Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 > > Does anyone know, off of the top of your head, what the parental > income limit is for kids to receive ssi benefits? > Apply. If you get turned down, then apply for a Beckett waiver. Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 fjbgfk v Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 hey aaron! long time, no see... glad sydney's in school, just wish it was the one you wanted. and yes, a lawsuit sounds good to me! about andrew, sorry he has fragile x and glad he has it too, at least now you have a specific path to follow. was syd tested too, were you? oh yeah, good luck with the meeting! cool about the conference! will we see you in pa too?! about the questions- don't have a home, therefore i have no mortgage. sorry to find out about ssi eligibility go to http://best.ssa.gov/ What is BEST? The Benefit Eligibility Screening Tool (BEST) is a tool that you can use to find out if you could be eligible for benefits from any of the programs Social Security administers. This tool will give you eligibility information based on answers you give to the questions on the following pages; however, BEST is not an application for benefits and: a.. will not give you an estimate of benefit amounts. b.. does not know, or ask for, your name or Social Security number. c.. does not access your personal Social Security records. " We never die, just go through hell and regroup again. " - Mullins Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 > fjbgfk v < good answer, putter! why didn't i think of that?! ppppppppppppppppotato! " We never die, just go through hell and regroup again. " - Mullins Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 , Sorry I dont have any answers to your questions. Glad you checked in though. Jacquie H > Hi all, > > Hope everyone is well, sorry to be so distant. > > The rundown: > > Syd's in a private pre-school with NT kids, with a full-time aide and > an inclusion specialist. Not my ideal placement, but at least he's > doing something with other kids. Still fighting the school district > to get him in an ASRD classroom and now also fighting to get them to > pay for what we've got him in. Ugh. Referral to the school district > was made 9/6/2001. Lawsuit? > > Probably going the the ASA conference in Pasadena on Regional > Center's ticket this March. Woo-hoo! > > was screened for fragile-x and came up positive. No more > wondering about Pitocin, vaccines, etc. And should help to find > medication that will work on his anxiety/etc. > > Yearly review IEP for coming up on Friday to determine > placement for next year. Cross yer fingers... > > The questions: > > How is everyone? > > Has anyone on the list had any experience with Fannie Mae and their > mortgage program for families with disabled kids? Thoughts? > > Does anyone know, off of the top of your head, what the parental > income limit is for kids to receive ssi benefits? > > Cheers, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 > > fjbgfk > v < > > > good answer, putter! why didn't i think of that?! > > ppppppppppppppppotato! > Probably because he is smarter than all of us NT fools. Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2002 Report Share Posted February 21, 2002 > > fjbgfk > v < > > > good answer, putter! why didn't i think of that?! > > ppppppppppppppppotato! > > Probably because he is smarter than all of us NT fools. Salli < yes, that's what i figured and you can see what kailey thought " We never die, just go through hell and regroup again. " - Mullins Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 > Syd's in a private pre-school with NT kids, with a full-time aide and > an inclusion specialist. Not my ideal placement, but at least he's > doing something with other kids. Still fighting the school district > to get him in an ASRD classroom and now also fighting to get them to > pay for what we've got him in. Ugh. Referral to the school district > was made 9/6/2001. Lawsuit? What's an ASRD classroom? Wow. In Ontario, you have three choices that *I* know of: inclusion in regular ed with an aide and sped supports, paying through the nose to have your child in a private autism classroom (you have to move to Toronto for that), or private ABA classroom, paid for by the Ontario gov't until the child is 6. That's it, that's all. > was screened for fragile-x and came up positive. No more > wondering about Pitocin, vaccines, etc. And should help to find > medication that will work on his anxiety/etc. Well, that sucks and that's great! ANSWERS. Answers are ALWAYS good! > How is everyone? Day-by-day, babe. Day-by-day. Jacquie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 > > > yes, that's what i figured and you can see what kailey thought > Definitely the same fine ASD-type mind. No doubt they would understand each other although they wouldn't want to particularly. Salli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 -, I know what you mean by being distant, stuff happens. I hope you can get the ASRD classroom for Syd.In New York it seems more cost effective for kids to be put into this type of classroom as opposed to having an aide. Im not sure what having fragile x means, other than lots of similarites to autism (or a form of it). I guess there may be some medical stuff involved. I hope you find the right meds and a good placement for next year. Dont know much about the financial stuff, I was turned down for ssi based on income. I will try to get what they call a medicaid or katie beckett waiver. i believe i was told that the limit is 50,000 year. It may change from state to state, although it is a federally funded program. Good Luck, Thea -- In parenting_autism@y..., " cam_neely_should_be_in_the_hhof " <aaron@f...> wrote: > Hi all, > > Hope everyone is well, sorry to be so distant. > > The rundown: > > Syd's in a private pre-school with NT kids, with a full-time aide and > an inclusion specialist. Not my ideal placement, but at least he's > doing something with other kids. Still fighting the school district > to get him in an ASRD classroom and now also fighting to get them to > pay for what we've got him in. Ugh. Referral to the school district > was made 9/6/2001. Lawsuit? > > Probably going the the ASA conference in Pasadena on Regional > Center's ticket this March. Woo-hoo! > > was screened for fragile-x and came up positive. No more > wondering about Pitocin, vaccines, etc. And should help to find > medication that will work on his anxiety/etc. > > Yearly review IEP for coming up on Friday to determine > placement for next year. Cross yer fingers... > > The questions: > > How is everyone? > > Has anyone on the list had any experience with Fannie Mae and their > mortgage program for families with disabled kids? Thoughts? > > Does anyone know, off of the top of your head, what the parental > income limit is for kids to receive ssi benefits? > > Cheers, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 Hi - Nice to hear from you. >>>Ugh. Referral to the school district was made 9/6/2001. Lawsuit?<<< Geez! What's the hold up? >>Probably going the the ASA conference in Pasadena on Regional Center's ticket this March. Woo-hoo! <<< This is good news! >>> was screened for fragile-x and came up positive. No more wondering about Pitocin, vaccines, etc. And should help to find medication that will work on his anxiety/etc.<<<<< :-(. I'm sorry, ....you are right though...now you KNOW, and can move forward.... >>>Yearly review IEP for coming up on Friday to determine placement for next year. Cross yer fingers... <<<<< Crossing them!!! BTW...I still have the tape and I WILL be sending it to you...I need to make a few more copies, just hasn't been on my priority list. :-( - BUT I WILL send it to you!!! Penny :-) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 Putter? or Robbie?????? ;-) Penny Re: Stuff/Hello fjbgfk v Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 - does have fragile X and Sydney - - - does not? Or not tested? I ask because MY Syd's fragile-x test came up negative, but Madison's needed more of a blood sample. That said - I didn't bother and told them to forget it. I mean, twins and all, I figured if one is not, the other is not either? > Does anyone know, off of the top of your head, what the parental > income limit is for kids to receive ssi benefits? 20 something thousand dollars. In the low 20's if I recall. I think. On my other computer, I had a site bookmarked, but don't know it on this computer.... Good luck with the school!! I sure hope it doesn't come to a lawsuit. Grace Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 Grace, my understanding is that fragile X is a genetic disorder. Since your girls are not identical, their genes are not identical either. Fragile X is much more common among boys than girls. Janae , 9, ADD Jake, 6, autism Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2002 Report Share Posted February 22, 2002 > Grace, my understanding is that fragile X is a genetic disorder. Since your girls are not identical, their genes are not identical either. Fragile X is much more common among boys than girls. > > Janae > , 9, ADD > Jake, 6, autism > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 Janae, I know. But because it's a genetic disorder, and both girls <fraternal as they are> both have " autism " - - I would imagine that if one child is the " fragile x " type of autism, the other would also be. Unless I really strike gold and get the luck of the draw autism AND the genetic kind. Yippee. In the end, it doesn't really matter to me which it is. It would be just one more answer that I don't need as I don't plan to have any more in this or any other lifetime. Grace Re: Stuff/Hello > Grace, my understanding is that fragile X is a genetic disorder. Since your girls are not identical, their genes are not identical either. Fragile X is much more common among boys than girls. > > Janae > , 9, ADD > Jake, 6, autism > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2002 Report Share Posted February 24, 2002 Hi ! I don't know if finding out is positive for fragile X is a good or bad thing. At least it has a name and you can learn about what to do. I need to have both of mine retested since they have changed the testing technique since they were done years ago. It's also pretty definite that they have a genetic disorder, just not pinpointed. Good luck on the school placements. Sue ---------------------------------------------------- Sign Up for NetZero Platinum Today Only $9.95 per month! http://my.netzero.net/s/signup?r=platinum & refcd=PT97 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2002 Report Share Posted February 25, 2002 In a message dated 2/25/2002 1:34:58 PM Eastern Standard Time, aaron@... writes: > . We've been house shopping for 5 years now (considering that 1800' houses > are $350k right now)in our area and could use any little advantage we > can get! Holy crap! Where are you living CA? Our house is 1700 square feet on a quarter acre and we only paid 135,000. It's not perfect but at almost 50 years old there isn't anything wrong with it. I wish you the best of luck. G Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2002 Report Share Posted February 25, 2002 Hey all - Jacks, ASRD is " Autism Spectrum and Related Disorders " in our local alphabet soup speak. Our SELPA (Special Education Local Plan Area) refers us to that program, where got into a TEACCH class. All of these acronyms get a little silly, don't they? Sue (and a couple others), the positive test for Fragile-X is both good and bad. Yeah, good that it's an answer...a little bittersweet, though, because it may mean that some of the educational issues that have come up with him in class (math difficulties, visio-spacial problems with geometric shapes, etc) may turn out to be totally inaccessable to him, and probably Syd too, for his whole life. But it's not really a huge deal; a piece of paper certainly doesn't change who my little guys are. Just helps explain them a little better. As far as Syd, no he hasn't been tested...there's not much point, though we may eventually do it if it will help push paperwork through for stuff in the future. , I haven't been tested - no need to. This is a genetic mutation of the trinucleotide structure by the X chromosome...i.e., where Fragile-X appears in a male, it has to have come from the mother. To give a quick summary, it's not the gene itself that's damaged, but the surrounding junk. There's just too much of it, too many repetitions, and it causes a certain protein not to work. Usually the mother of a boy with Fragile-x will show a premutation with a repetition of 60 or so, and then it becomes exaggerated in the son. They generally feel that over 200 is where the trouble starts. The reason that it's much more common in boys, and why it's often more severe, is that girls have two X chromosomes, so the non-mutated one often produces the protein that the faulty one doesn't. The ssi question was for a friend of mine (she found out that, even though she barely makes it day-to-day she didn't qualify), but the Fannie Mae question was for myself...apparently, they have a mortgage program with lots of benefits for families with disabilities. We've been house shopping for 5 years now (considering that 1800' houses are $350k right now)in our area and could use any little advantage we can get! Hope you're all well (and I promise I still read the messages even if I don't have time to respond), Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2002 Report Share Posted February 25, 2002 > , I haven't been tested - no need to. This is a genetic mutation > of the trinucleotide structure by the X chromosome...i.e., where > Fragile-X appears in a male, it has to have come from the mother. How is your wife dealing with all this, ? I cannot imagine how I would feel. Big hugs to her, and to you. Grace Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2002 Report Share Posted February 25, 2002 We live in Glendora, about 25 miles ne of LA. Eurgh, I know, I know... > In a message dated 2/25/2002 1:34:58 PM Eastern Standard Time, > aaron@f... writes: > > > > . We've been house shopping for 5 years now (considering that 1800' houses > > are $350k right now)in our area and could use any little advantage we > > can get! > > Holy crap! Where are you living CA? Our house is 1700 square feet on a > quarter acre and we only paid 135,000. It's not perfect but at almost 50 > years old there isn't anything wrong with it. I wish you the best of luck. > > G > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2002 Report Share Posted February 25, 2002 She's got a great attitude; she knows that it's something totally out of her control anyway. I think she's relieved to not have to wonder if it was the glass of wine she had the night was conceived or the artichoke she at at 7 months or the pitocin or the difficult birth or a vaccine or... You get the idea. And she's having fun making fun of the fact that it may have come from her annoying, autie-ish dad...heh heh heh. Cheers, > How is your wife dealing with all this, ? > > I cannot imagine how I would feel. Big hugs to her, and to you. > > Grace Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 > , I haven't been tested - no need to. This is a genetic mutation of the trinucleotide structure by the X chromosome...i.e., where Fragile-X appears in a male, it has to have come from the mother. < you're right of course, sorry. it almost sounded like i was suggesting you have autistic tendencies. eh? Autism is not the end of the World. . . . just the beginning of a new one. - Sally Meyer Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 " the artichoke she at at 7 months " I am lost? Are you being sarcastic or should I not be eating artichokes? Jacquie H > > > How is your wife dealing with all this, ? > > > > I cannot imagine how I would feel. Big hugs to her, and to you. > > > > Grace Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2002 Report Share Posted February 26, 2002 > " the artichoke she at at 7 months " > I am lost? Are you being sarcastic or should I not be eating > artichokes? > Jacquie H Doesn't matter, Jacquie. His point was: it didn't mattter. ) (Just avoid salmon and tuna, if you can...) Grace Quote Link to comment Share on other sites More sharing options...
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