Wanda Re: To Ang, Mother of Ethan/Calgary

[Guest guest]

HI Ang

Thank you for keeping our project in mind! We are anxious to keep

our database current so when you and Ethan are all on the go email

me. In the meantime if you need any information that I can provide,

do not hesitate to contact me. That is what this is all about!

Take care

Wanda, mom to Kassidy, 11 months old on july 2

> > > Ang,

> > > Yay! Another Calgarian )

> > >

> > > >>>what is the name of the doctor who you were referred

> > > to, was s/he at the Children's Hospital, how much did it

cost,

> how

> > > long was your wait to get into the doctor? I think my

family

> > doctor

> > > said that she was referring us to Dr. Hamilton (I think).

Does

> > that

> > > ring a bell?<<<

> > >

> > > Back in Hanna's day we saw Dr. Hamilton. I know he's still

at

> the

> > hospital as a neuro/craniofacial surgeon, but I'm not sure if

he's

> > still doing plagio clinics. For Max we saw a Dr. nson

> > (pediatrician), and I know there is at least 1 other doctor

who

> sees

> > the plagio babies. A woman pediatrician, I think. Not sure

of

> her

> > name. The plagio clinics are held at the Children's Hospital.

> > >

> > > The cost of the band is NOTHING, as you are an Albertan.

Out of

> > province patients do pay, but we don't. A division of AHC

covers

> the

> > cost (which would likely be in the $5000 range, since the

$3500

> > figure is American). Whew, hey??

> > >

> > > You said Ethan is 3 months, right? It might take a while to

get

> > him in then. They don't generally start seeing the babies

until

> they

> > around 6 months old. Is his case severe? I would still

recommend

> > repositioning while you wait (of course), but if he is on the

> severe

> > end, you can try calling the clinic and asking for details

about

> when

> > they will be calling you in. I managed to get both Hanna &

Max in

> at

> > 5 months. Hanna was a severe case, and we had repositioned

her

> for 4

> > months with little to no change. Max was a big boy with

closing

> > fontanels, so at the time (with Max), I was worried that he

> wouldn't

> > be helped by the band if his fontanels were closed (not

true).

> > Anyway, my point is that they generally don't see the little

> babies.

> > If you are persistent, you might get in a bit before the 6

month

> > mark. Seems unfair, I know, but they are really busy there,

and

> it

> > also gives you time to give repositioning a fair chance, I

guess.

> > >

> > > Another thing you should know is that AHC only pays for so

many

> > bands per year. If your child is a severe case, you shouldn't

> have

> > to worry about getting one. If it's a moderate case, they may

be

> > reluctant to hand one over. That doesn't mean you WONT get

one.

> If

> > you do your homework and stand up for you baby and HIS well

being

> > (quote studies, ask if this Dr. can guarantee that the head

will

> > round on it's own, etc), they really can't say no to you

without

> > risking the potential of being sued in the future. I had to

fight

> > for Max, so I know it can be done.

> > >

> > > Sorry if I've scared you there! I just want you to be fully

> > informed about all of this. The one thing I can tell you is

that

> > these bands work!!!! Both Judy (occupational therapist) and

Lori

> > (physical therapist), who do the castings and adjustments for

the

> > bands, are both great! They know what they are doing and are

> > dedicated to giving these babies the best care possible. If

you

> have

> > any questions, they are there with the answers. If they are

> unsure,

> > they will track down the right information. They are a good

> team )

> > >

> > > If you call the clinic, you will likely talk to either

> or

> > Myrna. is very sweet and understanding. Myrna can

be a

> > bit gruff, but will take your concerns seriously.

> > >

> > > I hope I've been a bit of help here! I know that's a lot of

> info

> > to soak up! Let me know if you need anything else, kay!!

> > > Kendra

> > > mom to Hanna (DOC Grad /00) and Max (Banded April

10.......and

> > almost done!)

> > >

> > >

> > >

> > >

> > > Message: 24

> > > Date: Mon, 23 Jun 2003 02:41:10 -0000

> > > From: " angmwalker2003 " <angmwalker2003@y...>

> > > Subject: Kendra re: info in Calgary

> > >

> > > Hi Kendra!

> > > I, too, live in Calgary!!! I was so excited to get your

> message,

> > as

> > > it's nice to have someone close to home to relate to. I

would

> love

> > > it if you could be more specific in your efforts to get your

> kids

> > > banded, such as what is the name of the doctor who you were

> > referred

> > > to, was s/he at the Children's Hospital, how much did it

cost,

> how

> > > long was your wait to get into the doctor? I think my

family

> > doctor

> > > said that she was referring us to Dr. Hamilton (I think).

Does

> > that

> > > ring a bell?

> > >

> > > This is all so new to my husband and I, and we would LOVE to

> have

> > any

> > > information with regards to where to go and what to do!

This

> has

> > all

> > > happened so fast, but I want to get on it now so that we can

fix

> > this

> > > problem sooner rather than later. We will definitely make

the

> > > appointment with the specialist, and then go from there!

> > >

> > > Thanks so much for your words of encouragement and in

advance

> for

> > any

> > > other info. you can give us specific to our city!

> > >

> > > Ang

> > > mother of Ethan (3 months)

>

>

>