Guest guest Posted December 31, 2001 Report Share Posted December 31, 2001 They only kept me about 4 hrs. after the procedure, I am not sure why but they told me when they did it I might have to stay a while. At that point they thought it was my gallbladder and were going to do surgery the next day but after the results of the ERCP they changed their mind. I had no problem from it. Good luck Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2002 Report Share Posted January 16, 2002 You may want to try Rifampin. A few in the group, including myself, found it to work better than other treatments. For me, I tried cholestrymine and Hydroxone (sp?) but didn't work as well. The only side effect I found was orange urine, which stinks too. Darin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2002 Report Share Posted January 16, 2002 Kath, You may also want to consider having take all his Urso at night before going to bed. I found it helped as have many others in the group. At the very least, it makes it easier to take and will help with the queasiness he may experience after taking it. Darin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2002 Report Share Posted February 12, 2002 Hi Kath.... last sat you wrote about how bad is feeling and how he is making you crazy... It is very hard being the caregiver...if we don't worry and ask about remembering meds and to call dr about certain things then we would be considered ...uncaring...cruel...cold...and so on....If we worry..ask all the questions...remind them about meds..calling doctors...well then we are NAGS.....You know what....I am a wife and mom ...I have EARNED the right to Nag...lol... I know Ty hates it when I am on him...then I became a lurker ...but he caught on to that too....darn....so now I really have to watch in silence...and just little peaks.... The one thing they don't know is that they think they are hiding the way they feel...being strong...whatever...but I know when Ty doesn't feel well....I have learned to read him....but to turn that around...I also try to hide when I am not feeling very well...and he has learned to read me...He was talking to his dad from work and he said that I was not feeling well...I asked him later how did he know that....his answer was ....I looked at you....so I guess we all try to pull that.... It is a shame that he is going to wait for his appointment...when maybe he could be getting some relief.... We have had no experience with cipro so I don't know if that is one of its side effects...hopefully someone else on it can let you know....I would ask the doctor ...just a phone call... Glad to see that Marty is doing so much better and homeward bound if not already there.... also nice that you got to meet this man in person and talk about PSC and all...should ease your mind somewhat... The pillbox is a wonderful idea...I got one for Ty and he sets it up...one less nagging thing for him to hear...he also takes many meds...and then he takes some just m,t,w,and others m,w....makes it hard to remember... Ahhhh..just saw an email saying that is an RN...don't they always say ...Doctors and nurses make the worst patients...lol....my thoughts are with you...but I am glad that he is enjoying his job... Hope your yellow lab has returned... Luanne Tys' mom Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2002 Report Share Posted February 18, 2002 Hi Kath... Tell that we will be thinking about him this coming wed....is this his first liver biopsy....Most here don't really have any problems with this test...and if the doctor is good it is done before you know it....Tys went very well and took no time at all...barely sat long enough to get comfortable before they were in talking to me.... As far as itching...have they given him anything for it...Ty has taken Benadryle for it in the past...helped him then...others have taken another med...and some are doing light therapy..which really seems to help... I know you are all worried...but try to relax...don't drive yourself crazy....but I do admit that the car is a great place to cry.... The kids must be rather confused over all this...Molly is rather young to have to absorb all of this.... probably needs to know...he is a young man and could be of some help with the understanding and helping with things....and ...13 can be a tough age...she could be very mature and handle everything fine....or she would be so caught up in being a teen....yikes...well you know what I mean... The only thing I will add here...when I was young my mom had to have surgery for a lump in her breast...no one told me....kept it a secret....didn't want to worry me...Well to this day I am rather aggravated at that decision...it was my moms...but I felt that I should have known...what if something had happened and I didn't even know she was in the hosp....so I am very upfront with Ty and his siblings.... Sounds like your trip to NH should be good for everyone...hope you had a great time... As far as keeping up with the group...Well I have good times and bad....I can go months on end and never get the chance to do more than read...if even that sometimes....We all go thru that .... When Ty was in the hosp so much last yr I never had time to read all the mail....I stay with him....and when I could I would read...got so far behind...what I really needed was the support of the people here...but they didn't even know that we were in the hosp...because I felt funny posting and asking for support when I didn't have time to give it....Well I was wrong and I was the one who paid for it...I needed to talk to others ...there was way too much going on and I felt really alone...I did get in touch when we finally got home and I let everyone know what we had been thru...but I really needed them when it was going on....so I will not let that happen again... You wanted to know if I had other kids...Yes...I also have 3...le is 27 and lives in Chicago...been there for about 5 yrs.... is 24..almost...in April... and lives in Atlanta....and will be on tour all summer....so will be all over the country...and Tyler is 19...lives at home and goes to the county college .....he was too sick to be in school most of his senior yr...and was in the hosp most of the time....so had no grades to apply...He is enjoying college...works part time in the winter and works at Great Adventure here in NJ....where we live....he bought himself a jeep last spring ...and really enjoys that...it is his baby....all he thinks about...also likes music..plays guitar...bass guitar..trumpet..melaphone and trombone...played all of those in school ...now plays mostly his guitars... Remember to tell that we will be thinking of him...on Wed... you take care of yourself...and talk to you again soon... Luanne Ty's mom Quote Link to comment Share on other sites More sharing options...
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