Guest guest Posted August 19, 2003 Report Share Posted August 19, 2003 Kim- That stinks. I hope the infection clears up quickly for Olivia. At least you will have a new band and hopefully a fresh start in the right direction. I'm sure CT will be addressing the fact that you were told to keep the band on her when the spot was getting tender- very unusual advice considering skin breakdown is a big concern and often avoided at all costs. CT should expedite the new band to make up for lost time. Keep us posted on how Olivia's healing up. nicholas'mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2003 Report Share Posted August 19, 2003 Kim, I'm so sorry to hear about all this. If it makes you feel any better, my Daughter had to be casted 4 times during the banding treatment and she actually only wore 1 band. Good Luck getting the breakdown cleared up and back to rounding. Dustie > Well, we went to the pediatrician yesterday, and she prescribed an > anti-infection cream to put on her skin breakdown. They feel it > will take at least a week for the skin to heal, so she will be out > of her band for awhile. She has had it off since Saturday, and the > progress she had been making, is already gone. I'm so depressed and > mad, because I knew this spot was looking bad, but was told to keep > the band on, anyway. Cranial Technologies told me that she will > need to get a new band, because it won't fit her anymore once it's > safe to put the band back on. So Olivia will have to go through > with getting recasted all over again. This has been such a > miserable experience and I feel so bad for my daughter. I have > never read about anyone having to go through all of this, that is > why we went with the DOC Band. I'm hoping that once she gets a new > band, we won't have to go through all the problems that we have been > having. Keep your fingers crossed that her skin heals quickly. > > -Kim (mom to Olivia) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2003 Report Share Posted August 19, 2003 Kim, I'm so sorry! This really does suck. But it is only a good thing that Olivia will be getting a whole new band!! was only in her first band from July to Sept due to major skin issuses. She ended up getting an infection. She was recasted, and got a new band, it was smooth sailing from then on. I'll keep my fingers crossed that, that is the case w/Olivia too. Keep us posted. Enjoy her naked little head. > Well, we went to the pediatrician yesterday, and she prescribed an > anti-infection cream to put on her skin breakdown. They feel it > will take at least a week for the skin to heal, so she will be out > of her band for awhile. She has had it off since Saturday, and the > progress she had been making, is already gone. I'm so depressed and > mad, because I knew this spot was looking bad, but was told to keep > the band on, anyway. Cranial Technologies told me that she will > need to get a new band, because it won't fit her anymore once it's > safe to put the band back on. So Olivia will have to go through > with getting recasted all over again. This has been such a > miserable experience and I feel so bad for my daughter. I have > never read about anyone having to go through all of this, that is > why we went with the DOC Band. I'm hoping that once she gets a new > band, we won't have to go through all the problems that we have been > having. Keep your fingers crossed that her skin heals quickly. > > -Kim (mom to Olivia) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2003 Report Share Posted August 19, 2003 Oh, Kim, how frustrating! I really hope Olivia heals quickly and that new band is rushed to CT for you... What happens from an insrunce standpoint now - they don't charge you for a second band, do they? I hope Olivia does well with her new casting - will that be next week sometime? Hang in there! HUGS, Kerri 's mom --- In Plagiocephaly , " scottlc2 " <kweaver@n...> wrote: > Well, we went to the pediatrician yesterday, and she prescribed an > anti-infection cream to put on her skin breakdown. They feel it > will take at least a week for the skin to heal, so she will be out > of her band for awhile. She has had it off since Saturday, and the > progress she had been making, is already gone. I'm so depressed and > mad, because I knew this spot was looking bad, but was told to keep > the band on, anyway. Cranial Technologies told me that she will > need to get a new band, because it won't fit her anymore once it's > safe to put the band back on. So Olivia will have to go through > with getting recasted all over again. This has been such a > miserable experience and I feel so bad for my daughter. I have > never read about anyone having to go through all of this, that is > why we went with the DOC Band. I'm hoping that once she gets a new > band, we won't have to go through all the problems that we have been > having. Keep your fingers crossed that her skin heals quickly. > > -Kim (mom to Olivia) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2003 Report Share Posted August 19, 2003 Hi Kim:Oh man, I'm so sorry to hear this Argh, I'm happy replied to you with her similar story. Hang in there. I hope the infection quickly clears up and she'll be in a new band soon. Big hugs!!! Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2003 Report Share Posted September 29, 2003 Olivia has been in her new band for two weeks now, and is doing so much better than when she was in the original band. We went back today for her first growth adjustment, and so far so good. We only had to make one trip two days after she got the band for some minor adjustments. It's been such a relief to not have to go back and forth every other day for adjustments like the last time. Also, her skin seems to be doing really well. I don't have to hold my breath every time I take off her band now, worrying that a new red spot will pop up. I really think that with her old band, her head really grew between the casting and when we got the band 2 1/2 weeks later, because why else would there have been so many problems? It's like night and day comparing the two bands!! Anyway, thanks again for everyone's concern (especially Stacey) about Olivia. I hope your babies heads are rounding away!! -Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2003 Report Share Posted September 29, 2003 Thanks for the great update!! Angie and Jenna Update on Olivia Olivia has been in her new band for two weeks now, and is doing so much better than when she was in the original band. We went back today for her first growth adjustment, and so far so good. We only had to make one trip two days after she got the band for some minor adjustments. It's been such a relief to not have to go back and forth every other day for adjustments like the last time. Also, her skin seems to be doing really well. I don't have to hold my breath every time I take off her band now, worrying that a new red spot will pop up. I really think that with her old band, her head really grew between the casting and when we got the band 2 1/2 weeks later, because why else would there have been so many problems? It's like night and day comparing the two bands!! Anyway, thanks again for everyone's concern (especially Stacey) about Olivia. I hope your babies heads are rounding away!! -Kim For more plagio info Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2003 Report Share Posted September 29, 2003 Glad to hear Olivia is doing so well in her second band. Yippee!!! Keep us posted. Lori and on DOCGRAD 9/19 > Olivia has been in her new band for two weeks now, and is doing so > much better than when she was in the original band. We went back > today for her first growth adjustment, and so far so good. We only > had to make one trip two days after she got the band for some minor > adjustments. It's been such a relief to not have to go back and > forth every other day for adjustments like the last time. Also, her > skin seems to be doing really well. I don't have to hold my breath > every time I take off her band now, worrying that a new red spot > will pop up. I really think that with her old band, her head really > grew between the casting and when we got the band 2 1/2 weeks later, > because why else would there have been so many problems? It's like > night and day comparing the two bands!! Anyway, thanks again for > everyone's concern (especially Stacey) about Olivia. I hope your > babies heads are rounding away!! > > -Kim Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.