?? Or?? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2011 Report Share Posted August 8, 2011 I can't imagine an internist having the requisite experience with NTDs to handle it. Internists are generally PCPs (primary care physicians). I think u would b much better served by a physiatrist (also listed under " Physical Medicine & Rehabilitation " in most insurance lists of covered providers). They specialize in treating and managing ppl w disabilities. The best would b to find one who specializes in ppl with SCI/D and/or spine & brain. A physiatrist who specializes in SCI/D is kind of like a PCP of SCI/D - managing pain and other symptoms; referring out treatment as necessary (ie: PT, OT, urology, etc). If u have a MSCIC (Model Spinal Cord Injury Center) close by, they should have many of these MDs on staff that are very experienced in treating SCI/D. Just MHO. Jenn > Hi , > > Funny you should ask that; I was doing some research before I received your email. Yes, I have pain and numbness through my right leg and arm. I have knots in the right side of my lower neck and upper back. I've started having headaches too. I thought this was strange since my tether was between L4 and L5. I have made a friend in south Florida who has been though this as well. She recommends that I find a good Internist. Have you had any experience with this type of doctor? > > Thank you for sharing your experience, > > Kellie > > > > > > Subject: MS-Contin > > To: tetheredspinalcord > > Date: Sunday, August 7, 2011, 3:41 PM > > > > , > > Sorry it's taken me SO long to get back to you. The Cortisone shot was just kind of a general question. I just remember the shots in my back 20+ years ago...and the immediate relief afterwards. I'm not thinking about the shots anymore. Nor am I taking MS-Contin. Within 2 days (and just 2 pills) I felt like I had a horrible flu and headache. I went back to Oxcarbazepine. It doesn't help much but I get no horrible side effects. I see the Dr. later this month and I'm going to ask him about Savella. He had mentioned it but prescribed the MS-Contin instead. > > Jodi > >>Cortisone shot where? The docs are against the shots (some of them) because they feel the steroids are not good for you. I am on pain meds around the clock, and they help me more than the shots. > > The pain docs are funny... some are more injection only, others are pain meds... I have one doc that does the injections (buttocks trigger points every 2 months) and another that prescribes the pain meds. In my experience seeing 30+ physicians before finding someone stable they are either for one or the other. > >>Is this like an epidural shot?? Or?? > > Quote Link to comment Share on other sites More sharing options...
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