justin

[Guest guest]

Hello all,

Hope the New Year is wonderful for all of you. Mr.

was hospitalized for 2 weeks before Christmas

with severe back pain, headache, fever....really never

got to the source of infection, no rejection. Decided

the prograf could cause a lot of the problems so they

took him off. Took many days for it to come down

before they could start the Neoral. He came home on

Christmas Eve and slept for the next day or so, really

not feeling much better. Got a call on Wednesday

saying he needed to come in for a biopsy on Friday

since his numbers had shot way up again in the 2 days.

So...he's had every test known to man. Again had the

backache, fever, headache. Nothing shows up for source

of infection though they have treated him IV, with

antiviral and antibacterial antibiotics. Did the

biopsy yesterday and as of this morning, the

preliminary results don't show much. They even debated

as to whether too much damage had somehow occured to

the new liver but that has pretty much been ruled out.

Tomorrow all the docs will thoroughly look at the

biopsy comparison and decide about anything new. His

liver numbers have come back down fairly nicely but

his bili is all time high at 16. Weird though because

he didn't appear as yellow. The only thing they really

see is " slugy bile " . So, he's taking more actigol and

fish oil and something else to try and clean it out.

They say the bili will take time to come down.

Possibly, he'll get to come home again tomorrow. It's

pretty sick to think that driving and parking and

making my way through the hospital has become so

automatic.....At least none of the awful stuff has

shown up. Something to be thankful for.

Hope all of you have a better year than the last have

been.

Ruth

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[Guest guest]

Ruth/,

If it is any comfort at all we know someone who had to

have another tx and he said the second time was sooo

much easier than the first tx. I am so sorry all of

you have to go through this again and can't blame any

of you for being discouraged and wrung out. You do

know we will all be praying and pulling for you as

hard as we can.

=====

Peg,wife of Phil(58), UC 30 yrs, dx PSC 12/98, Listed UCLA 3/2000,status

3,living in LA, CA suburbs, 2 kids, 5 grandchildren, 2 cats

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