Re: Those of you with HASHI's

August 23, 2003

Days, weeks, depends on what causes it. I am worried because I am aching more

all the time since I started Armour. I am hoping my body doesn't think it is my

thyroid, so the Hashi antibodies are trying to kill it!

Those of you with HASHI's

You guys have taught me something!! So when you get the flairs, you

have achiness??? Very interesting. Does a flairup start with

achiness?? Is that your first sign?? How long does it usually last?

Janie

August 23, 2003

> Days, weeks, depends on what causes it. I am worried because I am

aching more all the time since I started Armour. I am hoping my body

doesn't think it is my thyroid, so the Hashi antibodies are trying

to kill it!

The latter can be the cause. And as you increase your Armour, you

will find relief.

Janie

August 23, 2003

We just upped me to 45 grains which is the highest dose I have ever taken. I

used to go hyper on less than that. It has only been a couple of weeks, but so

far no improvement. I am splitting it to 3x a day. I am noticing in-between

doses I get tired. I used to take all the Synthroid in the AM. My heart has

started beating hard at night. I am hoping I can handle this dose!

Re: Those of you with HASHI's

> Days, weeks, depends on what causes it. I am worried because I am

aching more all the time since I started Armour. I am hoping my body

doesn't think it is my thyroid, so the Hashi antibodies are trying

to kill it!

The latter can be the cause. And as you increase your Armour, you

will find relief.

Janie

August 23, 2003

Janie,

I am not even sure 100% I have Hashi's but was told I had it even

though my anti's were ok, only one were was tested. What I do get

also is the swollen glads too and the occasional soar throat and

then the next wake up fine. It can last from one afternoon to many

days to weeks too. You feel gross but you never really come down

with anything.It always feels like you are running a fever. The

increased dose helped for a while but then it started again. I also

went back down to my 90mg due to after 2 weeks on 2 grains starting

to feel weird so I stopped 2 doses and it broke the feeling and went

back to last dose. So now after screwing myself up am back to the

latter dose and feeling depressed again for stopping for 24 hrs!!!

It will catch up in a day or so. I also had a touch of a stomach

thing so not sure if it was that or not. Also with the iron i am now

on hoping maybe I won't need to try upping again......we shall see

but the last few days have been my achey yuck feeling days. My

youngest has been sick with a sinus/fever thing so not sure if I am

fighting that off or my usual yuck thing!!!LOL!!!

August 24, 2003

I really think you need to take more Armour, Jamy. If I remember

correctly, you are taking a small dose.

Zina

>

> Days, weeks, depends on what causes it. I am worried because I am

aching more all the time since I started Armour. I am hoping my body

doesn't think it is my thyroid, so the Hashi antibodies are trying to

kill it!

>

> Those of you with HASHI's

>

> You guys have taught me something!! So when you get the flairs,

you

> have achiness??? Very interesting. Does a flairup start with

> achiness?? Is that your first sign?? How long does it usually

last?

>

> Janie

>

August 24, 2003

On the 8th, we just upped my dose another 15 mg. I will be retested on the 20th

of Sept. That will be just at 6 weeks. This is the highest thyroid dose I have

ever been able to tolerate. I went very hyper on 0.50 Synthroid with a hearty

rate of 200 beats per minute.

Those of you with HASHI's

>

> You guys have taught me something!! So when you get the flairs,

you

> have achiness??? Very interesting. Does a flairup start with

> achiness?? Is that your first sign?? How long does it usually

last?

>

> Janie

>

August 24, 2003

, thanks so much for this- it gives me more of an understanding about

hashis and autoimmune diseases.

Hugs,

Feisty

Those of you with HASHI's

What I can tell you in my experience with autoimmune...and I am still

learning more every day. You do not have to be out of the " normal "

range for antibodies, or even have the antibodies show up to actually

have " Hashimoto's " or Graves. In fact, often when not in a flare up,

the antibodies will not even show on the blood test. While endos do

not seem to know this, Rhumeys do. I asked if my thyroiditis is

autoimmune to my Rhumey, and received a resounding YES even though my

antibodies were in normal range at the time of my tests. Actaully, my

ANA antibodies are in normal range as well, but I still Have

Sjogren's anyway you turn it. Rhumetologists, who are the actual

autoimmune specialists, seem to understand the autoimmune connection

with thyroid better than the endos do.

This week I have a little goiter. It is visible, but that is

partially my fault because I lowered my armour due to the palps from

the murmur, and am increasing again now that I know it is the murmur

and not the thyroid causing the problem. I have been back in a flare

since I started my period. This is the worst time, and some rhuemys

think that autoimmune is so much more common in women due to the sex

hormones we have. As our hormones wax and wane during the month, so

do autoimmune symptoms.

When you have autoimmune thyroid (which from what I understand is the

main reason for thyroid degeneration when no operations or cancer or

virus is at work when they don't know " why " ...because these tests can

come back normal and you can still have autoimmune thyroiditis)the

TSH WILL fluctuate, even though some docs say it does not. We get

better and worse, which they (endo and GP) say is impossible.

Eventually some damage you do not recover from, and it IS a

progressive disease. It will get worse. BUT in the meantime it seems

that you deal with ups and downs. The nature of autoimmune is to wax

and wane, and do damage to organs while it is flared up, then receed,

then flare a little worse the next time, etc. The aches and pains and

fatigue in autoimmune process will get better and worse, it would

seem, no matter your dose of thyroid, because the swelling caused by

the " attack " causes fatigue in itself that has nothing to do with the

thyroid finction ITSELF.

Just a few things to think about when some days it seems your Armour

doesn't work...IT DOES, but it is not going to protect you from the

autoimmune process, and it is not going to life the fatigue from the

Hashis. Remember, also, that if you have one autoimmune problem, you

are also at risk for developing others. If your fatigue becomes more

crushing with each flare and you know you are optimally dosed on

thyroid, its time to see a rhumey for further investigations.

.

August 24, 2003

Thanks for the info !!!! That would explain why I get that

incredible fatigue on and off. Like it does not seem to matter where

in my cycle I am as one day I do really well and others are awful,

like HAVE To lay down. I appear to be doing a little better since I

added the iron but not sure 100% yet if it is truly making a

difference. Have also been having a bit of nausea lately, not sure

why. Must say , what a pain trying to seperate all the pills so one

does not counteract the other and to remember to take them on

time!!!! I think the emtional end of things takes it toll too!!!

I still find I get incredibley edgy, like the true meaning of bitch,

need to find out the cause to fix it as I hate myself when I get

this way.

August 24, 2003

L-lysine is used for other antibody issues, herpes, HPV, what about for Hashi? I

took some to see what it would do for the aches. It seems there is a difference.

Could that be a placebo, or really working?