Re: New to Group - Have questions in Tennessee

[Guest guest]

's mom-

Welcome to the group! I don't know offhand of anything in

Tennessee, but would suggest you go to the board (I'm not sure

how you read these messages - individual e-mails or on the board),

and search the archives for Memphis or Tennessee and hopefully

they'll be some information there. It doesn't look like Cranial

Technologies has a location near you (I checked their website), but

perhaps there is a STARband or NOPCO or other local helmet orthotist

in your area. If not, check the archives for information on Angel

Flight - they'll fly you to a Cranial Tech location if you can't get

some sort of treatment in your area. Good luck, and I would

definitely try a band before surgery as long as your daughter has

plagio and craniosynstosis (where the plates prematurely fuse)! The

bands work wonders in the right (*trained* orthotist) hands!!

Kerri from NY

's mom (DOCgrad)

--- In Plagiocephaly , " Comas " <macomas@y...>

wrote:

> Hello everyone! I'm new to this group and was wondering if anyone

> here lives in the Memphis, Tennesse area. My 6 month old daughter

> went to a neurosurgeon about a week ago and he strongly suggested

> that I operate on her little head!! I was in obsolute shock when

he

> told me that. I later called back to find out exactly what was

the

> diagnosis that she has and they told me occipital plagiocephaly.

I

> know someone whose son has that and knew that she got this DOC

band

> for him and that it has been very successful. I then called the

> doctor's office again to find out if my daughter could possibly be

a

> candidate for these helmets. I just received a call that the

doctor

> said 'NO' because the helmets are not very successful. I find

that

> hard to believe after reading so many of the messages posted on

this

> group. I would much rather try the helmet than cutting up a

little

> baby's head!!!

>

> That is why I was wondering if anyone else lives in my area and

can

> recommend a doctor for me and does anyone have any suggestions?

We

> recently moved to this state from New Jersey and really don't know

> any physicians.

>

> Desperate in Memphis,

>

> Mom to (6 mos.)

[Guest guest]

,

Welcome to the group! Posts like yours really upset me.

If you baby has positional plagio she will benefit from band

therapy! This specialist is obviously very, very old school. Many

years ago plagio babies did have to have surgery to correct their

mishappened heads. Not anymore!! As long as the sutures aren't fused

there is no need for surgery. These bands and helmets DO work and

it's proven over and over again. I'm sure our members from Tennessee

will reply to your post as soon as they see it. In the meantime you

can check out these sites to see if they have treatment available in

your area.

http://www.cranialtech.com

http://www.orthomerica.com

Please keep us posted!!

I forgot to add that a second opinion is ALWAYS a good thing.

--- In Plagiocephaly , " Comas " <macomas@y...>

wrote:

> Hello everyone! I'm new to this group and was wondering if anyone

> here lives in the Memphis, Tennesse area. My 6 month old daughter

> went to a neurosurgeon about a week ago and he strongly suggested

> that I operate on her little head!! I was in obsolute shock when

he

> told me that. I later called back to find out exactly what was the

> diagnosis that she has and they told me occipital plagiocephaly. I

> know someone whose son has that and knew that she got this DOC band

> for him and that it has been very successful. I then called the

> doctor's office again to find out if my daughter could possibly be

a

> candidate for these helmets. I just received a call that the

doctor

> said 'NO' because the helmets are not very successful. I find that

> hard to believe after reading so many of the messages posted on

this

> group. I would much rather try the helmet than cutting up a little

> baby's head!!!

>

> That is why I was wondering if anyone else lives in my area and can

> recommend a doctor for me and does anyone have any suggestions? We

> recently moved to this state from New Jersey and really don't know

> any physicians.

>

> Desperate in Memphis,

>

> Mom to (6 mos.)

[Guest guest]

--Hi and welcome to the group. We are in mIssouri but i just wanted

to tell you these helmets do work!!! In the files section there is

a list of our babies that have before and after band pictures.

Please check out these wonderful corrections with the bands. I hope

we have someone in your area who can reccommend another doctor.

Have you checked Out Orthomerica and Cranial technologies websites?

I believe you can search for an orthotist in your area, You do have

to get the prescription from a doctor though. Please get a second

opinion. My daughter jenna received wonderful correction after

wearing a STArband for 12 weeks. She was banded at 9 months.

Please keep us posted.

Angie and Jenna

- In Plagiocephaly , " Comas " <macomas@y...>

wrote:

> Hello everyone! I'm new to this group and was wondering if anyone

> here lives in the Memphis, Tennesse area. My 6 month old daughter

> went to a neurosurgeon about a week ago and he strongly suggested

> that I operate on her little head!! I was in obsolute shock when

he

> told me that. I later called back to find out exactly what was

the

> diagnosis that she has and they told me occipital plagiocephaly.

I

> know someone whose son has that and knew that she got this DOC

band

> for him and that it has been very successful. I then called the

> doctor's office again to find out if my daughter could possibly be

a

> candidate for these helmets. I just received a call that the

doctor

> said 'NO' because the helmets are not very successful. I find

that

> hard to believe after reading so many of the messages posted on

this

> group. I would much rather try the helmet than cutting up a

little

> baby's head!!!

>

> That is why I was wondering if anyone else lives in my area and

can

> recommend a doctor for me and does anyone have any suggestions?

We

> recently moved to this state from New Jersey and really don't know

> any physicians.

>

> Desperate in Memphis,

>

> Mom to (6 mos.)

[Guest guest]

Hi ,

Welcome to the group!

Although we ended up using agressive repositioning to treat our

daughter Remy's plagiocephaly, I wanted to respond because I live in

Kentucky, not too far from Memphis.

Since we didn't use the band, you want to take all of the great

advice in the responses from other group members, but I did want to

give you some information about available band and helmet options

near you if you ultimately end up going down that road. I used

Mapquest to determine the drive times from Memphis Area (I haven't

been able to locate anything close by, but I'm still going through

the message archives!) There are two Local Helmet, and one Doc Band

facility that I could find closest to Memphis.

Perhaps some of the Helmet and Band users will chime in and expain

the difference between a Local Helmet and a Doc Band?

Take care,

Christie (Mom to Remy)

Center for Orthotic & Prosthetic Care at 1939 State

Street in New Albany, IN. 812-941-0966, www.centeropcare.com

Bob Havens, the orthotist

6 hours, 19 minutes

plagio group member who used them: juloyes@...

Local Helmet

Cranial Technologies, Inc.

975 Ferry Road, Suite 220

Atlanta, GA 30342

Phone: 404-236-0730

Toll Free: 866-636-3007

Fax: 404-236-0455

Clinician: Goodwin, PT

Clinician: Wood, OTR

7 hours, 12 minutes

Doc Band

Advanced OrthoPro

1820 North Illinois Street

Indianapolis, IN 46202

(317) 924-4444

7 hours, 33 minutes

plagio group member who used them: kellik@...

Local Helmet

--- In Plagiocephaly , " Comas " <macomas@y...>

wrote:

> Hello everyone! I'm new to this group and was wondering if anyone

> here lives in the Memphis, Tennesse area. My 6 month old daughter

> went to a neurosurgeon about a week ago and he strongly suggested

> that I operate on her little head!! I was in obsolute shock when

he

> told me that. I later called back to find out exactly what was

the

> diagnosis that she has and they told me occipital plagiocephaly.

I

> know someone whose son has that and knew that she got this DOC

band

> for him and that it has been very successful. I then called the

> doctor's office again to find out if my daughter could possibly be

a

> candidate for these helmets. I just received a call that the

doctor

> said 'NO' because the helmets are not very successful. I find

that

> hard to believe after reading so many of the messages posted on

this

> group. I would much rather try the helmet than cutting up a

little

> baby's head!!!

>

> That is why I was wondering if anyone else lives in my area and

can

> recommend a doctor for me and does anyone have any suggestions?

We

> recently moved to this state from New Jersey and really don't know

> any physicians.

>

> Desperate in Memphis,

>

> Mom to (6 mos.)

[Guest guest]

Hi and welcome to the group!! I won't repeat what you've already

been told, but will tell you that you've gotten some great replies.

I really hope your able to find treatment for your daughter. Please

keep us posted on how you and are doing.

Dustie

--- In Plagiocephaly , " Comas " <macomas@y...>

wrote:

> Hello everyone! I'm new to this group and was wondering if anyone

> here lives in the Memphis, Tennesse area. My 6 month old daughter

> went to a neurosurgeon about a week ago and he strongly suggested

> that I operate on her little head!! I was in obsolute shock when

he

> told me that. I later called back to find out exactly what was the

> diagnosis that she has and they told me occipital plagiocephaly. I

> know someone whose son has that and knew that she got this DOC band

> for him and that it has been very successful. I then called the

> doctor's office again to find out if my daughter could possibly be

a

> candidate for these helmets. I just received a call that the

doctor

> said 'NO' because the helmets are not very successful. I find that

> hard to believe after reading so many of the messages posted on

this

> group. I would much rather try the helmet than cutting up a little

> baby's head!!!

>

> That is why I was wondering if anyone else lives in my area and can

> recommend a doctor for me and does anyone have any suggestions? We

> recently moved to this state from New Jersey and really don't know

> any physicians.

>

> Desperate in Memphis,

>

> Mom to (6 mos.)

[Guest guest]

Hi ,

Ignore the Charlotte comment - I was thinking of Knoxville.

Re: New to Group - Have questions in Tennessee

Hi ,Welcome to the group!Although we ended up using agressive repositioning to treat our daughter Remy's plagiocephaly, I wanted to respond because I live in Kentucky, not too far from Memphis.Since we didn't use the band, you want to take all of the great advice in the responses from other group members, but I did want to give you some information about available band and helmet options near you if you ultimately end up going down that road. I used Mapquest to determine the drive times from Memphis Area (I haven't been able to locate anything close by, but I'm still going through the message archives!) There are two Local Helmet, and one Doc Band facility that I could find closest to Memphis.Perhaps some of the Helmet and Band users will chime in and expain the difference between a Local Helmet and a Doc Band?Take care,Christie (Mom to Remy)Center for Orthotic & Prosthetic Care at 1939 State Street in New Albany, IN. 812-941-0966, www.centeropcare.comBob Havens, the orthotist 6 hours, 19 minutes plagio group member who used them: juloyes@...Local HelmetCranial Technologies, Inc.975 Ferry Road, Suite 220Atlanta, GA 30342Phone: 404-236-0730Toll Free: 866-636-3007Fax: 404-236-0455Clinician: Goodwin, PTClinician: Wood, OTR7 hours, 12 minutesDoc BandAdvanced OrthoPro1820 North Illinois StreetIndianapolis, IN 46202(317) 924-44447 hours, 33 minutes plagio group member who used them: kellik@...Local Helmet> Hello everyone! I'm new to this group and was wondering if anyone > here lives in the Memphis, Tennesse area. My 6 month old daughter > went to a neurosurgeon about a week ago and he strongly suggested > that I operate on her little head!! I was in obsolute shock when he > told me that. I later called back to find out exactly what was the > diagnosis that she has and they told me occipital plagiocephaly. I > know someone whose son has that and knew that she got this DOC band > for him and that it has been very successful. I then called the > doctor's office again to find out if my daughter could possibly be a > candidate for these helmets. I just received a call that the doctor > said 'NO' because the helmets are not very successful. I find that > hard to believe after reading so many of the messages posted on this > group. I would much rather try the helmet than cutting up a little > baby's head!!!> > That is why I was wondering if anyone else lives in my area and can > recommend a doctor for me and does anyone have any suggestions? We > recently moved to this state from New Jersey and really don't know > any physicians.> > Desperate in Memphis,> > Mom to (6 mos.)For more plagio info

[Guest guest]

, thanks for the information. Have you given Christie this

information? She is compiling a list of local helments and bands for

our files section.

Dustie

> I don't know the specifics in your case but my daughter saw and is

> still seeing a wonderful pediatric plastic surgeon at Vanderbilt

> Univ. Medical Ctr. here in Nashville. My daughter did not need

> surgery but was recommended for the helmet, which was locally made,

> and she had great improvement wearing it. Email me if you might be

> interested in calling his office and I will give you the number.

>

>

> Mackenzie 13 months old

> Started Treatment 4-17-03

> Graduated 07-21-03

[Guest guest]

Dustie,

I just emailed ! I was so happy to see that she may have

info on a local helmet in the area -- we just don't have many

options in the Kentucky/Tennessee area, so this information should

be a big help!

Christie

> , thanks for the information. Have you given Christie this

> information? She is compiling a list of local helments and bands

for

> our files section.

>

> Dustie

>

> --- In Plagiocephaly , " " <weldon2@b...>

wrote:

> > I don't know the specifics in your case but my daughter saw and

is

> > still seeing a wonderful pediatric plastic surgeon at Vanderbilt

> > Univ. Medical Ctr. here in Nashville. My daughter did not need

> > surgery but was recommended for the helmet, which was locally

made,

> > and she had great improvement wearing it. Email me if you might

be

> > interested in calling his office and I will give you the number.

> >

> >

> > Mackenzie 13 months old

> > Started Treatment 4-17-03

> > Graduated 07-21-03