new to the group

[Guest guest]

Welcome , sorry that you have to be here. If you

don't wish to confide in your feelings with your

girlfriend and family you can certainly do it here.

We'll listen give advice (maybe even some you don't

want);-). You seem to be on the right track already.

A positive attitude really helps and don't think your

life is over (which is what most of us think when we

or our loved ones are first diagniosed). I've been in

the group since 1999 shortly after my husband was

diagnosed 12/28/1998. At first we were afraid to

travel or do our normal activities and if you get no

other advice, the best advice is try to stay up and

live your life everyday to the fullest and don't put

off what you want to do.

Phil had a series of infections at first but had an

ERCP in April that opened things up and he's been

doing great. Pscer's,especially those that are prone

to periodic infections seem to go in and out of bad

times. The thing is make the most of the good times.

We have been to Baltimore twice, Chicago 3 or 4 6

times, Las Vegas 3 times, Phil went to New Orleans

(went to hospital with infection after that one but

hey he made it home first before becoming sick) and

Phil has even been to China twice this year. We are

very pleased with things right now. They did put him

on the transplant list at UCLA in early 2000 because

of the frequent infections and because he was layed

off from his job just prior to diagnosis and he was 56

he decided to go on disability and is now on ss

disability. We took the route of trying to set up a

home based business where he is in better control of

his time and energy.

Our kids are grown so we don't have that aspect to

deal with but we are newly weds of almost 5 years so

the diagnosis came just 1 1/2 years after getting

married. No time is a good time to get this but my

heart goes out to those who have so much life to live

ahead of them. We do have several members in the

group in your age group that I'm sure will talking

with you from an age perspective. We have a young man

19 or 20 who just had a transplant and is in the midst

of rejecting it and having to be listed again his name

is . We are all praying and pulling for him.

His Mom's name is Ruth and she's a trooper.

We have several post transplant people one, Aubrey,

who is a doctor but others that you'd swear were

doctors by all their knowledge.

Sure hope you get what you are looking for here. " And

you thought your post was long " Mom Peg is a very

wordy person. :-)

=====

Peg,wife of Phil(58), UC 30 yrs, dx PSC 12/98, Listed UCLA 3/2000,status

3,living in LA, CA suburbs, 2 kids, 5 grandchildren, 2 cats

__________________________________________________

[Guest guest]

Connolly wrote:

> My 2nd ERCP confrimed the

> dx with 3 images obtained during the procedure. From

> what I saw the left side looks great(the ducts wide

> and smooth....like a big felt marker) while the right

> looked poor ( the ducts narrow and ridged...lke a

> ballpoint pen running out of ink).

Your experience sounds almost identical to mine in many ways... the pain

after eating greasy food (I remember throwing up a large amount of pizza

one night!), and I just thought it was heartburn or something too. Took

2 ERCPs to confirm my diagnosis. Oh, and I was 22 when I was diagnosed!

>

> Since my dx in September, my low low fat diet and

> medication (Ursodial? or Ursofalk? My doctor uses the

> name ursofalk while my pharmacist calls it

> ursodial...What the difference?)has been working...no

> more trips back to the ER in the middle of the night.

> I know everybody's situation is different, but

> what are typical symtoms that I can look out for? And

> what should I be doing at this point...bloodtests 2

> times a year as recommended by my doctor?

That's basically what I did for about 8 years. I've been getting a bit

more intensive treatment lately due to a variceal bleed a couple years

ago...

> What should

> I do to check for bile duct cancer?

There are some blood tests that are often used (CA19-9 is one), but they

aren't very reliable. They seem to produce false positives a lot more

often than real ones. I've had one scare myself about 6 years ago, but

I'm still going strong.

> When should I get

> in touch with a transplant program?

I didn't get in to see my transplant docs until a couple years ago (8

years after diagnosis), but if I were to do it over again, I'd try to

get in to see them a little earlier, if only so they could establish a

baseline.

> I have so many

> questions that I forget half of them ...yet they all

> of a sudden seem to return when I step out of my

> doctors office.

I've started making a list to take with me. I think some doctors get

spooked when they see a list, but mine seem to be OK with it.

>

> My girlfriend and family say that I handling this

> better than anyone. But the truth of the matter is

> that I'm very scared of this whole thing. I don't want

> them to see that part. During the day I'm busy and try

> to keep other things on my mind. But when I go to bed

> I just lie there thinking about it til I fall asleep.

> I hope someone could take the time to respond to my

> questions give some advice on how to handle those

> dreded nights.

I'm not sure what to tell you about how to handle it, but I know where

you're coming from. Looking back though, I see that although my worries

were reasonable, I have been able to live a very full satisfying life

for the last ten years, and now that I'm getting closer to needing a

transplant, I'm able to look beyond that and plan for the future. I

guess for me that's the key. As long as this disease is the main thing

you see in your future, it's awfully hard to be positive. But when you

also see other things (for me it was marriage, graduating from college,

kids, getting established in my career, etc.) and realize that in all

likelihood you'll still be able to do all those things, then it gets a

bit easier.

I know all that is easier said than done, but I'm coming from the

perspective of someone who's been almost exactly where you are, and have

now accomplished (or am accomplishing... just found out my wife's

pregnant with our second child) all the things I listed above, and am

now looking foreward to other goals... so it is possible!

I also would be remiss if I didn't add that without faith in God, I

probably wouldn't have made it this far in nearly as good of shape as I

have!

We'll be praying for you!

athan

--

Give the gift of life

Sign your organ donor card

Tell your family you want to be an organ donor

[Guest guest]

Joanne - another (past) post from Luanne. You should be able to access our

message archives at http://groups.yahoo.com/group//messages. It

is searchable, but you have to log in with your Yahoo ID to get there (it

looks like you have one).

Arne

50 - UC 1977 - PSC 2000

Alive and (mostly) well in Minnesota

-------------------------------------

From: bbnlu@a...

Date: Tue Oct 16, 2001 11:59 am

Subject: Re: ...pregnancy and PSC

Hi ....

I can answer some of your questions on enlarged spleen but none about

pregnancy..since it is my son who has the psc...lol...

I know you wrote quite a while ago about this..but I have not been able to

be active here for a couple of weeks.....but in my catching up I saw your

post and Pegs answer to you....

Yes Ty has a very large spleen....it literally covers his entire

abdomen..crossing over to the right side past his naval...by about 3-4

inches...literally pushing on his liver at times...also pushing on his

stomach and going down below his naval....from what we understand that a

spleen his size is rather unusual....he goes to a teaching hosp....Childrens

Hosp in Philadelphia...and so many have come in to feel his spleen....it is

something that he and I can very easily feel....at times it has caused him

quite a bit of trouble....with the pressure on his stomach it is hard to

eat....always feeling really sick after just a few bites....being hungry and

as soon as he would take a bite it would say he couldn't eat

anymore...causing him to loose a lot of weight....some thing he can't really

afford...He is just 19...and rather slim....although his abdomen is always

protruding....something he really hates...He has also had the problem of the

spleen being so large that sitting upright was not possible...because of the

amount of pain....making breathing difficult also....He has had to wear a

spleen guard to protect himself at different times...because of the pressure

the doctors were afraid that if he even was elbowed in the school halls that

he could be in big trouble....He hasn't been able to do any kind of sports

for a long time....He also has portal hypertension....Last winter the spleen

was so large the blood supply could successfully supply the entire spleen

with adequate supply so he had what is called " infarcting " of the

spleen...Very painful...and kept him in the hosp for the entire

winter....those areas are now scar tissue...and so now the spleen is

actually smaller...going just to his naval and just below the naval. So he

is a lot more comfortable....although there are times he doesn't eat as well

as he should...

Note that these things are rather rare....and that he has come thru them and

is doing well right now....

Usually when you have an enlarged spleen your platelets can be really

low....which Tys are....

Most PSCers do have low platelets...and somewhat enlarged

spleens....although like I said I have not heard of anyone with the trouble

that Ty has had....and some do have portal hypertension....can cause

bleeding...which I think some have explained to you......Ty had a few months

were he would get nose bleeds a couple times a day ...and some were very

hard to stop.....He now takes Vitamin K....which is to help with bleeding

time...PT and PTT in your lab work....

Well I hope I have explained this clearly....you can always write me ....or

any one here....since everyone has had or is having experience with

this.....to some extent...

Luanne Ty's mom

[Guest guest]

Hi Kim,

Stop listening to your doctor and focus on getting off

these drugs. Avoid antipsychotics at all costs, they

are very harmful. Read Breggins Book, the drugs

maybe your problem how and why to stop taking

psychiatric medication, you can find it in your

library. It speaks of the damaging effects.

You have come to the right place for help.

offers help with this.

--- emhika wrote:

> Hi all,

>

> I just found this group and am looking for some

> advise on how to get

> off of the anti-depressant that I am on. Let me give

> you a little

> history; I was put on Paxil 11 years ago for

> depression. Started out

> at 20 mg and ended up taking 60 mg to get the same

> effect I was

> getting on 20 (dosage was gradually increased over

> the 11 years). In

> January I consulted a psychiatrist (upon my GP's

> advise) because I

> was starting to have " depression " symptoms again. I

> was feeling no

> energy, no real feelings for anything, hard time

> getting out of bed

> in the morning, anxious and irritable. He said I was

>

> experiencing " Paxil Poopout " . I had been on the drug

> for so long that

> I wasn't getting any " benefit " from it anymore. He

> then prescribed

> Celexa and Rispadryl. The Celexa worked great at

> first, but then I

> started to have difficulty seeing things up close. I

> didn't take the

> Rispadryl after 2 days because it made me very

> nauseaus. In April, he

> swithed me to Luvox and Seroqyl. I just felt sort of

> " blah " with the

> Luvox and the Seroqyl made me so tired I could

> hardly get out of bed

> in the morning. Last week he swithed me to Lexapro

> (10mg).I have

> decided that I don't really know how I feel anymore

> because I have

> been taking these meds for so long and I want to

> stop taking them and

> seek homeopathic or natural remedies. Can someone

> give me some advise

> on how I should taper off of this medication? Thank

> you so much for

> the support!!!

> Kim

>

>

>

>

>

>

>

____________________________________________________

Start your day with Yahoo! - make it your home page

http://www.yahoo.com/r/hs

[Guest guest]

Hi Kim,

I'm sorry it took me so long to reply to you!

I believe you contacted ...she responded to this email at

some point, didn't she? If you still have questions, please let me

know.

Just wanted to offer a belated welcome to the group.

Regards,

Kim (the other one, lol)

co-moderator

> Hi all,

>

> I just found this group and am looking for some advise on how to get

> off of the anti-depressant that I am on. Let me give you a little

> history; I was put on Paxil 11 years ago for depression. Started out

> at 20 mg and ended up taking 60 mg to get the same effect I was

> getting on 20 (dosage was gradually increased over the 11 years). In

> January I consulted a psychiatrist (upon my GP's advise) because I

> was starting to have " depression " symptoms again. I was feeling no

> energy, no real feelings for anything, hard time getting out of bed

> in the morning, anxious and irritable. He said I was

> experiencing " Paxil Poopout " . I had been on the drug for so long that

> I wasn't getting any " benefit " from it anymore. He then prescribed

> Celexa and Rispadryl. The Celexa worked great at first, but then I

> started to have difficulty seeing things up close. I didn't take the

> Rispadryl after 2 days because it made me very nauseaus. In April, he

> swithed me to Luvox and Seroqyl. I just felt sort of " blah " with the

> Luvox and the Seroqyl made me so tired I could hardly get out of bed

> in the morning. Last week he swithed me to Lexapro (10mg).I have

> decided that I don't really know how I feel anymore because I have

> been taking these meds for so long and I want to stop taking them and

> seek homeopathic or natural remedies. Can someone give me some advise

> on how I should taper off of this medication? Thank you so much for

> the support!!!

> Kim

[Guest guest]

Welcome to the group Kim. I to have been on so many different meds in the past 11 years I can't even remember them all, but I'm glad I found this group. You will get lots of support and advice to help you on your way to being free from Psych drugs.

> Hi all,> > I just found this group and am looking for some advise on how to get> off of the anti-depressant that I am on. Let me give you a little> history; I was put on Paxil 11 years ago for depression. Started out> at 20 mg and ended up taking 60 mg to get the same effect I was> getting on 20 (dosage was gradually increased over the 11 years). In> January I consulted a psychiatrist (upon my GP's advise) because

I

[Guest guest]

hi just thought I would introduce myself, we just got a dx of cronic lyme in our 9 year old former ASD child,. they think it comes from me and several tic bites while in europe doing missions work that landed me in the hopsital and ending up pregnant 6 months later. my last child NT also is showing signs and I am I being tested as well (have a dx of fibro and I and dr are wonding if it's a misdx) hope to learn lots.

oh son has PANDAS as well and I have heard connections between the 2 any info to share is greatly apprectiate. we have been oh propholatic antibioitcs for about 8 months with our LIA dr for the PANDAS, he is on several other suppliments as well and on the gfcfsf diet as well as other things he is allergic to.

not sure what other info would be important

[Guest guest]

Hi Christel:

Welcome aboard! You will find several of your pals from MB12Valtrex on this

list. I have fibro, but since fibro has an unknown cause, I feel my symptoms

are from pathogens and toxins. I have several tick-borne infections and who

knows what else. We have chronic Strep in my family as well. What I have found

recently to keep my chronic fatigue away is magnesium malate and Ultra Cordyceps

Plus by Doctor's Best. The two of these products provide the nutrients

necessary to keep my ATP or cellular respiration working. I am hoping that

eventually I will be rid of my pathogens and toxins enough to not need much

supplements. I also have to take other things to kill pathogens and provide

digestion and liver support. You already know about my kids from other posts,

but feel free to ask questions.

When I found out we had tickborne infections, I sought testing to see also which

coinfections. I used Fry Labs of Arizona, and tested positive for Bartonella

and Babesia. I then looked up all the different ways to treat and decided to

choose Nutramedix products. Buhner and Dr. Zhang have some popular

treatment ideas as well. There are also homeopathic and antibiotic choices.

Our docs have been very open to all the tickborne treatment choices I preferred,

so all is well. We are not rid of our infections, but everyone is functioning

as neurotypicals. My kids are in regular school and all. It's so weird that my

kids are able to do regular school, yet still test positive for Strep, low Vit.

D, low homocysteine, still have the Bartonella rashes, etc. We are better, just

not healed enough to not be dependent upon treatments.

So, I feel good about where we are, but the progress sure has been a lot slower

than I expected. I am taking a homeopathic class, online actually, to continue

my learning. I am hoping to learn more on how to teach the body to heal itself.

You will find on this list, that it is difficult to understand some of what is

being said. There are lots of experts here and treatments that you won't

generally find on other lists. Don't worry about trying to learn it all because

I even can't. LOL.

Love and prayers,

Heidi N

>

> hi just thought I would introduce myself, we just got a dx of cronic lyme in

our 9 year old former ASD child,. they think it comes from me and several tic

bites while in europe doing missions work that landed me in the hopsital and

ending up pregnant 6 months later. my last child NT also is showing signs and I

am I being tested as well (have a dx of fibro and I and dr are wonding if it's a

misdx) hope to learn lots.

>

> oh son has PANDAS as well and I have heard connections between the 2 any info

to share is greatly apprectiate. we have been oh propholatic antibioitcs for

about 8 months with our LIA dr for the PANDAS, he is on several other

suppliments as well and on the gfcfsf diet as well as other things he is

allergic to.

>

> not sure what other info would be important

>

[Guest guest]

thanks yeah this is door I never thought we would have to explore yet knowing about my tics, and how sick I was in the hospital for 2 weeks, and how my health rapidly declinded after that, it has plaged me to check it out I simpley didn't know who to go to. so when I moved to vermont and found the only DAN was also a LIA dr I ok, now i know why you moved us here, to either confirm this is an issue or rule it out. just not the answer I had hoped for! I remember having the lyme circles were they had bit me so I kinda prepared I guess but just one more guilt to know i contributed to my sons issues. go mama! but I also know I have fought hard to undo all the damages I can as well. levi is also in regular school with peers, friends, girls friends ect. but I keep thinking if we fix these other things how much greater his potential can be. some day I want him to be the guy standing up screaming waving his medical records saying you wanna know what this stuff can do to you, read this (I picture his records being flung into the audients and his life on vidoe playing behind him showing all his struggles) I know his live has touched many and change many peoples choices or made them dig in deeper into issues like vaccinations ect and that he has used us to touch others lives...but I look forward to no more medical issues to work on as well (hehe) who doesn't right! ok I will call the dr on testing on the other co infections, we had talked about that the other day on the phone so I know he has been prepping me for more testing...and treatments. I think I am changing to him as my primary for the time being to do my testing as well. I know with my fibro my diet links into, and yeast and bacteria as well. I know on antibiotics and antifungals I feel great, clean diet helps my joints, and diflucan is amazing. HBOT I felt like a new woman with NO symptoms and it would last for days. (keep waiting for santa to drop me one of those) and levi was a dream on it as well. we just started up chelation this weekend after years of letting it go to deal with that, hoping it helps address the PANDAS and Biofilm issues/......

ON THE ROAD AGAIN!!

Re: new to the group

Hi Christel:Welcome aboard! You will find several of your pals from MB12Valtrex on this list. I have fibro, but since fibro has an unknown cause, I feel my symptoms are from pathogens and toxins. I have several tick-borne infections and who knows what else. We have chronic Strep in my family as well. What I have found recently to keep my chronic fatigue away is magnesium malate and Ultra Cordyceps Plus by Doctor's Best. The two of these products provide the nutrients necessary to keep my ATP or cellular respiration working. I am hoping that eventually I will be rid of my pathogens and toxins enough to not need much supplements. I also have to take other things to kill pathogens and provide digestion and liver support. You already know about my kids from other posts, but feel free to ask questions. When I found out we had tickborne infections, I sought testing to see also which coinfections. I used Fry Labs of Arizona, and tested positive for Bartonella and Babesia. I then looked up all the different ways to treat and decided to choose Nutramedix products. Buhner and Dr. Zhang have some popular treatment ideas as well. There are also homeopathic and antibiotic choices. Our docs have been very open to all the tickborne treatment choices I preferred, so all is well. We are not rid of our infections, but everyone is functioning as neurotypicals. My kids are in regular school and all. It's so weird that my kids are able to do regular school, yet still test positive for Strep, low Vit. D, low homocysteine, still have the Bartonella rashes, etc. We are better, just not healed enough to not be dependent upon treatments. So, I feel good about where we are, but the progress sure has been a lot slower than I expected. I am taking a homeopathic class, online actually, to continue my learning. I am hoping to learn more on how to teach the body to heal itself. You will find on this list, that it is difficult to understand some of what is being said. There are lots of experts here and treatments that you won't generally find on other lists. Don't worry about trying to learn it all because I even can't. LOL. Love and prayers,Heidi N>> hi just thought I would introduce myself, we just got a dx of cronic lyme in our 9 year old former ASD child,. they think it comes from me and several tic bites while in europe doing missions work that landed me in the hopsital and ending up pregnant 6 months later. my last child NT also is showing signs and I am I being tested as well (have a dx of fibro and I and dr are wonding if it's a misdx) hope to learn lots. > > oh son has PANDAS as well and I have heard connections between the 2 any info to share is greatly apprectiate. we have been oh propholatic antibioitcs for about 8 months with our LIA dr for the PANDAS, he is on several other suppliments as well and on the gfcfsf diet as well as other things he is allergic to.> > not sure what other info would be important>

[Guest guest]

Goldenseal works fantastic for strep. I don't know why I waited so long to try

this one. something to look at. My son's ocd just stops when we give it. AC

chelation, what can I say, it's bringing my boy to such a different level. This

helps them fight the infections to begin with. I waited too long to chelate,

that's for sure. I imagine that lyme will be hard to treat without chelation.

The mineral wasting alone causes major immune system problems. We just found out

that we have a scrap metal processing plant less than 5 miles tucked away in the

trees. This for sure is the root of our problems. Mold, bacteria, yeasts,

viruses make toxic people sick and those that aren't toxic can actually fight

them off as God intended.

On a side note...I imagine recycling is actually polluting the air a lot more

than we all realize.

Jen

> > >

> > > hi just thought I would introduce myself, we just got a dx of cronic

lyme in our 9 year old former ASD child,. they think it comes from me and

several tic bites while in europe doing missions work that landed me in the

hopsital and ending up pregnant 6 months later. my last child NT also is showing

signs and I am I being tested as well (have a dx of fibro and I and dr are

wonding if it's a misdx) hope to learn lots.

> > >

> > > oh son has PANDAS as well and I have heard connections between the 2 any

info to share is greatly apprectiate. we have been oh propholatic antibioitcs

for about 8 months with our LIA dr for the PANDAS, he is on several other

suppliments as well and on the gfcfsf diet as well as other things he is

allergic to.

> > >

> > > not sure what other info would be important

> > >

> >

>

[Guest guest]

hello and thank for replay my son is naw 6 hi was diagnosed at age 3.6 i live in Ireland and i do speak bulgarian but i can deal with english aswell no problems but my writening is just bad i will say in Irelad i m not shure if someone can help me as no one beleive that autism and parasits or viruses cos it everyone think that is psiho desease and i have to admit it i did too many figthing i dont want to explain my self any more here in ireland no sens no one whant even to sith 1h and surch to get informed even for curiosity.

thank you

Subject: Re: New to the groupTo: BorreliaMultipleInfectionsAndAutism Date: Tuesday, 30 November, 2010, 3:41

What language to you speak so someone here may can help you in your language? What country do you live so we can see if there is a good doctor near you? If your child is only 3 years old, then you must be careful, so it will be important to find a good doctor and to learn much. Your doctor who uses bioresanance should be able to help with the parasite. It is common to hear parents of children with autism to say that they have bad bacteria, toxins, viruses, parasites, and even more problems. Our children usually have all of these problems, but each child will be a little different.Love and prayers,Heidi N>>

Hello All> Im new to the group I have son with autistic simptoms sevier and sorry at the begining for my inglish.> My son has been diagnosed at age 3,6 after very strong 6 weeks regres in all areas of the development .> We have done bioresonans test wich showes toxins of posibel 10 hookwarms in the brain lungs possibly as test doesnt show wich are the exact hookwarms.could someone navigate me how you disover or suspect that you or your kid have parasites or viruses as i do antiviral treatment but realy dont see much of impruvment.I did lab test wich didnt show parasits test was CSA with GPL.I do give LDM100 but dont know what to look for also garlic,OoO,OLE,GSE,but realy im confused as i dont realy know what im doing.I have been ofered from the bioresonans test treatment with waves for hookwarms and viruses and i will give a try as i dont realy know what to treat as my sone doesnt have a diagnose of virus or parasit yet.Im not shure

what im doing and what to expect simptoms are here leeking mouthing eating none food objects sreeming visual stims spiting on his fingers scraching surfases vocal stimss saunds only as hi is non verbal 5 words coming and going exept mama but we do have eye contact and bit undurstanding.im member of other groups like mercury and autism where we do helation with AC protocol but very begining 6 weeks only and the group pandas and autism aswell.> Thank you for reading > Thank you ALL>

[Guest guest]

Ralitsa,

I am Bulgarian as well I couldn't send you privite email, but please feel

free to send me and if I can answer any questions.

Krassi

> >

> > Hello All

> > Im new to the group I have son with autistic simptoms sevier and sorry at

the begining for my inglish.

> > My son has been diagnosed at age 3,6 after very strong 6 weeks regres in all

areas of the development .

> > We have done bioresonans test wich showes toxins of posibel 10 hookwarms in

the brain lungs possibly as test doesnt show wich are the exact hookwarms.could

someone navigate me how you disover or suspect that you or your kid have

parasites or viruses as i do antiviral treatment but realy dont see much of

impruvment.I did lab test wich didnt show parasits test was CSA with GPL.I do

give LDM100 but dont know what to look for also garlic,OoO,OLE,GSE,but realy im

confused as i dont realy know what im doing.I have been ofered from the

bioresonans test treatment with waves for hookwarms and viruses and i will give

a try as i dont realy know what to treat as my sone doesnt have a diagnose of

virus or parasit yet.Im not shure what im doing and what to expect simptoms are

here leeking mouthing eating none food objects sreeming visual stims spiting on

his fingers scraching surfases vocal stimss saunds only as hi is non verbal 5

words coming and going exept mama

> but we do have eye contact and bit undurstanding.im member of other groups

like mercury and autism where we do helation with AC protocol but very begining

6 weeks only and the group pandas and autism aswell.

> > Thank you for reading

> > Thank you ALL

> >

>

[Guest guest]

If I were in Europe, I would consider seeing a CEASE homeopath (there are less over here). Google it and/or read Dr. Tinus Smits' book, Autism, Beyond Despair: Homeopathy has the Answers. There are quite a few in Europe (he is from Norway).A link is here: http://www.cease-autism.com/3842/autism.aspxsallyFrom: Krassi

To: BorreliaMultipleInfectionsAndAutism Sent: Tue, November 30, 2010 8:46:31 AMSubject: Re: New to the group

Ralitsa,

I am Bulgarian as well I couldn't send you privite email, but please feel free to send me and if I can answer any questions.

Krassi

> >

> > Hello All

> > Im new to the group I have son with autistic simptoms sevier and sorry at the begining for my inglish.

> > My son has been diagnosed at age 3,6 after very strong 6 weeks regres in all areas of the development .

> > We have done bioresonans test wich showes toxins of posibel 10 hookwarms in the brain lungs possibly as test doesnt show wich are the exact hookwarms.could someone navigate me how you disover or suspect that you or your kid have parasites or viruses as i do antiviral treatment but realy dont see much of impruvment.I did lab test wich didnt show parasits test was CSA with GPL.I do give LDM100 but dont know what to look for also garlic,OoO,OLE,GSE,but realy im confused as i dont realy know what im doing.I have been ofered from the bioresonans test treatment with waves for hookwarms and viruses and i will give a try as i dont realy know what to treat as my sone doesnt have a diagnose of virus or parasit yet.Im not shure what im doing and what to expect simptoms are here leeking mouthing eating none food objects sreeming visual stims spiting on his fingers scraching surfases vocal stimss saunds only as hi is non verbal 5 words coming and going

exept mama

> but we do have eye contact and bit undurstanding.im member of other groups like mercury and autism where we do helation with AC protocol but very begining 6 weeks only and the group pandas and autism aswell.

> > Thank you for reading

> > Thank you ALL

> >

>

[Guest guest]

Here is a link to some doctors in Europe who know about the medical causes of

autism. Scroll down to the bottom to find the ones in Europe.

http://www.lymehope.com/Klinghardt%20Referral%20List.pdf

Love and prayers,

Heidi N

> > >

> > > Hello All

> > > Im new to the group I have son with autistic simptoms sevier and sorry at

the

> >begining for my inglish.

> > > My son has been diagnosed at age 3,6 after very strong 6 weeks regres in

all

> >areas of the development .

> > > We have done bioresonans test wich showes toxins of posibel 10 hookwarms

in

> >the brain lungs possibly as test doesnt show wich are the exact

hookwarms.could

> >someone navigate me how you disover or suspect that you or your kid have

> >parasites or viruses as i do antiviral treatment but realy dont see much of

> >impruvment.I did lab test wich didnt show parasits test was CSA with GPL.I do

> >give LDM100 but dont know what to look for also garlic,OoO,OLE,GSE,but realy

im

> >confused as i dont realy know what im doing.I have been ofered from the

> >bioresonans test treatment with waves for hookwarms and viruses and i will

give

> >a try as i dont realy know what to treat as my sone doesnt have a diagnose of

> >virus or parasit yet.Im not shure what im doing and what to expect simptoms

are

> >here leeking mouthing eating none food objects sreeming visual stims spiting

on

> >his fingers scraching surfases vocal stimss saunds only as hi is non verbal 5

> >words coming and going exept mama

> > but we do have eye contact and bit undurstanding.im member of other groups

> >like mercury and autism where we do helation with AC protocol but very

begining

> >6 weeks only and the group pandas and autism aswell.

> > > Thank you for reading

> > > Thank you ALL

> > >

> >

>